He aha ke kumu o kou ʻeha hope mau? (Axial Spondyloarthritis) E aʻo kākou e pili ana i ia mea!

Loaʻa iā ʻoe i kekahi manawa nā ʻeha a me nā ʻeha ma kou kua a i ʻole nā ​​​​pūhaka ʻaʻole e nalowale no nā mahina? Manaʻo ʻoe he ʻoʻoleʻa a paʻakikī hoʻi ke ala ʻoe i ke kakahiaka? Loaʻa pū kekahi iā ʻoe ka ʻeha hope e hoʻomaikaʻi pinepine ʻia me ka hoʻoikaika kino, akā e ʻoi aku ka ʻino ke hiamoe ʻoe a hoʻomaha paha i ka pō? ʻOiai ke manaʻo nei ʻoe he ʻeha kua wale nō kēia mau mea, he ʻeha, a he ʻūmiʻi paha, hiki ke lilo i mea hohonu. I kēia lā e kamaʻilio mākou e pili ana i ka axial spondyloarthritis , a i ʻole (axSpA) no ka pōkole, kahi ʻano paʻakikī iki, akā hiki ke hoʻomalu ʻia inā mālama pono ʻia.

He aha ka mea maoli o ka axial spondyloarthritis?

I ka ʻōlelo maʻalahi, ʻo ka axial spondyloarthritis (axSpA) he ʻano arthritis. Akā, ʻaʻole ia e like me ka ʻeha hui a mākou e lohe pinepine ai i ko mākou wā ʻelemakule. Hoʻopilikia kūikawā ia i ko mākou "axial skeleton." ʻO ia hoʻi, ʻo nā iwi ma waenakonu o ko mākou kino - nā ʻāpana nui e like me ka umauma, ka iwi kuamoʻo, a me nā pūhaka - ka mea i hoʻopilikia nui ʻia. Hoʻokumu ʻia kēia kūlana (axSpA) e kahi loli i ke ʻano o ka hana a kā mākou ʻōnaehana pale . I ka pololei, ʻo ka ʻōnaehana pale, ka mea i manaʻo ʻia e pale i ko mākou kino, hoʻomaka hewa i ka hoʻouka ʻana i ko mākou mau hono ponoʻī a me nā ʻiʻo palupalu. Kāhea mākou i kēia "inflammation." ʻO kēia mumū ke kumu o ka pehu ʻana o nā hono, ka ʻeha, a me ka hala ʻana o ka manawa, ka hōʻino ʻana o nā hono. (axSpA) he kūlana no kahi hui nui o nā maʻi i kapa ʻia ʻo spondyloarthritis . ʻO kahi hiʻohiʻona kūikawā o kēia hui o nā maʻi spondyloarthritis ʻo ia ka hiki iā lākou ke hoʻopilikia ʻaʻole wale i nā hono, akā i nā ʻōnaehana ʻē aʻe o ke kino. No ka laʻana, inā loaʻa iā ʻoe (axSpA), ma waho aʻe o ka ʻeha hope, hiki iā ʻoe ke ʻike i nā hōʻailona e like me ka mumū o nā maka (uveitis) a me ka diarrhea . ʻOiai ʻaʻole paha e pili kēia i ka ʻeha kua i ka nānā mua ʻana, hiki i kēia mau mea ke hana me (axSpA).

ʻO wai ka mea i ʻoi aku ka paʻakikī o ka loaʻa ʻana o kēia maʻi (axSpA)?

ʻOiaʻiʻo, hiki i kekahi ke loaʻa i ka axSpA. Akā he ʻano maʻi kakaikahi ia. Ua manaʻo ʻia he 1% wale nō o ka heluna kanaka o ka honua i loaʻa i kēia maʻi. He mea maʻamau kēia ʻano ma waena o ka poʻe ma lalo o 40 makahiki. Hoʻomaka pinepine nā hōʻailona e ʻike ʻia i kou mau ʻōpio a i ʻole nā ​​​​makahiki 20 mua . Hiki i nā kāne a me nā wahine ke loaʻa i kēia maʻi like.

Pehea ka hopena o ka axial spondyloarthritis (axSpA) i koʻu kino?

Inā ʻaʻole mālama pono ʻia ʻo axSpA, hiki i nā iwi o ka iwi kuamoʻo ke hoʻomaka e hui pū . ʻO kēia hui ʻana o nā iwi i kapa ʻia ʻo ankylosis i ka lāʻau lapaʻau.ʻO kēia ke kumu o ka nalowale ʻana o ke kūlou o ka iwi kuamoʻo, e paʻakikī ai ke mālama pololei i ka iwi kuamoʻo. Eia kekahi, hiki i kēia kūlana ke alakaʻi i kahi maʻi lahilahi o ka iwi i kapa ʻia ʻo osteoporosis i loko o ka iwi kuamoʻo. Hiki i kēia ke hoʻonāwaliwali i nā iwi i loko o ka iwi kuamoʻo, e hoʻonui ana i ka pilikia o ka haki ʻana o ka iwi kuamoʻo . E noʻonoʻo wale, hiki i kahi hāʻule liʻiliʻi ke haki i ka iwi i loko o ka iwi kuamoʻo.

He aha nā kumu o ka axSpA?

ʻOiai ʻaʻole i ʻike ʻia ke kumu kikoʻī o axSpA, ua manaʻo ʻia he holo ia i loko o nā ʻohana . Ua ʻike ʻia ka hoʻāʻo ʻana i ka genetic o nā poʻe he nui me axSpA he gene ko lākou i kapa ʻia ʻo HLA-B27 . Eia naʻe, ʻaʻole kēia manaʻo e loaʻa i nā mea āpau i loaʻa ka gene HLA-B27 ka axSpA. Eia kekahi, hiki i nā poʻe ʻaʻohe o lākou gene, a me ka poʻe ʻaʻohe mōʻaukala ʻohana o ka maʻi, ke loaʻa i ka axSpA. No laila, he mea paʻakikī iki kēia.

He aha nā hōʻailona o ka Axial Spondyloarthritis (Axial Spondyloarthritis)?

ʻO ka hōʻailona nui a maʻamau o axSpA ka ʻeha hope . Akā, ʻaʻole ia he ʻeha hope wale nō. Aia kekahi mau ʻano kikoʻī o kēia ʻeha:

• Mau loa: ʻO ke ʻano kēia e mau paha ka ʻeha no ʻekolu mahina a ʻoi.
• ʻAʻole i hana ʻia e kahi ʻeha a i ʻole ka pilikia mechanical: No ka laʻana, ʻaʻole ia he ʻeha i hana ʻia e kahi mea e like me ka paheʻe ʻana o ka disk a i ʻole ka ʻūlū ʻana o nā ʻiʻo.

Inā loaʻa iā ʻoe ka axSpA, hiki ke like kou ʻeha hope me kēia:

• Ke hoʻoikaika kino ʻoe a hoʻoneʻe i kou kino, e emi iki ana ia.
• Hoʻonui ka ʻeha i ka pō ke hiamoe ʻoe a hoʻomaha paha.
• Ke ala au i ke kakahiaka, ʻeha koʻu kua i ka ʻoʻoleʻa .
• Hohola ka ʻeha i ka ʻāpana ʻūhā a i ʻole ka puʻupuʻu.

ʻAʻole i kaupalena ʻia ka mumū i hoʻokumu ʻia e axSpA i ka iwi kuamoʻo. Hiki iā ia ke hoʻopilikia i nā ʻōnaehana ʻē aʻe o ke kino. Eia kekahi laʻana:

• Nā pilikia hoʻoheheʻe: E like me ka ʻeha o ka ʻōpū.
• Luhi .
• ʻO Enthesitis: Ka pehu ʻana, nā waihona calcium , a me nā iwi iwi ma nā wahi e hoʻopili ai nā aʻa a me nā ligaments i nā iwi.
• Dactylitis: Ka pehu piha ʻana o nā manamana lima a me nā manamana wāwae (e like me nā manamana wāwae sausage).
• He maʻi ʻili ka psoriasis .
• Ka mumū o nā maka, ʻoi aku hoʻi ka uveitis .

E noʻonoʻo, ua ʻeha kekahi kanaka ʻōpio i kapa ʻia ʻo Saman i ka ʻeha hope mai kona wā he 22 paha ona makahiki. I kona ala ʻana i ke kakahiaka, ʻaʻole hiki iā ia ke kūlou i kona kua. Ua manaʻo ʻo ia ua haki kona kuʻekuʻe wāwae i ka wā e pāʻani ana i ka cricket. Akā ua hala nā mahina a ʻaʻole i nalowale ka ʻeha. Ma hope mai, ua ʻike ʻo ia i ke kauka a ua aʻo e pili ana i kēia (axSpA). Ua ʻōlelo pū ʻo ia ma waho aʻe o kona ʻeha hope, ua lilo kona mau maka i ʻulaʻula a ʻeha i kekahi manawa.

Pehea e ʻike ʻia ai ka Axial Spondyloarthritis?

Ke ʻike ʻoe i ke kauka e pili ana i kou ʻeha kua, e nānā mua ʻo ia i kāu mau hōʻailona koʻikoʻi a hana i kahi hoʻokolokolo kino . Hiki i kēia mau mea ʻelua ke hāʻawi iā ʻoe i kahi manaʻo o kou olakino holoʻokoʻa. Eia kekahi, hiki i ke kauka ke hana i nā hoʻokolohua e like me:

• Nā hoʻāʻo koko : Hana ʻia nā hoʻāʻo koko e nānā i ke alo o ka gene HLA-B27 a e nānā i ka pae o ka protein C-reactive, e hōʻike ana inā he mumū i loko o ke kino.
• Nā hoʻāʻo kiʻi: Kōkua kēia mau hoʻāʻo e ʻike i ke kūlana o nā iwi i loko o kou iwi axial, e like me kou iwi kuamoʻo a me nā pūhaka.
• X-ray: Hiki i kahi X-ray o ka iwi kuamoʻo ke kōkua i ka ʻike ʻana i ka axSpA a i ʻole nā ​​pilikia iwi ʻē aʻe.
• MRI: Hiki i kēia ke kiʻi i nā kiʻi maopopo loa a kikoʻī. Hiki i nā MRI ke ʻike i nā mea e like me ka mumū ma ka iwi kuamoʻo ma mua o ka ʻike ʻia ʻana ma kahi X-ray.

I kekahi manawa, loaʻa paha iā ʻoe nā hōʻailona o ka axSpA (e like me ka ʻeha o ke kua), akā ʻaʻole ʻike ʻia ka mumū maopopo ma nā hoʻokolohua kiʻi (X-ray a i ʻole MRI). Eia nō naʻe, hiki i nā kauka ke kapa iā ʻoe he "non-radiographic axSpA ." ʻO ke ʻano o "Non-radiographic" ʻaʻole ia e ʻike ʻia ma nā hoʻokolohua kiʻi. Hiki i kekahi poʻe me kēia "non-radiographic axSpA" ke ʻoi aku ka ʻino o ko lākou kūlana i ka hala ʻana o ka manawa a ʻike ʻia ma hope ma kahi X-ray a i ʻole MRI. Akā i ka hapanui o nā hihia, ʻaʻole paha e like ka ʻino o ke kūlana me ka mea i ʻike ʻia ma nā hoʻokolohua kiʻi.

Pehea e mālama ʻia ai ka Axial Spondyloarthritis?

ʻO ka mea pōʻino, ʻaʻohe lāʻau lapaʻau no axSpA. Eia nō naʻe, me ka mālama kūpono, hiki ke hoʻomalu ʻia nā hōʻailona a hiki ke hoʻomaikaʻi ʻia ke ʻano o ke ola . ʻO nā lāʻau lapaʻau āu e loaʻa ai e komo pū paha me:

• Nā lāʻau anti-inflammatory nonsteroidal (NSAIDS):ʻO kēia nā lāʻau lapaʻau ma luna o ke kūʻai aku (OTC) hiki iā ʻoe ke kūʻai ma kahi hale kūʻai lāʻau me ke kauoha ʻole. Hoʻomaha lākou i ka ʻeha a hoʻemi i ka mumū. ʻO nā lāʻau lapaʻau i hoʻohana pinepine ʻia ʻo aspirin, ibuprofen, a me ka naproxen sodium .
• Hoʻōla kino: Hiki i kāu kauka ke kuhikuhi iā ʻoe i kahi mea hoʻōla kino, nāna e aʻo iā ʻoe i nā hoʻomaʻamaʻa kikoʻī i kūpono i kāu mau pono. Hiki i ka hoʻōla kino ke kōkua i ka hōʻemi ʻana i ka ʻeha a hoʻonui i ka maʻalahi a me ka ikaika.
• Nā inikini steroid: He papa lāʻau ikaika nā Corticosteroids e hakakā ana i ka ʻeha a me ka mumū. Inā loaʻa iā ʻoe ka ʻeha nui a i ʻole ka pehu ʻana ma kahi kikoʻī o kou kino, hiki i kahi inikini steroid i loko o ia wahi ke hāʻawi i ka hōʻoluʻolu.
• Nā lāʻau lapaʻau anti-rheumatic hoʻololi maʻi (DMARDs): Inā ʻaʻole kōkua nui nā lāʻau ʻē aʻe iā ʻoe, hiki ke hoʻohana ʻia kahi papa o nā lāʻau i kapa ʻia ʻo nā lāʻau lapaʻau anti-rheumatic hoʻololi maʻi (DMARDs). Hoʻemi kēia i ka ʻeha a me ka pehu ʻana o nā hono. Kōkua pū lākou i ka pale ʻana i ka hōʻino ʻana o nā hono i ka wā e hiki mai ana.
• ʻO nā mea olaola: He ʻano lāʻau lapaʻau kūikawā kēia e pili ana hoʻi i ka māhele DMARDs. Hoʻopili pololei lākou i kāu ʻōnaehana pale a kōkua i ka kaohi ʻana i ka mumū. ʻOiai hiki i kēia mau mea olaola ke lilo i mea maikaʻi loa, hiki iā lākou ke hana i kekahi mau hopena ʻaoʻao, e like me ka hoʻonui ʻia o ka pilikia o nā maʻi. No laila, pono e hoʻohana wale ʻia ma lalo o ke aʻo ʻana a ke kauka.

Hiki ke pale ʻia kēia maʻi (Axial Spondyloarthritis)?

ʻO kaʻoiaʻiʻo, ʻaʻohe ala i ʻike ʻia e pale aku ai i ka axSpA. Eia kekahi, ʻaʻole ia i hana ʻia e nā ʻeha kua.

Pehea e ʻike ai au inā pilikia wau i ka loaʻa ʻana o kēia?

Inā loaʻa i kou mau mākua a i ʻole nā ​​kaikaina ka axSpA, ʻoi aku ka nui o kou pilikia o ka loaʻa ʻana o ke ʻano. Eia nō naʻe, ʻaʻole maopopo e loaʻa iā ʻoe ka axSpA no ka mea wale nō i loaʻa i kekahi o kou ʻohana ia mea a i ʻole he gene HLA-B27.

He aha ka mea e hiki mai ana no ka poʻe me Axial Spondyloarthritis?

E like me ka mea i ʻōlelo ʻia ma mua, ʻaʻole hiki ke ho'ōla loa ʻia ka axSpA. Inā loaʻa iā ʻoe ka axSpA, hiki i kāu mau hōʻailona ke hele mai a hele aku i kekahi manawa. A i ʻole e mau ana paha. Eia nō naʻe, inā mālama pono ʻia, hiki i ka poʻe me ke ʻano ke ola lōʻihi a hauʻoli. ʻO ka mea nui loa, ʻo ia ke hana pū me kāu kauka e mālama i kāu mau hōʻailona a noho olakino e like me ka hiki.

Pehea wau e mālama ai iaʻu iho?

Aia kekahi mau mea hiki iā ʻoe ke hana e mālama i kou olakino a mālama i kāu mau hōʻailona o axSpA:

• E ʻike i kāu kauka ma kāu mau manawa i hoʻonohonoho ʻia. Inā pili kāu hoʻolālā lapaʻau i ka hoʻōla kino, e hōʻoia e hele pū i kēlā.
• E hoʻohana i ka lāʻau lapaʻau e like me ke kauoha a ke kauka.
• Mai puhi paka. Inā ʻoe e puhi paka, e kiʻi i ke kōkua e haʻalele. Hiki i ka puhi paka ke hoʻonui i ka mumū a hoʻonui i ka axSpA, kahi e hōʻino ai i ke olakino o ka iwi.
• E hana i nā hoʻoikaika kino māmā, e like me ka hele wāwae, i nā manawa a pau. Kōkua ka hoʻoikaika kino i ka mālama ʻana i kou mau iwi a me nā hono i ke olakino. Hiki iā ia ke kōkua i ka kaohi ʻana i ka holomua o ka axSpA a hoʻonui i ka maʻalahi o kou iwi kuamoʻo.
• E ʻai i ka meaʻai olakino i waiwai i nā huaʻai a me nā mea kanu. Kōkua kēia i ke kaua ʻana i ka mumū.

Āhea wau e ʻike ai i ke kauka?

Inā ʻike ʻoe i kekahi o kēia mau hōʻailona, ​​e ʻike koke i kāu kauka:

• Inā hoʻoulu ka lāʻau āu e lawe nei i nā hopena ʻaoʻao i makemake ʻole ʻia .
• Inā ʻike ʻia e ʻoi aku ka ʻino o kāu mau hōʻailona .
• Inā manaʻo ʻoe ʻaʻole kōkua nā lāʻau lapaʻau o kēia manawa.

He aha ka ʻokoʻa ma waena o (Axial Spondyloarthritis) a me (Ankylosing Spondylitis)?

ʻO ka Ankylosing spondylitis kekahi ʻano o ka axial spondyloarthritis (axSpA) . Hoʻopilikia nui ka Ankylosing spondylitis i nā hono sacroiliac , ʻo ia nā hono kahi e pili ai kou iwi kuamoʻo haʻahaʻa i kou mau pūhaka. Eia nō naʻe, hiki i ka axSpA ke hoʻopilikia i ka umauma a i ʻole nā ​​​​​​ʻāpana ʻē aʻe o kou iwi kuamoʻo. Aia kekahi mau kūlana ʻē aʻe e hāʻule ana i loko o ka māhele spondyloarthritis:

• ʻO ka spondyloarthritis peripheral: Hoʻopilikia pinepine kēia i nā hono i kou mau lima a me kou mau wāwae.
• ʻO ka maʻi ʻili Psoriatic: He ʻano maʻi ʻili e pili ana i ka maʻi ʻili psoriasis.
• ʻO ka maʻi ʻāʻī: He ʻano maʻi ʻāʻī kakaikahi i hoʻokumu ʻia e kahi maʻi bacteria.
• ʻO ka maʻi ʻōpū mumū (IBD) -e pili ana i ka maʻi ʻaʻai: ʻIke pinepine ʻia i nā poʻe me nā maʻi e like me ka maʻi a Crohn a me ka colitis ulcerative.

Leka Lawe-Home

Hiki ke paʻakikī ke noho me ka ankylosing spondylitis (axSpA). Akā e hoʻomanaʻo, he nui ka poʻe me kēia maʻi e hoʻokele maikaʻi iā ia a ola lōʻihi a olakino. Hiki iā ʻoe ke kōkua i ka hoʻokele ʻana i kou maʻi ma ka ʻike pinepine ʻana i kāu kauka a me ka mālama ʻana i kou olakino holoʻokoʻa. He mea kōkua nō hoʻi ke komo ʻana i nā hui kākoʻo no ka poʻe me ka ankylosing spondylitis (axSpA) a me ka spondyloarthritis. Hiki i kēia mau hui ke kōkua iā ʻoe e kamaʻilio me ka poʻe e hoʻomaopopo i kou mau manaʻo a ʻike i nā pilikia āu e kū nei.

No laila, inā loaʻa iā ʻoe nā hōʻailona e like me ka ʻeha mau o ke kua a me ka ʻoʻoleʻa o ke kakahiaka, ʻoi aku ka maikaʻi o ke kipa ʻana i ke kauka a ʻike pono i ke ʻano o ka pilikia me ka nānā ʻole ʻana. Inā ʻike mua ʻoe a hoʻomaka i ka mālama ʻana, hiki iā ʻoe ke ola i kahi ola maʻamau.

ʻO ka spondyloarthritis axial, ʻeha hope, mumū o nā hono, HLA-B27, arthritis, spondyloarthritis, ankylosing spondylitis