Ke huki ʻia nei kou ʻāʻī ma ke ʻano makemake ʻole ʻia? E aʻo kākou e pili ana i (Cervical Dystonia)!

Ke manaʻo nei ʻoe i kekahi manawa i kahi ʻoʻoleʻa ʻē i kou ʻāʻī, he ʻeha, a huki ʻia kou poʻo i kekahi ʻaoʻao? A i ʻole ke ʻoni koke nei nā ʻiʻo o kou ʻāʻī, e hoʻoluliluli ana i kou poʻo me ke kāohi ʻole? ʻAʻole paha kēia he ʻeha ʻāʻī wale nō. I kēia lā e kamaʻilio mākou e pili ana i kahi kūlana neurological e pili ana i ka ʻāʻī āu i lohe ʻole ai, akā hiki ke hoʻopilikia i kekahi poʻe. ʻO kēia ka mea a nā kauka e kapa nei he `(Cervical Dystonia)`.

He aha ka Cervical Dystonia?

I ka ʻōlelo maʻalahi, ʻo ka cervical dystonia kahi maʻi neurological kahi e ʻūlū ai nā ʻiʻo o ka ʻāʻī me ke kāohi ʻole ʻia ma muli o kahi pilikia i loko o ko mākou lolo a me ka ʻōnaehana nerve. Me he mea lā e lilo ana nā ʻiʻo o ka ʻāʻī i mea kolohe a hula i kā lākou mele ponoʻī.

Ke ʻūmiʻi kēia mau ʻiʻo, lilo lākou i paʻa ma kahi o ka hoʻomaha ʻana. Hiki i kēia ke hoʻololi i kou kūlana. Hiki i kou poʻo a me kou ʻāʻī ke hoʻomaka e neʻe ma ke ʻano ʻē, me he mea lā e ʻūmiʻi koke ana a e ʻūlū ana paha. Hiki i kēia ke lilo i mea ʻeha loa a hiki ke hoʻopilikia i kou hiki ke hana i nā hana o kēlā me kēia lā.

ʻO ka dystonia cervical kekahi o kahi hui nui o nā kūlana i kapa ʻia ʻo "Focal Dystonia." ʻO Focal Dystonia e pili ana i nā kūlana e hoʻoulu ai i nā ʻiʻo spasms ma hoʻokahi wale nō ʻāpana o ke kino. I kekahi manawa hiki i kāu kauka ke kapa iā ia he "Spasmodic Torticollis." ʻOiai ua kapa ʻia ʻo ia ma ʻelua a ʻekolu paha mau inoa, ʻo ia ke kūlana like.

Aia kekahi mau ʻano nui o ka dystonia cervical?

ʻAe, hiki ke ʻike ʻia ʻelua ʻano nui. Ua hoʻokaʻawale ʻia kēia mau ʻano ʻelua ma muli o ke kumu o kēia:

1. ʻO ka dystonia cervical mua: I kēia hihia , ʻaʻole ʻike ʻia ke kumu kikoʻī o ka maʻi. He kūlana ia e kū wale mai ana.

2. ʻO ka dystonia cervical lua: I kēia hihia, hiki ke ʻike ʻia ke kumu. ʻO ke ʻano kēia hiki ke hana ʻia e kekahi maʻi ʻē aʻe, kahi hopena ʻaoʻao o ka lāʻau lapaʻau, a i ʻole kahi ulia.

Pehea ka maʻamau o kēia ʻano?

ʻO ka cervical dystonia kekahi o nā maʻi maʻamau i ka māhele "Focal Dystonia". Ua manaʻo ʻia he kokoke i 60,000 mau kānaka ma ʻAmelika Hui Pū ʻIa wale nō e ʻeha nei i kēia maʻi. Aia paha kekahi mau maʻi ma Sri Lanka, a malia paha he haʻahaʻa nā helu helu ma muli o ka hemahema o ka ʻike ʻana.

He aha nā hōʻailona o ka dystonia cervical?

Hoʻoulu kēia ʻano i nā neʻe ʻana hiki ʻole iā ʻoe ke kaohi. ʻO nā hōʻailona nui:

• ʻO ke kuʻi ʻana o nā ʻiʻo: Lilo koke nā ʻiʻo ma ka ʻāʻī i paʻa, e like me nā pōhaku, a ʻaʻole hiki ke hoʻomaha. I kekahi manawa e like paha nā ʻiʻo me he mea lā e neʻe ana a e neʻe ana paha.
• Nā haʻalulu: Ka haʻalulu hiki ʻole ke kāohi ʻia o nā ʻāpana o ke kino, e like me nā lima a me nā wāwae. Hiki ke hana ʻia kēia haʻalulu ma ka ʻāʻī.

Hiki i kēia mau neʻe ʻana i kāohi ʻole ʻia ke hoʻololi i kou kūlana. ʻO ke kūlana ke ʻano āu e paʻa ai i kou kino ke kū ʻoe a noho paha. Hiki i ka dystonia cervical ke hoʻololi i kēia mau loli i ke kūlana:

• Ke hoʻohuli nei i kou poʻo: Hiki paha ke huli kou poʻo i kekahi ʻaoʻao me ka ʻike ʻole.
• Ke kīloi ʻana i ke poʻo i mua, i hope, a i ʻole i ka ʻaoʻao: Me he mea lā ua kīloi ʻia ke poʻo i kekahi ʻaoʻao.
• Ke kulou ʻana i ka ʻāʻī a me ke poʻo i mua, i hope, a i ʻole i nā ʻaoʻao: Lilo i mea paʻakikī ke mālama pololei i ka ʻāʻī.

Hiki i kēia mau neʻe ʻana ke hana i ka ʻeha ma nā poʻohiwi a me ka ʻāʻī, hiki ke hele pū me ka mumū . Loaʻa pū kekahi poʻe i ka ʻeha poʻo . E noʻonoʻo i ka paʻakikī o ka hana ʻana i kāu hana o kēlā me kēia lā me kahi mea e like me kēia.

No ke aha e hana ai ka dystonia cervical?

ʻO kaʻoiaʻiʻo, ʻaʻole maopopo i nā kauka ke kumu pololei o ka dystonia cervical i kēlā me kēia maʻi. Akā, hōʻike ka noiʻi ua hana ʻia ia e kahi hana pono ʻole ma kahi ʻāpana o ko mākou lolo i kapa ʻia ʻo "Basal Ganglia" . ʻO kēia ʻāpana o ka "Basal Ganglia" ke kaohi i ka neʻe ʻana o ko mākou mau ʻiʻo. Ke loaʻa kahi pilikia ma laila, hoʻouna ʻia nā hōʻailona hewa i nā ʻiʻo ma ka ʻāʻī, e hana pono ʻole ai lākou.

Hiki ke hana ʻia ka dystonia cervical lua e nā kumu aʻe:

• Ma ke ʻano he hopena ʻaoʻao o kekahi mau lāʻau lapaʻau noʻonoʻo .
• Ma muli o nā ʻeha koʻikoʻi i ka lolo (Traumatic brain injury) .
• Me nā maʻi neurological ʻē aʻe, e like me ka maʻi o Parkinson .
• ʻO nā hoʻololi genetic i loko o nā genes i kapa ʻia ʻo `GNAL`, `THAP1`, `CIZ1` a i ʻole `ANO3`. He ʻoi aku ka paʻakikī o kēia mau mea, akā hiki nō.

ʻO wai ka mea i ʻoi aku ka pilikia o ka loaʻa ʻana o kēia maʻi?

ʻOiai hiki ke ulu kēia ʻano i kēlā me kēia makahiki, ʻoi aku ka nui o ka pilikia o kekahi poʻe:

• Inā ua loaʻa i kekahi o kou ʻohana kēia maʻi ma mua (aia paha kahi loulou genetic).
• Inā ʻoe e lawe nei i nā lāʻau lapaʻau i kapa ʻia ʻo `(Dopamine antagonists)` a i ʻole `(Antipsychotics)`.
• Inā ua loaʻa iā ʻoe kahi ʻeha o ka lolo.

ʻOi aku ka maʻamau o kēia maʻi i waena o nā wahine a me nā poʻe ma waena o 30 a me 60 mau makahiki. Akā, ʻaʻole ia manaʻo ʻaʻole hiki i nā poʻe ʻē aʻe ke loaʻa.

He aha nā pilikia e hiki mai ana mai ka dystonia cervical?

Hiki i kēia mau hōʻailona ke hoʻopilikia nui i kou ola o kēlā me kēia lā. Hiki iā ia ke paʻakikī i ka hana ʻana i kekahi mau hana. ʻO ka ʻeha, ka haʻalulu, a me ka ʻūlū ʻana o nā ʻiʻo e hiki ke paʻakikī i ka hoʻoneʻe pono ʻana i kou ʻāʻī, ka ʻauwae, nā lima, a me ke kino. Hiki iā ia ke hoʻolilo i nā mea e like me ke kamaʻilio ʻana, ka moni ʻana, a me ka hoʻonohonoho kino ʻana i mea paʻakikī.

I kekahi mau hihia koʻikoʻi, ʻike paha ʻoe iā ʻoe iho ʻaʻole hiki ke hana i nā hana maʻalahi āu i hiki ai ke hana maʻalahi, e like me ke kāwili ʻana i kou lauoho a i ʻole ka palaki ʻana i kou mau niho. Hiki i kēia ke lilo i mea hoʻoluhi nui.

Inā ʻaʻole mālama ʻia, hiki i kēia ʻano ke hoʻoulu i ka ʻeha a me nā ʻūlū ʻiʻo (dystonia) ma nā wahi ʻē aʻe o ke kino ma waho aʻe o ka ʻāʻī . No laila, he mea nui loa e ʻimi koke i ke kōkua lapaʻau inā loaʻa iā ʻoe nā hōʻailona.

Pehea e ʻike ʻia ai kēia maʻi?

E nānā ke kauka iā ʻoe a nīnau e pili ana i kāu mau hōʻailona e hoʻoholo ai inā loaʻa iā ʻoe kēia maʻi. E nīnau pū lākou e pili ana i kou mōʻaukala olakino a me ka mōʻaukala olakino ʻohana . ʻO ia hoʻi ke ʻimi ʻana inā ua loaʻa i kekahi o kou ʻohana kēia maʻi.

ʻAʻole pono nā kānaka a pau i nā hoʻokolohua e like me ka MRI scan a i ʻole ka electromyography (nāna e ana i ka hana uila o nā olonā ʻiʻo). Eia nō naʻe, hiki i ke kauka ke kauoha i kēia mau hoʻokolohua inā manaʻo lākou ua ʻeha ke kaula spinal a i ʻole ka hōʻino ʻana o ke aʻalolo .

He aha nā lāʻau lapaʻau no ka dystonia cervical?

Aia nā ʻano lapaʻau like ʻole no kēia. ʻAʻole pono nā lapaʻau āpau no nā kānaka a pau. Pono paha ʻoe e hoʻāʻo i kekahi mau lapaʻau e ʻike i ka mea kūpono loa iā ʻoe.

ʻO ke ʻano nui o kēia mau ʻano lapaʻau:

• Nā inikini toxin botulinum: ʻO kēia nā inikini i hāʻawi ʻia i nā ʻiʻo o ka ʻāʻī i hoʻopilikia ʻia.
• Nā lāʻau lapaʻau waha: Nā lāʻau lapaʻau i hāʻawi ʻia e hōʻemi i ka ʻeha a hoʻomāmā i nā ʻiʻo spasms.
• Hoʻōla kino: E hoʻoikaika i nā mākala ma ka ʻāʻī a hoʻomaikaʻi i ka neʻe ʻana ma o nā hoʻomaʻamaʻa kino a me nā ʻano hana ʻē aʻe.
• ʻO ke ʻoki hoʻoulu hohonu o ka lolo: He ʻoki paʻakikī kēia ʻaʻole pono no nā mea āpau a hana ʻia i nā hihia kūikawā.

Ua ʻike pū kekahi poʻe he mea kōkua ka paʻa ʻana i ko lākou ʻauwae a i ʻole ke kau ʻana i kahi mea kākoʻo ʻāʻī a i ʻole ke kola cervical i ka hōʻoluʻolu ʻana i ko lākou mau hōʻailona . Ua kapa ʻia kēia mau mea he mau hana sensory.

ʻO ka mea nui loa, ʻo ia ke hana pū me kāu kauka e ʻimi i ka lāʻau lapaʻau kūpono iā ʻoe.

Pehea e hana ai ka lāʻau lapaʻau me ka toxin botulinum?

Ua lohe ka poʻe he nui i ka inoa ʻo `(Botox®)`. He inoa kālepa ia no `(Botulinum toxin serotype A)`. Pēlā nō, hoʻohana ʻia ʻo `(Botulinum toxin type B)` e mālama i ka dystonia cervical.

ʻO ka hana a kēia `(Botulinum toxin) ʻo ia ka hoʻonāwaliwali i ka hana o nā ʻiʻo ʻāʻī i hoʻopilikia ʻia (nā ʻiʻo ʻāʻī dystonic). A laila, e pau kēlā mau ʻiʻo i ka ʻaelike pono ʻole.

Hoʻokomo ke kauka i kēia lāʻau lapaʻau i loko o nā ʻiʻo kūpono i kou ʻāʻī. Hiki ke hala ma kahi o hoʻokahi pule e ʻike ai i nā hopena o ka lāʻau lapaʻau. Eia nō naʻe, ʻo ka hopena o kēia lāʻau lapaʻau e mau ana no ʻelua a ʻekolu mahina.Ma hope o kēlā manawa, hiki ke ʻike hou ʻia nā hōʻailona, ​​​​no laila pono paha e hana hou ʻia nā lāʻau pale e kaohi i nā hōʻailona.

ʻO nā hopena ʻaoʻao o kēia lāʻau lapaʻau e komo pū paha:

• Paʻakikī ke ale ʻana
• ʻEha ma kahi i hoʻokomo ʻia
• Manaʻo o ka nāwaliwali ma ka ʻāʻī

ʻAʻole hiki i nā kānaka a pau ke hana i kēia mau mea, akā he mea maikaʻi ke ʻike he hiki ke hana ʻia.

He aha nā lāʻau ʻē aʻe i hāʻawi ʻia no ka dystonia cervical?

Hoʻohana pinepine ʻia nā ʻano ma lalo nei e like me nā lāʻau lapaʻau waha:

• Nā mea hana dopaminergic (e.g. Levodopa)
• Nā mea hana Anticholinergic (e like me Benztropine, Trihexyphenidyl)
• ʻO Baclofen
• ʻO Clonazepam

Hiki i kēia mau lāʻau lapaʻau ke hana i nā hopena ʻaoʻao e like me nā pilikia hoʻomanaʻo a me ka luhi . No laila, he mea nui e kūkākūkā i kēia mau mea āpau me kāu kauka a koho i ka lāʻau lapaʻau kūpono loa iā ʻoe.

He aha ka manaʻolana no ka dystonia cervical?

He maʻi no ke ola holoʻokoʻa ka cervical dystonia. Eia naʻe, ʻaʻole ia e hoʻopilikia i kou ola. I kekahi manawa e ʻoi aku ka ʻino o nā hōʻailona i ka hala ʻana o ka manawa, a i ʻole e pae mau paha.

ʻO ka mea maikaʻi loa, me ka mālama kūpono, hiki iā ʻoe a me kāu kauka ke hoʻokele i kēia mau hōʻailona, ​​​​i hiki iā ʻoe ke hoʻi i ka hana ʻana i nā mea āu e aloha ai me ka pilikia ʻole.

Hiki ke ho'ōla loa ʻia ka dystonia cervical me ka `(Botox)`?

ʻAʻole. ʻAʻohe lāʻau lapaʻau piha no ka dystonia cervical i kēia manawa. Hiki i ka toxin Botulinum (Botox) ke kāohi wale i nā hōʻailona no kekahi manawa, ʻaʻole ia he lāʻau lapaʻau.

Aia kekahi ala e pale aku ai i ka dystonia cervical?

ʻO ka mea pōʻino, ʻaʻohe ala i ʻike ʻia e pale aku ai i ka ulu ʻana o kēia maʻi i kēia manawa.

Āhea wau e ʻike ai i ke kauka?

E ʻike i ke kauka inā ʻike ʻoe i kekahi o kēia mau mea:

• Inā manaʻo ʻoe e ʻūlū ana a ʻūmiʻi paha ka ʻiʻo o kou ʻāʻī.
• Inā ua ʻike mua ʻia ʻoe me ka dystonia cervical a ke kumu nei ka lāʻau i nā hopena ʻaoʻao a inā e ʻoi aku ka ʻino o nā hōʻailona.

He mea nui loa ka ʻimi koke ʻana i ke kōkua lapaʻau i nā manawa e like me kēia.

He aha kaʻu e nīnau aku ai i kaʻu kauka?

Ke hele ʻoe e ʻike i ke kauka, hiki iā ʻoe ke nīnau i nā nīnau e like me:

• Inā ua loaʻa i kekahi o koʻu ʻohana kēia maʻi, aia anei iaʻu ka pilikia o ka loaʻa ʻana pū kekahi?
• He aha ka lāʻau lapaʻau āu e paipai mai ai iaʻu?
• Aia kekahi mau hopena ʻaoʻao o ka lāʻau lapaʻau?
• E pono anei iaʻu ke ʻoki kino?

Ma waho aʻe o kēia mau nīnau, e nīnau i kāu kauka i nā kānalua a i ʻole nā ​​nīnau āu e loaʻa ai.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

Hiki i ka cervical dystonia ke lilo i mea ʻoluʻolu ʻole a ʻeha hoʻi. No ka mea, ʻaʻole hiki i nā ʻiʻo o kou ʻāʻī ke hoʻomaha, neʻe kou poʻo me ka manaʻo ʻole. Hiki i kēia ke paʻakikī i ka hana ʻana i nā mea āu i hauʻoli ai, a hiki iā ia ke paʻakikī i ka hana ʻana i nā hana o kēlā me kēia lā.

Akā e hoʻomanaʻo, ʻaʻole ʻoe hoʻokahi. Aia nā lāʻau lapaʻau no kēia. Hiki i kāu kauka ke kōkua iā ʻoe e ʻike i ka lāʻau lapaʻau maikaʻi loa no kāu mau hōʻailona. A laila hiki iā ʻoe ke ola hou. No laila inā loaʻa iā ʻoe nā hōʻailona, ​​​​mai makaʻu e ʻike i ke kauka.

Manaʻolana wau he mea pono kēia ʻike iā ʻoe. E ola kino!

ʻO ka Cervical Dystonia, Spasmodic Torticollis, ʻEha ʻāʻī, Neuropathy, ʻUmiʻumi ʻiʻo, Botox, Lapaʻau