yu pikin de kray na mohnin, "Mama, mi leg de at"? Yu dɔn ɛva fil lɛk se yu de limp smɔl we yu de waka? Ɔ yu dɔn notis se wan jɔyn lɛk yu ni jɔs de swel wantɛm wantɛm? Bɔku mama ɛn papa dɛn tink se dɛn tin ya na jɔs smɔl smɔl brus ɛn swɛt we dɛn pikin dɛn kin gɛt we dɛn de ple. Bɔt if dɛn sik ya kɔntinyu, i kin bi sɔntin we wi fɔ wɔri bɔt smɔl. Tide wi de tɔk bɔt wan kayn at at sik we kin ambɔg pikin dɛn. Yɛs, yu yɛri rayt, at at nɔto jɔs sik we kin ambɔg big pipul dɛn.
Wetin na juvenail at at sik (JIA)?
Fɔ tɔk am simpul wan, di kayn at at sik we kin kam pan pikin dɛn na Juvenile Idiopathic Arthritis . Wi kin kɔl am bak (JIA) fɔ shɔt. "Juvenile" ya min se i kin apin na pikin. "Atraytis" min se di joyn dεm de inflameshn, we min se na wan kכndyushכn we de mek di joyn dεm swel εn pen. di wod "idiopathic" min se dεn nכ no di εksakεt kכz .
Dis na sik we pɔsin kin gɛt we i de fɛt insɛf . Dat min se di we aw wi bɔdi de fɛt, we na di sojaman dɛn we de protɛkt wi frɔm sik, kin mistek atak wi yon gud sɛl dɛn. insay JIA, dis difεns sistεm de atak di pikin in כwn jכint dεm.
imajin, insay wi joyn dεm de wan mεmbran ``synovium`` εn wan fluid ``synovial fluid`` we de εp am fכ wok fayn fayn wan. we da fכlt difεns sistεm de atak dis ``synovium`` mεmbran, i de swel εn bigin fכ prodyuz fכ fכm we nכ nid. Na dat mek di jɔyn dɛn kin swel, at, ɛn fil stiff na mɔnin.
If dis inflamɛns kɔntinyu, i kin pwɛl di katilej ɛn bon we de rawnd di jɔyn. Sɔntɛnde dis ifɛkt kin afɛkt di yay bak. So , i rili impɔtant fɔ no di JIA kɔrɛkt wan ɛn gi di rayt tritmɛnt. If yu du dat, i nɔ go ambɔg di pikin in divɛlɔpmɛnt ɛn i go ɛp dɛn fɔ liv nɔmal layf.
Wetin na di men kayn JIA?
JIA nɔ de afɛkt ɔl pikin di sem we. Bɔku men kayn dɛn de, i kin dipen pan di sayn dɛm ɛn di nɔmba fɔ di jɔyn dɛm we dɛn afɛkt. Lɛ wi tek wan luk pan wetin dɛn bi.
| JIA Tayp | Wan simpul ɛksplen |
|---|---|
| Oligoartikulɔr JIA | Dis na di kayn we we pipul dɛn kin gɛt mɔ. I kin afɛkt di jɔyn dɛn we nɔ pas fayv. Bɔku tɛm i kin afɛkt big jɔyn dɛn lɛk di ni, anklɛ, ɛn ɛlb. Sɔm pikin dɛn kin gɛt inflamɛns na dɛn yay (uveitis) . Dis nɔ kin izi fɔ no if dɛn nɔ du ɛni ay ɛgzam. I kin apin mɔ pan gyal pikin dɛn. |
| Poliartikul JIA | I kin afɛkt fayv ɔ mɔ jɔyn dɛn. Bɔku tɛm, di sem jɔyn dɛn na di tu say dɛn na di bɔdi (fɔ ɛgzampul, di tu ni dɛn) kin afɛkt. I kin afɛkt bak di smɔl smɔl jɔyn dɛn na di an ɛn fut, di nɛk, ɛn di jaw. |
| Psoriatic JIA we gɛt di sik | Dɛn pikin ya gɛt wan sik bak na dɛn skin we dɛn kɔl psoriasis wit at at sik. Dis min se di skin kin rɛd ɛn skel , ɛn sɔm say dɛn kin de we tan lɛk kɔral. I pɔsibul se di pikin nɔ gɛt psoriasis, bɔt if pɔsin na di famili gɛt am, if in finga swel, ɔ if chenj de na di nel dɛn, i kin bi dis kayn. |
| Juvenile Spɔndyloarthritis we dɛn kin gɛt | I kin mɔs afɛkt di spayna, hip, ɛn tɛndon usay dɛn kin kɔnɛkt to bon dɛn. Di yay kin rɛd ɛn pen. I kin mɔs pan bɔy pikin dɛn we dɔn pas 7 ia. |
| JIA we gɛt sistɛm | Dis na tin we difrɛn smɔl. I kin afɛkt di wan ol bɔdi, nɔto jɔs di jɔyn dɛn. Di men sayn dɛm na we yu gɛt ay fiva we nɔ de dɔn ɛn wan pink rash we de sho na di bɔdi (espɛshali na di chɛst, an, ɛn leg) we di fiva bigin.I kin afɛkt bak di insay pat dɛm lɛk di at, liva, splin, ɛn limf no dɛm. |
Wetin na di kɔmɔn sayn dɛm fɔ JIA?
Chek fɔ si if yu pikin gɛt wan ɔ mɔ pan dɛn sik ya. If dɛn kɔntinyu fɔ de fɔ sɔm wiks, i go fayn fɔ mek yu go to dɔktɔ.
- Jɔyn de pen, swel, ɔ wam we yu tɔch yu.
- Fɔ fil se yu jɔyn dɛn stif, mɔ we yu wek na mɔnin (mɔnin stiffness). Dis kin bi rizin we mek di pikin nɔ want fɔ grap na bed ɛn i nɔ kin want fɔ waka.
- Waka wit limp fɔ no rizin.
- Fiva bɔku tɛm we nɔ gɛt ɛni kɔz we pɔsin kin no.
- Rash na di skin.
- di limf no dεm we swεl (sכm sכm sכm sכm sכm dεm na di nεk, di armpit dεm, εn כda tin dεm) .
- Rɛd yay, yay pen, ɛn blurred vishɔn.
- Fɔ fil ɔltɛm fɔ taya ɛn fɔ vɛks.
- We yu de lɔs yu wet ɔ yu nɔ de gro fayn fayn wan fɔ di ej.
Mɛmba se nɔto ɔl di joyn pen na JIA. Bɔt if dɛn sayn ya kɔntinyu, nɔ ignore dɛn. I impɔtant fɔ go to dɔktɔ fɔ mek yu no di sik fayn fayn wan.
Aw dɛn kin no se pɔsin gɛt JIA?
No wan blɔd tɛst nɔ de fɔ no if yu gɛt JIA. Yu dɔktɔ go pul ɔda sik dɛn ɛn mek yu no if yu gɛt di sik. Bɔku tɛm, dis go gɛt fɔ du wit:
1. Fɔ tek kɔmplit mɛdikal histri: Di dɔktɔ go aks yu ɛn yu pikin bɔku tin, lɛk aw di sik bigin ɛn aw lɔng i dɔn de.
2. Fɔ chɛk in bɔdi: Dɛn kin tek tɛm luk ɛni wan pan di pikin in jɔyn fɔ si if i swel, i de fil pen, ɛn i nɔ izi fɔ muv.
3. Blɔd tɛst: Pan ɔl we dɛn nɔ kin ebul fɔ kɔnfɔm JIA, blɔd tɛst kin ɛp fɔ mɛzhɔ inflamɛns na di bɔdi, chɛk fɔ ɔda infɛkshɔn, ɛn gi wan aidia bɔt di kayn JIA.
4. imej tεst: dεn kin du tεst lεk `(X-rays)`, `(Ultrasound)` כ `(MRI)` fכ si di damej we di jכint dεm dכn dכn.
5. Ay egzam: Ɛvri pikin we gɛt JIA fɔ mek dɛn chɛk in yay to ɔftalmolɔg, bikɔs wan kɔndishɔn we dɛn kɔl ``Uveitis'' kin apin we nɔ gɛt ɛni simptom fɔs.
Wetin na di tritmɛnt dɛm fɔ JIA?
Bɔku men gol dɛn de fɔ trit JIA. Dɛn tin ya na fɔ mek di pikin nɔ fil pen ɛn swel, fɔ stɔp di jɔyn dɛn we de pwɛl, fɔ mek di jɔyn dɛn kɔntinyu fɔ wok, ɛn fɔ ɛp di pikin fɔ kɔntinyu fɔ wok fayn fayn wan. Di tritmɛnt plan na fɔ jɔyn mɛrɛsin ɛn ɛksesaiz.
Drug dɛn we dɛn kin yuz fɔ trit
| Di kayn drɔg we dɛn kin yuz | Di we aw pɔsin de wok |
|---|---|
| Nɔn-stɛroyd Anti-Inflammatory Drugs (NSAID) . | Dɛn tin ya kin ɛp fɔ ridyus di pen ɛn swɛlin, bɔt dɛn nɔ kin mɛn di sik, dɛn kin jɔs kɔntrol di sayn dɛm. |
| Kɔtikosterɔyd dɛn | Dis na pawaful mɛrɛsin dɛn we de kɔntrol di inflamɛns. Dɛn kin injɛkt dɛn dairekt insay di jɔyn we di sik afɛkt. Sɔntɛnde, dɛn kin gi dɛn as pils. |
| Anti-Rumatic Drugs we de chenj di sik (DMARD) . | Dɛn mɛrɛsin ya de wok bay we dɛn de kɔntrol di imyun sistɛm we nɔ de wok fayn. Dɛn kin ɛp fɔ stɔp di sik fɔ go bifo ɛn pwɛl di jɔyn dɛn. |
| Bayolojikal Modifyin Ejen dɛn | Dis na nyu klas fɔ drɔgs. Dɛn kin wok bay we dɛn de tɔch sɔm patikyula prɔtin dɛn we dɛn kin mek na di bɔdi we kin mek pɔsin inflamɛns ɛn stɔp dɛn fɔ wok. Dɛn kin yuse dɛn fɔ trit bad bad sik wae nɔr kin izi fɔ kɔntrol wit ɔda mɛrɛsin. |
Ɛksesaiz ɛn Fisiotɛrapi
Lɛk mɛrɛsin, ɛksɛsayz bak rili impɔtant fɔ manej JIA.
- Fizik Tɛrapi: I de ɛp fɔ mek di jɔyn dɛn kɔntinyu fɔ muv, fɔ mek di mɔsul dɛn strɔng, ɛn fɔ mek di pen nɔ bɔku.
- Occupational Therapy: I de ɛp di pikin fɔ du di wok dɛn we i kin du ɛvride (lɛk fɔ du skul wok, fɔ drɛs) izi wan.
- Ɛksesaiz: Ɛksesaiz nɔ de mek at at sik wɔs. Infakt, strɔng mɔsul dɛn de gi gud sɔpɔt fɔ di jɔyn dɛn. Ɛksesaiz lɛk fɔ swim kin fayn bikɔs dɛn kin saful pan di jɔyn dɛn.
Advays fɔ pikin ɛn mama ɛn papa we de liv wit JIA
As mama ɔ papa, i nɔmal fɔ fil bad, wɔri, ɛn sɔntɛm yu kin ivin vɛks bɔt dis. Bɔt mɛmba se, if dɛn trit am di rayt tritmɛnt ɛn gud manejmɛnt, pikin we gɛt JIA kin liv kɔmplit nɔmal, aktif layf.
- Mek yu pikin bi nɔmal: sɛn am na skul, ple wit padi dɛn, ɛn tek pat pan spɔt. Nɔ protɛkt dɛn pasmak ɛn isolate dɛn.
- Infɔm di skul: I impɔtant fɔ tɛl ticha dɛn bɔt yu pikin in kɔndishɔn. Yu pikin kin nid sɔm ples fɔ slip na di klasrum (e.g., ɛkstra tɛm fɔ mek i nɔ ebul fɔ rayt).
- Wan gud it:No patikyula it nɔ de fɔ JIA. So, gi yu pikin tin fɔ it we gɛt bɛtɛ tin fɔ it.
- Wok klos wit yu dɔktɔ: Tɔk to di dɔktɔ opin wan bɔt di sik we yu pikin gɛt, di bad tin dɛn we de apin we di mɛrɛsin dɛn de tek, ɛn ɛni kwɛstyɔn we yu gɛt.
Wan JIA diagnosis tan lɛk spid bamp na rod. Pan ɔl we i kin gɛt smɔl prɔblɛm fɔs, if yu gɛt di rayt tritmɛnt plan, yu pikin kin go bak na di rayt rod ɛn kɔntinyu fɔ go bifo.
Mɛsej we dɛn kin kɛr go na os
- JIA na di kayn at at sik we kin kam pan pikin dɛn. I nɔ jɔs bi "sik we ol pipul dɛn gɛt."
- Di jɔyn dɛn we nɔ de ɛksplen, we yu de fil pen, ɛn mɔ we yu de stif na mɔnin kin bi di men sayn dɛm.
- If yu gɛt sɔm kayn sik lɛk dis fɔ pas 6 wik, yu fɔ go to dɔktɔ.
- Di kwik we dɛn no di sik ɛn bigin fɔ trit am, na di mɔ dɛn go ebul fɔ mek di jɔyn dɛn nɔ pwɛl fɔ lɔng tɛm.
- If dɛn gɛt di rayt tritmɛnt ɛn manejmɛnt, pikin dɛn we gɛt JIA kin liv ful aktif ɛn sakrifays layf.
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