Koj puas muaj cov tsos mob no? Cia peb kawm txog Adult-Onset Still's Disease (AOSD)!

Koj puas muaj tej lub sij hawm koj mob, kub taub hau, thiab mob pob qij txha tau ntau hnub? Tej zaum yuav muaj pob liab liab ntawm koj daim tawv nqaij. Yog tias koj muaj cov tsos mob no, tej zaum koj yuav muaj yam peb tab tom tham txog hnub no: Kab Mob Tuag Tes Tuag Taw Rau Cov Neeg Laus (AOSD). Qhov no yog ib qho mob tsis tshua muaj, tab sis nws yog ib qho tseem ceeb uas yuav tsum paub txog nws.

Kab mob Adult-Onset Still's Disease (AOSD) yog dab tsi?

Hais yooj yim xwb, AOSD yog ib qho mob pob qij txha uas cuam tshuam rau tag nrho lub cev, ua rau o thiab mob hauv cov pob qij txha . Nws tuaj yeem ua rau mob pob qij txha, mob nqaij, kub taub hau uas tuaj thiab ploj mus thoob plaws hnub, thiab ua pob khaus ntawm daim tawv nqaij. Tsis tas li ntawd, lwm cov tsos mob ntawm lub cev kuj tuaj yeem tshwm sim.

Kab mob no, hu ua `AOSD`, yog ib hom kab mob laus ntawm `Still's disease` lossis `(Juvenile Idiopathic Arthritis - JIA)` uas tshwm sim rau cov menyuam yaus. Feem ntau nws cuam tshuam rau cov tub ntxhais hluas hnub nyoog ntawm 16 thiab 35. Ib yam li kab mob hauv cov menyuam yaus, nws qee zaum tuaj yeem kav ntev dua ib xyoos thiab tom qab ntawd ploj mus, lossis nws tuaj yeem tuaj thiab mus dhau sijhawm. Cov tsos mob ``flares`` tuaj yeem tuaj thiab mus ntau zaus, lossis lawv tuaj yeem tuaj thiab mus ntev. Tsis tas li ntawd, cov tsos mob no qee zaum tuaj yeem tsis hnyav heev, thiab lwm lub sijhawm lawv tuaj yeem hnyav heev. Txawm li cas los xij, muaj cov tshuaj zoo los tswj cov tsos mob thaum lawv tshwm sim.

Cov kab mob no muaj hom kab mob dab tsi tseem ceeb?

AOSD cuam tshuam rau txhua tus neeg sib txawv. Nws nyuaj rau hais tias nws yuav cuam tshuam li cas rau koj. Tab sis cov kws kho mob tau pom tias cov tsos mob feem ntau tshwm sim hauv peb txoj kev tseem ceeb:

Monophasic AOSD (Monophasic AOSD)

"Monophasic" txhais tau hais tias cov tsos mob tsuas yog tshwm sim ib zaug xwb . Qhov no tuaj yeem kav ntev li ob peb lub lis piam lossis lub hlis, tab sis tsawg dua ib xyoos. Hom no tuaj yeem pib sai sai, thiab kuj ploj mus sai sai. Xav txog, peb tus phooj ywg Kasun muaj cov tsos mob no nrog rau kub taub hau thiab mob pob qij txha, thiab tom qab li peb lub hlis nws tau zoo dua nrog kev siv tshuaj, thiab nws yeej tsis rov qab los. Qhov ntawd yog qhov '(Monophasic AOSD)' no hu ua.

Polyphasic AOSD (Polyphasic AOSD)

"Polyphasic" txhais tau hais tias cov tsos mob tshwm sim ntau zaus . Cov no tuaj yeem tshwm sim tsis tu ncua, qee zaum txhua ob peb lub lis piam, hli, lossis txawm tias xyoo. Txawm li cas los xij, dhau sijhawm, cov tsos mob no feem ntau yuav luv dua thiab tsis hnyav dua.

Mob AOSD Ntev `(mob AOSD Ntev)`

"Mob ntev" txhais tau tias koj muaj cov tsos mob uas txuas ntxiv mus, lossis qhov mob ntawd rov tshwm sim ntau zaus . Ib yam li cov kab mob xws li Rheumatoid Arthritis, qhov mob no (Chronic AOSD) yuav ua rau koj cov pob qij txha puas tsuaj mus sij hawm ntev.

Tag nrho peb hom no pom muaj tib yam sib piv. Txawm li cas los xij, nws tsis tuaj yeem hais meej tias nws yog hom twg thaum pib. Qee zaum, txawm tias nws xav tias yog "monophasic" lossis "polyphasic", nws tuaj yeem dhau los ua "mob ntev" `AOSD`.

Cov tsos mob ntawm AOSD yog dab tsi?

Ntxiv rau cov tsos mob tseem ceeb uas pom hauv tus kab mob no, muaj lwm cov tsos mob uas pom ntau.

Cov tsos mob tseem ceeb

• Kub taub hau: Thaum cov tsos mob tseem ceeb, feem ntau cov neeg yuav kub taub hau ob zaug hauv ib hnub , ib zaug thaum sawv ntxov thiab ib zaug thaum yav tsaus ntuj. Qhov kub taub hau no feem ntau yuav siab tshaj 39 degrees Celsius (102 degrees Fahrenheit).
• Pob khaus ntawm daim tawv nqaij: Feem ntau yuav muaj pob khaus liab, qee zaum xim zoo li ntses salmon thaum lub sijhawm kub taub hau siab tshaj plaws . Nws yuav ploj mus thaum lub sijhawm kub taub hau ploj mus. Feem ntau nws tshwm sim rau ntawm lub hauv siab, caj npab, thiab ceg thaum xub thawj, tab sis nws tuaj yeem kis mus thoob plaws lub cev.
• Mob pob qij txha: Muaj coob tus neeg mob pob qij txha , thiab ntau tus kuj yuav o thiab mob. Thaum xub thawj nws tsuas yog cuam tshuam rau ob peb lub pob qij txha xwb, tab sis dhau sij hawm, qhov mob no tuaj yeem cuam tshuam rau thoob plaws lub cev.
• Mob leeg: Koj cov leeg kuj tseem yuav mob , tshwj xeeb tshaj yog thaum lub kub taub hau siab tshaj plaws.

Lwm cov tsos mob uas pom ntau

• Mob caj pas.
• Mob plab.
• Kev xav tias qaug zog heev.
• Malaise yog kev xav tsis zoo, kev xav tsis zoo.

Koj xav li cas thaum muaj AOSD?

Qhov tseeb, thaum xub thawj, AOSD zoo li kab mob kis los ntawm kab mob lossis mob khaub thuas . Cov tsos mob xws li kub taub hau, mob lub cev, thiab mob caj pas zoo ib yam li ntau lwm yam kab mob uas feem ntau tshwm sim. Koj thiab koj tus kws kho mob yuav pib xav tsis thoob me ntsis yog tias cov tsos mob no tsis ploj mus tom qab ob mus rau peb lub lis piam.

Vim li cas tus kab mob AOSD no tshwm sim?

Kev o ntawm koj lub cev yog qhov ua rau muaj cov tsos mob ntawm AOSD . Feem ntau, peb lub cev tiv thaiv kab mob ua rau qhov o no los tawm tsam kev kis kab mob thiab kho cov qhov txhab. Nws yuav tsum yog ib ntus xwb. Tab sis hauv qee yam kab mob, zoo li AOSD, koj lub cev tiv thaiv kab mob muaj teeb meem nrog qee yam , thiab nws tseem ua rau qhov o no txawm tias tsis muaj kev kis kab mob los tawm tsam lossis qhov txhab los kho.

Cov kws tshawb nrhiav tseem tsis tau paub meej tias yog vim li cas qhov no thiaj tshwm sim. Ib yam li Juvenile Idiopathic Arthritis, Adult Still's Disease hu ua " idiopathic ." Qhov ntawd txhais tau tias qhov ua rau tseeb tsis paub . Zoo li nws tsis yog los ntawm noob caj noob ces.

Yuav kuaj mob AOSD li cas?

Cov tsos mob ntawm AOSD zoo ib yam li ntau lwm yam mob. Thiab vim tias nws yog ib qho mob tsis tshua muaj, cov kws kho mob yuav tsis paub tias nws yog dab tsi thaum xub thawj. Yog li nws yuav siv sijhawm me ntsis kom tau txais kev kuaj mob tseeb .

Tom qab koj tshuaj xyuas koj cov tsos mob thiab keeb kwm kho mob, koj tus kws kho mob yuav xaj kom kuaj ntshav thiab kuaj duab kom paub ntau ntxiv txog koj tus mob. Cov kev kuaj xws li X-rays lossis ultrasound scans tuaj yeem nrhiav kev o thiab o hauv koj cov pob qij txha. Cov kev kuaj ntshav tuaj yeem tshem tawm lwm yam mob. Yog tias koj cov kev kuaj ntshav qhia txog qib ferritin siab heev, nrog rau cov qe ntshav dawb ntau , cov tsos mob no yuav qhia tau tias AOSD.

Cov kev kho mob rau AOSD yog dab tsi?

Cov kws kho mob kho AOSD nrog ntau yam tshuaj tiv thaiv kev o . Cov hom tshuaj uas ua haujlwm zoo tshaj plaws rau txhua tus neeg txawv. Nws yuav siv sijhawm sim me ntsis kom nrhiav tau qhov uas ua haujlwm zoo tshaj plaws rau koj cov tsos mob. Thaum koj pom qhov yog lawm, koj yuav tsum tau noj tshuaj ntev ntev, txawm tias koj tsis muaj tsos mob los xij. Tsuas yog thaum ntawd koj thiaj li tiv thaiv tau qhov o ntawm qhov hnyav zuj zus.

Muaj tej yam tshuaj uas yuav ua rau muaj kev phiv yog tias siv ntev. Yog tias koj noj cov tshuaj no, koj tus kws kho mob yuav hloov cov tshuaj kom tsis txhob muaj kev phiv.

Qee cov tshuaj siv rau kev kho mob yog:

• Cov tshuaj nonsteroidal anti-inflammatory drugs (NSAIDs).
• Corticosteroids (cov tshuaj steroids tsim los) `(Corticosteroids - cov tshuaj steroids tsim los)`.
• Cov tshuaj kho mob rheumatic uas hloov kho kab mob (DMARDs).
• Cov tshuaj lom neeg `(Biologics)`.

AOSD loj npaum li cas?

Feem ntau, AOSD cuam tshuam rau koj lub neej zoo dua li koj txoj kev noj qab haus huv mus sij hawm ntev . Qhov ntawd yog, nws yuav ua rau tsis xis nyob thiab cuam tshuam rau koj cov dej num txhua hnub, tab sis nws tsis tas yuav ua rau koj lub cev puas tsuaj mus sij hawm ntev.

Txawm li cas los xij, qee tus neeg tuaj yeem tsim cov mob pob qij txha uas zuj zus tuaj . Qhov no yuav tshwm sim ntau dua hauv AOSD ntev dua li lwm hom. Yog tias qhov o ntawm koj cov pob qij txha hnyav txaus thiab kav ntev, lawv tuaj yeem maj mam ploj mus. Thaum cov khoom siv nyob ib puag ncig koj cov pob qij txha ploj mus vim yog qhov o, koj cov pob qij txha tuaj yeem pib txav mus rau qhov chaw. Qhov o thiab kev puas tsuaj ntawm cov pob qij txha no tuaj yeem ua rau mob deformities hauv koj cov pob qij txha.

Tsis tshua muaj, cov mob o uas cuam tshuam nrog AOSD kuj tseem tuaj yeem cuam tshuam rau koj cov kabmob sab hauv, xws li koj lub plawv thiab lub ntsws. Qhov no tuaj yeem ua rau muaj teeb meem loj dua. Txawm hais tias AOSD nws tus kheej yuav tsis cuam tshuam rau koj lub neej, cov mob thib ob no tsis tshua muaj peev xwm ua rau tuag taus.

Muaj teeb meem loj dab tsi tshwm sim tau?

Cov teeb meem tsis tshua muaj tab sis loj heev suav nrog:

• Mob plawv.
• Mob plawv.
• Kev mob ntshav txhaws hauv cov hlab ntsha (Disseminated intravascular coagulopathy - DIC).
• Mob ntshav siab ntawm lub ntsws.
• Cov kua dej hauv lub pleural.
• Kab mob ntsws interstitial.
• Hemophagocytic lymphohistiocytosis (HLH).

Puas kho tau AOSD kom zoo tag nrho?

Cov tshuaj kho tsis tau AOSD, tab sis lawv tuaj yeem pab txo cov tsos mob. Rau qee tus neeg, cov tsos mob yuav ploj mus tag raws sijhawm thiab tsis rov qab los. Qhov no hu ua mus rau hauv "kev zam txim," lossis tus kab mob ntsiag to. Yog tias koj mus rau hauv "kev zam txim," koj tuaj yeem tsum tsis txhob noj koj cov tshuaj. Tab sis rau qee tus neeg, AOSD yeej tsis ploj mus tiag tiag. Lawv yuav tsum tau noj tshuaj mus ib txhis kom tswj tau qhov o.

Nws nyuaj rau hais meej tias koj yuav muaj mob dab tsi. Txawm li cas los xij, qee tus kws kho mob ntseeg tias koj cov tsos mob thaum ntxov tuaj yeem qhia koj . Yog tias koj mob thiab o ntawm koj cov pob qij txha thaum ntxov, nws yuav kav ntev dua.

Peb yuav tsum saib xyuas peb tus kheej li cas thaum peb tseem muaj tus kab mob AOSD?

Muaj coob tus neeg uas muaj tus kab mob AOSD tuaj yeem ua neej nyob zoo li qub thiab xis nyob nrog cov tshuaj zoo . Rau lwm tus, lawv muaj teeb meem mob ntev thiab qaug zog ntev, uas tuaj yeem cuam tshuam rau lawv lub neej txhua hnub. Txawm hais tias cov tsos mob ntawm AOSD tseem ua rau koj ntxhov siab lossis tsis, koj yuav muaj kev phiv los ntawm cov tshuaj uas koj noj, xws li hnyav nce thiab hloov pauv siab.

Thaum lub neej muaj kev ntxhov siab tas li vim muaj tej yam uas koj tswj tsis tau, nws tseem ceeb dua rau koj saib xyuas koj tus kheej kom zoo. Kev pw tsaug zog zoo, kev noj zaub mov zoo, thiab kev tawm dag zog tsis tu ncua, uas tsis ua rau muaj kev cuam tshuam ntau tuaj yeem pab koj zoo siab dua.

AOSD yog ib yam mob uas tsis paub meej uas tshwm sim sai sai thiab tsis paub yog vim li cas. Thaum nws tshwm sim thawj zaug, koj yuav xav tias mob txawv txawv ntev heev. Nws yuav siv sijhawm thiab kev rau siab rau koj tus kws kho mob kom paub seb muaj dab tsi tshwm sim. Zoo hmoo, thaum koj raug kuaj pom tias muaj mob, koj tuaj yeem pib kho thiab maj mam pib zoo dua.

Txawm hais tias nws yuav siv sijhawm sim thiab ua yuam kev kom nrhiav tau kev kho mob uas ua haujlwm zoo tshaj plaws rau koj, feem ntau cov neeg tuaj yeem tswj hwm lawv cov tsos mob thiab tiv thaiv cov teeb meem loj nrog tshuaj . Txawm tias koj muaj AOSD ntev npaum li cas los xij, koj tus kws kho mob yuav yog koj tus khub zoo tshaj plaws hauv kev tswj hwm nws.

Thaum kawg, cov lus coj mus tsev

• AOSD yog ib qho kab mob sib koom ua ke uas tsis tshua muaj uas cuam tshuam rau tag nrho lub cev thiab tshwm sim rau cov neeg laus.
• Cov tsos mob tseem ceeb yog kub taub hau ntau zaus, tawv nqaij tawm pob, thiab mob pob qij txha thiab mob nqaij .
• Qhov ua rau qhov no tsis paub meej, tab sis nws feem ntau yog vim o los ntawm kev hloov pauv hauv kev ua haujlwm ntawm lub cev tiv thaiv kab mob.
• Yuav siv sijhawm ntev los kuaj mob, vim tias cov tsos mob zoo ib yam li lwm yam kab mob.
• Cov tshuaj kho mob tuaj yeem pab tswj cov tsos mob thiab , rau qee tus, txawm tias kho tau tus kab mob tag nrho.
• Yog tias muaj kev kho mob zoo thiab kev saib xyuas tus kheej zoo, feem ntau cov neeg tuaj yeem ua neej nyob tau ib txwm.
• Yog koj muaj cov tsos mob no, mus ntsib kws kho mob thiab nrhiav kev pab . Tsis txhob txhawj, muaj kev daws teeb meem rau txhua yam.

Xav kom koj muaj kev noj qab haus huv zoo!

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