If yu mama, papa, ɔ pɔsin we rili nia yu gɛt wan sik we dɛn kɔl Alzaima, a no aw i kin tranga. Bɔku kwɛstyɔn dɛn de na yu maynd, nɔto so? ‘Di mɛrɛsin we dɛn de gi mi fɔ dis go mek a gɛt sayd ɛfɛkt?’, ‘Wetin go apin we a go travul?’, ‘Wetin a go du if a nɔ it?’ I go mɔs bi se yu kin tink bɔt tin dɛn lɛk dis ɔltɛm. Lɛ wi tɔk bɔt ɔl dis simpul wan, as padi.
Yu tink se di mɛrɛsin dɛn we dɛn kin gi fɔ gɛt Alzaima sik kin gɛt sɔm bad bad tin dɛn?
Nɔr mɛrɛsin nɔr de fɔ mɛn Alzaima sik. Bɔt sɔm mɛrɛsin dɛn de we kin ɛp fɔ mek di sik nɔ go bifo kwik kwik wan ɛn fɔ kɔntrol di sayn dɛm. Bɔrku tɛm, dɛn mɛrɛsin ya kin ɛp pipul dɛm wae gɛt dis sik. Bɔt i impɔtant fɔ mɛmba se dɛn mɛrɛsin ya nɔ de wok fɔ ɔlman.
Dɛn mɛrɛsin ya kin gɛt sɔm kɔmɔn sayd ɛfɛkt dɛn. Bɔku tɛm, dɛn tin ya kin dɔn insay sɔm wiks. Bɔt, na smɔl tɛm nɔmɔ, siriɔs prɔblɛm dɛn kin apin. So i impɔtant fɔ no bɔt dɛn tin ya.
Wi go tɔk bɔt tri men kayn mɛrɛsin dɛn.
1. Di wan dɛn we de stɔp di kɔlinesterase
Dɛn tin ya de wok bay we dɛn de kɔntrol di lɛvɛl dɛn we wan kemikal mɛsenja de na wi bren we de ɛp fɔ mɛmba, fɔ pe atɛnshɔn, ɛn fɔ tink di rayt we.
| Di kayn mɛrɛsin dɛn (ɛgzampul dɛn) . | Kɔmɔn sayd ɛfɛkt dɛn |
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| Impɔtant: If yu tek di mɛrɛsin wit it, dat kin ɛp fɔ mek yu nɔ gɛt dɛn sayd ɛfɛkt ya. If yu gɛt ɛni ɔda tin we nɔ kɔmɔn, lɛk we yu de swɛla, yu mɔsul dɛn wik, ɔ yu de fɔdɔm, kɔl yu dɔktɔ wantɛm wantɛm. Dɔn bak, dis mɛrɛsin nɔr fayn fɔ pipul dɛm wae gɛt sɔm kayn at ritm disɔda. | |
2. Memantin (Mɛmantin - Namɛnda) .
Dis dכg de mεnεj di lεvεl dεm fכ wan kεmikכl mεsenja we de sכpכt fכ lan εn mεmכri.
| Tayp fɔ mɛrɛsin | Sɔm sayd ɛfɛkt dɛn we pɔsin kin gɛt |
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| Memantin we gɛt fɔ du wit am |
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3. Mɔnoklɔnal antibodi dɛn
Dis na nyu kayn mɛrɛsin. Dɛn kin fɛt di plek protɛin dɛn we kin gɛda na di bren. Dɛn kin gi dɛn tru wan vein (IV).
| monoklonal antibodi dεm (e.g. Lecanemab, Donanemab) - sayd ifekt dεm | |
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| Riakshɔn dɛn we pɔsin kin du wit infushɔn | |
| Fiva, diziz, nɔs, vɔmit, at bit we nɔ de bit ɔltɛm, i nɔ izi fɔ blo. If yu fil ɛnitin lɛk dis, tɛl di dɔktɔ ɔ nɔs wantɛm wantɛm. | |
| Ɔda siriɔs sayd ɛfɛkt dɛn (nɔ kin apin so ɔltɛm) . | |
| Bren de swel ɔ blɔd de kɔmɔt na di bren | Pan ɔl we bɔku tɛm dɛn nɔ kin si di sik, dɛn tin ya kin apin:
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| Impɔtant:Yu dɔktɔ kin tɛl yu fɔ du MRI skan ɔltɛm fɔ wach dɛn tin ya. Pipul dεm wae de tek bכdi tεn dεm εn dεn wan dεm wae gεt di APOE e4 jin de pan hεvi risk. | |
Mi papa gɛt wan sik we dɛn kɔl Alzaima. We a de travul wit am, wetin a go du fɔ mek i izi fɔ wi ɔl tu?
Dis na rili fayn kwɛstyɔn. Di tin we impɔtant pas ɔl na fɔ plan bifo tɛm. Fɔs, go fɔ shɔt trip ɛn si aw dɛn de biev we dɛn de travul.
- Mek dɛn du simpul tin dɛn we dɛn de travul: luk magazin, ple gem wit kad, ɔ lisin to myuzik.
- Nɔ ɛva lɛf pikin in wan na motoka. Ɔltɛm, tay yu sit bɛlt ɛn lɔk di domɔt dɛn.
- Stɔp di motoka bɔku tɛm ɛn rɛst: If i vɛks, stɔp kwik kwik wan. Nɔ tray fɔ kɔrej am we yu de drayv.
- Go sɔmsay we i sabi: Ples lɛk risɔt we i dɔn go bifo na in bɛtɛ. Nɔ go na ples dɛn we pipul dɛn kin bɔku ɛn fɔ travul we gɛt nɔys.
- Tɛl di wan dɛn we de wok na di aylayn ɛn di ɔtel: Tɛl dɛn se yu de travul wit pɔsin we nɔ de mɛmba fayn.
- Kip ID kad nia yu: I rili impɔtant fɔ gɛt kad we gɛt yu nem, adrɛs, ɛn kɔntakt fon nɔmba na yu klos ɔ na yu pɔkit.
- Tink bɔt yusɛf bak: We yu de ɛnjɔy yu tɛm wit yu papa, tek sɔm tɛm fɔ yusɛf. If i pɔsibul, aks ɔda pɔsin fɔ ɛp am.
Di pɔsin we a lɛk nɔ de it. Wetin a de du?
Di sayn dɛm fɔ Alzaima sik kin mek yu nɔr want fɔ it. Dis kin kam bikɔs ɔf tin dɛm lɛk nɔr de fil angri ɔr tɔsti, i nɔr kin izi fɔ swɛla, nɔr kin ebul fɔ yuz kɔtlɛri, ɛn strɛs. Tray dɛn tin ya:
- Tɔk to yu dɔktɔ fɔs. I kin bi bikɔs ɔf wan kɔndishɔn we dɛn kin trit (e.g. pwɛl hat).
- Nɔ fos dɛn fɔ it. Fɛn ɔda tin dɛn we mek dɛn nɔ lɛk fɔ it.
- Fid it dɛn we gɛt fayn fayn tin dɛn: Fid it dɛn we gɛt prɔtin, frut, vɛjitebul, ɛn gud fat. Ridyus di sɔl ɛn shuga. I fayn bak fɔ gi nyutrishɔn drink (shakes).
- Insted of 3 big it, giv som smol smol it.
- Divɛlɔp yu apɛtit: Fokus pan smɔl smɔl ɛksesaiz dɛn lɛk fɔ waka ɛn fɔ mek gadin.
- Gi finga it dɛn. Dɛn tin ya kin izi fɔ dɛn fɔ kɔntrol.
- Mek di tɛm we yu de it fayn: Plɛt ɛn kɔp dɛn we gɛt kɔlɔ, ɛn sɔft myuzik na bakgrɔn kin ɛp. If i pɔsibul, una fɔ it togɛda pas fɔ it una wan.
Sɔm pan di big big lay lay stori dɛm bɔt Alzaima sik
We yu biliv di rɔŋ we aw pipul dɛn de tink, dat kin jɔs mek di pɔsin we sik ɛn yu strɛs we yu nɔ nid. Lɛ wi no di tru tin bɔt dɛn lay lay stori dɛn ya.
Myth #1: Alzaima kin afɛkt ol pipul dɛm nɔmɔ.
Fact: Pan ɔl we bɔku pipul dɛn dɔn pas 65 ia, lɛk 5% pan di wan dɛn we sik kin gɛt di sik we dɛn dɔn pas 30, 40, ɔ 50 ia. Dɛn kɔl dis ``Early-onset Alzheimer's.'' Dis kin bi bikɔs ɔf di jɛnɛtik tin dɛm.
Myth #2: I nɔmal fɔ mɛmba wit di ej.
Fact: Na nɔmal tin fɔ fɔgɛt usay yu put yu ki. Bɔt fɔ fɔgɛt di say we yu de go ɔltɛm, di de insay di wik, ɔ di sizin kin bi sayn fɔ Alzaima. Dis nɔto nɔmal tin fɔ ol, bɔt na sik.
Myth #3: Nɔbɔdi nɔ de day wit Alzaima sik.
Di tru tin: I sɔri fɔ no se Alzaima na sik we de kil pɔsin. Dis sik kin mek yu gɛt siriɔs prɔblɛm lɛk fɔgɛt fɔ it ɔ drink, fɔ gɛt prɔblɛm fɔ swɛla, fɔ nɔ gɛt bɛtɛ tin fɔ it, ɛn fɔ gɛt nyumonia. I kin mek yu layf de pan denja bak, lɛk fɔ lɛ yu nɔ no natin ɛn fɔ go na say dɛn we denja.
Myth #4: Tritmɛnt dɛn de we de stɔp di sik fɔ mek i nɔ wɔs.
Fact: Pan ɔl we mɛrɛsin dɛn de we kin kɔntrol di sik ɛn slo di sik fɔ go bifo smɔl, dɛn nɔ kin ebul fɔ stɔp ɔ rivɛns di sik ɔltogɛda. Nɔ ful yu wit ɛni supamakit ɔ it we de se i de "cure" yu. Trɔst yu dɔktɔ ɔltɛm.
Myth #5: Aluminium, flu shot, ɛn mɛkuri filin kin mek yu gɛt Alzaima.
Di tru: No sayɛns pruf nɔ de fɔ ɛni wan pan dɛn tin ya. Na wan kɔmplit lay lay stori se aluminiɔm kan, atifishal switin (aspartame), ɔ silva filin na tit kin mek pɔsin gɛt Alzaima. Infakt, fɔ gɛt vaysin, lɛk di flu shot, fayn fɔ ɔl di wɛlbɔdi.
Mɛsej we dɛn kin kɛr go na os
- Pan ɔl we dɛn nɔ go ebul fɔ mɛn Alzaima sik, mɛrɛsin kin kɔntrol di sayn dɛn we i kin gɛt ɛn aw di sik kin go bifo.
- Bifo yu bigin fɔ tek ɛni mɛrɛsin, ɛn if yu gɛt ɛni bad bad tin, tɔk to yu dɔktɔ opin wan bɔt am. Nɔ ɛva stɔp ɔ bigin fɔ tek mɛrɛsin bay we ɔda pipul dɛn advays yu.
- We yu de kia fɔ pɔsin we sik, i rili impɔtant fɔ de du tin ɔltɛm, peshɛnt, ɛn lɛk am.
- Fɔ fala di advays dɛn we dɔktɔ dɛn kin gi ɔltɛm ɛn nɔ biliv pan lay lay stori ɔ tritmɛnt dɛn we sayɛns nɔ dɔn pruv.
- Fɔ kia fɔ pɔsin we yu lɛk na big tin we yu fɔ du. Na di sem tɛm, i impɔtant fɔ mek yu tek kia ɔf yu yon maynd ɛn bɔdi wɛlbɔdi bak. Nɔ shek fɔ aks fɔ ɛp if yu nid am.
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