Yu want fɔ no bak bɔt Multiple Sclerosis? Kam, mek wi tɔk!

Adu! Yu kin dɔn yɛri bɔt di nem Multiple Sclerosis, ɔr sɔmbɔdi wae yu sabi gɛt dis sik. Ɔ sɔntɛm yu want fɔ no mɔ bɔt am. Yu kin gɛt bɔrku kwɛstyɔn na yu maynd, lɛk aw dɛn kɔl am, wetin mek i kin apun, wetin na di sayn dɛm, ɛn tritmɛnt de fɔ am? So tide wi go tɔk bɔt ɔl dis insay wan simpul we we yu go ɔndastand.

Wetin rili na Multiple Sclerosis?

Fɔ tɔk am simpul wan, Multiple Sclerosis na wan sik we de afɛkt wi sɛntral nervous system , we na di bren ɛn spɛshal kɔd. Tink bɔt am lɛk nerv dɛn we de rɔn lɛk ilɛktrik waya ɔlsay na wi bɔdi. dis nεv dεm kin kכri mεsej frכm di bren to wi limb dεm, yay dεm, εn כlsay na wi bכdi, εn dεn kin kכri sεns dεm bak (lεk כt, kol, pen) bak na di bren.

Arawnd dɛn nɛv fayv ya, lɛk plastic insuleshɔn we de rawnd ilɛktrik waya, wan tin de we de kɔba am we de protɛkt am. Wi kin kɔl dis di maylin sheath . dis maylin sεt na in de alaw di nεv mεsej fכ travul so kwik εn efyushכn.

Bɔt, pan pɔrsin wae gɛt multiple sclerosis (MS), sɔmtin wae difrɛn smɔl kin apin. Dɛn bɔdi in yon difens sistɛm, we na di imyun sistɛm , kin mistek bigin fɔ atak da maylin stɛp de. I tan lɛk se dɛn yon sojaman dɛn de pwɛl sɔntin we impɔtant to dɛn. Wi kin kɔl dis wan ɔtoimyun kɔndishɔn .

we di maylin sεt dεm dכn pwεl, di transmishכn fכ di nεv mεsej dεm kin bi bכku bכku wan. Sɔntɛnde di mɛsej dɛn kin go fayn fayn wan, sɔntɛnde dɛn nɔ kin go fayn, ɛn sɔntɛnde dɛn kin blok dɛn ɔl. Tink bɔt am lɛk di insuleshɔn we de na ilɛktrik waya we dɛn de skrach na say dɛn, ɛn di kɔrɛnt kin stɔp fɔ flɔ.

Di wɔd "sklɛrosis" min "ska." dis na biכs sכm sכm ska dεm de fכm usay di maylin sεt dεn dכn pwεl. "Multiple" min "bɔku." Dis min se dis damej kin apin na mɔ pas wan ples na di nervɔs sistɛm.

Wetin mek di sik we dɛn kɔl multiple sclerosis (MS) kin kam? Wetin na di tin dɛn we kin mek i apin?

Infakt, wi nɔ no yet di rayt tin we kin mek pɔsin gɛt MS , bɔt dɔktɔ ɛn sayɛnsman dɛn biliv se sɔntɛm na tin dɛn we dɛn jɔyn togɛda.

• Jɛnɛtik prɛdispɔzishɔn: Dis min se jɛnɛtik prɛdispɔzishɔn de. Bɔt dis nɔto sik we kin pas dairekt frɔm mama ɔ papa to pikin. Bɔt if pɔsin na di famili gɛt MS, di chans fɔ mek ɔda pipul dɛn gɛt am kin bɔku smɔl. Bɔt na rili smɔl pasɛnt.
• Di tin dɛn we de apin na di envayrɔmɛnt: Sɔm tin dɛn na di envayrɔmɛnt we wi de liv kin afɛkt wi.
• Vayral infekshɔn: Sɔm kayn vayrɔs, fɔ ɛgzampul Epstein-Barr vayrɔs (EBV) .Dɛn dɔn si se dɛn kin mek di risk fɔ gɛt MS bɔku.
• Vitamin D we nɔ de: Sɔm stɔdi dɔn sho se pipul dɛn we nɔ gɛt vaytamɛn D, we wi kin gɛt frɔm di san, kin gɛt MS.
• Smok: Pipul wae de smok kin gɛt bɔrku risk fɔ gɛt MS, ɛn fɔ smok kin mek di sik wɔs bak.
• Di say we dɛn de: Sɔm kɔntri dɛn, mɔ di wan dɛn we de fa frɔm di ekweta, gɛt bɔku pipul dɛn we gɛt MS.
• di imyun sistεm dεn nכ de wok fayn: As wi bin dכn tכk, dis na we di imyun sistεm de atak in yon sεl dεm. Wi nɔ no yet di rayt rizin fɔ dis.

Di tin we impɔtant pas ɔl na dat MS nɔto sik we pɔsin kin gɛt. Dis min se i nɔ go ebul fɔ pas frɔm wan pɔsin to ɔda pɔsin bay we i jɔs snis ɔ shek an.

Wetin na di sayn dɛm wae kin kam pan dis sik?

Di sayn dɛm fɔ MS kin difrɛn frɔm wan pɔsin to ɔda pɔsin . Sɔm pipul dɛn kin gɛt sɔm sayn dɛn we ɔda pipul dɛn nɔ kin gɛt. Dɔn bak, di sayn dɛm kin chenj as tɛm de go. Sɔmtɛm de sayn dɛm nɔr kin tranga, ɛn sɔmtɛm dɛn kin tranga pasmak. Wi kin kɔl dɛn tɛm ya we di sik kin kam bak (rilaps) ɛn rɛmishɔn (rɛmishɔn) .

Na sɔm pan de sayn dɛm wae kin kam pan pɔrsin:

• Prɔblɛm dɛn we pɔsin kin gɛt we i de si:
• Di vishɔn we nɔ klia.
• Start fɔ si na tu say (diplopia).
• Pen we yu de tכn di yay to wan sayd, sכmtεm i nכ de si fכ sכm tεm na wan yay (dεn kכl am bak optik nyuraytis ).
• di mכsul dεm we wik εn spasticity:
• Fɔ fil lɛk se yu an ɛn fut dɛn de go numb, i nɔ izi fɔ waka.
• Fɔ lɔs balans ɛn fɔdɔm.
• di mכsul dεm na di limb dεm stif, i at fכ bεnd εn strεch ( spasticity ).
• Yu nɔ de fil fayn ɔ yu de swɛt:
• Di an, fut, fes, ɔ ɔda pat na di bɔdi kin fil lɛk se i nɔ de fil fayn, i kin swɛt, ɔ i kin fil lɛk se i gɛt ilɛktrik shɔk.
• Taya/taya pasmak:
• Dis na sɔmtin wae kin rili afɛkt pipul dɛm wae gɛt MS. Nɔr to jɔs nɔrmal taya, na filin fɔ taya pasmak wae nɔr de go ilɛksɛf yu slip ɔr rɛst. Jɔs imajin, sɔm pipul dɛn kin wek na mɔnin ɛn fil lɛk se dɛn dɔn de wok ɔl di de.
• Prɔblɛm dɛn we gɛt fɔ du wit blad ɛn bɔdi:
• Fɔ pis ɔltɛm, fɔ pis kwik kwik wan, ɛn i nɔ kin izi fɔ kɔntrol di pis.
• Banbɛlɛ.
• Diziz ɛn vertigo:
• Jɔs de fil diziz ɛn i nɔ izi fɔ tinap.
• Pen:
• Nyuropatik pen ɛn mɔsul pen kin apin.
• Di chenj dɛn we kin apin na pɔsin in maynd:
• I nɔ izi fɔ mɛmba tin dɛn.
• I nɔ kin izi fɔ mek yu pe atɛnshɔn to yu.
• I kin tek sɔm tɛm fɔ disayd ɛn plan.
• Di chenj dɛn we kin apin na di we aw pɔsin de fil:
• Fɔ fil sɔri fɔ natin na pwɛl at .
• Fɔ fred, wɔri , ɛn wɔri ɔltɛm .
• Kwik chenj na yu maynd.
• Prɔblɛm dɛn we pɔsin kin gɛt we i de tɔk:
• Slurred tok ( dysarthria) kin apin, as di wɔd dɛn kin slɔr.
• I nɔ kin izi fɔ swɛla:
• Sɔm pipul dɛn kin fil lɛk se dɛn de chok we dɛn de swɛla it ɛn drink ( dysphagia ).

Nɔ tink se yu gɛt MS jɔs bikɔs yu gɛt wan ɔ tu pan dɛn sayn ya. Dɛn tin ya kin kam bak bikɔs ɔf ɔda mɛrɛsin dɛn. So, i rili impɔtant fɔ go to dɔktɔ fɔ advays.

Udat dɛn kin gɛt MS mɔ?

Pan ɔl we MS kin kam pan ɛni ej, dɛn kin si am mɔ pan:

• Na di wan dɛn we ol bitwin 20 ɛn 50 ia .
• Uman dɛn kin gɛt MS tu to tri tɛm pas man dɛn.
• If pɔsin na di famili gɛt MS (as wi bin dɔn tɔk, dis nɔ kin kɔmɔt frɔm am dairekt wan, bɔt smɔl risk de).
• MS kin bɔku pan sɔm etnik grup dɛm, fɔ ɛgzampul, di wan dɛm we kɔmɔt na Nɔtan Yurop. Bɔt, MS pasɛnt dɛn de na Sri Lanka bak.

Aw dɛn kin no se pɔsin gɛt MS? (Diagnosis) .

No wan tɛst nɔ de fɔ no if pɔsin gɛt MS. Dɔktɔ dɛn kin yuz wan kɔmbayn pan di sayn dɛn, di mɛdikal istri, ɛn di rizɔlt fɔ bɔku tɛst dɛn fɔ no if pɔsin gɛt di sik.

• Mɛdikal histri ɛn nyurolɔjik ɛgzam: Di dɔktɔ go aks bɔt yu sik ɛn famili mɛdikal histri, ɛn i go chɛk bak yu vishɔn, trɛnk, balans, ɛn riflɛks.
• MRI (Magnetic Resonance Imaging) scan: Dis na wan rili impɔtant tɛst fɔ no if pɔsin gɛt MS. i kin si klia wan if di maylin sεt na di bren εn spεnal kכd dεn dכn pwεl εn di lεsin dεm dכn fכm.
• Evoked potential studies: Dis tεst de mכsu di spid we di nεv sεstem de rεspכnd to wan stimulus we dεn put pan di yay, yes, כ skin. dis rεspכns kin delay bikoz fכ di damej to di maylin.
• lכmba pankshכn / spεnal tap: insay dis tεst, dεn kin put wan rili sכm nidul insay di spεnal kכd εn dεn kin pul sכm sכm sכm sεribrospεnal fכluid (CSF). Sɔm chenj na dis wata kin si pan pipul dɛm wae gɛt MS.
• Fɔ pul ɔda sik dɛn: Dɛn kin du tɛst bak fɔ mek shɔ se nɔ ɔda tin nɔ de we kin mek pɔsin gɛt sɔm kayn sik dɛn we fiba MS (e.g., sɔm infɛkshɔn, vaytamɛn we nɔ de, ɔda nyurolɔjik sik dɛn).

Wetin na di tritmɛnt dɛn we dɛn kin gɛt?

Fɔs, no mɛrɛsin nɔ de yet fɔ MS . Bɔt nɔ wɔri! Bɔku fayn tritmɛnt dɛn de we go ɛp fɔ kɔntrol di sik, fɔ ridyus di sayn dɛm, ɛn fɔ mek yu liv bɛtɛ layf.

Dɛn kin sheb di tritmɛnt to sɔm men pat dɛm:

1. Di tritmɛnt dɛn we de chenj di sik (DMT): .

• dis mεdikeshכn dεm de wok bay we dεn de rεdכks di imyun sistεm in atak pan di maylin sεt.
• Dis kin ridyus di nɔmba fɔ di wan dɛn we kin gɛt di sik bak, i kin ridyus di kayn we aw dɛn kin sik, ɛn delay di disabled fɔ lɔng tɛm we di sik kin kam wit.
• difrεn kayn DMT dεm de (e.g., injεkshכn, pils, intravenously). Nyurolɔjis go disayd us DMT bɛtɛ fɔ yu.

2. Tritmɛnt fɔ di wan dɛn we gɛt di sik bak:

• If di simptom dɛn wɔs wantɛm wantɛm (relaps), dɛn kin gi am mɛrɛsin lɛk kɔtikosterɔyd fɔ shɔt tɛm. Dɛn tin ya kin ridyus di swɛlin ɛn inflamɛns kwik kwik wan na di nervɔs sistɛm ɛn ɛp fɔ pul di sayn dɛm.

3. Tritmɛnt fɔ kɔntrol di sik dɛn (Symptom management):

• Difrɛn tritmɛnt dɛn de fɔ difrɛn sayn dɛm we MS kin kam wit.
• Fisiotɛrapi: I kin ɛp wit tin dɛm lɛk wae yu nɔr kin ebul fɔ waka, yu mɔsul dɛm kin stif, ɛn yu kin balans.
• Occupational therapy: I de ɛp fɔ du ɛvride wok, fɔ du os wok, ɛn fɔ yuz di tul ɛn tin dɛn we pɔsin nid fɔ du fɔ wok.
• Mɛrɛsin fɔ sɔm patikyula sayn dɛm: Dɛn gɛt difrɛn mɛrɛsin fɔ tin dɛm lɛk fɔ taya pasmak, pen, prɔblɛm wit yu blad, ɛn fɔ mek yu mɔsul dɛn stif (spasticity).
• Mental wɛl bɔdi sɔpɔt: Kɔnsul ɛn, if nid de, mɛrɛsin impɔtant fɔ kɔntrol strɛs, pwɛl hat, ɛn wɔri hat wae kin apun wae yu de liv wit MS.
• Tɛrapi fɔ tɔk ɛn swɛla: If i nɔ izi fɔ yu fɔ tɔk ɔ fɔ swɛla, yu kin go to spɛshal ɛp.

4. Di chenj dɛn we yu fɔ chenj di we aw yu de liv yu layf:

• Fɔ it tin dɛn we go mek yu gɛt wɛlbɔdi: I impɔtant fɔ it tin dɛn we go mek yu gɛt bɛtɛ it.
• Ɛksesaiz ɔltɛm: If yu du ɛksesaiz we fayn fɔ yu, dat kin mek yu gɛt mɔ trɛnk, yu kin ebul fɔ chenj chenj, ɛn yu go gɛt wɛlbɔdi ɔlsay.
• Nɔ smok: If yu de smok, yu fɔ rili stɔp.
• Rɛst ɛn slip fayn: Dis kin ɛp fɔ kɔntrol di taya we yu taya pasmak.
• Fɔ kɔntrol strɛs: Tin dɛn lɛk yoga ɛn fɔ tink gud wan kin ɛp.

Bɔt fɔ liv wit MS

MS na wan sik wae nɔr kin izi fɔ gɛt, bɔt dat nɔr min se layf dɔn dɔn.If dɛn gɛt di rayt tritmɛnt ɛn sɔpɔt, bɔku pipul dɛn we gɛt MS kin liv gladi, sakrifays layf.

Mɛmba se nɔto yu wangren de. Bil wan strɔng sɔpɔt nɛtwɔk fɔ ɔda pipul dɛm wae gɛt MS, fambul, padi dɛm, ɛn dɔktɔ dɛm.

Di kayn we aw MS tan na dat sɔm de dɛn kin fayn, ɛn sɔm de dɛn kin tranga smɔl. So, e fayn fɔ lisin to yu bɔdi, ɔndastand wetin yu nɔ ebul fɔ du, ɛn aks fɔ ɛp we yu nid am. If yu no gud gud wan bɔt yu sik, fala yu dɔktɔ in advays, ɛn gɛt gud abit, dat kin mek big difrɛns.

Fɔ dɔn, tin dɛn we wi fɔ mɛmba

Okay, so wi bin tok plenti boht Multiple Sclerosis tide. A op se yu ɔndastand dis gud gud wan.

• MS na komplex imyun sistεm kכndyushכn we de afekt di bren εn spεnal kכd.
• Di sayn dɛm kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin ɛn kin chenj as tɛm de go.
• Pan ɔl we dɛn nɔ gɛt kɔmplit mɛrɛsin, tritmɛnt dɛn de we rili fayn fɔ kɔntrol di sik ɛn fɔ mek i nɔ gɛt di sik.
• I rili impɔtant fɔ no di sik ɛn bigin fɔ trit am kwik.
• If yu tink se yu ɔ pɔsin we yu sabi gɛt MS, go to dɔktɔ wantɛm wantɛm.
• Fɔ gi sɔpɔt ɛn ɔndastandin to di wan dɛn we gɛt MS rili impɔtant.

Risach bɔt MS de go bifo. Sɔntɛm bɛtɛ tritmɛnt dɛn de tumara bambay. So, di tin we impɔtant pas ɔl na fɔ kɔntinyu fɔ gɛt op ɛn gɛt maynd. If yu gɛt ɛni ɔda kwɛstyɔn, nɔ shem fɔ tɔk to dɔktɔ.

` Mכltipכl Sklεrosis, Mכltipכl Sklεrosis, MS, Nyurolכjik Disεs, Myelin, כtoimyun Disεs, MS Simptom dεm, MS Tritmεnt