Yu mama, papa, grani, ɔ anti we dɔn ol kin fɔgɛt smɔl smɔl tin dɛn? Yu tink se dɛn kin fɔgɛt wantɛm wantɛm wetin dɛn bin de tɔk we dɛn de tɔk? yu fambul se, "Oh, na so i bi we yu ol"? Na tru se i nɔmal fɔ fɔgɛt smɔl smɔl tin dɛn as yu de ol. Bɔt nɔto ɔl fɔgɛt na pat pan "gɛt ol." Sɔmtɛm dɛn tin ya kin bi di fɔs sayn dɛm fɔ wan sik lɛk Alzaima. Dis sik nɔ kin bisin bɔt di kɔlɔ, rilijɔn, ɔ man ɔ uman. Ɛnibɔdi kin divɛlɔp am. Bɔt di we aw dɛn mɛn wi, wi kɔlchɔ, ɛn di tin dɛn we wi biliv kin rili afɛkt di we aw wi de gɛt dis sik. Lɛ wi tɔk bɔt dat tide.
Wetin na de kɔmɔn biliv na wi sosayti bɔt Alzaima?
Difrɛn opinion de na wi sosayti bɔt Alzaima ɛn dis kayn sik wae de mɛk pɔrsin nɔr de mɛmba (Dementia). Bikɔs ɔf dɛn opinion ya, sɔntɛnde i kin let fɔ go fɛn di rayt tritmɛnt. Tink bɔt am, yusɛf sabi dɛn tin ya.
- "Na so i kin bi we yu ol": Bɔku pipul dɛn kin tink se fɔ lɔs mɛmori na nɔmal tin as dɛn de ol. So, dɛn nɔ de pe atɛnshɔn to di fɔs sayn dɛn we de sho se dɛn nɔ de mɛmba fayn igen.
- Nɔr kin no: Bɔrku pipul nɔr kin no se Alzaima na sik wae de afɛkt di bren. Dɛn nɔr want fɔ tɔk bɔt am bikɔs dɛn de si am as mental sik.
- Shem ɛn gilti: Bɔrku pipul kin ayd dɛn kayn tin ya bikɔs dɛn kin shem fɔ se, "Sɔmbɔdi na wi famili gɛt maynd sik."
- Nɔ trɔst di Wɛstinian mɛrɛsin: Sɔm pipul dɛn kin lɛk tradishɔnal mɛrɛsin (lɔkal mɛrɛsin) pas di mɛrɛsin dɛn we dɔktɔ dɛn kin gi dɛn. Dis kin mek dɛn delay fɔ no di sik.
- Fɔ rɛspɛkt ɛlda dɛn pasmak: Insay wi kɔlchɔ, wi rili rɛspɛkt ɛlda dɛn. Dat na gud tin. Bɔt sɔm tɛm, wi kin delay tritmɛnt jɔs bikɔs wi rɛspɛkt dɛn opinion, lɛk, "Mama/Papa nɔ want fɔ go to dɔktɔ."
- Nɔr fɔ sheb famili prɔblɛm: Di biliv se "family matters should be keep at home" de mek pipul dɛn nɔr want fɔ tɛl ɛnibɔdi na do, ivin dɔktɔ, bɔt aw famili mɛmba in maynd chenj.
- Fɔ wet te yu gɛt imejensi: Na kɔmɔn tin fɔ lɛ yu nɔ go to dɔktɔ te di sik rili siriɔs, we min se na imejensi.
- Fɔ abop pan rilijɔn: I fayn fɔ mek wi gɛt kɔrej frɔm di tin dɛn we rilijɔn biliv ɛn di tin dɛn we dɛn de du. Bɔt sɔntɛnde, if wi nɔ pe atɛnshɔn to di tritmɛnt ɛn abop pan rilijɔn rilijɔn dɛn nɔmɔ fɔ mek dɛn gɛt wɛlbɔdi, dat kin mek di sik wɔs.
Aw dɛn tin ya we dɛn biliv kin afɛkt di we aw dɛn kin no di sik ɛn aw dɛn kin trit am?
Bikɔs ɔf di strɔng famili tayt na wi sosayti, we ol pɔsin bigin fɔ sho sayn dɛm fɔ dis maynia sik, di fɔs pɔsin we go step insay fɔ kia fɔ am na in famili. Bɔku tɛm, na gyal pikin, bɔy pikin, ɔ in gyal pikin kin tek dis wok. Dis na tin we rili fayn fɔ du. Bɔt sɔntɛnde, di tin dɛn we wi biliv pan kɔlchɔ kin delay fɔ no di sik ɛn fɔ trit am.
De impɔtant tin na dat Alzaima na sik wae kin kam wae pɔrsin gɛt pwɛl hat sik na in bren, nɔto nɔrmal tin wae kin kam wae pɔrsin dɔn ol. Di kwik we dɛn no bɔt am ɛn trit am, na di mɔ layf kin izi fɔ di pɔsin ɛn in famili.
Lɛ wi ɛksplen dis mɔ na di tebul we de dɔŋ ya.
| Kɔmɔn kɔlchɔ biliv | Di pɔsibul impak we dis kin gɛt |
|---|---|
| Fɔ tink se fɔ mɛmba tin na nɔmal tin we pɔsin kin du we i ol. | Fɔ nɔ pe atɛnshɔn to di fɔs sayn dɛn we de sho se pɔsin sik. Fɔ delay fɔ go to dɔktɔ. |
| Fɔ kia fɔ ol pipul dɛn na di famili na os (home care). | Pan ɔl we dis na fayn tin, fɔ kia fɔ di pɔsin we sik ɛn di pɔsin we de kia fɔ am, kin rili strɛs fɔ di pɔsin ɛn di pɔsin we de kia fɔ am. |
| Fɔ shem fɔ gɛt mental sik. | Fɔ ayd di kɔndishɔn frɔm yu fambul, padi, ɛn sosayti. Nɔto fɔ gɛt di sɔpɔt we dɛn nid. |
| Tink, "Wetin pipul go tink?" | Nɔ want fɔ pul di pɔsin we sik kɔmɔt na di os, fɔ tek pat pan sɔshal ivin dɛm. Di pɔsin we sik de in wan. |
‘Wetin pipul dɛn go se?’ i aks am. - Aw dis stigma de afɛkt
Stigma, simpul wan, na di bad we aw pipul dɛn de si sɔntin, di bad we aw dɛn de ɛksplen am. Dis shem ɛn frayd kin gɛt fɔ du wit mɛntɛl hεlth kכndyushכn lεk Alzaima. Dis kin mek ɔda pipul dɛn fil lɛk se dɛn de trit dɛn bad ɛn dɛn de trit dɛn bad. Yu kin ivin fil gilti fɔ dat.
Di bad tin wae kin apin bikɔs ɔf dis shem na:
- Nɔ want fɔ aks fɔ ɛp, fɔ gɛt diagnosis, ɔ fɔ go to tritmɛnt.
- Frɔm famili, padi, nebaNɔ ɔndastand ɛn sɔpɔt.
- Sivɛri saykilɔjik strɛs fɔ di pɔsin we de kia fɔ di pɔsin.
- Di pɔsin we sik ɛn in famili kin shem, fil gilti, ɛn dɛn kin dawt dɛnsɛf .
Di bɛst we fɔ dil wit dis shem na fɔ tɔk bɔt am opin wan. Tɔk to yu dɔktɔ bɔt am. If nid de, jɔyn sɔpɔt grup wit pipul dɛn we dɔn gɛt di sem ɛkspiriɛns. I kin rili gi yu pawa fɔ no se nɔto yu wangren de.
Di LGBTQ+ Kɔmyuniti ɛn Alzaima Sik: Spɛshal Chalenj dɛm
We pɔsin we kɔmɔt na di LGBTQ+ (lɛsbian, gay, bayseksual, transjɛndor, ɛn ɔda) kɔmyuniti gɛt Alzaima, dɛn kin gɛt ɔda ɛn spɛshal prɔblɛm dɛn.
Bɔku rizin dɛn de fɔ dat:
- Famili nɔr de sɔpɔt yu: Sɔntɛnde, bikɔs yu de liv yu wan, yu de fa frɔm yu famili, nɔbɔdi nɔr de fɔ kia fɔ yu we yu sik.
- Stigma: Di risk fɔ mek dɛn nɔ de na di soshal say bikɔs ɔf ɔl tu di sɛkshɔnal aydentiti ɛn Alzaima sik.
- Fɔ de yu wan: Fɔ fil se yu de fil bad bad wan we yu sik, bikɔs yu de liv yu wan we yu nɔ gɛt pikin ɔ yu fambul we de nia yu.
Ɔnda dɛn kayn tin ya, i rili impɔtant fɔ plan fɔ tumara bambay kwik kwik wan.
- Fɛn dɔktɔ we ɔndastand yu: I impɔtant fɔ fɛn dɔktɔ we rɛspɛkt yu aydentiti, trit yu ɛn yu patna ikwal, ɛn mek yu fil fayn fɔ aks kwɛstyɔn.
- Fɛn sɔpɔt: If yu nɔ gɛt famili sɔpɔt, aks fɔ ɛp frɔm yu padi dɛn, pipul dɛn we yu sabi, ɔ ɔganayzeshɔn dɛn we de sɔpɔt di LGBTQ+ kɔmyuniti we go ɛp yu.
- Plan fɔ tumara bambay: I impɔtant fɔ pripia wan ligal dɔkyumɛnt (advance directive) bɔt yu fiuja kia ɛn mɛrɛsin tritmɛnt nid dɛn kwik kwik wan afta di sik bigin, pan ɔl we yu stil ebul fɔ disayd. Fɔ ɛgzampul, dis kin inklud fɔ gi pɔsin in nem fɔ mek yu disayd fɔ du mɛrɛsin if yu nɔ ebul fɔ disayd (durable power of attorney for health care) ɔ fɔ rayt wetin yu want bɔt sɔm mɛrɛsin tritmɛnt dɛn (living will). I bɛtɛ fɔ mek yu aks lɔya fɔ advays fɔ dis.
Mɛsej we dɛn kin kɛr go na os
- Alzaima nɔto nɔmal tin we kin mek pɔsin ol. Na sik we de ambɔg di bren.
- If yu notis sɔm sayn dɛm lɛk wae yu nɔr de mɛmba, fɔgɛt wɔd, ɔr yu pɔrsin chenj, nɔr jɔs dismis am as "de ol." Si dɔktɔ kwik kwik wan.
- Di kwik we dɛn no di sik, na di mɔ layf kin izi fɔ di pɔsin ɛn di wan dɛn we de kia fɔ am.
- Nɔ shem fɔ "wetin pipul go se." Dis na sik wae kin afɛkt ɛnibɔdi. Nɔ fred fɔ aks fɔ sɔpɔt.
- If yu na pɔsin we de kia fɔ pɔsin we gɛt Alzaima, tek kia ɔf yu maynd ɛn bɔdi wɛlbɔdi. Luk fɔ ɛp if nid de.
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