Ke ʻike nei hoʻi ʻoe i kahi mea kupanaha i ke ʻano o nā mea? Malia paha ʻo Posterior Cortical Atrophy (PCA) kēia!

Ua loaʻa anei kēia mau mea iā ʻoe? Ke heluhelu ʻoe i kahi nūpepa, me he mea lā ua huikau nā leka, a i ʻole ke ʻike ʻoe i kahi mea āu i ʻike maikaʻi ai, ʻaʻole hiki iā ʻoe ke ʻike koke iā lākou. A i ʻole ke kuʻi mau nei ʻoe i nā puka, nā papa ʻaina, a me nā noho ma ka home? Inā hiki iā ʻoe ke ʻike maikaʻi, akā manaʻo ʻoe i kahi mea ʻē e pili ana i ke ʻano o nā mea, a inā manaʻo ʻoe i kahi makaʻu iki a hopohopo paha i ka manawa like, he mea nui iā ʻoe e makaʻala i kēia kūlana a mākou e kamaʻilio nei i kēia lā i kapa ʻia ʻo `(Posterior Cortical Atrophy)`.

He aha ka Posterior Cortical Atrophy (PCA)?

I ka ʻōlelo maʻalahi, ʻo `(Posterior Cortical Atrophy)` a i ʻole `(PCA)` he maʻi holomua, a he ʻano kakaikahi, e pili ana i ko kākou lolo. Kāhea mākou i kēia he `(neurodegenerative disorder).` ʻO ka mea e hana ʻia ma ʻaneʻi, ʻo ia ka luku mālie ʻia ʻana o nā pūnaewele lolo, ` (neurons),` ma ka posterior cortex o ko kākou lolo, ʻo ia hoʻi, ka `(posterior cerebral cortex),` ʻoiai ma ka ʻāpana e kōkua iā mākou e hoʻomaopopo a kālailai i nā mea a mākou e ʻike ai. ʻO kēia ʻāpana o ka lolo e komo pū ana me kā mākou `(parietal lobes)` a me `(occipital lobes)`. Ma muli o ka luku ʻia ʻana o kēia mau pūnaewele, emi mālie kēlā ʻāpana o ka lolo. Kāhea pū mākou i kēia `(atrophy) .`

ʻO ka mea nui, ʻaʻole kēia he hemahema o ka ʻike maka. He pilikia ia i ke kaʻina hana o ka mea a nā maka e ʻike ai e hele ana i ka lolo, a me ka lolo e hoʻomaopopo ana iā ia me he 'ʻo kēia kaʻu i ʻike ai'. Ua like ia me ke kiʻi ʻana i kahi kiʻi me kahi kāmela maikaʻi, akā i ka wā e hana hewa ai ka mea hana o ke kamepiula e nānā ana i kēlā kiʻi, ʻaʻole kūpono ke kiʻi.

He aha nā hōʻailona o kēia?

Hoʻomaka pinepine kēia mau hōʻailona ma waena o nā makahiki 50 a me 60. ʻO nā pilikia ʻike mua ka mea maʻamau. E nānā kākou i ke ʻano o lākou.

1. Paʻakikī i ka heluhelu ʻana:

E noʻonoʻo ʻoe e heluhelu ana i kahi nūpepa a i ʻole kahi puke e like me kēia. A laila, manaʻo koke paha ʻoe e like me ka neʻe ʻana o nā leka ma luna o kekahi, e lele ana nā laina i mua a i mua . Manaʻo kekahi poʻe ua paʻa a hihia nā huaʻōlelo a me nā leka. ʻŌlelo kekahi, 'Auē ke kauka, ke hoʻāʻo nei au e heluhelu, me he mea lā e paheʻe ana nā leka mai ka ʻaoʻao.' ʻO kēia ka mea e paʻakikī ai ke hoʻomaopopo i kāu mea e heluhelu nei, a ʻaʻole hiki iā ʻoe ke hoʻomau i ka heluhelu ʻana.

2. Hiki ʻole ke ʻike i ka mamao:

He pilikia nō hoʻi kēia e noʻonoʻo ai nā kānaka he nui. No ka laʻana, makaʻu paha lākou e piʻi a iho i luna o ke alapiʻi no ka mea ʻaʻole lākou i ʻike pono i ka mamao o nā ʻanuʻu. A i ʻole, i ka wā e huki ai lākou i ke kaʻa, ʻaʻole hiki iā lākou ke ʻike i ka mamao ma waena o nā huila a me ke kaʻa. Makaʻu nō hoʻi kekahi poʻe e piʻi i luna o kahi escalator no ka mea ʻaʻole hiki iā lākou ke ʻike i ka manawa a me kahi e hehi ai.

3. Paʻakikī ke hoʻomaopopo ʻana i nā kuhikuhi:

ʻOiai inā e haʻi ʻia iā ʻoe kahi kuhikuhi maʻalahi e like me ke 'huli ʻākau' a i ʻole 'hele hema', hiki ke paʻakikī ke hoʻomaopopo a hana ma ia mea. Manaʻo koke ʻoe ʻaʻole hiki iā ʻoe ke hoʻomanaʻo i ka ʻākau a me ka hema .

4. ʻAʻole hiki ke ʻike i nā helehelena, nā mea, a me nā wahi:

Me he mea lā he mea koʻikoʻi iki kēia, akā hiki ke hana ʻia i ka wā mua. ʻOiai inā ʻike ʻoe i kahi mea āu i ʻike maikaʻi ai, ʻaʻole hiki iā ʻoe ke noʻonoʻo koke, 'ʻAuē... ʻo wai kēia?' I kekahi manawa, lōʻihi ka manawa e ʻike ai i kahi mea kamaʻāina, ʻoiai inā he mea ia āu i loaʻa mua ma ka home. I kekahi manawa, hiki i kahi āu e noho nei ke manaʻo koke he mea ʻē.

5. Ke kuʻi ʻana i nā puka a me nā lako:

ʻOiai hiki iā ʻoe ke ʻike maopopo, e ʻike paha ʻoe iā ʻoe iho e kuʻi mau ana i nā mea e like me nā puka komo, nā papa ʻaina, a me nā noho i mua ou no ka mea ʻaʻole hiki iā ʻoe ke ʻike pono i ko lākou wahi. E noʻonoʻo paha ʻoe, 'No ke aha lā wau e kuʻi nei i nā mea āpau?'

6. Paʻakikī e hana me nā helu:

E noʻonoʻo ua hoʻopaʻanaʻau ʻoe i ka helu kelepona o kāu hoaaloha maikaʻi loa. Akā i kou lawe ʻana i ke kelepona a hoʻāʻo e kelepona i ka helu, ʻaʻole hiki iā ʻoe ke loaʻa nā huahelu ma ke kelepona. Hiki iā ʻoe ke ʻike i nā huahelu, akā ʻaʻole hiki i kou lolo ke hoʻomaopopo iā lākou.

7. Paʻakikī i ka hoʻohana ʻana i nā mīkini a me nā kuapo:

ʻOiai hiki iā ʻoe ke 'ʻike' i kahi o ke kuapo 'on/off' ma kahi mīkini hana hale e like me ka blender a i ʻole ka mea kuke laiki, hiki ke paʻakikī ke hoʻohana iā lākou no ka mea ʻaʻole hiki i kou lolo ke ʻike pono i kona wahi.

8. Hopohopo me ke kumu ʻole:

Me kēia mau mea, hiki i ka poʻe me PCA ke ʻike i kahi manaʻo hopohopo a me ka hopohopo i wehewehe ʻole ʻia mai ka wā ʻōpiopio. Manaʻo kekahi poʻe noiʻi e hoʻopilikia kēia ʻano i nā pūnaewele lolo e hoʻopili ai i ko mākou mau manaʻo, nā manaʻo, a me nā manaʻo, e hana ana i kēia hopohopo. ʻO kekahi manaʻo ʻē aʻe, ʻo ia ka manaʻo o ka poʻe i ka hopohopo no ka mea ua manaʻo lākou he hewa kekahi mea akā ʻaʻole hiki ke hōʻike i nā huaʻōlelo. Eia nō naʻe, ʻo kēia hopohopo ʻē he hōʻailona hoʻi ia a nā kauka e noʻonoʻo ai i ka wā e ʻike ai i ka PCA.

He aha nā pilikia e hiki ai i kēia ke hana?

No ka mea, he maʻi holomua ka PCA, hiki i nā hōʻailona mua ke ʻoi aku ka ʻino i ka hala ʻana o ka manawa, a hiki ke ʻike ʻia nā hōʻailona hou. Eia kekahi o nā pilikia nui e hiki ke kū mai:

• Makapō hana: ʻOiai ua maikaʻi nā maka, ʻaʻole hiki i ka lolo ke wehewehe i ka mea i ʻike ʻia, e like me he mea lā ua makapō ke kanaka.
• Kaumaha a me ka hopohopo: Hiki ke hele mai ke kaumaha o ka noʻonoʻo me ka maʻi, a hiki ke hoʻonui ʻia nā kūlana e like me ke kaumaha a me ka hopohopo.
• Hoʻonui ʻia ka pilikia o ka hāʻule ʻana: Hiki i kēia kūlana ke hoʻopilikia i ke kaulike o ke kino, e ʻoi aku ka nui o ka hāʻule pinepine ʻana.
• Hoʻonui ʻia nā ulia pōpilikia ma ka home: No ka laʻana, hiki ke hana ʻia nā ulia pōpilikia e like me ka ʻimi ʻana i ka papa hoʻomalu o ke kapuahi a me ka puhi ʻana i kou lima ma ka hoʻopā ʻana i kahi ʻāpana wela o ke kapuahi no ka mea ʻaʻole maopopo ka lolo i kahi o ka mea āu e ʻike nei.

He aha ke kumu o kēia?

ʻO ke kumu nui o ka PCA ka loaʻa ʻana o nā maʻi neurodegenerative ʻē aʻe e hoʻopilikia ai i ka lolo. Loaʻa pinepine i ka poʻe me PCA ka maʻi Alzheimer a i ʻole ka dementia kino Lewy.Aia kekahi o nā maʻi i kapa ʻia. ʻO kēia nā kumu maʻamau.

Eia nō naʻe, he mea kākaʻikahi loa, hiki i nā kūlana olakino ʻē aʻe ke hana i ka PCA. ʻO kēia mau mea:

• ʻO ka maʻi Creutzfeldt-Jakob (maʻi Creutzfeldt-Jakob)
• `(Ka hoʻohaʻahaʻa ʻana o ka corticobasal)`

He ʻāpana anei ka PCA o ka maʻi Alzheimer?

ʻAe, hiki ke manaʻo ʻia ʻo PCA he ʻano like ʻole o ka maʻi Alzheimer . Ke noʻonoʻo mākou i ka maʻi Alzheimer, manaʻo mua mākou i nā pilikia hoʻomanaʻo. Eia nō naʻe, i nā pae mua o ka maʻi Alzheimer, hiki ke hoʻopilikia ʻia nā ʻāpana ʻē aʻe o ka lolo i pili ʻole i ka hoʻomanaʻo. Kāhea nā kauka i kēia mau kūlana he ʻano like ʻole o ka maʻi Alzheimer. ʻO Posterior Cortical Atrophy kekahi o ia ʻano like ʻole o ka maʻi Alzheimer.

Pehea e ʻike ʻia ai kēia maʻi?

Hana nā kauka i kekahi mau hoʻokolohua e ʻike pololei i ka PCA, no ka mea, hiki ke hana ʻia kēia mau hōʻailona e nā kumu ʻē aʻe, a pono e kāpae ʻia.

• ʻO kahi scan lolo (MRI - magnetic resonance imaging): Hiki i kēia ke nānā no ka atrophy ma ka posterior cerebral cortex.
• He hoʻokolokolo maka: He mea nui kēia e hoʻoholo ai inā ua hana ʻia kēia mau pilikia ʻike e kekahi maʻi maka ʻē aʻe.
• Hoʻokolohua neurological: Nānā kēia i ke ʻano o ka hana ʻana o ka ʻōnaehana nerve.
• Loiloi Neuropsychological: Hoʻāʻo kēia i nā hana lolo like ʻole e like me ka hoʻomanaʻo, ka nānā ʻana, ka hiki ke ʻōlelo, a me ka ʻike ʻike.
• `(PET scan - positron emission tomography scan)`: Hiki ke hoʻohana ʻia kēia e ʻike inā he mau loli i ka hana o ka lolo a me ka maʻi Alzheimer.
• ʻO ke kī ʻana o ka lumbar / spinal tap: Hoʻāʻo kēia i ke kahe i loko o ka lolo a me ke kaula spinal no nā protein e pili ana i ka maʻi Alzheimer.

He aha ka lāʻau lapaʻau no kēia?

ʻO kaʻoiaʻiʻo, ʻaʻohe lāʻau lapaʻau no ka PCA i kēia manawa. Akā, mai hopohopo. Aia kekahi mau mea hiki iā ʻoe ke hana e hoʻokele i nā hōʻailona, ​​​​e hoʻolohi i ka holomua o ka maʻi, a e maʻalahi ai kou ola.

Hoʻoholo mua nā kauka i ke kumu nui o ke kūlana, e like me ka maʻi Alzheimer a i ʻole ka dementia kino Lewy. A laila mālama lākou i ke kūlana nui. Aia nā lāʻau lapaʻau i ʻāpono ʻia e ka US Food and Drug Administration e kōkua i ka lohi o ka holomua o ka maʻi.

Pili pū ia i nā polokalamu a me nā lawelawe like ʻole e kōkua ana i nā kānaka e ola me nā hōʻailona.

• Nā lāʻau lapaʻau:
• `(Donepezil)` (Donepezil)
• `(Rivastigmine)` (Rivastigmine)
• `(Galantamine)` (Galantamine)
• `(Lecanemab)` (Lecanemab)

ʻO kēia nā lāʻau lapaʻau i hāʻawi pinepine ʻia no ka maʻi o Alzheimer.

Inā loaʻa iā ʻoe nā kūlana e like me ka hopohopo a i ʻole ke kaumaha, hiki ke hāʻawi ʻia iā ʻoe nā lāʻau lapaʻau (lāʻau anti-anxiety, antidepressants) no kēlā mau mea.

• Nā lāʻau lapaʻau a me nā lawelawe ʻē aʻe:
• Hoʻoponopono hou ʻana i ka noʻonoʻo: Hiki iā ʻoe ke aʻo i nā hoʻomaʻamaʻa a me nā ʻano hana e kōkua i ka hoʻomaikaʻi ʻana i nā mea e like me ka hoʻomanaʻo a me ka nānā ʻana.
• ʻO ka hana lapaʻau: Kōkua kēia iā ʻoe e aʻo i nā hoʻolālā hoʻoponopono a hoʻololi i kou wahi i hiki iā ʻoe ke hana i nā hana o kēlā me kēia lā ma kāu iho.
• Hoʻōla kino: Hāʻawi kēia i nā hoʻomaʻamaʻa e kōkua ai i nā mea e like me ke kaulike a me ka hele wāwae.
• ʻŌlelo aʻoaʻo olakino noʻonoʻo: He mea nui loa ke aʻoaʻo ʻana no ka mālama ʻana i ke kaumaha a me ka hopohopo e hele mai me kēia ʻano.

He aha kāu e manaʻo ai inā loaʻa i kāu mea aloha ka PCA?

He maʻi ka PCA e ʻoi mālie ana ka ʻino i ka hala ʻana o ka manawa. No laila, hiki iā ʻoe ke manaʻo e ʻoi mālie aʻe nā hōʻailona o kāu mea aloha. I ka hopena, hiki iā lākou ke loaʻa nā hōʻailona e like loa me ko kekahi me ka maʻi Alzheimer holomua. ʻOiai he mea kaumaha kēia ke ʻike, pono mākou e mākaukau e hoʻoponopono iā ia.

He aha ke kūlana o ke ola o kekahi me PCA?

ʻO ke ola o kekahi me ka PCA ua like loa ia me ko kekahi me ka maʻi Alzheimer. Ma hope o ka hoʻomaka ʻana o nā hōʻailona mua o Alzheimer, ola ka hapa nui o ka poʻe ma kahi o 10 a 12 mau makahiki .

Eia nō naʻe, he mea nui e hoʻomanaʻo i kēia: He alakaʻi maʻamau wale nō kēia. Hiki ke ʻokoʻa mai kēlā kanaka a kēia kanaka. Hiki ke ʻokoʻa kou kūlana. No laila, ʻoi aku ka maikaʻi o ka nīnau ʻana i kāu kauka e pili ana i kēia.

Pehea e mālama ai i kaʻu mea aloha me PCA?

Inā loaʻa i kāu mea aloha ka PCA, he kuleana nui ka mālama ʻana iā lākou, a he nui ke aloha e pono ai. ʻO ka mea nui e hana mua ai, ʻo ia ka hoʻāʻo e hoʻomaopopo i ke ʻano o kā lākou ʻike ʻana i ke ao nei.

E noʻonoʻo, ua kuʻi ʻo ia i kahi papaʻaina. ʻAʻole no ka mea ʻaʻole ʻo ia i 'ʻike' i ka papaʻaina. No ka mea, hoʻouna kona mau maka i kahi hōʻailona i kona lolo e loaʻa ana ka papaʻaina, akā ʻaʻole maopopo pono ka lolo iā ia a pane mai ma ka ʻōlelo ʻana, 'Aia kahi papaʻaina ma laila, pono ʻoe e hana i ala.'

I nā manawa e like me kēia, ʻo kahi hopena, ʻo ia ka mālama ʻana i nā ala ma waena o nā lumi i akaka. Hiki iā ʻoe ke wehe i nā mea pono ʻole a hōʻemi i nā manawa kūpono o ko lākou kuʻia ʻana. He manaʻo hoʻokahi wale nō kēia. E hāʻawi aku ka hui lapaʻau e mālama ana i kāu mea aloha iā ʻoe i nā manaʻo ʻē aʻe he nui e kōkua iā lākou e noho palekana ma ka home a ma nā wahi ʻē aʻe, a e kōkua iā lākou e hana i kā lākou mau hana me ke kūʻokoʻa .

• E hoʻomanawanui: Hiki iā lākou ke lōʻihi ka manawa e hoʻomaopopo ai i nā mea a hoʻopau i nā mea.
• E ʻōlelo maopopo, e ʻōlelo maʻalahi:Ma kahi o ka ʻōlelo ʻana i nā mea he nui i ka manawa hoʻokahi, e ʻōlelo maʻalahi i hoʻokahi mea.
• E hana i kahi wahi palekana: E hōʻemi i nā wahi pahee a me nā wahi ʻā. E hoʻā i nā kukui i ka pō.
• E hoʻomaopopo i ko lākou mau manaʻo: He mea paʻakikī kēia no lākou. E hoʻomaopopo i ko lākou kaumaha a me ka huhū.
• E mālama pono iā ʻoe iho: I ka mālama ʻana i kahi mea aloha, he mea nui loa ia e mālama i kou olakino noʻonoʻo a me ke kino.

Āhea wau e ʻike ai i ke kauka?

ʻOi aku ka ʻino o nā hōʻailona o ka PCA i ka hala ʻana o ka manawa. Inā loaʻa iā ʻoe kēia maʻi, e kamaʻilio me kāu kauka e pili ana i ka mea e manaʻo ai i nā mahina a me nā makahiki e hiki mai ana.

Eia kekahi, e nīnau e pili ana i kekahi mau hōʻailona e hōʻike ana i ka hoʻonui ʻia ʻana o kou kūlana, a inā pono ʻoe e hoʻokaʻaʻike aku i kāu kauka inā ʻike ʻoe i kekahi. Inā loaʻa iā ʻoe kahi hōʻailona hou a inā e ʻoi koke ka ʻino o kahi hōʻailona e kū nei, e ʻimi koke i ka ʻōlelo aʻo lapaʻau.

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

No ka mea he maʻi laha ʻole ka PCA, nui paha kāu mau nīnau e pili ana i ia mea. Mai makaʻu e nīnau i kāu kauka e pili ana i nā mea āpau. Eia kekahi laʻana:

• 'E ke kauka, pehea ʻoe i ʻike pono ai he `(Posterior Cortical Atrophy)` koʻu?'
• 'He aha ke kumu o kēia loli i ka hana o koʻu lolo?'
• 'He aha kaʻu e hana ai e pili ana i koʻu mau hōʻailona o kēia manawa?'
• 'Aia kekahi lāʻau lapaʻau e hiki ke hōʻemi i kēia mau hōʻailona?'
• Pehea lā e pili ai kēia kūlana i koʻu ola o kēlā me kēia lā?
• 'He aha nā loli e pono iaʻu e manaʻo i nā mahina a me nā makahiki e hiki mai ana?'
• 'He aha ke ala maikaʻi loa noʻu e hoʻolālā ai no ka wā e hiki mai ana?'

He aha ka leka a mākou e makemake ai e lawe i ka home mai kēia moʻolelo?

ʻO ka Posterior Cortical Atrophy (PCA) kahi kūlana i hiki ke paʻakikī ke hoʻoponopono a hiki ke loaʻa ka hopena koʻikoʻi i kou ola. Ma muli o nā loli i ke ʻano o ka hana ʻana o kou lolo i kāu mea e ʻike ai, hiki iā ia ke paʻakikī i ka hana ʻana i nā hana o kēlā me kēia lā, e like me ka heluhelu ʻana, ka hana ʻana me nā helu, a me ka hoʻoholo ʻana i ka mamao. Hiki i kēia ke hana i ka nui o ka hopohopo a me ka makaʻu. Hiki paha iā ʻoe ke manaʻo ʻaʻole hiki iā ʻoe ke hana i kāu hana ma kāu iho.

ʻOiai ʻaʻohe lāʻau lapaʻau no kēia maʻi, ʻaʻole pono ʻoe e kū hoʻokahi. Nui nā mea hiki iā ʻoe ke hana e kōkua i ka hoʻokele ʻana i kāu mau hōʻailona, ​​​​hoʻololi i kēia ʻano nohona hou, a noho kūʻokoʻa no ka lōʻihi o ka hiki. Inā loaʻa iā ʻoe ka PCA, e kamaʻilio me kāu hui mālama ola e pili ana i ia mea. E hauʻoli nui lākou e kōkua iā ʻoe a hāʻawi iā ʻoe i nā kumuwaiwai āu e pono ai. Me ke kākoʻo a me ka hoʻoikaika āu e pono ai, hiki iā ʻoe ke hana i kēia huakaʻi.

ʻO ka Atrophy Cortical Posterior, PCA, nā maʻi lolo, nā pilikia ʻike, Alzheimer's, dementia, nā maʻi neurological