Wetin na dis bak pen we kin kam jɔs lɛk aw di bɛst tɛm na yu layf de bigin? Lɛ wi tɔk bɔt Ankylosing Spondylitis (AS) .

Na di bɛst tɛm na yu layf, we yu de na skul, na di kɔmpas, na gud wok, ɛn de drim fɔ gɛt famili, yu kin gɛt bak pen ɔltɛm ɛn we nɔ kin mek sɛns? Sɔntɛm dis pen kin bigin na yu hip ɛn smɔl smɔl i kin travul go ɔp yu spayna, ɛn i kin swɛt yu nɛk? Bɔku tɛm dis na di biginin fɔ wan sik we dɛn kɔl Ankylosing Spondylitis (AS). I kin afɛkt bɔku yɔŋ pipul dɛn we jɔs bigin fɔ liv dɛn layf. Bɔt sɔm pipul dɛn de we, instead fɔ giv ɔp pan layf bikɔs ɔf dis pen, dɛn kin fɛt am ɛn mek dɛn drim dɛn kam tru. Tide wi go tɔk bɔt sɔm pan dɛn kayn pipul dɛn de.

'A gladi fɔ ivin di smɔl smɔl tin dɛn naw' - Jake in stori

Jake na bin gud atlet na skul ɛn na di kɔmpas. So fɔs, i bin blem di bad bad pen we i bin de fil ɛn we nɔ de dɔn, bikɔs ɔf di injuri dɛn we i bin gɛt we i de du spɔt. Bɔt wan de, i bin de lisin to wan pɔdkas bɔt sik dɛn we pɔsin kin gɛt we i de fɛt insɛf.

Jake se: “Di sayn dɛn we dɛn tɔk bɔt insay de, na di sem tin lɛk di wan dɛn we a bin dɔn gɛt ɔltɛm.”

Fɔ tɔk am simpul wan , wan sik we pɔsin kin gɛt we i de fɛt wi bɔdi na we di imyun sistɛm we dɛn se de protɛkt wi bɔdi kin mistek bigin fɔ atak wi yon bɔdi in sɛl dɛn. Ankylosing Spondylitis na wan pan dɛn kayn sik ya.

Afta tu wiks, dɛn bin kam fɔ no se Jek gɛt AS we i go to wan dɔktɔ we de mɛn di sik we de mek pɔsin gɛt rɔm. I bin rili fil fri fɔ dɔn fɔ no wetin dɔn mek i sɔfa fɔ lɔng lɔng tɛm, bɔt di pen bin stil de. Sɔm dez, di pen bin so bad dat i bin gɛt fɔ go na ɔspitul fayv ɔ siks tɛm insay in fɔs sɛmsta na lɔ skul.

Bɔt Jek nɔ bin giv ɔp. Sɔmbɔdi we bin de na di pɔdkas bin tɔk se i bin rili fil fri we i chenj to it we na mit nɔmɔ. Jake bin disayd fɔ tray am.

"A bin fala di it we a bin de it ɛksaktɔli. A bin jɔs de it mit ɛn wata. I sɔprayz fɔ no se afta wan wik, di pen we a bin de fil bin smɔl. Mi skin bin rɛd bikɔs ɔf di inflamɛns, ɛn dat sɛf nɔ bin de igen," na so Jake tɔk.

Jake bin gɛt wan ɔda prɔblɛm. In pen bin de mɔna am we i sidɔm na chia na klas ɔl di de. So i bin fɛn sɔlv fɔ dat bak. Na bin ɛksesaiz we i bin de mek fɔ insɛf ɛvride.

• Ɛvri mɔnin, a kin spɛn 15 minit na wan kol pul we kol wata kin rich na mi nɛk.
• Dɔn, i kin strɛch in psoas mɔsul, we na wan lɔng mɔsul we de kɔmɔt na in ɔnda bak te to in shɔl.
• A kin du yoga bak ɛn ɛksesaiz fɔ blo dip dip wan.

Jake se, "A nɔ bin ebul fɔ blo fayn fɔ sɔm tɛm. Na we a ebul fɔ strɛch mi mɔsul dɛn smɔl na in a kam fɔ no." "I de at plenti wen a de du dis stretch. Bot di rilif we a de fil afta dat na so moch pas worth am."

Jake se fɔ liv wit pen nɔ kin izi. Bɔt bikɔs i dɔn win da prɔblɛm de, naw i de tink bɔt layf difrɛn we. "A de apres nau ivun di likl taim we a fit spend wit mai famili witout pen. A no de tek enitin fo granted mo."

'A fɔ kip de go bifo' - Jɛs in stori

Jɛs na wan yɔŋ uman we kɔmɔt na Kanada. I bin ol 18 ia we i bin bigin fɔ fil pen na in rayt hip ɛn in bɔdi fɔ di fɔstɛm we i bin de travul wit in padi dɛn. Fɔs, i bin tink se na bikɔs i bin dɔn sidɔm na di vɛn fɔ lɔng tɛm. Bɔt afta sɔm dez, di pen bin so bad dat i nɔ bin ivin ebul fɔ grap na bed.

I tek dɔktɔ dɛn 4 ia fɔ no di rayt tin we Jɛs bin gɛt. Bikɔs dis sik nɔ kin bɔku pan uman dɛn, sɔntɛnde i kin bi we dɛn kin no bɔt am let. Jɛsi bin rili fil bad we i bin de tray fɔ no wetin na dat. Bɔt we i kam fɔ no wetin i gɛt, Jɛsi bin rili fil fri.

Tide, Jɛs de tek wan mɛrɛsin we dɔktɔ gi am fɔ kɔntrol in inflamɛns, we de blok wan prɔtin we dɛn kɔl intalyukin-17 (IL-17), we de mek in bɔdi inflamɛns.

"Dat mɛrɛsin rili wɔndaful. A jɔs de fil pen naw di wik bifo mi nɛks injɛkshɔn," na so i se.

Jɛsi dɔn no se di bɛst we fɔ liv wit dis pen na fɔ ɛksesaiz.

Jɛs se: "A lɔs 4 ia na mi yɔŋ layf bikɔs a bin de fil pen ɛn a nɔ bin ebul fɔ muv. So a bin prɔmis misɛf se pan ɔl we a stil ebul fɔ muf, a go yuz am di bɛst we."

I bin jɔyn wan eksasaiz program wit di wan dɛn we de mɛn di bɔdi na wan ɔspitul ɛn naw i ebul fɔ ɛksesaiz fɔ insɛf.

• I kin du ɛksɛsayz ɛvride fɔ mek in lɔwa bak ɛn in kɔr mɔsul dɛn strɔng.
• Du yoga eksasaiz lek `pikin pose`, we de stret di spayna.
• Tray fɔ kɔntinyu fɔ tinap di rayt we.

I dɔn disayd bak fɔ it tin dɛn we de ridyus di inflamɛns (vɛjitebul, frut, fish, nɛt), nɔ fɔ de nia pipul dɛn we de smok, ɛn lɛf fɔ drink rɔm kpatakpata.

"A no se wan de mi spayna kin fuz kpatakpata, ɛn mi mɛrɛsin kin stɔp fɔ wok. Bɔt a kin aks misɛf ɔltɛm se, 'Wetin ɔda tin a go du?' A de tɛl misɛf se a fɔ kɔntinyu fɔ go bifo, literally, ɔltɛm de go bifo."

Us we dɛn pipul ya bin de yuz fɔ kɔntrol di pen?

Jake ɛn Jess bin yuz difrɛn we dɛn fɔ kɔntrol di pen we dɛn bin de fil. Lɛ wi luk sɔm pan dɛn na wan tebul.

Tin dɛn we yu go ebul fɔ du

If yu gɛt dɛn sik ya, di fɔs tin we yu fɔ du na fɔ nɔ fred ɛn go to dɔktɔ we sabi du am.I go fayn if yu go to dɔktɔ we spɛshal pan bon ɛn jɔyn sik dɛn (rheumatologist).

• Kɔrɛkt diagnosis: De tin wae impɔtant pas ɔl na fɔ no fɔs ustɛm na di sik.
• Mεdikal tritmεnt: Yu dכkta go gi yu mεdikal dεm wae de mek yu fil pen, mεdikal dεm wae de mek yu nɔr de fil bad, ɔr bayolojikal mεrεsin dεm wae fayn fɔ yu.
• Fisiotɛrapi: Lan us ɛgzampul ɛn strɛch we fayn fɔ yu wit di advays we fisiotɛrapist gi yu.
• Tɔk to yu dɔktɔ ɔltɛm: Bifo yu bigin fɔ du nyu ɛksɛsayz, it, ɔ ɛnitin, tɔk to yu dɔktɔ fɔ mek shɔ se i fayn fɔ yu. Nɔto ɔl wetin yu de si na di intanɛt kin rayt fɔ yu.

Ankylosing Spondylitis na wan prɔblɛm. Bɔt nɔto di ɛnd fɔ layf. If yu trit yu di rayt we, yu de du ɛksɛsayz, ɛn yu de tink gud wan, yusɛf go ebul fɔ kɔntrol dis pen ɛn du wetin yu bin dɔn drim.