Yu smɔl pikin gɛt prɔblɛm fɔ waka? I tan lɛk se i nɔ balans fayn? Lɛ wi tɔk bɔt dis (Ataxic Cerebral Palsy)!

Sɔntɛnde, yu go dɔn notis se yu smɔl pikin kin shek shek smɔl we i de waka, ɔ we yu es yu an fɔ ol sɔntin, i kin tan lɛk se in an de muf smɔl. Yu go dɔn tink se, "O, mi pikin jɔs weda." Na nɔmal tin fɔ mek mama ɔ papa fil bad bad wan we dɛn si tin dɛn lɛk dis. Bɔt sɔntɛm na mɛrɛsin rizin de biɛn ɔl dis. Na dat na `(Ataxic Cerebral Palsy)`.

So wetin na dis (Ataxic Cerebral Palsy)?

Fɔ tɔk am simpul wan, `(Ataxic Cerebral Palsy)` na wan sik we de mek wi smɔl pikin dɛn nɔ de muv, ɛn i de mek i nɔ izi fɔ balans ɛn kɔdineshɔn. Sɔmtɛm i kin afɛkt yu pikin in "dip sɛns" bak . Dat min se, di ebul fɔ ɔndastand aw big tin bi ɛn aw fa i de frɔm dɛn. Imajin, yu pikin es in an fɔ ol wan tɔys, bɔt in an nɔ de go stret to am, bifo dat, i de muf go bifo ɛn biɛn. dis kin apin biכs di mεsej dεm we nid fכ go frכm di bren to di an nכ de go εksakכt εn di rayt tεm. dat min se dis kכndyushכn de apin we intarapshכn de na di path dεm (`(brain pathways)`) we de kכntro di mכsul dεm εn di muvmεnt dεm frכm di bren. Dis na wetin wi kin kɔl sɔmtɛm `(Ataxia)` na mɛrɛsin.

Dis tin we kin apin kin rili kɔmɔn?

infakt, ``Ataxic Cerebral Palsy'' na di kayn ``Sεribra Palsi'' we nכ kכmכn pas כl. Lεs dan wan pan tεn pipul dεm we dεn no se gεt ``Sεribral Palsi'' gεt dis kayn ``Ataxic''. So, na wan sik we nɔ kin apin so ɔltɛm.

Wetin na di sayn dɛm fɔ dis sik (Ataxic Cerebral Palsy)?

Naw lɛ wi luk us sayn dɛm wae yu kin si pan pikin wae gɛt dis sik. Dɛn tin ya kin difrɛn smɔl frɔm wan pikin to ɔda pikin, bɔt di sayn dɛn we kin apin pas ɔl na:

• Trem: Yu kin gɛt smɔl shek na yu an ɛn yu fut, ilɛksɛf yu tinap ɔ we yu de tray fɔ du sɔntin.
• I nɔ izi fɔ mek yu muv di rayt we: Imajin se yu de tray fɔ ol kɔp we de na di tebul, bɔt yu an nɔ rili rich am, ɔ yu de tray fɔ rich am na di rɔng ples.
• Kɔrɛkt pasmak: Jɔs lɛk aw wi bin dɔn tɔk, we yu tray fɔ ol yu an fɔ sɔntin ɛn mek mistek, yu de muv yu an bak ɛn biɛn pas aw i nid fɔ kɔrɛkt am.
• I nɔ kin izi fɔ du di muvmɛnt dɛn we nid fɔ kɔdinɛt: Fɔ ɛgzampul, yu kin gɛt sɔm prɔblɛm dɛn we yu de du tin dɛn lɛk fɔ klap ɔ rayt, bikɔs dɛn tin ya nid fɔ mek di an ɛn finga dɛn wok togɛda fayn fayn wan.
• Nɔ stedi waka ɛn nɔr de balans: Yu kin fil nɔr stedi wae yu de waka, ɛn yu kin fil lɛk yu de kam fɔdɔm.
• Waid waka: We yu de waka, di leg dɛn kin wayd pas hip-width apat, fɔ tray fɔ mek yu balans.
• I nɔ kin izi fɔ tɔk ɛn swɛla: Yu kin gɛt prɔblɛm fɔ tɔk ɔ fɔ swɛla it ɛn drink.
• Slow ay muvmεnt: Di spid we di yay dεm de muv kin slo pas aw i kin muv.
• Ayz we de go pas di target: We yu de fos yu yay pan sɔntin, i kin tan lɛk se yu yay dɔn pas di target ɛn de tray fɔ go bak na di rayt pozishɔn.

Sɔntɛnde, bikɔs dɛn smɔl pikin ya nɔ kin no wetin fɔ du, we min se dɛn kin muv wan we wan tɛm ɛn ɔda we wan tɛm, pɔsin we de wach am na do kin tink se di pikin jɔs nɔ de tek tɛm, ɔ "drunk." Bɔt nɔto so, na so dis kɔndishɔn tan.

Aw dis kin afɛkt di tɔk?

Wit `(Ataxic Cerebral Palsy)`, yu pikin in mכsul dεm we de kכntro di tכk, εn di abiliti fכ sכlow, kin afekt. Dis kin mek yu gɛt wan kɔndishɔn we dɛn kɔl "scanning speech." Dis min se dɛn kin stɔp ɛn stɔp bitwin wɔd ɔ silabɔd, ɛn dɛn tɔk kin bi wan we, we min se dɛn kin tɔk di sem vɔys, ɛn dɛn nɔ kin chenj di we aw dɛn de tɔk ɔ di we aw dɛn de tɔk. Sɔntɛnde, dɛn kin yɛri wan lawd sawnd we pɔsin de blo.

Us pat na di bɔdi dis sik kin afɛkt?

Dis kכndyushכn (Ataxic Cerebral Palsy) kin afekt nכto wan pat pan di pikin in bכdi, bכt i kin afekt sεvεra pat dεm. Di men tin dɛm wae kin gɛt dis sik na:

• Leg dɛn
• An dɛn
• An ɛn finga dɛn
• Yay
• Di mɔsul dɛn na di trot

Wetin na de tin wae kin mek pɔrsin gɛt Ataxic Cerebral Palsy?

Di men tin we kin mek wi gɛt dis sik na we wan pat na wi bren we dɛn kɔl sɛribɛl pwɛl . dis pat pan yu bren we dεn kכl sεribεl na in de rili kכntro di muvmεnt εn kכdכnayshכn. Tink bɔt am lɛk smɔl kɔmpyuta we de kɔntrol aw wi bɔdi de muv. So, if dis imכtant pat dεn dכn pwεl, den ``Ataxic Cerebral Palsy'' de apin.

Bɔku we dɛn de we dis bren kin pwɛl. we uman bεlε, we uman de bכn, כ jכs afta dεn bכn, di bren kin pwεl wit tin dεm lεk:

• bכdi nכ fכ fכlכ na di bren: dεn kכl dis bak ``ischemic stroke''.
• Blɔd we de kɔmɔt na di bren: Dis na wan sik we dɛn kɔl ɛmoraji strok.
• Bren damej bikɔs ɔf wan infɛkshɔn.
• Traumatik bren injuri (TBI) na di damej we di bren de pwɛl we aksidɛnt apin to di ed.

pan tap dat, dεn fכnshכn se dis kכndyushכn kin kכz bak bay sכm jεnεtik vεryushכn dεm (jεnεtik vεryכnt / mכtεshכn). Dɛn de du mɔ risach bɔt dis.

Wetin na di tin dɛn we kin mek pɔsin gɛt dis sik?

di risk kin bכku fכ gεt Sεribra Palsi (nכto jכs Ataxic Cerebral Palsy, bכt Sεribra Palsi in jεnarכl) if di mama (di mama we de bכn di pikin) כ di pikin gεt εni wan pan dεn kכndyushכn dεm ya:

• Infεkshכn we de afekt di pikin כ di plasεnta we yu bεlε na tin we yu nid fכ tek tεm bכku.
• Bɔn bifo di tɛm we dɛn bɔn pikin na we dɛn bɔn am bifo di de we dɛn fɔ bɔn am.
• Kɔmplikɛshɔn dɛn we kin apin we uman gɛt bɛlɛ. fכ egzampl, tin dεm lεk we di plasεnta de brok כ di uterin rכp kin mek di bכdi fכ fכm to di pikin we de insay di bכdi.
• fכ gεt plεnti pikin dεm na di bכdi wan tεm (e.g. twins, triplet dεm).
• di pikin dεn bכn wit wan rili lכw wet we dεn bכn am.
• Siriɔs janda bin kam afta dɛn bɔn am ɛn dɛn nɔ bin trit am fayn.

Dis nɔ min se ɔlman we gɛt dɛn tin ya go gɛt sɛribra palsi, bɔt i min se di risk go bɔku smɔl .

Wetin na di prɔblɛm dɛn we kin apin we pɔsin gɛt Ataxic Cerebral Palsy?

Dis sik kin mek sɔm prɔblɛm dɛn. Dɛn tin ya na:

• Muvmɛnt dɛn we nɔ gɛt wanwɔd: Wi dɔn tɔk bɔt dis bifo. Dis kin mek i nɔ izi fɔ du di wok dɛn we pɔsin kin du ɛvride.
• Di risk fɔ fɔdɔm ɛn aksidɛnt kin bɔku. Yu kin fɔdɔm izi wan bikɔs yu nɔ balans fayn.
• divεlכpmεnt delay na di mכtalman fכnshכn: fכ egzampl, fכ kray, waka, εn grap kin leta pas כda pikin dεm.

Apat frɔm dat, pan ɔl we dɛn nɔ kin si am bɔku tɛm, sɔm pikin dɛn kin gɛt tin dɛn lɛk we dɛn nɔ ebul fɔ tink ɔ we dɛn kin gɛt sik. Bɔt, dis nɔ kin apin so ɔltɛm.

Yu tink se Ataxic Cerebral Palsy na intɛlektual disabiliti?

Dis na kwɛstyɔn we bɔku mama ɛn papa dɛn gɛt. Nɔto ɔl pikin dɛn we gɛt ``Ataxic Cerebral Palsy'' kin afɛkt dɛn maynd. Bɔku tɛm, dis kɔndishɔn nɔ kin afɛkt di pikin in sɛns, dat na, i nɔ kin mek i gɛt ``intɛlektual disabiliti.'' Bɔt, wan rili smɔl pipul dɛn kin gɛt dɛn kayn ifɛkt ya. Dis sik kin difrɛn frɔm wan pikin to ɔda pikin. I kin afɛkt di pikin in muvmɛnt mɔ.

Aw fɔ no dis sik?

Dɔktɔ kin no dis sik (Ataxic Cerebral Palsy) we i smɔl ɔ we i smɔl. Di fɔs tin we yu fɔ du na fɔ chɛk di pikin gud gud wan (fizikal ɛgzam). Dɔn, if nid de, di dɔktɔ kin tɛl yu fɔ du ɔda tɛst (fɔ fala tɛst).

Di dɔktɔ go aks yu kwɛstyɔn bɔt aw yu pikin de muv, aw i de gro, ɛn ɛni ɔda sayn we yu go gɛt. Di dɔktɔ go chɛk yu pikin bak fɔ chɛk fɔ si if in mɔsul dɛn de tɔn, if i sabi fɔ muv, ɛn if i de wok togɛda.

Us kayn tɛst dɛn kin du?

If di pikin in egzamin sho se i gɛt ``Ataxic Cerebral Palsy'', di dɔktɔ kin ɔda fɔ mek dɛn du imej tɛst fɔ luk fɔ ɛnitin we dɔn pwɛl di bren. Dɛn kin ɔda bak fɔ mek dɛn du tɛst fɔ no ɔda tin dɛn we gɛt di sem kayn sik. di tεst dεm we dεn kin du fכ no if yu gεt ``Ataxic Cerebral Palsy'' na:

• MRI test (Magnetic Resonance Imaging test): Dis kin mek yu gɛt ditayla imej dɛn fɔ di bren.
• CT scan (Computed Tomography scan): Dis na ɔda we fɔ gɛt pikchɔ dɛn bɔt di bren.
• EEG test (Electroencephalogram): Dis de tεst di ilektrikal aktiviti na di bren, spεshal wan fכ chεk fכ kכndishכn lεk se yu de sכk.
• Blɔd ɛn urine tɛst.
• Evalueshɔn fɔ di tɔk.
• Ay ɛgzam.
• Jɛnɛtik tɛst: Sɔntɛnde dɛn kin du dis fɔ si if jɛnɛtik kɔz de.

Wetin na di tritmɛnt dɛm fɔ Ataxic Cerebral Palsy?

Dɛn kin du dɛn tin ya as tritmɛnt fɔ `(Ataxic Cerebral Palsy)`:

• Ɔm ɛksesaiz fɔ praktis kɔdineshɔn.
• Fizik tɛrapi, ɔkupeshɔn tɛrapi, ɛn/ɔ tɔk tɛrapi. Dɛn tin ya rili impɔtant. Fyzikal tritmɛnt kin ɛp fɔ mek tin dɛn lɛk fɔ waka ɛn balans bɛtɛ. Occupational therapy de ɛp yu fɔ du ɛvride wok fɔ yusɛf, lɛk fɔ drɛs ɛn it. Tεrapi tεrapi de εp wit difεlεns fכ tכk εn swεl.
• Sɔpɔt dɛn lɛk bres ɔ wilchia. Dɛn fɔ yuz dɛn tin ya as nid de.
• Di tin dɛn we de mek di mɔsul dɛn rilaks. Sɔntɛnde dɛn kin gi dɛn tin ya fɔ mek di mɔsul dɛn nɔ stif.

Yu pikin in wɛlbɔdi tim go ɛp yu pikin fɔ kɔntrol in sik ɛn bi indipɛndɛnt as i pɔsibul. Ataxic Cerebral Palsy nɔto wan sik we pɔsin kin mɛn ɔltogɛda. So, fɔ kɔntrol di sik dɛn na tin we pɔsin kin du fɔ ɔl in layf. Tɔk to yu dɔktɔ bɔt di bad tin dɛn we pɔsin kin du we i gɛt di tritmɛnt. Dis go ɛp yu fɔ ɔndastand wetin yu fɔ wach fɔ.

Yu tink se dis sik go wɔs as tɛm de go? (Prɔgnosis / Ɔtluk)

Dis na sɔntin we bɔku mama ɛn papa dɛn kin fred. Bɔt `(Ataxic Cerebral Palsy)` nɔto `(progressive)` kɔndishɔn we kin wɔs as tɛm de go. Dis min se di sik nɔ de wɔs as di pikin de gro. Bɔt di sayn dɛn kin afɛkt di pikin as i de ol. So, dɛn nid fɔ sɔpɔt wan mɛdikal tim fɔ mek dɛn ebul fɔ kɔntrol dis sik ɔlsay na dɛn layf. If dɛn trit dɛn fayn, bɔku pipul dɛn kin lan fɔ wok fɔ dɛnsɛf, fɔ kia fɔ dɛnsɛf, ɛn fɔ muv fayn fayn wan usay dɛn de.Dat na big rilif, nɔto so?

Yu tink se dis kin afɛkt di layf we pɔsin de liv?

Ataxic Cerebral Palsy nɔ de afɛkt pɔsin in layf dairekt wan. Pipul wae gɛt dis sik kin gɛt nɔrmal to nia nɔrmal layf ɛkspɛkteshɔn. Pan ɔl we sɔm tɛm dɛn de dis sik kin mek ɔda prɔblɛm dɛn, tritmɛnt dɛn de we kin mek dɛn nɔ gɛt bɔku prɔblɛm dɛn.

Ustɛm yu fɔ go to dɔktɔ?

If yu notis di muvmɛnt dɛn we nɔ kɔmɔn na yu pikin (e.g., i de shek, i de muv in yay sloslo), ɔ if i tan lɛk se yu pikin de gɛt prɔblɛm fɔ du tin dɛn we fit in ej (e.g., fɔ waka, fɔ tɔk), fɔ rili go to dɔktɔ. Di mɔ we dɛn no di sik kwik kwik wan, na di mɔ i go fayn.

Dɔn bak, if yu pikin fɔdɔm ɛn wund bad bad wan, kɛr am go na ɔspitul wantɛm wantɛm, ɔ kɔl 1990 (wi kɔntri in imejensi ambulans savis).

Us kwɛstyɔn dɛn yu fɔ aks di dɔktɔ?

We yu de tɔk to di dɔktɔ bɔt yu pikin, i impɔtant fɔ aks kwɛstyɔn dɛn lɛk dɛn wan ya:

• ``Dɔkta, yu kin ɛksplen smɔl mɔ bɔt mi pikin in diagnosis?''
• ``Wetin na di bɛst tritmɛnt fɔ di pikin in simptom dɛm?''
• ``Wetin na di gol dɛm we wi fɔ ɛkspɛkt frɔm dɛn tritmɛnt ya?''
• ``Ɛni sayd ɛfɛkt de fɔ dɛn tritmɛnt ya? Wetin na dɛn?''
• ``Eni asistiv divais de we kin helep mi pikin?''
• ``Aw ɔltɛm dɛn fɔ gi pikin fizik tɛrapi ɔ ɔkupeshɔn tɛrapi?''

I rili impɔtant fɔ mek yu ɛn yu pikin ɔndastand ɔltin klia wan bay we yu aks kwɛstyɔn dɛn lɛk dis.

Fɔ dɔn, tin dɛn fɔ mɛmba (Take-Home Message) .

wan kכndyushכn we dεn kכl ``Ataxic Cerebral Palsy'' kin bi sכm chalenj fכ pikin fכ mεnεj. I nɔ mata aw di pikin tray tranga wan, we i tray fɔ rich sɔntin ɔ fɔ mek i balans, di pat we gɛt fɔ du wit di bren nɔ de tɔk fayn, ɛn dis kin mek i nɔ izi fɔ dɔn di wok. I nɔmal fɔ mek mama ɛn papa dɛn fil bad we dɛn si dis.

Bɔt di tin we impɔtant pas ɔl na dat, tritmɛnt dɛn de fɔ ɛp yu pikin. Tin dɛm lɛk fyzikal tritmɛnt ɛn ɔkupeshɔn tɛrapi kin ɛp fɔ mek yu pikin balans ɛn wok togɛda fayn fayn wan. Dɔn, as yu pikin de ol, i go gɛt kɔnfidɛns pan in muvmɛnt ɛn i go ebul fɔ du tin dɛn fɔ dɛnsɛf. So, wit op, go na dis waka wit yu pikin.

Nɔto yu wan de. Dɔktɔ ɛn tritmɛnt pipul dɛn de fɔ ɛp yu ɛn yu pikin. I rili impɔtant fɔ fala dɛn advays.

` Ataksik Sεribra Palsi, Sεribra Palsi, Muvmεnt Dizכrd, Bεlεns, Kכdכnayshכn, Pikin Wεlth, Bren Dizכrd