Yu pikin de gɛt prɔblɛm fɔ poop? Lɛ wi tɔk bɔt Hirschsprung in Sik

I nɔmal fɔ fil wɔri bɔt di smɔl smɔl tin dɛn ɛn bak di gladi at we pɔsin kin gɛt we i kam wit nyu bɔbɔ na os, nɔto so? Mama ɛn papa dɛn kin wɔri mɔ bɔt aw dɛn pikin de it, drink, was, ɛn fɔ pul dɔti (wi kɔl am ‘ peeing ’). So, if yu pikin nɔ poop insay tu dez, ɔ lɛk 48 awa so, ɔ if in bɛlɛ swel ɛn at pasmak, dis na sɔntin we go rili impɔtant to yu. Tide wi de tɔk bɔt wan kɔndishɔn we sɔm pikin dɛn kin bɔn wit we dɛn kɔl Hirschsprung’s Disease.

Wetin na di sik we Hirschsprung gɛt?

Fɔ tɔk am simpul wan, di sik we dɛn kɔl Hirschsprung na wan sik we dɛn bɔn yu pikin wit (i.e., wan sik we dɛn bɔn wit). i de mek di stכl we de pas na wan pat pan yu pikin in big intestinal (kכlon) slo כ stכp kכmplit. Sɔntɛnde dɔktɔ dɛn kin kɔl am ``congenital megacolon.''

Tink bɔt am, we wi de it it, i nid fɔ digest ɛn pul am kɔmɔt as west. fכ dis prכsεs fכ apin fayn fayn wan, di mכsul dεm na wi intestinal dεm nid fכ kכntrakt εn rilaks. dis na di nεv sεl dεm de sho am. pan pikin we gεt Hirschsprung’s Disease , di nεv sεl dεm we de na di εnd pan di big intestinal, nia di anus, nכ de divεlכp fayn. dεn kכl dεn spεshal nεv sεl dεm ya ``nyural kres sεl dεm.''

So, we di stɔl de travul tru di pikin in intestinal ɛn rich di say we di nɛv sɛl dɛn nɔ de wok fayn, i kin blok ɛn i nɔ kin ebul fɔ pas. Dis na we kɔnstipɛshɔn kin apin. If dɛn nɔ trit dis sik wantɛm wantɛm, i kin mek i gɛt siriɔs prɔblɛm dɛn . So, i rili impɔtant fɔ mek wi no bɔt dis.

Aw dis sik kin bɔku?

Hirschsprung’s Disease nɔto sik we kin bɔku. I kin afɛkt lɛk wan pan ɛvri 5,000 pikin dɛn we dɛn bɔn . I kin apin bak tri to 4 tɛm pan bɔy pikin dɛn pas gyal pikin dɛn.

Wetin na di sayn dɛm fɔ dis sik?

sכm pikin dεm kin gεt bכku bכku bכku wan we dεn bכn dεm bikoz fכ di Hirschsprung Disease. If yu pikin nɔ bin dɔn gɛt bɔdi insay 48 awa afta dɛn bɔn am , i kin bi wan big sayn fɔ dis sik. So i impɔtant fɔ no bɔt am.

Ɔda sayn dɛn we dɛn kin si pan pikin dɛn we dɛn jɔs bɔn na:

• Bɛlɛ blo: Di pikin in bɛlɛ kin fil lɛk se i ful-ɔp wit gas ɛn i kin at fɔ tɔch am.
• Kɔnstipɛshɔn: I kin rili at fɔ pas, ɔ i nɔ kin pas fɔ sɔm dez.
• Vɔmit: Sɔntɛnde, di vɔmit kin yɔlɔ ɔ grɛn.
• Daya: Sɔm pikin dɛn kin gɛt dayarɛa instead fɔ gɛt kɔnstipɛshɔn.
• I nɔ kin want fɔ it ɛn i nɔ kin gɛt bɔku bɔku bɔdi: Di ​​pikin nɔ kin want fɔ drink milk, so i nɔ kin gɛt wet fayn.
• Di we aw pɔsin nɔ de gro fayn.

If yu pikin gɛt wan ɔ mɔ pan dɛn sik ya, i go fayn fɔ mek yu go to dɔktɔ wantɛm wantɛm.

Wetin mek Hirschsprung in Sik kin apin?

we pikin de insay di bεlε, dεn nyural kres sεl dεm we wi bin tכk bכt fכs de gro frכm di tכp pat pan di pikin in sכmכl intestin כl di we dכn te to di an. Bɔt pan pikin dɛn we gɛt Hirschsprung Disease, dɛn nɛv sɛl ya kin stɔp fɔ gro sɔmsay na di big intestinal. Dɔktɔ dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin mek dis kin apin.

Bɔt pan less dan 20% pan di kes dɛm, dɛn kin si dis sik de pas frɔm jɛnɛreshɔn to jɛnɛreshɔn na famili. Dis min se i pɔsibul se na bikɔs ɔf wan jenɛtik muteshɔn .

Wetin na de tin wae kin mek pɔrsin gɛt dis sik?

If pɔsin na di famili, lɛk in mama ɔ papa ɔ in brɔda ɛn sista gɛt dis sik, sɔm kayn prɔblɛm de we di pikin sɛf go gɛt dis sik. pan tap dat, pikin dεm we gεt dεn kכndyushכn dεm ya kin gεt hכy risk fכ gεt Hirschsprung Disease bak:

• If yu gɛt at sik we dɛn bɔn yu wit .
• If yu gɛt di sik we dɛn kɔl Down syndrome .

Wetin na de prɔblɛm wae kin kam wit dis sik?

כlmost 40% pan di pikin dεm we gεt di sik we dεn kכl Hirschsprung de gεt wan kכndyushכn we dεn kכl εnterokolaytis. dis kin mek di pikin in sכm sכm εn big intestin dεm kin inflamεm εn infεkt. Pan ɔl we dis nɔ kin izi fɔ sɔm pikin dɛn, i kin tranga fɔ mek ɔda wan dɛn day pan denja. If siriɔs ɛntɛrokolayt kam, di pikin kin gɛt fiva ɛn wantɛm wantɛm i kin gɛt siriɔs dayarɛa.

Impɔtant: If dɛn nɔ trit di Hirschsprung’s Disease fayn, i kin mek yu gɛt siriɔs, layf de pan denja lɛk:

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* di big bכdi we de kכmכt: insay dis, di muvmεnt fכ it tru di pikin in big intestכn de stכp kכmplit wan.

* Tɔxik megakolon: Dis na sik we nɔ kin apin so ɔltɛm bɔt i kin mek pɔsin in layf de pan denja. di pikin in big intestכn kin swεla pasmak εn i kin big. Gas ɛn stɔl nɔ kin ebul fɔ pas na di intestinal we dɔn swel ɛn dɛn kin blok. dis de mek di prεshכn we de insay di intestinal bכku, we de mek di baktri dεm go insay di bכdi. dis kin mek yu gεt kכndyushכn dεm we de mek yu layf de pan denja we dεn kכl `Enterocolitis` εn `Sepsis`. if i bad, wan ol (`perforation`) na di intestin kin apin.

Ɔda prɔblɛm dɛn we yu kin si na:

• Bɔku tɛm, yu kin muv yu bɔdi we yu nɔ want.
• Rɔnbɛlɛ.
• Fiva.
• Malnutrishɔn.
• Sivɛri kɔnstipɛshɔn.
• Di bɛlɛ we de blo.
• Fɔ vɔmit.

So, i rili impɔtant fɔ go to dɔktɔ as yu notis di sayn dɛm.

Aw dɛn kin no bɔt Hirschsprung in Sik?

We yu kɛr yu pikin go to dɔktɔ, di fɔs tin we yu go du na fɔ fil di pikin in bɛlɛ. Dɛn kin chɛk fɔ si if i swel, i de fil pen, ɛn if di stɔl dɔn blok. afta dat, dεn de chεk di rεktum fכ si if εni stכl de bכku.

Apat frɔm dat, di dɔktɔ kin du wan ɔ mɔ pan dɛn tɛst ya:

• X-ray: Dɛn kin yuz ɛkstrem rayt na di bɛlɛ fɔ chɛk fɔ si if di intestin dɔn blok.
• Kontrast enema: Insay dis, dɔktɔ kin put wan tint tiub we dɛn kɔl kateta tru di pikin in an. wan sef wata we dεn kכl kכntrast de sεnd tru di tכb insay di intestכn. Dɔn, dɛn kin tek ɛkstrem rayt fɔ si aw di wata de muv tru di insay. Dis kin ɛp fɔ si klia wan if ɛnitin de we de blok ɔ we de smɔl na di intestin.
• Bayopsi: Dis na di tɛst we impɔtant pas ɔl fɔ kɔnfɔm di diagnosis. di dכkta de yuz spεshal instrכmεnt fכ pul wan sכm sכm tisu na di εnd pan di pikin in big intestin (rεktum). Dɔn wan dɔktɔ we de stɔdi bɔt di sik kin luk di tisu ɔnda maykroskɔp fɔ si if di nɛv sɛl dɛn we wi bin tɔk bɔt de de. Dis tɛst nɔ de mek di pikin fil pen, ɛn i nɔ nid fɔ gɛt anestezi.

Aw dɛn kin trit ɛn mɛn di Hirschsprung in Sik?

No mɛrɛsin nɔ de fɔ di sik we dɛn kɔl Hirschsprung. Bɔt dɛn kin yuz ɔpreshɔn fɔ mɛn di sik fayn fayn wan. Tu men kayn ɔpreshɔn de: na pul-thru prosidur ɛn wan ostomy ɔpreshɔn.

Pul-thru prosidur

Dis na di ɔpreshɔn we dɛn kin du pas ɔl ɛn we dɛn kin du mɔ fɔ di sik we dɛn kɔl Hirschsprung. Insay dis ɔpreshɔn, di dɔktɔ we de du di ɔpreshɔn kin pul di pat pan di pikin in big intestinal we nɔ gɛt nɛv sɛl ɛn kɔnɛkt di pat pan di intestin we gɛt wɛlbɔdi dairekt to di an. Dɛn kin du dis ɔpreshɔn bay laparoskopik (tru sɔm smɔl smɔl say dɛn we dɛn kɔt) ɔ dɛn kin du am kɔmɔn wan. Di pikin kin wɛl kwik kwik wan afta dis ɔpreshɔn.

Ostomy ɔpreshɔn we dɛn kin du

Sɔm pikin dɛn kin nid fɔ gɛt ɔpreshɔn fɔ du dɛn ostomy bifo ɔ di sem tɛm we dɛn du di pul-thru. dis kin bi colostomy (we dεn kin du fכ di big intestכn) כ ileostomy (we dεn kin du fכ di sכm intestכn).

We dɛn de du dis, di dɔktɔ dɛn we de du ɔpreshɔn kin tay wan pat pan di big intestinal ɔ smɔl intestinal to di pikin in bɛlɛ skin. insted fכ di pikin in an, di pikin in stכl de kכmכt tru wan opin we dεn kכl `stoma`. wan `ostomy bag` de atak di pikin in bכdi fכ kכlekt di stכl. Bɔku tɛm, dis kin apin fɔ shɔt tɛm. leta, dεn kin pul am insay כda opεreshכn, we dεn kin komplit di `pul-through prosidכs`.

Ɔda tritmɛnt dɛn

Apat frɔm ɔpreshɔn, dɛn tritmɛnt ya kin ɛp bak:

• Bowel mεnejmεnt: Na mεtכd we dεn de yuz mεdikeshכn εn/כ εnεma fכ mεnten hεlty bכwel abit dεm na pikin.
• di sakral nεv stimulashכn: wan sכja dכn de implant wan sכmכl divays na di lכw bכk fכ εp fכ kכntrכl di bכdi εn blad.
• Bayofidbak: Dis na tritmɛnt we de tich wi difrɛn we fɔ kɔntrol di wok we wi bɔdi de du we wi nɔ no se wi gɛt, lɛk fɔ muv di bɔdi.

Wetin na di prɔblɛm dɛn we kin apin ɔ di sayd ɛfɛkt dɛn we kin apin afta dɛn dɔn pul di ɔpreshɔn?

di pikin dεm we gεt di sik we dεn gεt Hirschsprung kin bכn kwik afta dεn dכn du am ``pul-thru כpεrayshכn.'' כltu, sכm pikin dεm kin gεt dεn prכblεm ya ivin afta dεn dכn bכn:

• Fekal inkɔntinɛns.
• Banbɛlɛ.
• Infεkshכn na di intestinal (Enterocolitis).

If dɛn prɔblɛm ya kam, di dɔktɔ we de mɛn yu pikin ɛn sɔntɛm di dɔktɔ we de mɛn yu bɛlɛ go ɛp yu fɔ kɔntrol dɛn.

Aw kwik di pikin go wɛl afta dɛn dɔn trit am?

If ɔltin go fayn, di pikin go bigin fɔ fil fayn pasmak insay sɔm dez afta dɛn du di ɔpreshɔn. Mɛmba se pan ɔl we dɛn nɔ kin ebul fɔ mɛn di sik we dɛn kɔl Hirschsprung’s Disease ɔltogɛda, ɔpreshɔn kin mek pɔsin gɛt rili fayn fayn tin dɛn.

Aw di tin kin bi afta dɛn dɔn du di ɔpreshɔn?

Afta dɛn dɔn du di ɔpreshɔn, sɔm pikin dɛn kin kɔntinyu fɔ gɛt kɔnstipɛshɔn, dɛn nɔ kin ebul fɔ kɔntrol dɛnsɛf, ɛn dɛn kin gɛt infekshɔn na dɛn intestinal. Bɔt if di dɔktɔ de kia fɔ dɛn fɔ lɔng tɛm ɛn dɛn de kia fɔ dɛn fayn fayn wan, bɔku pikin dɛn kin liv nɔmal layf we dɛn nɔ kin gɛt siriɔs kɔnstipɛshɔn ɛn i nɔ kin izi fɔ kɔntrol dɛn bɔdi we dɛn de muv.

A kin ebul fɔ protɛkt Hirschsprung in Sik?

Bɔt i sɔri fɔ no se nɔbɔdi nɔ go ebul fɔ stɔp di sik we dɛn kɔl Hirschsprung. If yu gɛt dis sik, ɔ if sɔmbɔdi na yu famili dɔn gɛt am, i go fayn fɔ mek yu go to pɔsin we de advays yu bɔt yu jɛnɛtiks bifo yu bigin famili.

Aw a go ɛp mi pikin fɔ bia wit di sik we dɛn kɔl Hirschsprung?

Afta dɛn dɔn du di ɔpreshɔn, bɔku tritmɛnt dɛn de we go ɛp yu pikin fɔ kɔntrol di sik:

• Nutritional guidance: Yu kin aks fɔ advays frɔm nyutrishɔnist bɔt us it dɛn we fayn fɔ yu pikin ɛn wetin fɔ du fɔ mek i nɔ gɛt kɔnstipɛshɔn.
• Di kia ɔltɛm frɔm spɛshal pipul ɛn nɔs dɛm: I impɔtant fɔ mek di dɔktɔ we de mɛn di bɛlɛ ɛn nɔs we dɛn tren fɔ du dis wok de wach am.
• Bayofidbak / pelvik fכl rihabiliteshכn: dεn ya de εp fכ impruv di bכdi kכntrכl.
• Sɔpɔt frɔm sayɛnsman ɔ soshal woka: Di pikin ɛn in famili kin gɛt saykilɔjik sɔpɔt fɔ ɛp dɛn fɔ bia wit dis prɔblɛm.

Tɔk to yu pikin in dɔktɔ dɛn ɔltɛm. Dɛn go ɛp yu fɔ pik di bɛst it ɛn tritmɛnt fɔ yu pikin.

Ustɛm a fɔ tɛl di dɔktɔ bɔt mi pikin in Hirschsprung’s Disease?

afta dεn כpεrayshכn, spεshal wan insay di fכs ia, di pikin dεm kin gεt intestinal infεkshכn (enterocolitis). If yu pikin sho ɛni wan pan dɛn sik ya, tɛl yu dɔktɔ wantɛm wantɛm:

• Blɔd we de kɔmɔt na di rɛktɔ.
• Rɔnbɛlɛ.
• Fiva.
• Di bɛlɛ we de blo.
• Fɔ vɔmit.

Mɛmba se, jɔs bikɔs dɛn bɔn yu pikin wit Hirschsprung’s Disease nɔ min se i nɔ go ebul fɔ liv gladi, wɛlbɔdi layf. Dɛn kin trit di sik wit ɔpreshɔn. Bɔt di tɛm bifo dɛn du di ɔpreshɔn kin rili strɛs yu. Na nɔmal tin fɔ fil bad ɛn fred we yu de dil wit pikin we dɛn jɔs bɔn. Aks yu fambul ɛn padi dɛn fɔ ɛp yu. Mek dɛn ɛp fɔ du wok na os ɛn fɔ kuk. Dɔn yu kin spɛn tɛm wit yu pikin ɛn rɛst.

Mɛsej we dɛn kin kɛr go na os

• Hirschsprung in sik na wan kכndyushכn we dεn kin bכn sכm pikin dεm wit, we kin mek i at fכ fכs bikoz di nεv sεl dεm na di big intestכn nכ de divεlכp fayn fayn wan.
• If yu pikin gɛt sɔm sayn dɛn lɛk we i nɔ de muv in bɔdi, i de blo, ɔ i de vɔmit insay 48 awa afta dɛn bɔn am, go to dɔktɔ wantɛm wantɛm.
• Dɛn kin kɔnfyus di sik wit bayɔpsi.
• Wan pul-thru prosidur na di men tritmɛnt. Sɔntɛnde, dɛn kin du ɔstomy ɔpreshɔn fɔ sɔm tɛm.
• Afta tritmɛnt, bɔku pikin dɛn kin liv nɔmal, wɛlbɔdi layf. Bɔt dɛn nid fɔ kɔntinyu fɔ kia fɔ di dɔktɔ dɛn.
• Nɔto yu wan de pan dis waka. Gɛt sɔpɔt frɔm dɔktɔ ɛn famili.

Wi de wish yu pikin fɔ wɛl kwik kwik wan!

` Hirschsprung in sik, Hirschsprung in sik, infantil kɔnstipɛshɔn, kɔngenital megakolon, intestinal ɔpreshɔn, pikin dɛn, pul-thru prosidur, ostomy