He mea hauʻoli nui ka loaʻa ʻana o kahi pēpē hou i loko o ka ʻohana. I ka manawa like, manaʻo ka makuahine a makua paha i kahi kuleana nui a i kekahi manawa he hopohopo iki e pili ana i nā mea liʻiliʻi loa. Mālama mākou a pau i ka maikaʻi o nā mea a pau me ka pēpē a inā he olakino ʻo ia. No laila, i kekahi manawa nānā ke kauka i ka pēpē a haʻi iā ia e pili ana i kahi loli liʻiliʻi i hānau ʻia me ia, a he mea maʻamau ke manaʻo i kahi kaumaha nui ma ka puʻuwai. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi kakaikahi loa, akā hiki ke ho'ōla loa ʻia me ka mālama ʻana. ʻO ia ʻo Epispadias.
I ka ʻōlelo maʻalahi, he aha ʻo Epispadias?
He kīnā hānau laha ʻole ʻo Epispadias. Hoʻopilikia ia i ka ʻōmole e lawe ana i ka mimi i waho o ke kino. Kapa mākou ia he urethra. I ka ʻōlelo maʻalahi, ʻo ia ka ʻōmole e lawe ana i ka mimi mai ko mākou ʻōpū mimi i waho o ke kino. I loko o kahi pēpē me nā epispadias, ʻaʻole i ulu piha kēia urethra.
ʻOiai ʻoi aku ka maʻamau o kēia ʻano i nā keikikāne, hiki ke loaʻa pinepine i nā kaikamahine. Akā, mai hopohopo, hiki ke hoʻoponopono piha ʻia kēia ma o ke ʻoki ʻana e nā urologists pediatric, nāna i loea i nā maʻi e pili ana i ka ʻōnaehana urinary i nā keiki.
ʻIke pinepine ʻia nā epispadias me kekahi kīnā hānau ʻē aʻe i kapa ʻia ʻo Bladder Exstrophy. He ʻano kakaikahi loa kēia kahi e waiho ai ka ʻōpū mimi o ke pēpē ma waho o ka ʻōpū ma kahi o loko.
Pehea ka hopena o Epispadias i kahi keiki kāne?
Inā loaʻa i ke keikikāne kēia maʻi, ʻokoʻa iki paha ke ʻano o kona mau ʻōpū. ʻO nā hōʻailona maʻamau:
- Penis pōkole a ākea: Hiki i ka peni ke lilo i pōkole a ākea iki, a hiki ke kūlou i luna (dorsal chordee).
- ʻO ke koʻikoʻi o ka urethral: ʻO ka maʻamau, aia ka urethral meatus ma ka piko o ka penis. Eia nō naʻe, i kēia mau keiki, aia ka meatus ma kahi ma luna o ka penis. I kekahi manawa, aia paha kahi lua lōʻihi mai ka meatus a i ka piko o ka penis.
Nā ʻano o Epispadias i nā keikikāne
Hoʻokaʻawale nā kauka i kēia kūlana i kekahi mau ʻano ma muli o kahi kikoʻī o ka urethral meatus. ʻO kēia no ka mea ʻo ke kokoke ʻana o ka meatus i ke kumu o ka penis hiki ke hoʻopilikia i ka hiki o ka ʻōpū mimi ke paʻa i ka mimi. E nānā pono kākou i ka papa ma lalo.
| ʻAno o nā Epispadias | He wehewehe maʻalahi |
|---|---|
| Nā epispadias glanular | ʻO kēia ke ʻano maʻamau. Maanei, aia ka puka urethral ma luna o ka glans penis (ke poʻo o ka penis). |
| Nā epispadias penile | Maanei, aia ka puka urethral ma kekahi wahi ma ke kumu o ka penis. |
| Nā epispadia penopubic | He ʻano paʻakikī iki kēia. Aia ka puka urethral ma kahi kokoke i ka iwi pubic. No ka mea ʻaʻole i hui pono ʻia nā iwi pelvic ʻelua o kēia mau keiki, ʻaʻole hiki i ka ʻiʻo sphincter e hoʻomalu ana i ka mimi ke pani piha. |
Pehea ka hopena o Epispadias i kahi kaikamahine?
He mea kākaʻikahi loa kēia ʻano i nā kaikamahine, akā inā loaʻa, eia nā hōʻailona āu e ʻike ai:
- Aia paha ka puka o ka urethral ma ka ʻaoʻao o ka clitoris a i kekahi manawa ma ka ʻōpū lalo.
- Ma muli o ka mamao loa o nā iwi pubic, hiki ke hoʻokaʻawale ʻia ka vagina i ʻelua ʻāpana a ʻaʻole i hui pū ʻia ma waenakonu.
- Hiki ke ʻike ʻia ka labia ʻaʻole i ulu pono.
- Hiki ke loaʻa nā pilikia me ka ʻāʻī o ka ʻōpū mimi, kahi e hiki ai ke pilikia i ka kaohi ʻana i ka mimi.
He aha ka ʻokoʻa ma waena o Epispadias a me Hypospadias?
ʻOkoʻa paha ke kani ʻana o kēia mau inoa ʻelua. He mau kīnā hānau ʻelua i loaʻa i loko o ke ala mimi. ʻO ka ʻokoʻa ma kahi o ka puka urethral. ʻO Epi ke ʻano "ma luna. " ʻO Hypo ke ʻano "ma lalo."
| ʻAno | Nā ʻEpispadia | Nā Hypospadias |
|---|---|---|
| Kahi o ka puka o ka urethral | Ma kekahi wahi ma luna o ka penis. | Ma kekahi wahi ma lalo o ka penis. |
| ʻO wai ka mea i hoʻopilikia ʻia? | ʻOi aku ka maʻamau i nā keikikāne, akā hiki ke loaʻa i nā kaikamahine. | Hoʻopilikia nui ia i nā keiki kāne. |
He aha ke kumu o kēia kūlana?
ʻAʻole i loaʻa i nā kānaka noiʻi kahi kumu kikoʻī no kēia, akā manaʻoʻiʻo lākou ua hoʻokumu ʻia ke ʻano e kahi pilikia e kū mai ana i ka wā mua o ka ulu ʻana o nā ʻāpana kino o ke pēpē i loko o ka ʻōpū, ʻo ia hoʻi ma ka membrane cloacal, kahi i hoʻokumu ʻia ai nā ʻōnaehana mimi, digestive, a me ka hānau hou ʻana.
ʻO ka mea nui, ʻaʻole kēia ka hewa o ka makuahine a i ʻole ka makuakāne. Mai manaʻo ʻino no ia mea ma muli o kekahi mea āu i hana ai a i ʻole i hana ʻole ai i ka wā hāpai.
Pehea e ʻike ai i ka maʻi?
ʻIke pinepine ʻia kēia maʻi i ka wā o nā nānā mua ʻana a ke kauka ma hope o ka hānau ʻana o ke pēpē ma ka haukapila. Hiki i nā kauka ke ʻike maʻalahi iā ia ma muli o ke ʻano ʻē o ka penis i loko o ke keikikāne a i ʻole ka scrotum a me ka labia i loko o ke kaikamahine.
Eia nō naʻe, i kekahi manawa he ʻoluʻolu loa kēia ʻano a ʻaʻole paha e ʻike ʻia ma ka haukapila. I kēlā hihia, ʻike paha nā mākua i kahi liʻiliʻi o ka mimi e kahe ana i ka wā o ke aʻo ʻana i ka lua. ʻOi aku ka nui o ka ʻike ʻia ʻana o nā kaikamahine me kēia ʻano ma hope.
Inā kānalua kāu kauka i kēia maʻi, e kuhikuhi ʻo ia iā ʻoe i kahi urologist pediatric.
Pehea e mālama ʻia ai? Pono anei ke ʻoki kino?
ʻAe, pono ke ʻoki kino e hoʻoponopono i nā Epispadias. ʻO nā pahuhopu nui o kēia ʻoki kino, ʻo ia ka hoʻihoʻi ʻana i ke ʻano a me ka hana o nā ʻāpana genital.
Manaʻo nā kauka e hana ʻia kēia ʻoki kino i ka wā hikiwawe loa, ʻo ia hoʻi i ka wā ʻōpiopio o ke pēpē, no ka mea, ʻo ia ka manawa e hiki ai ke hoʻokō i nā hopena maikaʻi loa e pili ana i nā mea e like me ka kaohi ʻana i ka ʻōpū mimi. I kekahi manawa, pono paha ke keiki e hana i nā ʻoki kino he nui.
Nā Pahuhopu o ke ʻoki kino
- No nā keikikāne: Hoʻihoʻi i ka hana, ka nui, a me ke ʻano o ka penis, hāʻawi i ka kaohi mimi, a mālama i ka momona i ka wā e hiki mai ana.
- No nā kaikamahine: He maʻalahi ke ʻoki kino no nā kaikamahine. ʻO ke kumu nui, ʻo ia ka hoʻohui ʻana i nā ʻāpana ʻelua o ka vagina a me ke kau ʻana i ka urethra ma ke kūlana kūpono.
Aia nā ʻano hana ʻoki kino like ʻole, e like me ke ʻano hana "Modified Cantwell-Ransley" a me ke ʻano hana "Mitchell". E kūkākūkā kāu kauka me ʻoe i ke ʻano hana kūpono loa no kāu keiki.
Nā nīnau maʻamau āu e loaʻa ai ma ke ʻano he makua
He mea maʻamau ka nui o nā nīnau e kū mai i loko o kou manaʻo i ka manawa e like me kēia. E ho'āʻo kākou e pane iā lākou.
ʻEhia ka lōʻihi e hoʻōla ai ma hope o ke ʻoki kino?
Aia kēia i ka paʻakikī o ke ʻoki kino. Inā he ʻoki kino liʻiliʻi ia, e ola koke ke keiki. Eia nō naʻe, inā ua hana ʻia ke ʻoki kino no kahi kūlana e like me `(Bladder Exstrophy)`, he ʻano ʻoki kino paha ia, no laila e lōʻihi ka manawa e ola ai.
Hiki i ke ʻoki kino ke hoʻoulu i nā pilikia?
I ka wā ma mua, aia kahi pilikia o ka wehe ʻana o ka fistula mai ka urethra a i ka ʻili ma hope o ke ʻoki ʻana. Akā me nā ʻano hana ʻoki holomua o kēia wā, he mea kākaʻikahi kēia. ʻOiai i kēlā manawa, hiki i ka lua ke pani ma kāna iho a i ʻole e pani ʻia me kahi ʻoki liʻiliʻi ʻē aʻe.
I nā kūlana hea e pono ai ʻoe e ʻike koke i ke kauka?
Ma hope o ke ʻoki ʻana, e ʻimi koke i ke kōkua lapaʻau inā loaʻa i kāu keiki kēia mau hōʻailona:
- kuni kiʻekiʻe
- Inā pehu ka wahi ʻoki, ʻulaʻula, a i ʻole ka pus e kahe ana (nā hōʻailona o ka maʻi)
- ʻO nā hōʻailona ʻē aʻe e hoʻopilikia nei iā ʻoe
Ke hoʻopilikia nei kēia kūlana i ka hana moekolohe?
ʻAʻole. ʻAʻole pili ka hana erectile i ka hana ʻoki Epispadias i hana pono ʻia.
Aia kekahi hopena ma ka hānau keiki?
ʻAʻole i hoʻopilikia pinepine ʻia ka hānau keiki ʻana o nā wāhine. Eia nō naʻe, ʻo nā kāne me nā kūlana paʻakikī e like me ka penopubic epispadias a i ʻole ka exstrophy-epispadias complex e loaʻa paha nā pilikia i ka hāpai ʻana. Eia nō naʻe, hiki i ke ʻoki kino ke kōkua i ka hōʻemi ʻana i kēia mau pilikia. He mea nui e kūkākūkā i kēia me kāu kauka.
Hiki ke ʻoki poepoe ʻia kaʻu keiki kāne?
Hiki i kāu kauka ke aʻo aku iā ʻoe e hoʻopanee i ka ʻoki poepoe a hiki i ka wā ma hope o ke ʻoki ʻana. ʻO kēia no ka mea e pono paha i ke kauka lapaʻau ka ʻiʻo ʻōmaka e kūkulu hou i ka penis i ka wā o ke ʻoki ʻana. Ma hope o ke ʻoki epispadias, hiki iā ʻoe ke kamaʻilio me kāu kauka e pili ana i ke ʻoki poepoe inā makemake ʻoe.
Leka Lawe-Home
- He maʻi hānau kakaikahi ʻo Epispadias ʻaʻole i hana ʻia e kekahi hewa o nā mākua.
- Hoʻomaopopo ʻia kēia maʻi e nā kauka ma ka haukapila i ka wā e hānau ai ke pēpē. No laila, ʻaʻohe pono e hopohopo.
- Hiki i ke ʻoki kino ke hoʻoponopono piha i kēia kūlana, e hoʻihoʻi ana i ke ʻano a me ka hana o nā ʻāpana genital i ka maʻamau.
- Ma ka hana ʻoki kino i ka hikiwawe loa, hiki ke hoʻokō ʻia nā hopena maikaʻi loa i nā mea e like me ka kaohi ʻana i ka mimi.
- E hāʻawi kāu kauka iā ʻoe i nā ʻōlelo aʻoaʻo maopopo no ka mālama ʻana i kāu keiki ma hope o ke ʻoki ʻana a me ka wā e ʻike hou ai i ke kauka. He mea nui loa ia e hahai i kēlā mau ʻōlelo aʻoaʻo.
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