Yu ɔ pɔrsin wae yu sabi gɛt ɛpilepsi wae nɔr kin izi fɔ kɔntrol pan ɔl wae yu de tek mɛrɛsin? Wi no aw i kin tranga fɔ liv wit dɛn kayn tin ya sɔntɛnde. Bɔt we di sayɛns bɔt mɛrɛsin dɔn go bifo, nyu tritmɛnt dɛn dɔn kam naw fɔ dis. Tide, wi go tɔk bɔt wan pan dɛn kayn nyu we ya we go wok fayn fɔ mɛn pipul dɛn. Dɛn kɔl dis Rispɔnsiv Nyurostimuleshɔn, ɔ RNS fɔ shɔt.
Fɔ tɔk am simpul wan, wetin na RNS?
Imajin se wan smɔl gad we rili gɛt sɛns de insay yu bren. As soon as seizure de kam apin, dat min se we wan abnormal ilektrikal aktiviti na di bren bigin, dis gad de no am en wan smol smol lektrikal signal wans fo stop dat abnormal aktiviti. Na dat dis divays we dɛn kɔl RNS de du.
Fɔ tɔk am simpul wan, RNS na smɔl tin we dɛn kin du ɔpreshɔn pan yu bɔdi. I de kɔntinyu fɔ wach di ilɛktrik aktiviti na yu bren usay di sik de apin. We i no se ilɛktrik nɔ de wok fayn, i kin ansa kwik kwik wan ɛn sɛn sɔm smɔl smɔl ilɛktrik puls dɛn to da eria de. As tɛm de go, dis ilɛktrik ɛnaji de mek yu bren nɔ ebul fɔ mek yu gɛt sik smɔl smɔl.
Di impɔtant tin na dat di RNS divays nɔ kin ebul fɔ mɛn ɛpilepsi ɔltogɛda. Bɔt i kin ridyus di nɔmba fɔ di sik dɛn we yu kin gɛt we yu de sik.
We dɛn dɔn put di divays, yu dɔktɔ kin ajɔst in sɛtin dɛn fɔ fit wetin yu nid. Dɛn kin ɔpreshɔn am bak if nid de.
Udat dis RNS tritmɛnt fayn fɔ?
Dis tritmɛnt we ya nɔ fayn fɔ ɔlman. Bɔku tɛm, dɔktɔ kin tɛl yu fɔ du am afta we i dɔn tink bɔt sɔm tin dɛn.
- Sik wae nɔr de kɔntrol wit mɛrɛsin: If yu gɛt prɔblɛm fɔ kɔntrol yu sik pan ɔl we yu de yuz antiseizure mɛrɛsin kɔrɛkt wan.
- Focal Seizures: If yu seizures bigin na wan patikyula eria na yu bren.
- If ɔda ɔpreshɔn nɔ fayn: If ɛni prɔblɛm de we pɔsin kin du ɔda ɔpreshɔn ɔ if di ɔpreshɔn we dɛn bin dɔn du trade nɔ wok.
- Fɔ pipul dɛm wae dɔn pas 18 ia: Dɛn dɔn gri fɔ dis tritmɛnt naw fɔ pipul dɛm wae dɔn pas 18 ia.
Aw yu kin pripia bifo dɛn du yu ɔpreshɔn?
Bikɔs dis na ɔpreshɔn na yu bren, yu dɔktɔ go du bɔku tɛst bifo di ɔpreshɔn. Di men gol na fɔ no ustɛm na yu bren di sik dɛn we de mek yu sik de bigin.Bikɔs na de dɛn fɔ put di ilɛktrɔd dɛn we wi bin tɔk bɔt.
Fɔ dis, yu go gɛt fɔ du sɔm tɛst dɛn wan bay wan.
- Vidio-EEG Monitoring we dɛn de du
- MRI skan we dɛn kin du
- Wan PET skan we dɛn kin du
- Magnɛto ɛnsɛfalografi (MEG) .
- Ictal SPƐKT
- Nyurosaykayatrik tɛst
- Intrakranial EEG monitarin (SEEG ɔ sabdural ɛvalueshɔn) .
Apat frɔm dɛn tɛst ya, yu dɔktɔ go aks yu bak bɔt yu wɛlbɔdi istri, alɛji, ɛn ɛni mɛrɛsin we yu de tek. So, mek shɔ se yu kam wit ɔl dɛn tin ya we yu de go to yu dɔktɔ.
Wetin kin apin di de we dɛn du di ɔpreshɔn?
Di de we dɛn go du di ɔpreshɔn, dɛn go ful-ɔp yu anestez. So yu nɔ go fil ɛni pen. Yu go de slip.
Dɔn, na di ɔpreshɔn rum, di dɔktɔ we de du di ɔpreshɔn kin fala dɛn tin ya:
1. Fɔ pul di ia: Na di say we dɛn du di ɔpreshɔn nɔmɔ dɛn kin pul wan smɔl pat pan di ia. Nɔ wɔri bɔt am, yu ia go gro bak afta di ɔpreshɔn.
2. Fɔ opin di skel: Dɛn kin kɔt di skin ɛn mek wan rili smɔl opin (craniectomy) na di skel.
3. Implant εlektrod dεm: dεn de put vεri tכn εlektrod dεm we lεk waya na di pat pan di bren usay di sik de apin. dis dεm de mכsu di bren in ilektrikal aktiviti εn de gi stimulashכn.
4e. Divays ples: Dɛn kin put di RNS divays (wan smɔl tin we tan lɛk kɔmpyuta) insay di skel, jɔs ɔp di bren.
5. Fɔ chɛk ɛn lɔk: Dɛn kin chɛk di divays fɔ mek shɔ se i de wok fayn, ɛn dɛn kin siŋ di say we dɛn kɔt bak.
Bɔku tɛm, dis ɔpreshɔn kin tek lɛk tu to 4 awa so.
Wetin kin apin afta di ɔpreshɔn?
Afta di ɔpreshɔn, yu go nid fɔ de na ɔspitul fɔ tu to tri dez. insay dis tεm, di divays go bigin fכ wok, bכt i go כnli "lisin" to di bren aktiviti. Dat min se fɔ gɛda di data.
Dɛn kin bigin fɔ yuz ilɛktrik stimuleshɔn afta tu to 4 wik, afta di wund dɔn wɛl ɔl. Fɔ dat, yu go nid fɔ go to di dɔktɔ bak. Na da tɛm de i go "on" di divays ɛn bigin di stimulashɔn tritmɛnt.
Start na wan rili lɔw lɛvul ɛn chenj di sɛtin dɛn smɔl smɔl te yu fɛn di lɛvul we fit yu pas ɔl.
Data monitarin frɔm os
Yu go gɛt wan smɔl tin we tan lɛk kɔmpyuta ɛn wan stik (wan ikwipmɛnt) we dɛn tay pan am fɔ yuz na os. We yu put di stik na yu ed, ɔl di data we de na di divays go dawnlod na di kɔmpyuta. Dɔn dɛn kin sɛn di data na di Intanɛt to wan wɛbsayt we sikrit. Yu dɔktɔ kin luk da data de ɛn lan bɔku tin bɔt yu sik, lɛk aw ɔltɛm yu kin gɛt sik ɛn us tɛm pan di de i kin apin mɔs. If i yuz dis infɔmeshɔn, i kin ivin ebul fɔ ajɔst di we aw yu de tek di mɛrɛsin.
| Advantej dɛm fɔ RNS tritmɛnt | Risk dɛn we kin apin (we nɔ kin apin so ɔltɛm) . |
|---|---|
| Di nɔmba fɔ di sik dɛn we kin sik kin go dɔŋ as tɛm de go. | Blɔd we de kɔmɔt. |
| Fɔ ebul fɔ ridyus di mɛrɛsin we dɛn kin tek fɔ mek pɔsin sik. | Di kɔndishɔn dɛn we kin mek pɔsin gɛt sik. |
| Fɔ lɔng tɛm we yu nɔ gɛt sik. | Pen. |
| Fɔ mek di kwaliti fɔ layf bɛtɛ (di bɔdi ɛn maynd wɛlbɔdi). | Divays nɔ de wok fayn. |
Ustɛm fɔ kɔl di dɔktɔ
Afta dɛn dɔn du di ɔpreshɔn, if yu gɛt bad bad pen, yu de blɔd, ɔ yu de swel na di say we dɛn kɔt am, tɛl yu dɔktɔ wantɛm wantɛm.
Afta yu dɔn on di divays ɛn stat di stimulashɔn, if yu gɛt ɛnitin we nɔ izi fɔ yu, lɛk we yu ed de tɔn, we yu de si chenj, ɔ we yu de swɛla, tɛl yu dɔktɔ bɔt dat. Nɔ wɔri, bikɔs dɛn kin ajɔst di stimuleshɔn lɛvɛl na dis divays, yu dɔktɔ kin ajɔst am to wan lɛvɛl we go fayn fɔ yu.
Lɛ wi lan bak bɔt di tɛm we pɔsin kin gɛt bak ɛn di batri.
Pan ɔl we i kin tek 8 wik fɔ mek yu wɛl ful wan, yu kin ɔltɛm bigin fɔ du tin dɛn we yu de du ɛvride (lɛk fɔ go wok ɔ skul) insay 2-4 wik. Bɔt nɔ du ɛnitin we go mek yu strɛs if yu nɔ go to yu dɔktɔ.
Di bateri we de insay dis divays kin yuz fɔ lɛk 8-10 ia so . We dɛn nid fɔ chenj di bateri, dɛn nɔ nid fɔ chenj di wan ol divays. I nɔ nid fɔ mek dɛn du big ɔpreshɔn lɛk di ɔpreshɔn we dɛn bin dɔn du trade. I simpul pasmak, ɛn yu kin jɔs chenj di batri wit smɔl ɔpreshɔn.
Mɛsej we dɛn kin kɛr go na os
- RNS na wan advans tritmɛnt fɔ fokal ɛpilepsi we nɔr de kɔntrol wit mɛrɛsin.
- Pan ɔl we dis nɔ kin mɛn di sik dɛn we kin mek pɔsin sik kpatakpata, i kin rili ridyus di frɛkuɛns we pɔsin kin gɛt we i de sik.
- Dis na tin we dɛn kin du ɔpreshɔn pan, ɛn bifo dat, dɛn kin du bɔku tɛst dɛn fɔ no di rayt say usay di sik bigin.
- We dɛn dɔn fit di divays, di dɔktɔ go ajɔst in sɛtin dɛn wan wan tɛm fɔ mek i fit yu.
- Na yu nyurolɔg nɔmɔ go ebul fɔ no if dis tritmɛnt fayn fɔ yu, so tɔk to yu dɔktɔ fɔ no mɔ.
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