Yu bɔdi stɔp, bɔt yu maynd fri? Lɛ wi tɔk bɔt di sik we dɛn kɔl Locked-in Syndrome (LiS) .

Imajin se yu ebul fɔ ɔndastand ɛn yɛri ɔl wetin yu want, bɔt yu nɔ ebul fɔ tɔk ɔ muv yu bɔdi... lɛk se yu dɔn trɔp insay yu yon bɔdi. Yu nɔ tink se i kin fil se yu nɔ ebul fɔ du natin fɔ tink bɔt dis? Dat na di kayn ɔnaful, bɔt rili rare nyurolɔjik kɔndishɔn we wi go tɔk bɔt tide. Dɛn kɔl dis Lɔk-in Sindrom, ɔ `(LiS)` fɔ shɔt.

Wetin na Lɔk-in Sindrom?

Fɔ tɔk am simpul wan, lɔk-in sindrom na wan nyurolɔjik disɔda we nɔ kin apin so ɔltɛm we ɔl yu volontia mɔsul dɛm, pas di mɔsul dɛm we de kɔntrol yu yay muvmɛnt, nɔ kin wok. Dis min se yu nɔ go ebul fɔ du ɛnitin we yu want fɔ du, lɛk fɔ muv yu an ɔ yu fut, tɔk, ɔ sho aw yu de fil wit yu fes.

Bɔt di wɔndaful tin na dat, di pɔsin we de na dis stet gɛt ɔl in sɛns, sɛns, ɛn mɛmori lɛk aw i nɔmal. Dɛn kin yɛri ɛn ɔndastand wetin de apin rawnd dɛn. Bɔt dɛn nɔ gɛt ɛni we fɔ ansa am. I tan lɛk pɔsin we trɔs insay in yon bɔdi, we nɔ ebul fɔ tɔk ɔ muv.

Dɛn pipul ya kin tɔk to dɛnsɛf bay we dɛn de muv dɛn yay ɔp ɛn dɔŋ, ɔ blink, we dɛn kin kɔntrol. Sɔntɛnde, dɛn kin yuz spɛshal ɛp tɛknɔlɔji fɔ dis.

di men tin we kin mek dis sik na di damej pan wan patikyula pat pan wi bren stem we dεn kכl di pons. Wi go tɔk mɔ bɔt dis leta.

Wetin na di men kayn sik wae de kam pan pɔrsin wae gɛt lɔk-in sindrom (LiS)?

Dɛn dɔn no tri men kayn sik we dɛn kɔl locked-in syndrome (LiS). Lɛ wi tek wan luk pan wetin dɛn bi.

1. Klasik mɔd

Dis na di kayn we we dɛn kin gɛt mɔ. If na so i bi, di wan ol bɔdi nɔ de muv atɔl. Dat min se dɛn nɔ go ebul fɔ mek ɛni volontia muvmɛnt. Bɔt dɛn kin muv dɛn yay ɔp ɛn dɔŋ ɛn blink. Dɔn bak, dɛn kɔnshɛns ɛn sɛns stil nɔmal. Dɛn kin yɛri tin dɛn we de apin rawnd dɛn fayn fayn wan.

2. Fɔm we nɔ kɔmplit

Dis na di sem tin wit di klasical tayp. Dat min se ivin if di wan ol bɔdi nɔ gɛt layf, di yay dɛn kin muf ɔp ɛn dɔŋ, blink. Bɔt insay dis kes, sɔntɛnde, sɔm muvmɛnt ɛn sɛns kin lɛf na sɔm pat dɛn na di bɔdi. Dat na di smɔl difrɛns we de ya.

3. Tɔtɔl Immobiliti Mɔd

Dis na di kayn we we kin rili bad ɛn we nɔ kin apin so ɔltɛm. Insay dis, di wan ol bɔdi kin paralayz kpatakpata, ɛn di ebul fɔ muv di yay dɛn kin lɔs. Bɔt, i sɔprayz fɔ no se dɛn pipul ya gɛt nɔmal tink ɛn sɛns bak. dכkta dεn kכnfכm dis bay we dεn de tεst di aktiviti fכ di sεribra kכtεks (kכtikal fכnshכn) wit tεst dεm lεk di ``εlektroεnεsεfalogram - EEG)``, we de mכsu di bren wev dεm.

Udat kin gɛt lɔk-in sindrom (LiS)?

Fɔ tru, dis sik we dɛn kɔl lɔk-in sindrom (LiS) kin apin pan ɛni ej. Bɔt risach dɔn sho se i kin apin mɔ pan pipul dɛn we ol bitwin 30 ɛn 50 ia .

Aw dis sik kin kɔmɔn?

Lɔk-in sindrom (LiS) na wan sik we nɔ kin apin so ɔltɛm. Bikɔs sɔntɛnde dɛn nɔ kin no di rɔŋ we ɔ dɛn kin tink se na mɛrɛsin, i nɔ kin izi fɔ mek di wan dɛn we de stɔdi bɔt dis sik fɔ tɔk di rayt we ɔmɔs pipul dɛn kin gɛt am ɛvri ia. Bɔt bɔku pipul dɛn kin gri se i nɔ kin apin so ɔltɛm.

Wetin na di sayn dɛm wae de sho se pɔrsin gɛt lɔk-in sindrom (LiS)?

Di ifɛkt pan di bɔdi kin difrɛn smɔl dipen pan di kayn lɔk-in sindrom (LiS) we yu gɛt.

Bɔku tɛm, we yu fɔs si pɔsin we gɛt lɔk-in sindrom, yu kin tink se i nɔ no natin, dat min se i de na kɔma. Dis na bikɔs dɛn nɔ ebul fɔ ansa ɛni we. Na leta yu kam fɔ no se dɛn de tink.

Tin dɛn we bɔku pipul dɛn nɔ ebul fɔ du:

• We yu de it it
• Fɔ swɛla
• Fɔ tɔk
• Di we aw yu de sho yu fes (lɛk fɔ smayl, fɔ fil bad) .
• Nɔ muvmɛnt fɔ di bɔdi dɔŋ di yay

Tin dɛn we bɔku pipul dɛn kin du (insay di klasical ɛn imperfect forms):

• yu kin muv yu yay dεm כp εn dכn (bכt nכto sayd to sayd, dat na כrizכnal).
• Yu kin wink.

Tin dɛn we ɔlman (insay ɔl kayn we) kin du:

• A kin yɛri tin dɛn de apin rawnd mi, pipul dɛn de tɔk.
• Yu kin ɔndastand we pɔsin tɔk ɔ rid sɔntin.
• Yu kin tink ɛn rizin lɛk aw yu bin de tink bifo dis tin apin.
• Slip-wek saykl na nɔmal tin.

Yu kin fil pen wit lɔk-in sindrom (LiS)?

Dis kin dipen bak pan di kayn Locked-In Syndrome (LiS) wae yu gɛt.

• Pɔsin wae nɔr kin muv ɔltin nɔr kin fil pen na in bɔdi bikɔs in ɔl bɔdi nɔr kin muv atɔl.
• Pɔsin wae gɛt fɔm wae nɔr kɔmplit kin gɛt pen ɛn ɔda tin dɛm wae de fil na sɔm pat dɛm na in bɔdi.

Wetin kin mek pɔsin gɛt lɔk-in sindrom (LiS)?

As wi bin dɔn tɔk, di men tin we kin mek wi gɛt lɔk-in sindrom (LiS) na we wan patikyula pat pan wi bren we dɛn kɔl di pons kin pwɛl.

Damej to di pons pat na di bren

di pons na wan mas we tan lεk כs shuz we gεt nεv fayb dεm. i de bitwin di mεdula oblongata, we na di pat we de dכn na di bren stεm, εn di sεribεl we de kכntrol wi bכdi in muvmεnt, spεshal bεlε.

di pons na wan pat pan di bren we dεn kכl di sεribra, we gεt bכku imכtant nεv path dεm we de kכnεkt wi sεribra, spεnal kכd, εn sεribra. insay lכk-in sεndrכm, we di pons dεn dכn pwεl, כl di nεv signal dεm frכm di bren to di mכsul dεm na di bכdi de blכk. Dis na di rizin we mek di wan ol bɔdi kin paralayz. dis damej de afekt bak di sεntr dεm na di bren stεm we de kכntro di fes εksprεshכn εn tכk. Dis na di rizin we mek wi nɔ kin ebul fɔ sho aw wi de fil wit wi fes, it it, swɛla, ɔ tɔk.

di men εn mכst kכmכn tin we de mek di pons dεm pwεl na ischemic strok כ hεmorrhagic strok, we de afekt di kכtikospεnal, kכtikopontin, εn kכtikobulbar path dεm na di bren stεm.

• Ischemic stroke na we blɔd we de klɔt de blok wan blɔd vesel we de gi blɔd to di bren, we de kɔt di blɔd we de go na di bren.
• Ɛmoraji strok na we blɔd bigin fɔ kɔmɔt na di bren wantɛm wantɛm frɔm wan at we de na di bren.

Ɔda tin dɛn we kin mek di pon dɛn pwɛl

Apat frɔm strok, sɔm ɔda tin dɛn we nɔ kin apin so ɔltɛm kin mek di pons pwɛl, we kin mek i gɛt lɔk-in sindrom (LiS).

• Infεksh כn na sɔm pat dεm na di bren.
• Tumɔs ɔ mas dɛn na di pons ɔ di bren stem.
• dimaylin na di lכs fכ di protεktiv kכva (maylin) we de rawnd di nεv sεl dεm.
• Sɔm mɛrɛsin dɛn, fɔ ɛgzampul , amyotrophic lateral sclerosis (ALS) ɛn Guillain-Barre syndrome .
• Trauma to di pons.
• Yuz sɔbstans di rɔŋ we .

Aw dɛn kin no se pɔsin gɛt lɔk-in sindrom (LiS)?

Bikɔs pipul dɛm wae gɛt lɔk-in sindrom (LiS) nɔr de ansa to tin dɛm wae de mek dɛn fil pen (i.e., nɔr gɛt ɛni motoka rispɔns) we dɔktɔ dɛn kin yuz fɔ chɛk fɔ si if dɛn de ansa, di dɔktɔ dɛn kin mistek tink fɔs se dɛn nɔ no natin. So, sɔmtɛm fɔ no di sik (LiS) kin tranga ɛn i kin tek lɔng tɛm.

Di tin we impɔtant pas ɔl fɔ no if pɔsin gɛt lɔk-in sindrom (LiS) na fɔ pul ɔda tin dɛn we kin mek pɔsin gɛt dɛn sik ya. Dɔn bak, as pat pan di plan fɔ no di sik ɛn tritmɛnt, i impɔtant fɔ no wetin de mek yu gɛt di sik we dɛn dɔn lɔk.

Test dɛn fɔ no if pɔsin gɛt di sik

Dɔktɔ dɛn kin yuz bɔku tɛst fɔ no if pɔsin gɛt di sik we dɛn kɔl locked-in syndrome (LiS), fɔ no di tin we kin mek i gɛt sik, ɛn fɔ pul ɔda sik dɛn.

• MRI (Magnetic Resonance Imaging - MRI) skan ɔ CT (Computed Tomography - CT) skan: Dɛn tɛst ya kin si if damej de pan yu pons ɔ ɔda pat dɛn na yu bren.
• Sεribra angiografi: Dis tεst kin no if blכd kכlכt de na di at dεm na di bren stεm כ כdasay na di bren.
• ilektroεnsεfalogram (EEG): Dis de mכsu di ilektrikal aktiviti na di bren. Dis kin mek dɔktɔ dɛn si if yu bren de wok ɛn di saykl we yu de slip ɛn wek na nɔmal tin. I kin ɛp fɔ difrɛns LiS frɔm ɔda kɔndishɔn dɛn.
• Evoked potentials: dεn ya de mכsu di ilektrikal aktiviti na di pat dεm na di bren εn spεnal kכd we de ansa tin dεm lεk pen, כditory, כ visual stimuli. Dɔktɔ dɛn kin yuz dɛn fɔ asɛs di damej we di bren stem de ansa ɛn di wɛlbɔdi we di bren de ansa.
• Ilɛktromayografi: Dis de sho aw yu mɔsul ɛn nerv dɛn de wok fayn fayn wan. Dɛn kin yuz dis tɛst fɔ no if di mɔsul ɛn di nerv dɛn dɔn pwɛl.
• Blɔd tɛst: Mɛtabolik panɛl, mɔ bay we dɛn de chɛk di sodium lɛvɛl na di blɔd, kin ɛp fɔ no if na wan sik we dɛn kɔl pontine myelinolysis na di kɔz.
• Sεribrospεnal fכluid (CSF) tεst: Dis kin εp fכ no if infεkshכn כ כtoimyun kכndishכn de mek di sik.

Aw dɛn kin trit di sik we dɛn kɔl lɔk-in sindrom (LiS)?

Fɔ tɔk tru, nɔr patikyula mɛrɛsin ɔ tritmɛnt nɔr de fɔ lɔk-in sindrom (LiS). Di wangren tin we yu fɔ du, if i pɔsibul, na fɔ trit di tin we de mek yu gɛt di sik ɛn mek yu nɔ gɛt ɔda prɔblɛm dɛn.

Manejmɛnt fɔ lɔk-in sindrom inklud sɔpɔtiv tɛrapi ɛn kɔmyunikeshɔn trenin .

Sɔpɔtiv tɛrapi

Sɔpɔtiv kia fɔ brith ɛn it impɔtant, mɔ na di fɔs stej. Bɔku tɛm, pipul dɛn we gɛt LiS kin nid atifishal sɔpɔt fɔ blo. Dɛn kin gɛt tracheotomy bak (wan tiub we dɛn kin put tru wan smɔl ol na di nɛk insay di windpaip).

Bikɔs i nɔ sef fɔ it ɔ drink bay mɔt wit LiS, dɛn pipul ya kin gɛt wan smɔl tiub we dɛn kɔl gastrostomy tube (G-tube) we dɛn kin put dairekt insay dɛn bɛlɛ. Dis na di say we dɛn kin gi it ɛn wata.

Ɔda adjɔnt tritmɛnt dɛn na:

• Fɔ mek yu nɔ gɛt prɔblɛm dɛn we kin kam bikɔs yu nɔ ebul fɔ muv. Fɔ ɛgzampul:Tin dεm lεk nyumonia, urinary tract infεkshכn (UTI), εn blɔd kכlכt (thrombosis).
• Fɔ mek yu nɔ gɛt prɛshɔn injuri/bedsɔs .
• Gi fyzikal tεrapi fכ mek di limb dεm nכ kכntrakt, we na we di rεnj fכ muv we de dכn we di joyn dεm, mכsul dεm, כ di sכft tisu dεm na di limb dεm stif.
• Gi fizik tɛrapi fɔ rihabilit ɛni smɔl smɔl volontia muvmɛnt we lɛf ɔ we de kam bak (if ɛni wan de).

Trenin fɔ tɔk to pipul dɛn

Di wan dɛn we de mɛn pipul dɛn we de tɔk kin ɛp pipul dɛn we gɛt lɔk-in sindrom (LiS) fɔ tɔk to dɛnsɛf klia wan tru di we aw dɛn de muv dɛn yay ɛn we dɛn de blink. Dis we aw dɛn de tɔk to dɛnsɛf na in yon we fɔ ɛnibɔdi. Fɔ ɛgzampul, fɔ luk ɔp kin min "yes" ɛn fɔ luk dɔŋ kin min "nɔ" (ɔ vaysvasa). Dɔn bak, we ɔda pɔsin rid lɛta, dɛn kin ebul fɔ sho di lɛta we dɛn want fɔ yuz fɔ mek wɔd ɛn sɛntɛns.

Apat frɔm di sayn dɛn we di yay de muv, ilɛktronik kɔmyunikeshɔn divays dɛn , lɛk infrarɛd ay muvmɛnt sɛns ɛn kɔmpyuta vɔys prɔstɛtik, dɔn mek pipul dɛn we gɛt LiS ebul fɔ tɔk fri wan ɛn yuz di Intanɛt.

I pɔsibul fɔ ful-ɔp fɔ wɛl frɔm lɔk-in sindrom (LiS)?

dipכnt pan di kכz fכ lכk-in sεndrכm (LiS), sכm mכtalman abiliti kin kam bak. Bɔt, i nɔ kin izi fɔ mek pɔsin wɛl ɔltogɛda. Sɔm pipul dɛm wae gɛt LiS kin gɛt sɔm muvmɛnt ɛn sɛns na sɔm pat dɛm na dɛn bɔdi.

Bɔrku pipul dɛn nɔr kin ɛva gɛt di nerve wae dɔn lɔs, bɔt dɛn kin lan fɔ tɔk to dɛnsɛf tru di muvmɛnt wae dɛn de muv dɛn yay.

Yu tink se dɛn kin ebul fɔ protɛkt di sik we dɛn kɔl locked-in syndrome (LiS)?

Bɔt i sɔri fɔ no se, bɔku pan di kes dɛm we gɛt lɔk-in sindrom (LiS) nɔ kin ebul fɔ avɔyd. Bɔt if yu gɛt bɔku risk fɔ gɛt strok, yu risk fɔ gɛt LiS kin bɔku bak.

Tɔk to yu dɔktɔ bɔt yu risk fɔ gɛt strok ɛn aw fɔ ridyus da risk de.

Wetin na de luk fɔ pɔrsin wae gɛt lɔk-in sindrom (LiS)?

Di prɔgnosis fɔ pipul dɛm wae gɛt lɔk-in sindrom (LiS) de dipen pan de kɔz fɔ de sik, di kayn sik, ɛn di lɛvɛl wae dɛn de sɔpɔt ɛn kia fɔ dɛn.

Wan sɔv we dɛn jɔs du dɔn sho se pipul dɛn we gɛt LiS bin ripɔt se dɛn gɛt gladi at ɛn gɛt mɔ minin layf, mɔ we dɛn gɛt gud soshal savis ɛn adaptiv tɛknɔlɔji we ɛp dɛn fɔ ple nɔmal wok na os ɛn na sosayti.

Bɔku pipul dɛn we gɛt LiS kin yuz wilchia we gɛt motoka ɛn kɔmpyuta we gɛt adaptiv tɛknɔlɔji.

Aw lɔŋ yu kin liv wit lɔk-in sindrom (LiS)?

Sɔm pipul dɛm wae gɛt lɔk-in sindrom (LiS) nɔr kin liv pas di fɔs stej dɛm fɔ di sik, bikɔs ɔf di mɛdikal kɔmplikɛshɔn dɛm. Bɔt ɔda pipul dɛn kin liv fɔ 10 to 20 ia ɛn dɛn kin ripɔt se dɛn gɛt gud kwaliti layf.

Aw a go tek kia ɔf misɛf, ɔ pɔsin we gɛt LiS?

If yu gɛt lɔk-in sindrom (LiS), i impɔtant fɔ mek shɔ se yu gɛt gud mɛrɛsin fɔ mek yu nɔ gɛt prɔblɛm dɛn lɛk nyumonia ɛn bed sɔri we yu nɔ ebul fɔ muv.

I impɔtant bak fɔ fɛn we fɔ tɔk to pipul dɛn – ilɛksɛf na tru di yay muvmɛnt ɔ ɛp teknɔlɔji lɛk ay-trak tɛknɔlɔji. Tink bɔt fɔ jɔyn sɔpɔt grup fɔ mit ɔda pipul dɛn we dɔn gɛt di sem ɛkspiriɛns.

If yu de kia fɔ pɔsin we gɛt `(LiS)` , i impɔtant fɔ mek yu advatayz fɔ mek shɔ se dɛn gɛt di bɛst mɛrɛsin ɛn gɛt akses to teknɔlɔji dɛn we de ɛp dɛn fɔ tɔk to dɛnsɛf ɛn bi mɔ indipɛndɛnt.

Fɔ dɔn, di tin we impɔtant pas ɔl (Take-Home Message) .

Locked-in Syndrome (LiS) na wan sik wae nɔr kin bɔrku ɛn wae kin siriɔs. Fɔ gɛt diagnosis lɛk dis kin tranga. Bɔt mɛmba se yu mɛdikal tim de fɔ sɔpɔt yu ɛn di wan dɛn we yu lɛk. I impɔtant fɔ kɔntinyu fɔ gɛt gud mɛrɛsin ɛn lan nyu we fɔ tɔk to pipul dɛn we yu de liv wit LiS.

Wit tide in advans sɔpɔtiv kia ɛn teknɔlɔji advans, bɔrku pipul dɛm wae gɛt Locked-In Syndrome (LiS) de liv ful ɛn mininful layf. So nɔ ɛva giv ɔp op. Sɔlv de fɔ ɛni prɔblɛm, we de fɔ bia wit ɛni prɔblɛm.

` Lɔk-in Sindrom, Pons, Bren Sik, Nyurɔlɔji, Paralayz, Kɔmyunikeshɔn