Ua loaʻa paha iā ʻoe nā ʻāpana keʻokeʻo a i ʻole ka ʻūlū hiki ʻole ke hoʻomanawanui i kou mau ʻāpana pilikino, ʻo ia hoʻi, a puni kou ʻōpū a i ʻole anus? Malia paha he lahilahi ka ʻili a ʻili e like me ka ʻili. Mai hoʻokuke wale i kēia mau mea me he pilikia ʻili lā. He hōʻailona paha ia o kahi maʻi i kapa ʻia ʻo Lichen Sclerosus. Mai hopohopo, e kamaʻilio mākou e pili ana i kēia me nā kikoʻī.
He aha ka Lichen Sclerosus?
I ka ʻōlelo maʻalahi, ʻo Lichen Sclerosus kahi maʻi ʻili e hiki ke hoʻoulu i nā ʻano pilikia like ʻole me kou ʻili. ʻO ke kūlana i hoʻopilikia pinepine ʻia e:
I kekahi manawa, ʻike ʻia kēia ʻano ma ke ʻano he ʻāpana ʻeleʻele, unahi, maneʻo, a unahi paha . Hiki i kekahi poʻe ke loaʻa nā pehu a me nā ʻeha (pinepine mai ka ʻōniʻoni mau ʻana) a puni nā ʻōpū. Eia nō naʻe, ʻike pinepine ʻole ʻia kēia mau hōʻailona ma nā wahi ʻē aʻe o ke kino.
He maʻi lōʻihi ka lichen sclerosus, he maʻi mau loa ia e mau ana no ke ola holoʻokoʻa. Inā ʻaʻole mālama ʻia, hiki iā ia ke hana i ka ʻeha, ka paʻakikī i ka moekolohe (dyspareunia), ka mimi ʻana , a i ʻole ka neʻe ʻana o ka ʻōpū (neʻe ʻana o ka ʻōpū), a me ka ʻeha . Hiki i ka lichen sclerosus i mālama ʻole ʻia ke hoʻonui i ka pilikia o ka hoʻomohala ʻana i kekahi mau ʻano maʻi ʻili (kani ʻili penile a me ka vulvar squamous cell carcinoma) . ʻAʻohe lāʻau lapaʻau no kēia maʻi, akā hiki i ka lāʻau ke kōkua i ka kaohi ʻana i nā hōʻailona.
ʻO nā inoa ʻē aʻe no kēia ʻo "Balanitis Xerotica Obliterans (BXO)" a me "ka maʻi ʻōuli keʻokeʻo".
Pehea ke ʻano o kēia?
Ke hoʻomaka mua ka lichen sclerosus, ʻike ʻia ia he mau kiko liʻiliʻi, keʻokeʻo, ʻālohilohi, a piʻi iki aʻe ma kou mau ʻōpū a i ʻole a puni kou anus. I ka hala ʻana o ka manawa, hiki ke hana hou ʻia nā kiko, a hiki ke hui pū lākou e hana i kahi ʻāpana keʻokeʻo e like me kahi ʻāpana pepa a i ʻole nā ʻiʻo wrinkled .
Pehea ka maʻamau o kēia ʻano?
ʻAʻole ʻo Lichen sclerosus he maʻi maʻamau loa. No ka laʻana, hoʻopilikia ia i kahi 200,000 mau kānaka ma ʻAmelika Hui Pū ʻIa. ʻOiai inā he nui nā kumu pilikia , he mea kākaʻikahi loa ka loaʻa ʻana.
He aha nā hōʻailona o ka Lichen Sclerosus?
ʻO nā hōʻailona nui he mau ʻāpana keʻokeʻo a piʻi aʻe ma kou vulva, anus, foreskin, a i ʻole glans. Hiki i kēia mau mea ke hana i ka maneʻo , ka ʻeha, ka ʻoluʻolu ʻole, a i ʻole ka mumū . Hiki i nā hōʻailona ʻē aʻe ke komo pū me:
- Nā ʻeha a me nā ʻeha
- Ka mumū ( e laʻa me ka pehu ʻana, ka ʻulaʻula)
- Ka ʻeha
- Māwae ʻili
- ʻEha i ka wā e mimi ai (dysuria)
- ʻEha i ka wā o ka moekolohe
- Ka emi ʻana o ka mimi . I kekahi manawa ʻaʻole paha e kahe mau ka mimi a hiki ke liki.
- Ka hoʻopaʻa ʻana i kou ʻili ʻōmaka.
- ʻAʻole hiki ke huki i ka ʻili mua (phimosis).
- Hoʻokuʻu ʻia ʻana o ka penis .
I ka liʻiliʻi loa, hiki i ka lichen sclerosus ke hoʻopilikia i ka ʻili ma nā ʻāpana ʻē aʻe o ke kino. Eia kekahi laʻana:
- ʻĀʻī
- Umauma
- Kino
- Ma waho
- Pūlima lima
- I loko o ka waha
ʻO wai ka mea i ʻoi aku ka paʻakikī o ka loaʻa ʻana o kēia? (Nā kumu pilikia)
Hiki i kekahi ke loaʻa iā ia, akā ʻoi aku ka maʻamau i nā wahine postmenopausal ma waena o 40 a me 60 mau makahiki. ʻOi aku ka nui o ka pilikia o nā kaikamahine i hiki ʻole i ka wā ʻōpio .
ʻOi aku ka liʻiliʻi o ka loaʻa ʻana o ka lichen sclerosus i nā kāne me ka ʻili mua . Hiki ke kiʻekiʻe iki aʻe kou pilikia inā loaʻa iā ʻoe kahi maʻi autoimmune a i ʻole nā allergies .
Hiki i ka maʻi diabetes a me ka helu helu o ke kino (BMI) ma luna o 30 (ʻo ia hoʻi, ke kaumaha nui/momona) ke hoʻonui i ka pilikia o ka hoʻomohala ʻana i ka lichen sclerosus.
He aha nā kumu o ka Lichen Sclerosus?
ʻAʻole maopopo loa i nā kauka a me nā mea noiʻi lapaʻau ke kumu o ka lichen sclerosus. Eia naʻe, manaʻoʻiʻo lākou he maʻi autoimmune ia.He pili paha ia i. Inā loaʻa iā ʻoe kahi maʻi autoimmune, hoʻouka kāu ʻōnaehana pale i nā cell olakino ma kahi o ka pale ʻana i kou kino mai nā germs.
Hiki i nā loli genetics a me nā hormonal ke hoʻopilikia i ka mea i loaʻa i ka maʻi. I kekahi manawa, ulu ka lichen sclerosus ma hope o ka loaʻa ʻana o kahi kanaka i ka trauma (e like me kahi ʻeha a i ʻole ka hana ʻino moekolohe). He mea kākaʻikahi loa, hiki ke hoʻoili ʻia mai nā mākua a i nā keiki ma o nā genes.
Ke noiʻi nei nā kauka a me nā mea noiʻi i ka lichen sclerosus e ʻike i nā kumu kikoʻī.
ʻO ka mea nui loa: ʻAʻole laha ka Lichen sclerosus. ʻAʻole hiki iā ʻoe ke hoʻolaha iā ia i kekahi.
Pehea e ʻike ai nā kauka i kēia? (Diagnosis)
Ua ʻike ʻia ka lichen sclerosus e ke kauka. E nīnau ʻo ia iā ʻoe i nā nīnau e pili ana i kāu mau hōʻailona a laila e hana i kahi hoʻokolokolo kino , e komo pū ana me ka nānā ʻana i nā wahi i hoʻopilikia ʻia.
He aha ke ʻano o nā hoʻokolohua e hana ʻia?
No ka hōʻoia ʻana i ka maʻi, hiki i kāu kauka ke hana i kahi biopsy , e pili ana i ka lawe ʻana i kahi ʻāpana liʻiliʻi o ka ʻili i hoʻopilikia ʻia a nānā iā ia ma lalo o kahi microscope.
Hiki ke ho'ōla ʻia kēia me ke ʻoki poepoe ʻole ʻia?
ʻAe, hiki i nā kauka ke mālama i ka lichen sclerosus me ka ʻoki poepoe ʻole. ʻOiai hiki ke mālama ʻia ka lichen sclerosus me ke ʻoki poepoe ʻana i kekahi manawa, aia kekahi mau lāʻau ʻē aʻe.
He aha nā lāʻau lapaʻau no kēia?
Hiki i kāu kauka ke kuhikuhi i kēia mau ʻano lapaʻau lichen sclerosus:
- Nā kirimina corticosteroid topical: ʻO kēia nā lāʻau lapaʻau i hoʻopili pololei ʻia i ka wahi i hoʻopilikia ʻia. I ka manawa pinepine, ua kuhikuhi ʻia nā lāʻau lapaʻau e like me "clobetasol".
- Phototherapy: Hoʻohana ka Phototherapy i ka mālamalama ultraviolet (ʻo ka maʻamau ultraviolet B - `UVB`) mai nā kukui kūikawā. Hiki i kēia ke hōʻemi i ka mumū a hoʻēmi i ka maneʻo.
- Nā Immunosuppressants: Kōkua kēia mau lāʻau lapaʻau i ka pale ʻana i kāu ʻōnaehana pale mai ka hoʻouka ʻana i nā cell olakino. Hoʻohana pinepine ʻia lākou ma ke ʻano he lāʻau lapaʻau topical i kapa ʻia ʻo tacrolimus.
- ʻOki kino: Ma muli o ka ʻāpana o ke kino i hoʻopilikia ʻia e ka lichen sclerosus, hiki i ke kauka ke ʻōlelo aku i ke ʻoki kino. No ka laʻana, ke ʻoki poepoe inā ua hoʻopilikia ʻia ka ʻili mua, a i ʻole ka urethroplasty inā he mau strictures urethral.
ʻO ka mea nui loa, ʻo ia ka nānā mau ʻana me ke kauka i ka wā e mālama ʻia ai ka lichen sclerosus.Ke hele nei i ka. A laila hiki iā lākou ke nānā i nā hōʻailona o ka maʻi ʻili, a kōkua i ka pale ʻana i nā ʻōpala a puni nā ʻōpū.
ʻEhia ka lōʻihi e hoʻōla ai ma hope o ka lāʻau lapaʻau?
ʻO ka wikiwiki o kou ho'ōla ʻana ma muli o ke ʻano o ka lāʻau āu e loaʻa ai.
- Hiki ke hala i kekahi mau pule e ʻike i ka hoʻomaikaʻi ʻana me nā corticosteroids topical a me nā lāʻau immunosuppressant .
- Hiki i ka Phototherapy ke lawe i kekahi mau lāʻau lapaʻau e hoʻomaikaʻi i nā wahi i hoʻopilikia ʻia, a hiki ke hala a ʻelua mahina e hoʻomaka ai e hoʻomaikaʻi.
- Hiki ke hala ma kahi o hoʻokahi pule a me ka hapa e ho'ōla ai ma hope o ke ʻoki poepoe ʻana . Ma hope o ke ʻoki poepoe ʻana, pono nā keiki e pale i ka hiamoe ʻana ma ko lākou ʻōpū a me nā mea pāʻani holo lio e lele ana mai kēlā ʻaoʻao a i kēia ʻaoʻao (e laʻa me nā lio lūlū, nā seesaw, nā swings, nā paikikala). Pono nā mākua e pale i ka moekolohe a i ʻole ka masturbation a hiki i ka ʻae ʻana o kā lākou kauka.
- Inā loaʻa iā ʻoe ka urethroplasty , pono ʻoe e mālama i kahi catheter ( he tube) i loko o kou urethra no ʻekolu a ʻehā pule.
He aha nā mea e hiki ke hana ʻia e pale aku ai i kēia a hōʻemi i nā hōʻailona?
ʻOiai ʻaʻole hiki ke pale piha ʻia ka lichen sclerosus, hiki iā ʻoe ke hōʻemi i nā hōʻailona ma ka hana ʻana i kekahi mau hoʻololi i ke ʻano o ka nohona .
No ka hōʻemi ʻana i ka friction a me ka huhū, e hana i kēia mau mea:
- E hoʻomaʻamaʻa i nā ʻano mālama ʻili maikaʻi. ʻO ke ʻano kēia o ka holoi mau ʻana i kou ʻili me ke kopa a me ka wai maʻemaʻe, ka hoʻopili ʻana i ka moisturizer, a me ka hahai ʻana i nā ʻōlelo a kāu kauka e mālama i kou ʻili i ke olakino.
- E ʻaʻahu i nā lole komo a me nā lole komo palupalu .
- Mai ʻaʻahu i nā lole e hoʻonāukiuki i ka ʻili (e like me ka hulu hipa, ka silika).
- I ka ʻauʻau ʻana a i ʻole ka holoi ʻana, e hoʻohana i ke kopa palupalu . I ka holoi ʻana i ka ʻili, e pā maloʻo me ka ʻole o ka hamo ʻana. E hoʻopili koke i kahi kirīmi hoʻomaʻū ma hope o ka holoi ʻana. E kōkua kēia i ke koena o ka makū e komo i loko o ka ʻili.
- E hoʻohana i ka wai mehana ma kahi o ka wai wela i ka wā e ʻauʻau ai a holoi paha.
- E pale i ka ʻauʻau pehu ( ʻauʻau me ka wai kopa). Hiki i ka hopena mae o ka huʻa ke hoʻonui i ka maneʻo.
- E hoʻohana i ka mea holoi lole ʻala ʻole .
- E pale i ka holo paikikala no kahi lōʻihi, ka holo mokokaikala, a me ka holo lio.
- E hoʻololi koke i nā lole ʻauʻau a me nā lole pulu me ka waiho ʻole ʻana iā lākou.
ʻO ke ʻoki poepoe mua ʻana i ka wā ʻōpiopio e hōʻemi i ka pilikia o ka hoʻomohala ʻana i ka lichen sclerosus.
He aha kāu e manaʻo ai i ka wā e noho ai me kēia maʻi?
He maʻi mau ka lichen sclerosus.Kūlana. Pane maikaʻi ka hapa nui o ka poʻe i ka lāʻau lapaʻau, akā hiki ke hoʻi hou mai nā hōʻailona ma hope. Hiki iā ʻoe ke loaʻa i ka ʻōpala , kahi e paʻakikī ai a ʻoluʻolu ʻole paha ke hele i ka lua a moe. Inā loaʻa ka lichen sclerosus a puni ka puka o ka urethra (ka meatus) i nā kāne, hiki i ka lāʻau lapaʻau mua ke kōkua i ka pale ʻana i ka ʻiʻo ʻōpala mai ka hoʻokumu ʻana ma nā ʻāpana ʻē aʻe o ka urethra.
Loaʻa iā ʻoe kahi pilikia kiʻekiʻe o ka loaʻa ʻana o nā mea e like me ka squamous cell carcinoma a me ke kanesa penile . No laila e ʻike pinepine i ke kauka no nā nānā ʻana i hiki iā lākou ke nānā i nā hōʻailona o ke kanesa.
Pehea ke ʻano o ka nānā ʻana?
Inā hiki i ke kauka ke ʻike a mālama i ka lichen sclerosus i ka wā hikiwawe loa, maikaʻi loa ka nānā ʻana. Eia nō naʻe, me ka ʻike mua ʻana a me ka mālama ʻana, hiki i nā hōʻailona ke hoʻi hou mai i ke ola holoʻokoʻa.
Pono anei ʻoe e makaʻala i ka meaʻai a me ka mea inu?
ʻAʻohe papaʻai kikoʻī i ʻōlelo ʻia no ka lichen sclerosus. Ua hōʻike kekahi mau noiʻi e hiki i ka hoʻololi ʻana i kāu papaʻai ke hōʻemi i kou pilikia a hoʻomaikaʻi i nā hōʻailona. E kamaʻilio me kāu kauka e pili ana i nā meaʻai āu e pale aku ai a pehea e koho ai i nā meaʻai olakino.
Āhea wau e ʻike ai i ke kauka?
No ka mea, he nui nā hōʻailona o ka lichen sclerosus, hiki iā lākou ke hoʻohālike i nā hōʻailona o nā maʻi ʻē aʻe. No laila, he mea nui e ʻike koke i ke kauka inā ʻike ʻoe i kekahi mau loli i kou mau ʻōpū a i ʻole nā wahi e pili ana.
Inā loaʻa iā ʻoe ka lichen sclerosus, e ʻike i ke kauka inā hoʻi hou kāu mau hōʻailona ma hope o ka mālama ʻana. Eia kekahi, e hana i nā manawa maʻamau me lākou e nānā i nā hōʻailona o ka maʻi kanesa.
I ka manawa hea ʻoe e hele ai i kahi Emergency Treatment Unit (ETU) ?
Inā ʻaʻole hiki iā ʻoe ke mimi ma muli o ka lichen sclerosus, e hele koke i kahi lumi pilikia.
He aha nā nīnau āu e nīnau ai i ke kauka?
Hiki iā ʻoe ke nīnau i kāu kauka i nā nīnau penei:
- Pehea e hiki ai iā ʻoe ke haʻi inā he lichen sclerosus koʻu?
- Inā ʻaʻohe oʻu lichen sclerosus, he aha nā maʻi ʻē aʻe e loaʻa iaʻu?
- He aha ke koho lapaʻau āu e paipai nei?
- He aha nā hopena ʻaoʻao o ka lāʻau lapaʻau āu e paipai nei?
- He palekana anei iaʻu ke moe kolohe a i ʻole ka masturbate?
- E ʻike anei au i ke kauka ʻili a i ʻole kekahi loea ʻē aʻe?
He maʻi kanesa anei kēia? He maʻi laha ma ke ʻano moekolohe anei? E aʻo iki kākou e pili ana i kēia!
He maʻi ʻaʻai anei ka lichen sclerosus?
ʻAʻole ʻo Lichen sclerosus he maʻi kanesa. ʻOiai he lichen sclerosus kou, ʻaʻole ia he manaʻo e loaʻa maoli ana iā ʻoe ka maʻi kanesa. Eia nō naʻe, pili ka lichen sclerosus me ka maʻi kanesa penile a me ka vulvar squamous cell carcinoma.Aia paha he pilina. Inā loaʻa iā ʻoe ka lichen sclerosus, he mea nui loa ia e ʻike pinepine i ke kauka no nā nānā ʻana i hiki iā lākou ke nānā i nā hōʻailona o ka maʻi kanesa. Inā ʻike ʻoe i kekahi mau loli i ke ʻano o kou ʻili, e hoʻomaopopo i ke kauka.
He maʻi laha pili i ke moekolohe (STI) anei ka lichen sclerosus?
ʻAʻole, ʻaʻole he maʻi laha pili i ke moekolohe (STI) ka lichen sclerosus, a ʻaʻole ia he mea laha. Eia nō naʻe, hiki i ka lichen sclerosus ke like me kahi STI. ʻOi aku ka maikaʻi o ka pale ʻana i ka moe a hiki i ka wā i ʻike ʻia ai ʻoe me ka lichen sclerosus e ke kauka.
Hiki iaʻu ke moe inā loaʻa iaʻu ka lichen sclerosus?
ʻAe, hiki iā ʻoe ke moe kolohe a i ʻole masturbate inā loaʻa iā ʻoe ka lichen sclerosus. Eia nō naʻe, hiki i ka moe kolohe ke hoʻoulu i ka ʻeha. Inā he moe kolohe a masturbate paha ʻoe, ʻo ka hoʻohana ʻana i ka condom a i ʻole ka condom kūloko e kōkua i ka pale ʻana i kou ʻili a hōʻemi i ka ʻoluʻolu ʻole.
ʻOiai ʻaʻole he STI ka lichen sclerosus, a ʻaʻole hiki i kāu hoa ke loaʻa ka lichen sclerosus mai iā ʻoe, he manaʻo maikaʻi ia e haʻi pololei iā lākou e pili ana i kou kūlana. E paipai iā lākou e kamaʻilio me ke kauka inā he mau hopohopo kā lākou.
He maʻi autoimmune anei ka lichen sclerosus?
ʻAʻole lawa ka ʻikepili e hoʻokaʻawale i ka lichen sclerosus ma ke ʻano he maʻi autoimmune. Eia nō naʻe, loaʻa pinepine i ka poʻe me ka lichen sclerosus nā maʻi autoimmune. Eia kekahi laʻana:
- Alopecia areata ( ka nalowale o ka lauoho ʻāpana like ʻole)
- Vitiligo ( nā ʻāpana keʻokeʻo ma ka ʻili)
- ʻO ka anemia pernicious ( anemia i hoʻokumu ʻia e ka nele o ka huaora B12)
- ʻAno 1 diabetes
- ʻO kekahi mau maʻi thyroid
ʻO nā pilina pili loa ma waena o kēia mau maʻi a me ka lichen sclerosus e hōʻike ana he hiki ke kumu ʻia kēia kūlana e ka pane autoimmune o kou kino.
He aha ka ʻokoʻa ma waena o Balanitis a me Lichen Sclerosus?
ʻO Balanitis kahi maʻi e hoʻopilikia ai i ka piko o kāu penis (glans), i hoʻokumu pinepine ʻia e ka maʻi hū. Loaʻa pinepine ia i nā kāne me ka ʻili mua, no ka mea, ʻo ka wahi mahana a pulu ma waena o ka piko o ka penis a me ka ʻili mua he wahi maikaʻi ia no ka ulu ʻana o ka hū a me nā bacteria ʻē aʻe. Hiki ke mālama ʻia ka Balanitis me nā kirīmi antifungal, nā antibiotics, ke ʻoki poepoe, a ma ka mālama ʻana i ka ʻili mua, ka glans, a me ka ʻāpana ma lalo o ka ʻili mua i maʻemaʻe a maloʻo.
ʻO ka lichen sclerosusHiki iā ia ke hoʻopilikia i kou mau ʻōpū, anus, a me ka urethra. ʻAʻole maopopo i nā kauka ke kumu o ia mea, akā manaʻo lākou he pili ia i kāu ʻōnaehana pale. ʻO nā lāʻau lapaʻau e pili ana i nā kirīmi corticosteroid topical, ka light therapy (phototherapy), nā lāʻau immunosuppressant, a me ke ʻoki kino.
He aha ka ʻokoʻa ma waena o BXO a me ka lichen sclerosus?
ʻO Balanitis Xerotica Obliterans (BXO) a me ka lichen sclerosus ke ʻano like. ʻO Lichen sclerosus ka inoa a nā kauka e makemake ai e hoʻohana i kēia manawa.
Leka Hoʻihoʻi Hope Loa
ʻAʻole maʻamau ka Lichen Sclerosus, a ʻaʻole ia he maʻi i laha ma ke ʻano moekolohe. Eia nō naʻe, hiki i kekahi ʻano e hoʻopilikia ai i kou ʻōpū a i ʻole anus ke hilahila a hoʻohilahila. No laila, inā ʻike ʻoe i kekahi mau loli a ʻoluʻolu ʻole paha i kou ʻōpū, e ʻike koke i ke kauka . ʻOiai he ʻano maʻi mau kēia e hiki ke mau i ke ola holoʻokoʻa, a hiki ke ʻike ʻia nā hōʻailona i kēlā me kēia manawa, hiki i ka mālama mua ʻana ke alakaʻi i nā hopena maikaʻi loa . ʻAʻole ʻoe hoʻokahi, a mai makaʻu e noi i ke kōkua.
ʻO Lichen Sclerosus, Nā Maʻi ʻIli, Ka ʻAnaʻana, Nā Kiko Keʻokeʻo, Ola Kino, BXO, Kanesa ʻIli, Ola Kino Wahine, Ola Kino Kāne
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