Yu smɔl pikin in finga dɛn shɔt ɔ dɛn dɔn fuz togɛda? Lɛ wi tɔk bɔt Symbrachydactyly.

Oh, yu pikin bɔn wit finga dɛn we shɔt smɔl ɔ we dɔn fuz? Na nɔmal tin fɔ mek yu as mama fil bad ɛn fred we yu si dis. Wi kin kɔl dis kɔndishɔn na mɛrɛsin `(Symbrachydactyly)`. Pan ɔl we di nem kin tan lɛk se i strenj smɔl, we yu dɔn no bɔt am fayn fayn wan, yu nɔ go fred bad bad wan. Lɛ wi tɔk bɔt dis ditayli, nɔto so?

Wetin na dis (Symbrachydactyly)? Lɛ wi ɔndastand am simpul wan!

Fɔ tɔk am simpul wan, `(Symbrachydactyly)` na wan kɔndishɔn we de we dɛn bɔn am . dis na we di pikin in finga dεm (εn sכmtεm in fut finga dεm, bכt bכku tεm di an dεm) nכ de divεlכp fayn. Dis min se di finga dɛn kin shɔt pas aw i kin bi, ɔ tu ɔ tri finga dɛn kin jɔyn togɛda, ɔ sɔntɛnde sɔm finga dɛn kin mis ɔltogɛda. Dis kin afɛkt di we aw di an de luk ɛn bak aw i de wok.

Jɔs tink bɔt aw bɔku tin dɛn wi fayv finga dɛn de ɛp wi fɔ du. Hol sɔntin we smɔl, rayt, it, ɔltin. So, pikin we dɛn bɔn wit dis sik kin gɛt am smɔl fɔ du dɛn tin dɛn de. Bɔt nɔ wɔri, wit di advans mɛrɛsin dɛn we de tide, dɛn kin ebul fɔ mɛn dis sik bɔku tɛm.

Aw kɔmɔn dis sik (Symbrachydactyly)?

Dis na rili wan sik we nɔ kin apin so ɔltɛm . Insay di wɔl, na lɛk wan pan ɛvri 32,000 pikin dɛn we dɛn kin bɔn ɛvri ia kin gɛt dis sik (Symbrachydactyly). So, dis nɔto jɔs yu prɔblɛm, ɛn i nɔ kin apin bak.

Aw Symbrachydactyly kin afɛkt pikin in bɔdi?

Di men tin we kin apin to am na di we aw di an de wok ɛn aw i de luk . biכs fכ di fכs na di finga dεm, i kin at sכmtεm fכ di pikin fכ grap tin dεm εn du an wok. Dɔn bak, di we aw di an de luk kin difrɛn frɔm di nɔmal an.

Bɔt i impɔtant fɔ no se bɔku tɛm dis kɔndishɔn kin afɛkt wan an nɔmɔ (`(Unilateral)`) . I nɔ kin izi fɔ mek i afɛkt di tu an dɛn.

Dɔktɔ dɛn kin sheb dis sik (Symbrachydactyly) to 4 men kayn. Lɛ wi tɔk smɔl bɔt dɛn kayn dɛn de.

Wetin na di men kayn Symbrachydactyly?

dis klasification de bays pan di nεchכr fכ di impak pan di finga dεm.

1. Sכt-finga simbrakidaktili (Tayp 1):

pan dis kayn we, di pikin kin gεt wan tכmbכl εn כl di fכ finga dεm. Bɔt dɛn finga dɛn ya shɔt pas aw dɛn kin du am . sכm pan di bon dεm na di finga jכint dεm (`(Phalanges)`) kin nכ de bak.

2. Oligodasaylik simbrakidaktili (Tayp 2): .

If na so i bi, di pikin kin gɛt big finga ɛn pinki (smɔl finga), bɔt di midul finga bitwin dɛn kin nɔ de ɔ i nɔ kin divɛlɔp fayn . Sɔntɛnde dis kin tan lɛk "atypical cleft hand".

3. 3. .Monodaktili simbrakidaktili (Tayp 3):

as di nem sho, insay dis kayn kכndyushכn, di pikin gεt wan finga nכmכ we fulכp divεlכp (bכku tεm na di tכmbכl) . di כda fכ finga dεm kin bi sכm sכm sכm sכm pat dεm (`(Remnants or nubbins)`) כ pat dεm we divεlכp sכm pat. Dis min se tin dεm lεk bon εn mכsul dεm nכ de fכm fayn fayn wan.

4. Tayp we nɔ gɛt ɛni finga (`(Peromelic symbrachydactyly - Tayp 4)`):

Dis na di kes we kin rili bad. If na so i bi , di big an ɔ ɛni wan pan di ɔda finga dɛn nɔ go afɛkt .

I nɔ mata us kayn yu pikin gɛt, dɔktɔ dɛn go no se i gɛt am we dɛn bɔn am. Dɔn dɛn go mɔs sɛn yu to dɔktɔ we de mɛn pikin dɛn an .

Wetin na di sayn dɛm fɔ (Symbrachydactyly)?

di onli εn men sayn fכ dis kכndyushכn na we di pikin in finga dεm de sכt, fכ fכs togeda, כ mis we i bכn . Bɔku tɛm, dɛn kin si dis na wan an.

biכs fכ dεn finga dεm ya, i kin bi bak se abnכmal tin dεm de na di fכlכw כndalayn tisu dεm:

• Bɔn dɛn (`(Bɔn dɛn)`)
• Mɔsul dɛn (`(Mɔskul dɛn)`) .
• Ligamɛnt dɛn
• Tεndon dεm
• Nεv dεm (`(Nεv dεm)`) .

Wetin kin mek pɔsin gɛt Symbrachydactyly?

infakt, dεn nכ fכnshכn nכ spεsifi k kכz fכ `(Symbrachydactyly)`. sכm spεshal pipul dεm biliv se i kin kכz fכ wan kכndyushכn we dεn kכl `(Vascular dysgenesis)` we de disrupt di bכdi saplai to di pikin in an we di pikin de divεlכp insay di bεlε. Dis min se we di blɔd nɔ de flɔ fayn, di pat dɛn na di an nɔ de divɛlɔp fayn.

Di impɔtant tin na dat dis nɔto tin we pɔsin kin gɛt frɔm in bɔdi ɔ we pɔsin kin gɛt frɔm in mama ɛn papa. Dis min se pikin kin gɛt am ilɛksɛf nɔbɔdi nɔ bin gɛt am, ɛn pɔsin we gɛt dis sik nɔ go pas am to in pikin dɛn. Dis na tin we kin apin bay wilful. So, nɔ wɔri ɛn tink se, "Na mi fɔlt?"

Aw fɔ no di sik (Symbrachydactyly)?

Bɔku tɛm, dɔktɔ dɛn kin no dis sik jɔs afta dɛn bɔn pikin . dεn kin no if na ``Symbrachydactyly`` εn, if na so, us kayn, bay we dεn luk di chenj dεm na di pikin in an.

sכmtεm, dεn kin no dis kכndyushכn ali we yu de du כltra saund skan (`(Prenatal ultrasound)`) we yu gεt we yu bεlε.

Bifo dɛn bigin di tritmɛnt, dɛn kin du ɛkstrem rayt fɔ chɛk aw di bon dɛn we de insay di pikin in an de.

Wetin na di tritmɛnt dɛm fɔ (Symbrachydactyly)?

Bɔrku tɛm, di men tritmɛnt fɔ Symbrachydactyly na ɔpreshɔn.Bɔt nɔto ɔl pikin nid ɔpreshɔn, ɛn di kayn ɔpreshɔn we dɛn nid kin difrɛn frɔm wan pikin to ɔda pikin, i kin difrɛn frɔm di kayn sik we i gɛt.

Tritmɛnt bay ɔpreshɔn

Bɔku tɛm, dɔktɔ dɛn nɔ kin se dɛn fɔ du ɔpreshɔn te di pikin ol lɛk wan ɔ tu ia so , bikɔs da tɛm de, di pikin in tisu dɛn dɔn divɛlɔp smɔl ɛn naw dɛn kin ebul fɔ bia we dɛn du di ɔpreshɔn.

Di men gol fɔ ɔpreshɔn na fɔ mek di pikin in an wok bak ɛn mek i tan lɛk aw i bin de . Sɔntɛnde, wan ɔpreshɔn nɔ kin du fɔ dɛn, ɛn i kin nid fɔ du bɔku ɔpreshɔn.

We dɛn de du ɔpreshɔn, dɔktɔ dɛn kin yuz di skin flap ɔ ɔda tin dɛn we de kɔmɔt na di an fɔ lɔk di say dɛn we de bitwin di finga dɛn, ɔ fɔ tray fɔ separet di finga dɛn. Dis kin mek i izi fɔ di pikin fɔ ol tin ɛn yuz dɛn an.

insay sכm siriכs kes dεm, spεshal wan we di finga dεm nכ de kכmplit, wan mεtכd de bak we dεn kכl ``Tכ tכnfכs`` usay dεn de tek wan tכ frכm di pikin in כwn fut εn transplant am to di an . We yu yɛri dis, yu kin fred se, "O, wetin go apin to di leg?" Bɔt, nɔ fred am. Ivin if dεn tek wan tכd na in fut dis we, i nכ go gεt eni prכblεm fכ tinap, waka, rכn, כ jomp. Bɔt di wok we di an de du go bɛtɛ bad bad wan.

Di dɔktɔ we de du di ɔpreshɔn go ɛksplen to yu ditayli us kayn ɔpreshɔn yu pikin nid ɛn wetin fɔ ɛkspɛkt afta dat. Insay dɛn kayn tin ya, i rili impɔtant fɔ trit di pikin kwik, bifo i ful-ɔp.

Tritmɛnt dɛn we nɔto ɔpreshɔn

Sɔm pikin dɛn kin bɛnifit bak we dɛn de gi dɛn tritmɛnt we dɛn nɔ de du ɔpreshɔn bifo ɔ afta dɛn du dɛn ɔpreshɔn.

• We yu wɛr bres ɔ splint: We yu wɛr dɛn tin ya, dat kin ɛp fɔ mek di finga dɛn na yu an lɔng ɛn strɔng.
• Prɔstɛsis: Sɔm pikin dɛn kin yuz prɔstɛsis an fɔ ɛp dɛn fɔ ol tin dɛn ɛn du wok dɛn.
• Fizik tritmɛnt: Afta dɛn dɔn du ɔpreshɔn, fyzikal tritmɛnt rili impɔtant fɔ tich yu pikin fɔ yuz in an fayn fayn wan. dis de mek di mכsul dεm na di an strכng εn i de mek di rεnj fכ muv bכku.

Tɔk to yu dɔktɔ fɔ disayd us tritmɛnt go fayn fɔ yu pikin.

Aw lɔŋ i kin tek fɔ wɛl frɔm (Symbrachydactyly) ɔpreshɔn?

Dis rili dipen pan di kayn ɔpreshɔn we yu pikin dɔn du. Yu dɔktɔ ɔ dɔktɔ we de du ɔpreshɔn go gi yu instrɔkshɔn bɔt aw fɔ kia fɔ yu pikin in an afta dɛn dɔn du di ɔpreshɔn. I rili impɔtant fɔ fala dɛn instrɔkshɔn dɛn de di rayt we.

Aw a go ebul fɔ mek yu nɔ gɛt Symbrachydactyly?

Fɔ tɔk tru, nɔtin nɔ de we yu kin du fɔ mek dis sik (Symbrachydactyly) nɔ apin we yu gɛt bɛlɛ. Bikɔs, as wi dɔn tɔk bifo tɛm, dɛn nɔ fɛn ɛni patikyula rizin fɔ am.

Bɔt, jɔs lɛk ɔl ɔda tin dɛn, sɔm tin dɛn de we kin mek pɔsin gɛt prɔblɛm wit di pikin we i bɔn. I bεst fɔ avɔyd dɛn tin ya we yu gɛt bɛlɛ:

• Fɔ drink rɔm.
• Fɔ smok ɔ yuz ɔda tin dɛn we dɛn kin yuz fɔ smok.
• Yuz drɔgs fɔ ɛnjɔy yusɛf.

Tɔk to yu dɔktɔ fɔ advays yu bɔt wetin yu fɔ it ɔ drink we yu gɛt bɛlɛ ɛn wetin yu nɔ fɔ it.

If mi pikin gɛt Symbrachydactyly, wetin a fɔ ɛkspɛkt?

ivin if dεn no se yu pikin gεt `(Symbrachydactyly),` dis kכndyushכn nכ go afekt di pikin in nכmal growth כ intellektual divεlכpmεnt . Dat min se yu pikin go gro fayn ɛn gladi lɛk ɔda pikin dɛn.

Bɔt if dɛn no se yu bɔn ɔda prɔblɛm ɔ mɛrɛsin sik wit Symbrachydactyly, yu pikin kin nid ɔda tritmɛnt ɔ kia. Yu dɔktɔ go ɛksplen dis to yu.

Ustɛm a fɔ go to dɔktɔ?

If yu notis ɛni chenj na yu pikin in an, tɔk to yu dɔktɔ bɔt am. Ɛspɛshali if dɛn dɔn du ɔpreshɔn, luk fɔ ɛni wan pan dɛn sayn ya na di say we dɛn du di ɔpreshɔn:

• Blɔd we de kɔmɔt.
• Kɔlɔ chenj (blu, rɛd).
• Wan swɛlin.
• Wan tin we de kɔmɔt na di pus ɔ ɔda wata.
• If i tan lɛk se di pikin de fil pen ɔ i nɔ de rɛst we nɔ kɔmɔn.

If yu si sɔntin lɛk dis, go to dɔktɔ wantɛm wantɛm.

Us kwɛstyɔn dɛn a fɔ aks di dɔktɔ?

Aks yu dɔktɔ bɔt ɛni kwɛstyɔn ɔ tin we de mɔna yu. Fɔ ɛgzampul:

• Us kayn Symbrachydactyly mi pikin gɛt?
• Us kayn ɔpreshɔn i nid fɔ du?
• Ɔmɔs ɔpreshɔn dɛn go nid fɔ du?
• Us ej i fɔ gɛt ɔpreshɔn?
• Mi pikin go nid fɔ gɛt fizik tritmɛnt ɔ ɔda tritmɛnt dɛn we nɔto ɔpreshɔn?

I rili impɔtant fɔ mek yu ɛn yu pikin aks kwɛstyɔn dɛn lɛk dis ɛn ɔndastand ɔltin klia wan.

Fɔ dɔn, tin dɛn fɔ mɛmba (Take-Home Message) .

Symbrachydactyly na wan kכndyushכn we di pikin in finga dεm de sכt כ fכ fכs tכgeda we i bכn. Dis kin afɛkt di we aw di pikin ebul fɔ yuz in an fɔ ɔl in layf. Bɔt we dɛn bɔn yu pikin wit wan sik we dɛn bɔn wit in an, dat nɔ min se yu pikin nɔ go gladi ɛn gɛt wɛlbɔdi.

Bɔku tɛm, dɛn kin nid fɔ du ɔpreshɔn fɔ mek di an wok fayn. Afta dat, dɛn kin nid tin dɛn lɛk fyzikal tritmɛnt fɔ mek di an wok fayn. כltu di kכndyushכn `(Symbrachydactyly)` nכ de afekt di growth כ mental divεlכpmεnt fכ eni כda pat pan di pikin in bכdi.

Yu pikin go lan fɔ dil wit di wɔl in yon we, jɔs lɛk ɛni ɔda pikin. Di we aw yu lɛk am, di sɔpɔt we yu de sɔpɔt am, ɛn di ɛnkɔrejmɛnt we yu de gi am, na in impɔtant pas ɔl to am.

If yu want fɔ no mɔ bɔt dis, nɔ fred fɔ tɔk to yu dɔktɔ. Dɛn go ɛp yu ɛvri step na di rod.

`Symbrachydactyly, difεkt we dεn bכn, di an dεm we de fכm, fכ kכl fכ finga, fכ spεl fכ finga, pikin hεlth, כpεrayshכn