Imajin, sɔmbɔdi we yu sabi bigin fɔ chenj in mɛmori, di we aw i de biev, ɛn di we aw i de waka kwik kwik wan. Yu dɔn ɛva yɛri bɔt wan sik we nɔ kin izi fɔ dɔktɔ dɛn fɔ no ɛn we kin go bifo kwik kwik wan? Tide wi go tɔk bɔt wan pan dɛn strenj ɛn rili rare sik dɛn de. Wi kin kɔl dɛn priɔn sik ya.
Fɔ tɔk am simpul wan, wetin na dɛn prion sik ya?
Prion sik na wan grup fɔ sik wae de afɛkt yu bren ɛn yu nervɔs sistɛm. Dɛn kin mek yu
gɛt siriɔs pwɛl hat ɔr nɔr kin ebul fɔ kɔntrol yu bɔdi, ɛn dɛn kin wɔs kwik kwik wan. Dɛn nɔ kin bɔku, ɛn na lɛk 350 pipul dɛn nɔmɔ dɛn kin ripɔt ɛvri ia na Amɛrika. Lɛ wi luk wetin de mek dɛn de.
Prion na smɔl smɔl prɔtin dɛn we de na wi bren. Bɔt fɔ sɔm rizin dɛn we wi nɔ no, dɛn prɔtin dɛn ya nɔ kin wok fayn, dɛn kin tang, ɛn dɛn nɔ kin shep fayn. di tin we denja pas ɔl na dat dis prion protin we nɔ fold fayn kin mek ɔda wɛlbɔdi protin dɛn bak nɔ fold fayn. Jɔs lɛk aw bad padi kin mek ɔda pipul dɛn sik. dis protin dεm we dεn nכ fכl fayn de kכmכt na di bren εn bigin fכ pwεl di bren sεl dεm (nyuron dεm). Dis na wae de mek yu gɛt de sik.
Bɔku pipul dɛn kin kɔnfyus prion sik wit Alzaima sik . Pan ɔl we dɛn ɔl tu na sik dɛn we kin mek pɔsin nɔ ebul fɔ mɛmba tin, big difrɛns de bitwin dɛn tu tin ya. Bɔrku tɛm, dis sik kin wɔs smɔl smɔl fɔ bɔrku ia. Insay prion sik, di kɔndishɔn kin wɔs kwik kwik wan, fɔ shɔt tɛm, bɔku tɛm fɔ sɔm mɔnt. Ɛn, lɛk Alzaima sik, dɛn stil nɔr gɛt mɛrɛsin fɔ prion sik.
Wetin na di men kayn prion sik dɛm?
Prion sik kin afɛkt mɔtalman ɛn animal. Bɔku men kayn dɛn de we kin afɛkt mɔtalman. Lɛ wi tek wan luk pan wetin dɛn bi.
| Di Nem fɔ di Sik | Wan shɔt diskripshɔn |
|---|
| Di sik we dɛn kɔl Creutzfeldt-Jakob (CJD) . | Dis na di prɛyɔn sik we kin kam pan mɔtalman. Bɔrku tɛm, e kin afɛkt pipul dɛm wae dɔn pas 60 ia. |
| Variant Creutzfeldt-Jakob sik (Vɛriant CJD - vCJD) we gɛt di sik. | Dis kin apin to yɔŋ pipul dɛn bak. Dɛn dɔn si se if pɔsin it bif we gɛt "Mad Cow Disease" i kin pas am. |
| Gerstmann-Sträussler-Scheinker sindrom we gɛt di sik | Dis na sik bak we nɔ kin apin so ɔltɛm, we pɔsin kin gɛt frɔm in mama ɛn papa. |
| Fatal famili inshɔmnia | Dis na jεnεtik kכndishכn bak we de pas frכm jεnereshכn to jεnereshכn. Di men sayn na wae pɔrsin nɔr kin slip fayn. |
| Kuru | Wan sik we kin skata bay wan kɔstɔm fɔ it mɔtalman bɔdi bitwin sɔm trayb dɛn na Papua Nyu Gini. Dis na tin we pipul dɛn nɔ de yɛri naw. |
Wetin na di sayn dɛm wae de sho se pɔrsin gɛt prion sik?
Di sayn dɛm fɔ prion sik kin apia wantɛm wantɛm. Dɛn tin ya na we yu de chenj wantɛm wantɛm na yu maynd, yu mɛmori, ɛn di we aw yu de muv.
| Sektɔ we dɛn afɛkt | Di sayn dɛn we pɔsin kin si |
|---|
| Mental ɛn bihayvya | Bɔrku wɔri ɔr pwɛl hat sik kin chenj kwik kwik wan na yu bihayvya ɔr pɔrsin in pɔrsin kin fɔgɛt kwik kwik wan (Dementia) . |
| Fizik ɛn muvmɛnt | Balans prɔblɛm, Waka we nɔ stedi, Nɔ ebul fɔ kɔntrol di mɔsul, jɔs de jɔk ɔ shek, yu nɔ de tɔk fayn, yu nɔ de swɛla |
| Ɔda tin dɛn we de apin | Seizures Prɔblɛm fɔ si |
Di tin dɛm wae kin mek yu gɛt dis sik ɛn tin dɛm wae kin mek yu gɛt dis sik
Bɔrku tɛm, sik dɛm lɛk CJD kin kam witout ɛni klia kɔz, bɔt dɛn dɔn no sɔm tin dɛm wae kin mek pɔrsin gɛt dis sik.
- Famili Istri : Na lɛk 15% pan pipul dɛn kin gɛt dɛn sik ya bikɔs ɔf wan jenɛtik difrɛns (wan difrɛns na di jin we dɛn kɔl `PRNP`) we kin pas dɔŋ tru jɛnɛreshɔn.
- Infεkshכn : Dis kin rili rare. Sɔntɛnde, dis sik kin pas we dɛn de transplant tisu frɔm pɔsin we gɛt di sik, ɔ if di ikwipmɛnt we dɛn yuz we dɛn de du ɔpreshɔn nɔ sterilayz fayn.
- Fɔ it mit we gɛt di sik: If yu it bif we gɛt " mad cow disease " (Bovine Spongiform Encephalopathy ) i kin mek yu gɛt wan kayn sik we dɛn kɔl vCJD. We dis sik bin skata na Yurop insay di 1990 dɛm, na smɔl pipul dɛm bin day bikɔs ɔf dis sik. Naw, dɛn dɔn put strikt lɔ dɛn bɔt aw fɔ it kaw ɛn fɔ gi blɔd, so dɛn dɔn ridyus dis prɔblɛm bad bad wan.
Aw dɛn kin no se pɔsin gɛt prion sik?
E kin tranga fɔ no dis sik bikɔs de sik kin tan lɛk ɔda sik. If yu gɛt sayn dɛn lɛk fɔgɛt, yu dɔktɔ go fɔs pul ɔda tin dɛn we kin mek yu gɛt strok ɔ yu bren tumbu. Dɛn kin du dɛn tɛst ya:
- Spinal Tap / Lumbar Puncture: dis involv fכ put wan tin nidul bitwin tu pan yu vεrbra dεm εn tek sכm sכm sכm sכm sכm pan di wata we de rawnd yu bren εn spεnal kכd (sεribrospεnal fכluid). di lεvεl dεm fכ sכm protin dεm we de insay de kin tεst fכ gεt aidia fכ di sik.
- MRI skan (Magnetic Resonance Imaging): Dis kin yuz pawaful magnet ɛn redio wev fɔ tek ditayli pikchɔ dɛn bɔt di bren. Sɔntɛnde i kin sho sɔm patikyula chenj dɛn na di bren we dɛn kin si pan prion sik.
- CT scan (Computerized Tomography): Dɛn kin tek sɔm ɛkstrem rayt dɛn togɛda fɔ mek di bren klia klia wan.
di tin we impɔtant pas ɔl: di wangren we fɔ mek yu shɔ se pɔsin gɛt prion sik na fɔ tek smɔl pat pan di tisu frɔm di bren (bren bayɔpsi). Bɔt dis na ɔpreshɔn we rili gɛt prɔblɛm. So dɛn kin du dis nɔmɔ if pipul dɛn de tink se na ɔda sik we dɛn kin mɛn.
Tritmɛnt ɛn prɛvɛnshɔn fɔ di sik
Na dis tɛm, no mɛrɛsin nɔ de fɔ di sik dɛn we dɛn kin gɛt we dɛn kɔl prion. Di tritmɛnt dɛn we dɛn de gi naw kin jɔs kɔntrol di sik dɛn ɛn gi sɔm rilif to di pɔsin. Dis kin inklud mɛrɛsin fɔ mɛn pen, mɛrɛsin wae de mek pɔrsin fil bad, ɛn mɛrɛsin wae de mek pɔrsin nɔr de wɔri. As de sik fɔ pɔrsin wae gɛt prion sik de wɔs de go de, dɛn nɔr go nid ɛp fɔ du tin ɛvride. Dɛn kin nid fɔ put kateta fɔ pul di urine, salin fɔ mek dɛn nɔ gɛt wata na dɛn bɔdi, ɛn fɔ gi dɛn tiub if dɛn nɔ ebul fɔ it.
Yu tink se dɛn go ebul fɔ avɔyd di sik?
Nɔr way nɔr de fɔ mek yu nɔr gɛt di sik dɛn we yu kin gɛt frɔm yu mama ɛn papa, bɔt dɛn step ya kin ɛp fɔ ridyus di risk fɔ mek di sik pas tru infɛkshɔn ɔ it:
- Fɔ klin ɛn disinfɛkt di mɛrɛsin ikwipmɛnt dɛn fayn fayn wan.
- If yu gɛt prion sik ɔ yu gɛt famili histri bɔt am, nɔ gi tisu ɔ ɔgan.
- Fɔ it jɔs mit we gɛt sɛtifiket se i nɔ bad.
Di prɛd we "mad kaw sik" de prɛd naw, dɛn dɔn kɔntrol am fayn fayn wan bikɔs ɔf di strikt rigyuleshɔn dɛn we bɔku kɔntri dɛn ɔlsay na di wɔl dɔn put bɔt di it ɛn bif we dɛn de gi kaw.
Mɛsej we dɛn kin kɛr go na os
- Prion sik na wan grup wae de sik wae nɔr kin bɔrku bɔt wae kin gɛt siriɔs sik wae kin pwɛl di bren.
- Insay dɛn sik ya, di we aw pɔsin de mɛmba, di we aw i de biev, ɛn di we aw i de muv kin pwɛl kwik kwik wan . Dis kwik kwik wan na di men tin wae de mek i difrɛn frɔm sik dɛm lɛk Alzaima.
- I nɔ kin izi fɔ no di sik klia wan, ɛn dɛn nid fɔ du sɔm patikyula tɛst dɛn fɔ du dat.
- Pan ɔl we naw, no patikyula mɛrɛsin nɔ de fɔ dis, dɛn kin kɔntrol di sik dɛn ɛn dɛn kin gi di pɔsin fridɔm.
- If yu ɔ pɔsin we yu sabi notis chenj wantɛm wantɛm na dɛn mɛmori, dɛn pɔsin, ɔ muvmɛnt we dɛn nɔ ebul fɔ ɛksplen, i rili impɔtant fɔ go to dɔktɔ wantɛm wantɛm fɔ advays .
Prion Diseases, Creutzfeldt-Jakob sik, CJD, bren sik, nervous system, mɛmori lɔs, dimɛnshɔn, mad kaw sik, mad kaw sik
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