Bɔku tɛm yu kin fil pen na yu bak ɔ yu hip? We yu wek na mɔnin, yu kin fil se yu stif ɛn yu nɔ ebul fɔ muf? Bɔku tɛm, we yɔŋ uman tɔk bɔt sɔntin lɛk dis, sɔm pipul dɛn kin tink se na jɔs nɔmal taya ɔ strɛs. Bɔt dis kin bi di biginin fɔ wan dip stori. Tide wi de tɔk bɔt wan kɔndishɔn we bɔku pipul dɛn tink se na man nɔmɔ kin afɛkt, bɔt i kin afɛkt uman dɛn jɔs lɛk aw i kin afɛkt. Dat na di sik we dɛn kɔl Ankylosing Spondylitis (AS).
Wetin na di difrɛns we dis sik de ambɔg uman dɛn?
Fɔ tɔk am simpul wan, ankylosing spondylitis (AS) na wan kayn at at sik we kin mek di spayna ɛn di jɔyn dɛn we gɛt fɔ du wit am inflamɛns, ɔ swel. I de pan wan big grup fɔ sik dɛn we dɛn kɔl spondyloarthritis. Wan tɛm dɛn bin de tink se na "man dɛn sik." Bɔt risach dɔn sho naw se i kin afɛkt uman dɛn jɔs lɛk aw man dɛn kin afɛkt. Bɔt, big difrɛns de pan di we aw de sik kin sho, di tɛm we i kin tek fɔ no di sik, ɛn di tritmɛnt dɛn. Lɛ wi tek wan luk pan wetin na dɛn tin dɛn de.
1. Delay fɔ no di sik
Dis na wan pan di big big prɔblɛm dɛn we uman dɛn kin gɛt. Jɔs imajin, if i tek man lɛk 6 1⁄2 ia frɔm di tɛm we dɛn sik ya bigin fɔ no wetin na di sik, stɔdi dɔn sho se i kin tek uman lɛk 9 ia .
Dis nɔr kin bi bikɔs ɔf difrɛns pan de sik ɔr ej. Bɔku tɛm, na bikɔs ɔf wan bias pan di we aw sɔm dɔktɔ dɛn de si uman dɛn pen. Dɛn kin ignore yu pen, ɔr kin atribyut am na strɛs.
2. Risk fɔ misdiagnosis
E kin tranga fɔ no bɔt de sik, ɛn sɔmtɛm dɛn kin trit di rɔng sik. Akshal spondyloarthritis (axSpA) na wan kayn AS. Risach dɔn sho se te to wan kwata (25%) pan uman dɛm we gɛt dis sik, dɛn nɔ kin no di rayt we fɔs.
Bikɔs uman dɛn we gɛt AS kin gɛt bɔku pen ɔlsay na dɛn bɔdi, dɔktɔ dɛn kin mistek kɔl am wan sik we dɛn kɔl fibromyalgia . Lɛ wi tek wan luk pan di sem tin ɛn difrɛns bitwin di tu kɔndishɔn.
| Di kwaliti we pɔsin gɛt | Na ankylosing spondylitis (AS) we de mek pɔsin gɛt sik . | Insay Fibromyalgia we dɛn kɔl Fibromyalgia |
|---|---|---|
| Big big pen | Pen we kin kam bikɔs ɔf inflamɛns na di bak, hip, ɛn jɔyn dɛn. | Pen we de skata ɔlsay na di bɔdi. Nɔ patikyula inflamɛns nɔ de we pɔsin kin si pan ɛkstrem rayt. |
| Mɔnin stiffness | Bɔku tɛm i kin tek pas af awa. I kin go dɔŋ we yu de du ɛksɛsayz. | Pan ɔl we i de, ɛksesaiz nɔ kin mek big difrɛns. |
| Mɛdikal tɛst dɛn | X-ray, MRI, ɛn blɔd tɛst (ESR, CRP) de sho se di jɔyn dɛn dɔn pwɛl ɛn inflamɛns. | X-ray ɛn MRI nɔ de sho patikyula damej. Dɛn kin no di sik bay di sayn dɛm. |
3. Di lɛvɛl we di damej we dɛn kin si pan ɛkstrem rayt ɛgzamɛn
כltu, we yu de luk pan εks-ray, di man dεm spεnal jכint (joint erosion) de mכr fכ si pas uman dεm. Bikɔs ɔf dis, pipul dɛn biliv se di sik kin go bifo kwik kwik wan pan man dɛn.
Bɔt nɔto dat na di tru. Pan ɔl we di damej we dɛn kin gɛt we dɛn de tek ɛkstrem rayt nɔ kin bɔku, di pen, di prɔblɛm we i kin gɛt fɔ du ɛvride, ɛn di sik we uman dɛn kin gɛt na di sem tin lɛk man dɛn, ɛn sɔntɛnde i kin ivin pas dat.
Di sayn dɛm, di tritmɛnt, ɛn di kwaliti fɔ layf kin chenj
Apat frɔm di pen we di jɔyn dɛn kin gɛt, AS kin mek ɔda sayn dɛn bak. Dɛn tin ya difrɛn bitwin uman ɛn man, lɛk dis.
- Enthesitis: Dis na smɔl wɔd we dɛn kin yuz fɔ mɛn pipul dɛn. Fɔ tɔk am simpul wan, i de tɔk bɔt inflamɛns usay wi tɛndon ɛn ligamɛnt dɛn kin kɔnɛkt to bon dɛn. Dis sik kin mɔs pan uman dɛn ɛn i kin mek dɛn fil pen mɔ . I kin mek yu fil bad bad wan na say dɛm lɛk di il ɛn di ɛlb.
- Ay infεkshכn: Acute Anterior Uveitis na wan sik wae de mek yu yay rεd, yu de fil pen bad bad wan, εn yu nכ de si fayn fayn wan. Sɔm stɔdi dɛn dɔn sho se i kin apin mɔ pan uman dɛn, ɛn ɔda wan dɛn dɔn sho se i kin apin mɔ pan man dɛn. So stil no wanwɔd nɔ de pan dis.
- Kɔmorbiditi dɛm: Uman dɛn kin sɔfa mɔ bak wit ɔda kɔmɔrɔbiditi dɛm we kin kam wit AS. fכ egzampl, inflammatory bowel disease (IBD) εn di skin kכndishכn psoriasis kin bכku pan uman dεm we gεt AS.
- Rispɔns to tritmɛnt: Dis na pɔynt we rili impɔtant. Risach sho se di tritmɛnt fɔ AS nɔ de wok fayn pan uman dɛn lɛk aw dɛn de wok pan man dɛn. Wi nɔ no di rayt rizin fɔ dis, bɔt dɛn tink se uman dɛn kin gɛt tin dɛn lɛk ɛntɛsitis ɛn dɛn kin no se dɛn gɛt dis sik let. Dis kin mek uman dɛn kin stɔp di tritmɛnt if dɛn nɔ gɛt di rizɔlt we dɛn want.
- Kwaliti fɔ layf: We dɛn put dɛn togɛda, bɔku stɔdi dɛn dɔn sho se uman dɛn we gɛt AS gɛt ɔl di kwaliti fɔ layf we smɔl pas man dɛn. Dis kin bi mɔ bikɔs i kin fil pen ɔltɛm, i kin taya, ɛn i nɔ kin izi fɔ du di wok ɛn famili wok.
Di tin we impɔtant pas ɔl na fɔ no se di pen we yu de fil na rial tin. Nɔ dismis am as "jɔs bak-ak we gyal pikin dɛn kin gɛt ɔltɛm." Lisin to wetin yu bɔdi de tɛl yu.
Mɛsej we dɛn kin kɛr go na os
- Ankylosing spondylitis (AS) nɔto sik we kin jɔs afɛkt man dɛn. I kin afɛkt uman dɛn ikwal.
- If yu gɛt bak pen, hip pen, ɔ mɔnin stiffness we dɔn de go fɔ sɔm mɔnt, mɔ we yu yɔŋ, nɔ ignore am. Go to dɔktɔ we sabi du di wok wantɛm wantɛm.
- Bikɔs uman dɛn kin let fɔ gɛt diagnosis, yu nid fɔ bi yu yon vɔys. Kip wan jɔnal fɔ yu simptom dɛm (we de pen bigin, aw e tranga, aw e kin kam ɛn go). I go rili ɛp yu dɔktɔ.
- Tritmɛnt nɔr de woke di sem fɔ ɔlman. If yu nɔr de fil fayn wit de tritmɛnt wae dɛn dɔn gi yu ɔr yu de gɛt sayd ɛfɛkt, tɔk to yu dɔktɔ bɔt am. Tɔk bɔt ɔda tritmɛnt dɛn.
- Yu nɔ nid fɔ go tru dis waka yu wan. Tɔk to yu fambul ɛn padi dɛn bɔt dis. Nɔ shek fɔ gɛt saykolojik sɔpɔt if yu nid am.
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