Ua kuhikuhi ʻia anei ʻoe a i ʻole kekahi o kou ʻohana i kahi inikini i kapa ʻia ʻo Metreleptin e kāu kauka? ʻOiai he lāʻau lapaʻau kūikawā kēia, he mea nui e hoʻomaopopo maʻalahi a maopopo. E makaʻu iki paha ʻoe ke lohe ʻoe i ka inoa, akā mai hopohopo. I kēia lā e kamaʻilio mākou e pili ana i kēia lāʻau lapaʻau, pehea e hoʻohana ai, a me nā mea āpau āu e pono ai e makaʻala.
He aha maoli ka Metreleptin?
I ka ʻōlelo maʻalahi, ʻo Metreleptin kahi lāʻau lapaʻau i hana ʻia ma ka hale hana e hoʻohālike i ka hormone leptin i loko o ko mākou kino. Hoʻohana pinepine ʻia ia e mālama i nā poʻe me ka lipodystrophy laulā, kahi kūlana i hiki ke hana ʻia e nā kumu genetic a i ʻole nā kumu ʻē aʻe.
I kēia manawa ke noʻonoʻo nei paha ʻoe i ke ʻano o ka lipodystrophy. He pilikia ia me ka mālama ʻana a me ka hoʻohana ʻana i ka momona i loko o ko mākou kino . He liʻiliʻi loa ka momona o ke kino o ka poʻe me kēia maʻi. ʻO kēia no ka mea he haʻahaʻa ka pae o ka hormone leptin i ko lākou kino. No laila, ʻo ka mea a ka injection Metreleptin e hana ai, ʻo ia ke pani i ka hana o kēlā pae haʻahaʻa o ka hormone leptin.
He mea nui loa ia e hoʻomaopopo ʻaʻole hiki i kēia lāʻau lapaʻau ke ho'ōla piha i kēia maʻi. Akā hiki iā ia ke kōkua iā ʻoe e kaohi i nā hōʻailona a alakaʻi i kahi ola maʻamau.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i kēia lāʻau lapaʻau
Ma mua o kou hoʻomaka ʻana e hoʻohana iā Metreleptin, he mea nui e hāʻawi i kāu kauka i kahi wehewehe piha o kou kūlana olakino. E hōʻoia e haʻi iā lākou e pili ana i kekahi o kēia mau kūlana, ʻoi aku hoʻi:
- Inā loaʻa iā ʻoe ka maʻi diabetes .
- Inā ua loaʻa iā ʻoe ka maʻi kanesa ma mua a i ʻole i kēia manawa.
- Inā he maʻi kou i ke akepaʻa .
- Inā ua loaʻa iā ʻoe ka pancreatitis ma mua.
- Inā kiʻekiʻe ka nui o ka triglyceride i loko o ke koko .
- Inā he mau pilikia kou me kou iwi iwi .
- Inā he emi ʻana o nā pūnaewele e like me nā pūnaewele koko keʻokeʻo (helu o nā pūnaewele keʻokeʻo) .
- Inā he mau pilikia kou ma ka ʻōnaehana pale .
- Inā pehu nā lymph nodes .
- Inā he mau hōʻailona o ka maʻi i loko o ke kino.
- Inā ʻoe e hoʻāʻo nei e hāpai, ua hāpai, a he makuahine hānai paha ʻoe .
- Inā he maʻi ʻaleka kou iā Metreleptin a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
He mea nui kēia ʻike no ke kauka e hoʻoholo ai inā kūpono kēia lāʻau lapaʻau iā ʻoe a ʻaʻole paha, a me ka hoʻoholo ʻana i ka nui e hoʻohana ai.
Pehea e pono ai iaʻu ke hoʻohana i kēia lāʻau lapaʻau?
He inikini kēia ma lalo o ka ʻili. ʻO ka maʻamau, e aʻo aku kāu kauka a kahu maʻi paha iā ʻoe pehea e hāʻawi ai iā ʻoe iho i kēia inikini.
- E hoʻohana pono e like me ke kuhikuhi ʻana: E lawe wale i ka nui a me ka manawa a kāu kauka e haʻi aku ai iā ʻoe. Mai hoʻololi i ka nui ma kāu manaʻo ponoʻī a hoʻohana pinepine paha ma mua o ka mea i kauoha ʻia.
- E hoʻolei pono i nā nila a me nā syringe: Mai hoʻolei i nā nila a me nā syringe i hoʻohana ʻia i loko o ka ʻōpala. Pono e waiho ʻia i loko o kahi pahu ʻoi. Inā ʻaʻohe āu, e nīnau i kāu kauka pehea e loaʻa ai.
- E heluhelu i ka MedGuide: E loaʻa iā ʻoe kahi pepa ʻike kūikawā (MedGuide) me kēlā me kēia kauoha. E heluhelu pono i kēlā me kēia manawa.
- Inā hāʻawi i kēia lāʻau lapaʻau i nā keiki: Inā hāʻawi i kēia lāʻau lapaʻau i nā keiki, e kamaʻilio me kāu kauka keiki e pili ana i ia mea. ʻOiai ua ʻōlelo ʻia kēia lāʻau lapaʻau no nā keiki i nā hihia kūikawā, aia kekahi mau mea e makaʻala ai.
He aha ka mea e hana ai inā hoʻonui ʻia ka nui o ka lāʻau lapaʻau?
Inā manaʻo ʻoe ua lawe ʻoe ma mua o ka nui i kuhikuhi ʻia, e kelepona koke i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ma Colombo, a i ʻole e hele i ka ʻOihana Pilikia (ETU) o ka haukapila kokoke loa.
He mea nui loa: Ua kuhikuhi ʻia kēia lāʻau lapaʻau nou wale nō. Mai kaʻana like i kēia lāʻau lapaʻau me kekahi.
Hiki i kēia ke hoʻopilikia i nā pilikia me nā lāʻau lapaʻau ʻē aʻe?
ʻAe, hiki iā Metreleptin ke launa pū me kekahi mau lāʻau lapaʻau. No laila, pono ʻoe e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei (me nā huaora a me nā huahana lāʻau). ʻOi loa inā ʻoe e lawe nei i kekahi o kēia mau lāʻau lapaʻau:
- Nā lāʻau lapaʻau no ka maʻi diabetes: e like me ka insulin, glipizide, a me ka glyburide.
- Nā lāʻau lapaʻau e hoʻōki ai i ke kāpili ʻana o ke koko: No ka laʻana, warfarin.
- ʻO Cyclosporine
- Nā lāʻau lapaʻau hormonal: Nā pila hoʻomalu hānau, nā ʻāpana, nā apo, a i ʻole nā inikini e loaʻa ana ka estrogen a i ʻole progestin.
- ʻO ka Theophylline
ʻAʻole i piha kēia papa inoa, no laila ʻoi aku ka palekana o ka haʻi ʻana i kāu kauka e pili ana i nā mea āpau āu e lawe ai.
Nā hopena ʻaoʻao hiki ke loaʻa o kēia lāʻau lapaʻau
E like me nā lāʻau lapaʻau āpau, hiki iā Metreleptin ke hana i kekahi mau hopena ʻaoʻao. Hiki i kekahi o lākou ke koʻikoʻi, no laila he mea nui e makaʻala iā lākou.
| ʻAno o ka hopena ʻaoʻao | Nā hōʻailona |
|---|---|
| Nā mea e hōʻike koke aku ai i kāu kauka | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe a i ʻole ke alelo. |
| Paʻakikī ka hanu ʻana | Paʻakikī ka hanu ʻana, ka ʻū ʻana o ka umauma. |
| Haʻahaʻa ke kō koko | Hopohopo, huikau, poniuniu, pōloli nui, luhi nui, hou, haʻalulu, anuanu, ʻeha poʻo, ʻike pōwehiwehi, puʻuwai wikiwiki, a me ka nalowale o ka ʻike. |
| Nā mea i maʻa mau ʻole i ka nui, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| Ka emi ʻana o ke kaumaha | Ka pohō kaumaha me ke kumu ʻole. |
| Nā pilikia o ka ʻōnaehana hoʻoheheʻe | Ka maʻi kahe, ka luaʻi, ka ʻeha o ka ʻōpū. |
| Nā hiʻohiʻona ʻē aʻe | Kuni, ʻeha ami, luhi, ʻeha, ʻulaʻula, a pehu paha ma kahi i inikini ʻia. |
Nā mea ʻē aʻe e noʻonoʻo ai i ka wā e lawe ai i ka lāʻau lapaʻau
- Ka Pōpilikia o ke Kanesa: Aia kekahi hopohopo e pili ana paha i ka loaʻa ʻana o kekahi mau ʻano kanesa (ʻoi aku ka lymphoma) i ka wā e lawe ai i kēia lāʻau. E kamaʻilio me kāu kauka e pili ana i kēia a e loaʻa kahi ʻike maopopo o ka pilikia.
- Nā pae kō koko: Hiki i kēia lāʻau lapaʻau ke hoʻopilikia i nā pae kō koko. Inā loaʻa iā ʻoe ka maʻi diabetes, e kamaʻilio me kāu kauka ma mua o ka hoʻololi ʻana i kāu meaʻai a i ʻole ka nui o kāu lāʻau lapaʻau diabetes. E makaʻala i nā hōʻailona o ke kō koko haʻahaʻa a kiʻekiʻe.
- Kaohi hānau: ʻAʻole paha e maikaʻi nā lāʻau kaohi hānau i ka wā e lawe ana i kēia lāʻau. No laila, e kūkākūkā i nā ʻano kaohi hānau hou me kāu kauka.
- Ke hoʻōki ʻana i ka lāʻau lapaʻau: Mai hoʻōki i ka hoʻohana ʻana i kēia lāʻau lapaʻau me ka ʻole o ke aʻo ʻana a kāu kauka.
Leka Lawe-Home
- He injection ʻo Metreleptin e hana ana e like me ka hormone Leptin a mālama i kahi maʻi i kapa ʻia ʻo Lipodystrophy.
- Ma mua o kou hoʻomaka ʻana e lawe i ka lāʻau lapaʻau, e haʻi i kāu kauka e pili ana i kou mau kūlana olakino a me nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
- E hoʻohana i ka lāʻau lapaʻau e like me ka ʻōlelo a kāu kauka. E hoʻolei pono i nā nila i hoʻohana ʻia.
- Inā loaʻa iā ʻoe kekahi mau hōʻailona e like me nā maʻi ʻaleka, ka paʻakikī o ka hanu ʻana, a i ʻole ke kō koko haʻahaʻa, e ʻimi koke i ke kōkua lapaʻau.
- Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like me kekahi. Inā he mau nīnau kāu, e kamaʻilio mau me kāu kauka.
Metreleptin, MYALEPT, Leptin, Lipodystrophy, Inikini, Maʻi Diabetes, Nā hopena ʻaoʻao
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