He ʻauwae liʻiliʻi ko kāu keiki liʻiliʻi? E kamaʻilio kākou e pili ana iā Micrognathia!

I kekahi manawa ua ʻike paha ʻoe he ʻano liʻiliʻi iki ke ʻano o ka ʻāwae o kahi pēpē hānau hou, a i ʻole he ʻūmiʻi iki paha. He mea maʻamau i nā mākua ke hopohopo iki ke ʻike lākou i kēia. ʻOiaʻiʻo, kapa mākou i kēia kūlana ʻo Micrognathia. Mai hopohopo, e kamaʻilio mākou e pili ana i kēia ma ke ʻano maʻalahi no ʻoe e hoʻomaopopo ai.

He aha ka Micrognathia?

I ka ʻōlelo maʻalahi, ʻo ka micrognathia ka wā i ulu ʻole ai kou ʻāwae haʻahaʻa a i ʻole ka liʻiliʻi ma mua o ka maʻamau . He maʻi hānau pinepine ia. ʻO ia hoʻi, ua hānau ʻia nā pēpē me kēia maʻi.

Hiki i kēia ke kumu i kekahi mau pēpē e loaʻa ai nā pilikia hanu a me ka paʻakikī i ka hānai ʻana. ʻO ka nūhou maikaʻi, ʻo ka hapa nui o ka manawa, e nalowale kēia maʻi iā ia iho i ka wā e ulu ana ka pēpē. Eia nō naʻe, i kekahi mau hihia, hiki ke pili pū me nā maʻi genetic ʻē aʻe. No ka laʻana, ʻike ʻia me nā maʻi e like me ka lehelehe māwae a me ka palate, ka maʻi Pierre Robin, a me ka maʻi Treacher Collins.

He aha ka ʻokoʻa ma waena o Retrognathia lāua ʻo Micrognathia?

I kēia manawa, ke noʻonoʻo nei paha ʻoe, he ʻelua mau mea like ʻole ʻo Retrognathia lāua ʻo Micrognathia? A i ʻole he mea like lāua? ʻO kēia mau mea ʻelua he mau kūlana e hoʻopilikia ai i ka ʻāwae haʻahaʻa, a i ʻole ka mea a nā kauka e kapa nei he mandible. A ua hoʻohana ʻia kēia mau huaʻōlelo ʻelua e wehewehe i ke ʻano like.

Akā i ka pololei, ʻo ka retrognathia ka wā i hoʻihoʻi ʻia ai ke ʻāwae o lalo i ka ʻāwae o luna. He pilikia ia me ke kūlana o ka ʻāwae. Ma ka ʻaoʻao ʻē aʻe, ʻo ka micrognathia ka wā i liʻiliʻi ai ka ʻāwae o lalo ma mua o ka mea e pono ai. Eia nō naʻe, hiki ke like pinepine ka hōʻike ʻana o nā kūlana ʻelua.

ʻO wai ka mea i hoʻopilikia nui ʻia e kēia kūlana?

ʻIke pinepine ʻia ka Micrognathia i nā pēpē i hānau ʻia me kekahi mau kūlana genetic . No ka laʻana, hiki ke ʻike ʻia me nā kūlana e like me ka Pierre Robin syndrome, progeria, a i ʻole cri-du-chat syndrome. I kekahi manawa hiki ke hana ʻia me ke kumu ʻole, ma muli o kahi mutation genetic random.

Hiki ke loaʻa kēia ʻano i nā pākeke, akā ʻaʻole ia he mea maʻamau. ʻO nā kumu nui o ka micrognathia i nā pākeke he ʻāwae haki a hemo paha mai kahi ulia, a i ʻole ankylosis o ka hui temporomandibular (TMJ).

Pehea ka maʻamau o ka micrognathia?

ʻO Micrognathia kahi maʻi i waena o nā pēpē hānau hou.He mea maʻamau maoli nō ia . ʻO kaʻoiaʻiʻo, he mea maʻamau no nā pēpē ke loaʻa kahi ʻāwae haʻahaʻa e puka iki ana i ko lākou ulu ʻana. No ka hapa nui o nā pēpē, e nalo wale kēia ʻano micrognathia i ka hala ʻana o ka manawa. Eia nō naʻe, inā pili ia i kahi ʻano genetic, ʻaʻole ia e nalo wale .

He aha nā hōʻailona o Micrognathia?

Hiki i nā pēpē a me nā keiki liʻiliʻi me kēia maʻi ke hōʻike i nā ʻano hōʻailona like ʻole.

Nā ʻano o nā pēpē a me nā keiki liʻiliʻi

• Hanu walaʻau: Inā hana kāu pēpē i kahi walaʻau ʻē i ka wā e hanu ana, he hōʻailona paha ia o kēia maʻi. Hiki ke kani e like me ka ihu paʻa.
• ʻO ka apnea hiamoe a i ʻole nā ​​pilikia hanu ʻē aʻe: Hiki i kekahi mau pēpē ke loaʻa i kahi ʻūlū iki i ka wā e hiamoe ana. ʻO kēia no ka mea he liʻiliʻi ka ʻāwae lalo a hiki i ke alelo ke hāʻule i hope a ālai i ke ala ea. Hiki i kēia ke kumu i ka pēpē e ala pinepine ai.
• Pilikia me ka hānai ʻana: No ka mea, he liʻiliʻi ka ʻāwae o lalo, he mea paʻakikī paha i ka pēpē ke wehe pono i kona waha, e hoʻopaʻa pono i ka nipple, a omo. Hiki i kēia ke hana i ka pēpē e luhi i ka wā e hānai waiū ana a hiki ke hoʻopaʻa i ka waiū.
• Piʻi kaumaha maikaʻi ʻole: No ka mea, ʻaʻole hiki i ka pēpē ke hānai pono i ka waiū umauma, ʻaʻole paha e piʻi ke kaumaha o ka pēpē i kūpono no kona mau makahiki.
• ʻAʻole hiki ke hiamoe maikaʻi: ʻAʻole hiki i ka pēpē ke hiamoe maikaʻi ma muli o nā pilikia hanu.

Nā ʻano o nā mākua

Hiki i nā pākeke me ka micrognathia ke loaʻa i ka obstructive sleep apnea . Hoʻohana kekahi poʻe i kahi mea hana e like me ka mīkini CPAP e hoʻokele i kā lākou mau hōʻailona. Pono paha kekahi i nā braces a i ʻole ke ʻoki ʻana o ka ʻāwae hoʻoponopono.

He aha nā kumu o ka micrognathia?

I ka hapanui o nā hihia, ʻo kēia ʻano i kapa ʻia ʻo micrognathia he mea hānau mai , ʻo ia hoʻi, hiki mai ia i ka wā e noho ana ke pēpē i loko o ka ʻōpū.

• Nā Genes: I kekahi manawa hiki ke hoʻoili ʻia kēia mai kēlā hanauna a i kēia hanauna ma o nā genes. ʻO ke ʻano kēia inā loaʻa kēia maʻi i ka makuahine, ka makuakāne, a i ʻole kekahi o ka ʻohana, e loaʻa pū ana paha i ka pēpē.
• ʻO ka hoʻololi ʻana o ka genetics maʻamau: I kekahi manawa ma muli kēia o kahi loli maʻamau o nā genes. ʻO ke ʻano kēia, hiki i kahi gene ke loli ma ka manawa kūpono me ke kumu ʻole.
• Nā hihia kahi i ʻike ʻole ʻia ai ke kumu: I kekahi manawa, ʻaʻole hiki ke loaʻa kahi kumu kikoʻī.

He aha nā pilikia ʻē aʻe e pili ana me ka micrognathia?

Hiki ke pili ʻia ʻo Micrognathia me kekahi mau maʻi genetic ʻē aʻe a me nā kūlana olakino . ʻO kekahi o kēia mau kūlana:

• Lehelehe māwae a me ka lehelehe
• ʻO ka maʻi Pierre Robin
• ʻO ka maʻi Treacher Collins
• ʻO Trisomy 13
• Trisomy 18
• ʻO ka maʻi Beckwith-Wiedemann
• ʻO ka maʻi Stickler
• Progeria
• ʻAkondrogenesis
• ʻO ka maʻi Cri-du-chat
• ʻO ka maʻi Turner
• ʻO ka maʻi Marfan
• ʻO ka maʻi Seckel
• ʻO ka maʻi Russell-Silver
• ʻO ka maʻi Hallermann-Streiff
• ʻO ka microsomia hemifacial

Mai makaʻu i kēia mau inoa. ʻAʻole loaʻa kēia mau maʻi āpau i nā kānaka a pau. Hiki i ke kauka ke ʻike pono i ka mea e hana nei.

Pehea e ʻike ʻia ai ʻo Micrognathia?

ʻO ka mea mua a kāu kauka e hana ai, ʻo ia ke nānā pono i ke ʻano o ka maka o kāu keiki, ʻoiai ke kūlana o ka ʻauwae.

Nā mea a ke kauka e nānā ai

• Nānā mākou i ka pilina ma waena o ka ʻāwae lalo a me ka ʻāwae luna o ke keiki .
• Ke ʻimi nei mākou i nā ʻano like ʻole o ka helehelena .
• E nānā i nā hōʻailona o ka lehelehe māwae a me ka lehelehe .
• Nānā ʻia ke kūlana o ke alelo o ke keiki.
• Nānā pū lākou e ʻike inā he paʻa ke alelo o ke keiki.

E noʻonoʻo, i kekahi manawa hiki ke ʻike ʻia kēia maʻi ma mua o ka hānau ʻana o ka pēpē. ʻO ia hoʻi, i ka wā o ka ultrasound prenatal, ʻaʻole i ulu pono ka ʻāwae lalo, hiki ke ʻike ʻia.

Nā hoʻāʻo i hana ʻia

Inā kānalua ʻia ʻoe a i ʻole kāu keiki he micrognathia, hiki i kāu kauka ke kauoha i kekahi mau hoʻokolohua ʻē aʻe:

• Nā hoʻokolohua kiʻi: Hiki i nā hoʻokolohua e like me nā kiʻi X a i ʻole nā ​​​​scan CT ke ʻike maopopo i ke kūlana o nā iwi ā.
• Haʻawina hiamoe: Ke ana kēia i ka hanu ʻana, nā pae oxygen i loko o ke kino, ka hana o ka puʻuwai, a me ka hoʻoulu ʻana o ka lolo i ka wā hiamoe. Hiki i kēia ke kōkua i ka hoʻoholo ʻana inā e hanu ana ʻoe i ka wā hiamoe.

Pehea e mālama ʻia ai ʻo Micrognathia?

I kekahi mau hihia, e hoʻomaikaʻi wale ka micrognathia. Inā hana ʻia kēia, e hoʻoponopono nui ʻia ia i ka wā e hiki ai ke keiki ma kahi o 18 mau mahina . A hiki i kēlā manawa, e nānā ke kauka i ke kūlana o ka pēpē.

Aia nā lāʻau lapaʻau ʻoki kino a me nā lāʻau lapaʻau ʻole no kēia. ʻO ka lāʻau lapaʻau kūpono no kāu keiki e hilinaʻi ʻia i ke koʻikoʻi o ke kūlana.

Lapaʻau ʻoki ʻole

ʻO nā lāʻau lapaʻau maʻamau ʻole no kēia ʻano:

• Lapaʻau kūlana: I mea e wehe ai ke ala ea o kāu pēpē, hiki i kāu kauka ke ʻōlelo i nā kūlana hiamoe kikoʻī , e like me ka hoʻohuli ʻana i kāu pēpē ma ko lākou ʻaoʻao.
• ʻO ka paipu nasopharyngeal: He paipu kēia i hoʻokomo ʻia ma loko o ka ihu o ke keiki a hoʻokomo ʻia ma ke ala ihu e kōkua ai i ka wehe ʻana o ke ala ea.
• Lapaʻau kaomi ea maikaʻi: Pili kēia i ka hoʻohana ʻana i kahi mea BiPAP® a i ʻole CPAP e hoʻopuka i ka ea ma o kahi ʻōmole a hoʻopili iā ia i kahi pale maka e kūpono ana ma luna o ka ihu o ke keiki. Mālama kēia kaomi mau i ke ala ea o ke keiki e wehe.

Lapaʻau ʻoki kino

Inā ʻaʻole holo pono nā lāʻau lapaʻau ʻoki ʻole, a laila pono paha ke ʻoki ʻana i ka micrognathia. Eia kekahi o nā ʻoki e hiki ke hana ʻia:

• Hoʻopili ʻia ke alelo a me ka lehelehe: Ma kēia kaʻina hana, lawe iki ke kauka lapaʻau i ke kumu o ke alelo o ke keiki i mua a hoʻopili iā ia i ka lehelehe lalo a i ʻole ka ʻāwae. Pale kēia i ke alelo mai ka hāʻule ʻana i hope a me ka pale ʻana i ke ala ea.
• ʻO ka Mandibular distraction osteogenesis (MDO): He hana paʻakikī iki kēia. Ma kēia hana, ua māhele ʻia ka iwi ʻāwae o lalo o ke keiki i ʻelua a ua hoʻokomo ʻia kahi mea hana kūikawā e hoʻoneʻe i nā ʻāpana iwi ʻelua. Ke hoʻoneʻe ʻia nā ʻāpana ʻelua, ulu ka iwi hou, hoʻolōʻihi ʻia ka ʻāwae o lalo, a wehe ʻia ke ala ea.
• Tracheostomy: Hana kākaʻikahi ʻia kēia, a i ka wā wale nō i hāʻule ai nā lāʻau ʻē aʻe a pau. Pili kēia i ka hana ʻana i puka pololei i loko o ka ʻōpū hanu o ke keiki ma o ka ʻāʻī. Hiki i kēia i ke keiki ke hanu ma ke kāpae ʻana i ke ālai ʻana i ke ala ea o luna.

Hiki ke pale ʻia ka Micrognathia?

ʻOiai he maʻi hānau ʻia ka micrognathia, ʻaʻohe ala e pale aku ai. Pēlā nō, ʻaʻohe ala e pale aku ai i nā maʻi kumu he nui e pili ana me ia.

He aha kaʻu e hana ai inā loaʻa i kaʻu keiki ka micrognathia?

Inā ʻaʻole e hoʻomaikaʻi ka maʻi micrognathia o kāu keiki ma kāna iho i ka wā he 18 mau mahina , hiki i kāu kauka ke ʻōlelo i ka lāʻau lapaʻau. E kamaʻilio ʻo ia me ʻoe a hoʻoholo i ka hoʻolālā lapaʻau maikaʻi loa nāu a me kāu keiki.

E hoʻomanaʻo, ʻo ka nānā ʻana i nā keiki me ka micrognathia e hilinaʻi nui ʻia ana i ke kūlana kumu. E haʻi aku kāu kauka iā ʻoe i ka mea e manaʻo ai ma muli o ke kūlana kikoʻī o kāu keiki.

Āhea ʻoe e ʻike ai i ke kauka?

Inā ʻike ʻia ka ʻāwae o lalo o kāu keiki he liʻiliʻi a ʻaʻole paha e ulu pono ana , ʻoi aku ka maikaʻi o ke kipa ʻana i ke kauka no ka ʻōlelo aʻo. Eia kekahi, e hōʻoia e hoʻomaopopo i kāu kauka inā hōʻike kāu keiki i kekahi o kēia mau hōʻailona:

• Inā he walaʻau i ka wā e hanu ana
• Inā pilikia ʻoe i ka inu ʻana i ka waiū a i ʻole ka ʻai ʻana i ka meaʻai
• Inā he mau hōʻailona hopohopo ʻē aʻe

He aha nā nīnau āu e nīnau ai i ke kauka?

Inā ua ʻike ʻia kāu keiki me ka micrognathia, makemake ʻoe e aʻo i ka mea hiki iā ʻoe e pili ana i ia mea. Eia kekahi mau nīnau e nīnau aku ai i ke kauka:

• Pehea ke koʻikoʻi o kēia kūlana?
• Hiki paha i ka maʻi micrognathia o kaʻu pēpē ke hoʻōla ponoʻī ?
• Loaʻa i kaʻu pēpē nā pilikia olakino ʻē aʻe e pili ana i ka micrognathia?
• He aha nā kūlana hiamoe e kōkua ai e wehe i ke ala ea o kaʻu pēpē?
• He mea pono anei ka lāʻau lapaʻau? Inā pēlā, he aha ke ʻano o ka lāʻau lapaʻau?
• He aha ka nānā ʻana ma ke ʻano holoʻokoʻa?

He maʻi maʻamau ka Micrognathia i nā pēpē hānau hou. I ka hapa nui o ka manawa, e hoʻomaikaʻi ia iā ia iho. Eia nō naʻe, i kekahi mau hihia, hiki iā ia ke ālai i ke ala ea o ka pēpē, e paʻakikī ai ka hanu pono a me ka hānai waiū. Inā loaʻa i kāu pēpē ka micrognathia, mai hopohopo. Hiki i kāu kauka ke kamaʻilio me ʻoe e pili ana i nā koho lapaʻau a hoʻoholo i ka mea maikaʻi loa no kāu pēpē.

Leka Lawe-Home

• ʻO ka Micrognathia kahi kūlana i ʻoi aku ka liʻiliʻi o ka ʻāwae lalo ma mua o ka maʻamau.
• He maʻi hānau pinepine kēia, a ulu aʻe kekahi mau keiki i ka wā e ulu ai lākou.
• ʻO ka paʻakikī i ka hanu ʻana a me ka paʻakikī i ka ʻai ʻana paha nā hōʻailona nui .
• Hiki ke pili kēia kūlana me nā maʻi genetic ʻē aʻe .
• Aia nā koho lapaʻau i ke koʻikoʻi o ke kūlana a me ke kumu kumu . Aia nā lāʻau lapaʻau ʻoki kino a me nā lāʻau lapaʻau ʻoki kino.
• Inā loaʻa i kāu keiki kēia mau hōʻailona, ​​mai hopohopo a e ʻimi i ke aʻo lapaʻau . He mea nui loa ka ʻike mua ʻana a me ka mālama kūpono.

Manaʻolana wau he kōkua kēia ʻike iā ʻoe. Inā he mau nīnau kāu, mai kānalua e nīnau i kāu kauka.

ʻĀwae lalo, Micrognathia, ʻĀwae o ka pēpē, Nā pilikia hanu, Nā maʻi hoʻoilina, Pierre Robin syndrome, Micrognathia