ʻO nā puʻupaʻa kekahi o nā ʻōkana koʻikoʻi loa i loko o ko kākou kino. E like me ka kānana wai, ʻo ka hana nui a nā puʻupaʻa, ʻo ia ke kānana i nā huahana ʻōpala i loko o ko kākou koko a hoʻokuʻu iā lākou ma ke ʻano he mimi . Akā i kekahi manawa hiki ke hōʻino ʻia kēia ʻōnaehana kānana palupalu. I kēia lā, e kamaʻilio mākou e pili ana i kahi kūlana paʻakikī iki e hoʻopilikia ana i nā puʻupaʻa, akā hoʻokahi mea a kākou e makaʻala ai. ʻO ia ka IgA Nephropathy .
He aha maoli ka IgA Nephropathy?
I ka ʻōlelo maʻalahi, ʻo ka IgA Nephropathy kahi kūlana kahi e hōʻino ai kekahi hapa o kā mākou ʻōnaehana pale ponoʻī i nā puʻupaʻa.
E noʻonoʻo i kēia ʻano. ʻO ka Immunoglobulin A, a i ʻole IgA no ka pōkole, he ʻano protein ia a kā mākou ʻōnaehana pale e hana ai e hakakā i nā germs i loko o ko mākou kino. ʻO ka maʻamau, kōkua kēia protein IgA iā mākou. Akā i loko o ke kino o kekahi me IgA Nephropathy, hui pū kēia mau protein IgA a hana i nā puʻupuʻu liʻiliʻi. Ma nā ʻōlelo lapaʻau, kapa mākou i kēia mau "pūʻulu pale".
Hele pū kēia mau puʻupuʻu protein me ke koko a paʻa i loko o nā kānana liʻiliʻi i loko o nā puʻupaʻa, i kapa ʻia ʻo glomeruli. ʻO kēia mau kānana kahi e hoʻomaʻemaʻe ʻia ai ko kākou koko. No laila, i ka wā e paʻa ai kēlā mau puʻupuʻu protein IgA i loko o kēia mau kānana, loaʻa ka mumū ma ia mau wahi, a hoʻomaka mālie kēlā mau kānana palupalu e hōʻino ʻia. Ma muli o kēia hōʻino, ʻaʻole hiki i nā puʻupaʻa ke kānana pono i ke koko. ʻO ia ka mea a mākou e kapa nei ʻo IgA Nephropathy.
He aha nā hōʻailona o kēia maʻi?
ʻO kekahi o nā ʻano o ka IgA Nephropathy ʻo ia ka hiki ke hūnā ʻia i loko o ke kino no nā makahiki me ka ʻole o ka hōʻike ʻana i nā hōʻailona . Eia nō naʻe, i ka holomua ʻana o ka maʻi, hiki ke ʻike ʻia nā hōʻailona penei:
| Hōʻailona | ʻO ke ala hiki iā ʻoe ke manaʻo a ʻike paha |
|---|---|
| Ke koko i loko o ka mimi (Hematuria) | Hiki ke ʻike ʻia kou mimi he ʻulaʻula, ʻulaʻula, a i ʻole ke kala cola. I kekahi manawa, ʻaʻole ʻike ʻia kēia e ka maka ʻōlohelohe a hiki ke ʻike wale ʻia me kahi hoʻāʻo mimi. |
| ʻO ka protein i loko o ka mimi (protein i loko o ka mimi) | Inā ʻike ʻia ʻoe e hana ana i ka huʻa ma mua o ka maʻamau i kou wā e mimi ai, malia paha no ka mea ke hoʻopuka nei ʻoe i ka protein me ka mimi. |
| Ka pehu ʻana o nā lima, nā wāwae a me ka maka (Edema) | Ke hiki ʻole i nā puʻupaʻa ke kānana pono a wehe i ka wai, hōʻiliʻili kēlā wai i loko o ke kino a hoʻoulu i ka pehu ʻana ma nā lima, nā wāwae, nā kuʻekuʻe wāwae, a me ka maka. |
| Ke koko kiʻekiʻe | Ke hōʻino ʻia nā puʻupaʻa, hiki iā ia ke hoʻopilikia i ke ʻano o kā lākou kaohi ʻana i ke koko, e hoʻoulu ai i ke koko kiʻekiʻe. No kekahi poʻe, ʻo kēia ka hōʻailona mua a lākou e ʻike ai. |
No ke aha lā kēia e hana nei? He aha ke kumu?
ʻO ka ʻoiaʻiʻo, ʻaʻohe kumu kikoʻī no ke ʻano o ka ʻōnaehana pale ma kēia ʻano a hoʻomaka nā protein IgA e hōʻiliʻili i loko o nā puʻupaʻa. Akā aia kekahi mau mea a nā kauka e manaʻoʻiʻo nei:
- Ka mana hoʻoilina : Hiki i kēia maʻi ke holo i loko o nā ʻohana i kekahi ʻano. ʻO ke ʻano kēia, inā loaʻa i kekahi o kou ʻohana ka maʻi, aia paha ʻoe i kekahi pilikia o ka loaʻa ʻana o ia maʻi.
- Nā kumu o ke kaiapuni: Ua manaʻoʻiʻo ʻia he hiki i kekahi mau maʻi, e like me nā maʻi ʻāʻī a i ʻole nā maʻi ʻōpū, ke hoʻonui i kēia kūlana a i ʻole ke kumu e ʻike ʻia ai ma kahi mua.
He mea weliweli anei kēia maʻi? He aha nā pilikia e hiki mai ana?
He maʻi puʻupaʻa mau ka IgA Nephropathy. ʻO ke ʻano kēia e ulu mālie ana i ka hala ʻana o ka manawa (i kekahi manawa he 10-20 mau makahiki). ʻAʻole loaʻa i nā kānaka a pau ka maʻi puʻupaʻa koʻikoʻi. Eia nō naʻe, i kekahi poʻe, piʻi mālie ka hōʻino ʻia o ka puʻupaʻa a hiki ke alakaʻi i ka maʻi puʻupaʻa hope loa .
Ma muli o ka lohi o ka ulu ʻana o kēia maʻi, hiki i ka ʻike mua ʻana a me ka mālama kūpono ke kōkua nui i ka pale ʻana i nā pilikia koʻikoʻi.
Inā hāʻule loa nā puʻupaʻa, pono ʻoe e hana i ka dialysis a i ʻole kahi hoʻoili puʻupaʻa e ola ai. No laila, ʻaʻole kēia maʻi he mea e lawe māmā ʻia.
Pehea e mālama ʻia ai?
ʻO ka mea mua e pono ai mākou e hoʻomaopopo, ʻo ia ka hiki ʻole ke hoʻoponopono ʻia nā kānana (glomeruli) i loko o nā puʻupaʻa i hōʻino ʻia e kēia maʻi. No laila, ʻo ka pahuhopu nui o ka mālama ʻana, ʻo ia ka hoʻolohi ʻana i ka holomua o ka maʻi a me ka kaohi ʻana i nā pilikia e kū mai ana.
Hiki i kāu kauka ke kuhikuhi i hoʻokahi a ʻoi aku paha o nā lāʻau lapaʻau ma muli o kou kūlana.
Nā Hoʻololi o ke ʻAno Nohona
- Ke kāohi ʻana i ke koko kiʻekiʻe : ʻO kēia ka mea nui loa. ʻO ke kiʻekiʻe o ke kaomi, ʻo ka nui o ka hōʻino ʻana i nā puʻupaʻa. No laila, he mea nui e kāohi i ke kaomi ma ka hoʻohana ʻana i ka lāʻau lapaʻau i kuhikuhi ʻia e ke kauka.
- ʻAi: Ma muli o ka ʻōlelo aʻo a kāu kauka, e noi ʻia paha ʻoe e kaupalena i ka nui o ka protein i kāu ʻai. He mea maikaʻi loa ka hōʻemi ʻana i ka ʻai paʻakai no ke koko.
- Kaohi kaumaha: Hiki i ka momona ke hoʻonui i ka hoʻokuʻu ʻia ʻana o ka protein mai nā puʻupaʻa (proteinuria) a hoʻonui i ka hōʻino ʻia o nā puʻupaʻa. No laila, he mea nui loa ka hoʻemi ʻana i ke kaumaha.
- E pale i ka puhipaka: Hoʻopōʻino pololei ka puhipaka i nā kīʻaha koko palupalu i loko o nā puʻupaʻa. No laila, inā ʻoe e puhipaka, he mea nui e hoʻōki loa iā ia.
Lāʻau lapaʻau
Ma waho aʻe o nā loli o ke ʻano o ka nohona, hiki i ke kauka ke kuhikuhi i nā lāʻau lapaʻau like ʻole ma muli o ke koʻikoʻi o ka maʻi.
- Nā lāʻau lapaʻau koko.
- ʻO nā lāʻau lapaʻau e like me nā steroids e hōʻemi i ka mumū a me ka hōʻino ʻana i nā puʻupaʻa.
- Nā lāʻau immunosuppressant e kaohi ana i ka hana o ka ʻōnaehana pale.
- Ua hoʻolauna koke ʻia nā lāʻau lapaʻau 'biologic'.
Hoʻoholo ʻia kēia mau mea a pau e kāu kauka. No laila e kamaʻilio pono me kāu kauka a hahai pololei i kāna mau kuhikuhi. Inā loaʻa iā ʻoe nā hōʻailona a kānalua paha e pili ana i kēia, e ʻimi koke i ke kōkua lapaʻau.
Leka Lawe-Home
- He maʻi mau ka IgA Nephropathy kahi e hōʻino ai ko kākou ʻōnaehana pale ponoʻī i nā puʻupaʻa.
- ʻO nā hōʻailona nui e komo pū ana me ka loli ʻana o ka mimi (ʻulaʻula/ʻeleʻele), ka mimi huʻa, ka pehu ʻana o nā lālā, a me ke koko kiʻekiʻe.
- ʻAʻole hiki ke hoʻihoʻi ʻia ka pōʻino i hana ʻia i nā puʻupaʻa e kēia maʻi. Hoʻomalu wale ka lāʻau lapaʻau i ka holomua o ka maʻi.
- ʻO ke kaohi ʻana i ke koko, ka ʻai ʻana i ka meaʻai olakino, ke kaohi ʻana i ke kaumaha, a me ka pale ʻana i ka puhipaka he mea nui ia no ka mālama ʻana i ka maʻi.
- Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona a i ʻole kānalua paha ʻoe no lākou, mai hoʻowahāwahā iā lākou. E ʻike koke i kāu kauka no ka ʻōlelo aʻo.
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