Yu nɔ gɛt prɔblɛm bak fɔ stɔp blɔd we yu kɔt ivin smɔl? Lɛ wi tɔk bɔt von Willebrand Disease!

Sɔntɛnde yu kin gɛt smɔl kɔt we nɔ kin stɔp fɔ blɔd fɔ lɔng tɛm? Ɔ yu kin gɛt blɔd na yu nos ɔltɛm? Sɔntɛm sɔmbɔdi na yu famili gɛt dis kayn prɔblɛm? If na so i bi, dis na sɔntin we go impɔtant to yu. Tide wi go tɔk bɔt wan sik we nɔ kin bɔku bɔt we kin rili kɔmɔn we dɛn kɔl von Willebrand Disease .

Wetin na di sik we dɛn kɔl von Willebrand?

Fɔ tɔk am simpul wan, von Willebrand Disease na sik we wi blɔd nɔ kin klɔt fayn, we min se di prɔses we kin ɛp fɔ stɔp blɔd kin wik. Bɔrku tɛm dis kin kɔmɔt frɔm dɛn mama ɛn papa , we min se mama ɛn papa kin pas di sik to dɛn pikin dɛm. Bɔt nɔ wɔri, tritmɛnt de fɔ dis. Dɔktɔ dɛn kin gi yu mɛrɛsin dɛn we de ɛp fɔ dis we aw blɔd de klɔt.

Wetin kin apin to pɔsin we gɛt von Willebrand Disease?

Pɔsin we gɛt dis sik kin blɔd pas aw i kin blɔd. Jɔs tink bɔt dat, ivin we pɔsin kɔt am smɔl ɔ pul in tut, i kin tek lɔng tɛm fɔ lɛ i nɔ blɔd igen. Sɔm pipul dɛn kin gɛt blɔd na dɛn nos ɔltɛm. Fɔ uman dɛn, dɛn kin blɔd bɔku we dɛn de gɛt mɔnt, ɔ dɛn kin blɔd bɔku afta dɛn bɔn pikin.

Na di kayn sik wae kin pasmak, sɔmtɛm blɔd kin kɔmɔt fɔ no rizin insay di jɔyn ɔ sɔft tisu. Dis kin mek yu swel ɛn mek yu fil pen bad bad wan. Fɔ ɔda pipul dɛn, i kin ivin mek dɛn gɛt anemia , we na we dɛn nɔ gɛt blɔd .

Aw dis sik kin kɔmɔn?

Dis na rili di sik wae de kam wae pɔrsin de blɔd pasmak na di wɔl. Sɔm ripɔt dɛn se i kin afɛkt lɛk 1% pan di pipul dɛn na Amɛrika. Ɔlsay na di wɔl, dɛn se bitwin 23 ɛn 110 pan ɛvri milyɔn pipul dɛn kin gɛt dis sik. Bɔt dɛn nɔmba ya kin difrɛn, bikɔs sɔm pipul dɛn kin gɛt prɔblɛm wit blɔd bɔt dɛn nɔ kin no se dɛn gɛt von Willebrand Disease . Sɔm pipul dɛn kin dɔn gɛt dɛn kayn prɔblɛm ya fɔ lɔng lɔng tɛm, bɔt dɛn nɔ kin no bɔt dɛn te i tu let.

Yu tink se von Willebrand sik ɛn ɛmofilia na di sem tin?

Yɛs, pan ɔl we dɛn ɔl tu na prɔblɛm we blɔd de klɔt, Vɔn Wilbrand Sik na sik we nɔ kin gɛt bɔku sayn dɛn ɛn i nɔ kin rili bad lɛk ɛmofilia . Bɔt dat nɔ min se na sɔntin we wi fɔ ignore.

Wetin na di sayn dɛm wae de sho se yu gɛt von Willebrand Disease?

Bɔrku pipul wae gɛt dis sik kin nɔr kin gɛt ɛni sayn at ɔl , ɔr kin gɛt sɔm kayn sik wae nɔr kin pasmak. Bɔt di wan dɛn we gɛt mɔ sik kin gɛt sɔm sayn dɛn lɛk:

• Nɔs blɔd : Dis nɔto jɔs nɔmal blɔd. I kin bi se yu de blɔd fɔ pas 10 minit, ɔ blɔd de kɔmɔt na yu nos pas fayv tɛm insay di ia.
• Blɔd we de kɔmɔt frɔm wund: Blɔd we de kɔmɔt frɔm smɔl kɔt ɔ ɔda wund fɔ pas 10 minit.
• Brus: Pipul wae gɛt dis sik kin gɛt brus kwik kwik wan. Dɛn brus ya nɔ kin jɔs flat na di skin, bɔt dɛn kin swel smɔl ɛn rayz lɛk lump. Dɛn brus ya kin big bak pas fayv rup kɔyn.
• Ayɔn we nɔ de wok faynIron-deficiency anemia : Anemia na wan sik we di bɔdi nɔ gɛt inof rɛd blɔd sɛl . Ayɔn dɛfisiɛns anemia kin apin we wi bɔdi nɔ gɛt bɛtɛ ayɔn fɔ mek ɛmoglobin . Dis tin we dɛn kɔl ɛmoglobin de ɛp di rɛd blɔd sɛl dɛn fɔ kɛr ɔksijɛn. So, we wi lɔs tumɔs blɔd, wi kin lɔs ayɛn bak ɛn gɛt dis sik.
• Blɔd afta dɛn dɔn ɔpreshɔn: Pipul dɛn we gɛt dis sik kin blɔd bɔku bɔku wan, ivin afta dɛn dɔn du smɔl ɔpreshɔn, lɛk fɔ pul dɛn tut.
• Hevi menstruation : Fɔ sɔm uman dɛm, if dɛn menstrual blɔd so hevi dat dɛn fɔ chenj dɛn pad ɔ tampon ɛvri awa, ɔ if dɛn period las fɔ pas sɛvin dez, i kin bi wan sayn fɔ dis sik.
• Bɔku blɔd we de kɔmɔt afta yu bɔn pikin ɔ we di bɛlɛ dɔn pwɛl.
• Blɔd na di stɔl: Ilɛksɛf yu gɛt blɔd na yu stɔl ɔ yu gɛt blɔd afta yu dɔn pas stɔl, i kin bi sayn fɔ ɔda mɛrɛsin. So yu fɔ rili go to dɔktɔ .
• Blɔd we de na di urine (hematuria): If yu notis blɔd we yu de pis, mɔ if di blɔd de wit yu want fɔ pis wantɛm wantɛm, tɛl dɔktɔ wantɛm wantɛm .

De tin wae impɔtant pas ɔl na dat, if yu gɛt wan ɔr mɔr pan dɛn sik ya, nɔr ignore dɛm ɛn go to dɔktɔ fɔ advays.

Wetin kin mek pɔsin gɛt von Willebrand Disease?

Dis na sik we pɔsin kin gɛt frɔm in jɛnɛtiks . Dis min se dis sik de kam bay wan chenj (mכteshכn) na wi jin dεm. Bikɔs ɔf dɛn jɛnɛtik chenj ya, wi bɔdi nɔ kin ebul fɔ mek wan prɔtin we dɛn kɔl von Willebrand factor fayn fayn wan. Dɛn tin ya na prɔtin dɛn we de ɛp wi blɔd fɔ klɔt.

Dis von Willebrand factor de insay di plasma (di wata we de na wi blɔd), di pletlɛt (sɛl dɛn we de ɛp fɔ mek blɔd klɔt), ɛn di wɔl dɛn na di blɔd vesel dɛn . Nɔmal wan, we blɔd vesel dɔn pwɛl, di pletlɛt dɛn kin stik na di say we i dɔn pwɛl, ɛn dis kin mek blɔd klɔt ɛn stɔp di blɔd.Von Willebrand factor na in de ɛp dɛn pletlɛt ya fɔ stik togɛda fayn fayn wan. So, we yu lɔs inof pan dis factor, ɔ if yu lɔs am kpatakpata, di pletlɛt dɛn nɔ kin ebul fɔ stik togɛda fayn fayn wan. Dɔn i kin tek lɔng tɛm fɔ mek blɔd klɔt fɔm.

Bɔku pipul dɛn kin gɛt dis sik bay we dɛn gɛt wan jin we dɔn chenj frɔm wan pan dɛn mama ɛn papa . dis dεn kכl am כtosom dכminant inhεritεns . Ɔda wan dɛn kin gɛt di jin we dɔn chenj frɔm dɛn mama ɛn papa dɛn ɔl tu . Dɛn kɔl dis autosomal recessive inheritance , ɛn na di kayn sik we kin rili bad. pכsin we kכri dis mכtayshכn jin gεt 50% chans fכ pas di mכtεshכn to in pikin dεm.

Dɔn bak, sɔmtɛm, von Willebrand sik kin kam as kɔmplikɛshɔn fɔ ɔda mɛrɛsin, lɛk kansa , ɔtoimyun disɔda , at sik, ɛn blɔd vesel sik.

Aw dɔktɔ dɛn kin no if pɔsin gɛt von Willebrand Disease?

We yu go to dɔktɔ, dɛn go aks yu fɔs bɔt di sayn dɛn we yu gɛt. Dɛn kin aks bak if ɛnibɔdi na yu famili dɔn gɛt di sem kayn sik ɔ blɔd disɔda. Dɔn dɛn kin du sɔm tɛst dɛn, lɛk:

• Complete blood count (CBC): Dis de sho di nɔmba fɔ di rɛd blɔd sɛl dɛn, difrɛn kayn wayt blɔd sɛl dɛn, ɛn di pletlɛt dɛn we de na yu blɔd. I de mɛzhɔ bak di ɔmɔs ɛmoglobin we de na yu rɛd blɔd sɛl dɛn. Bɔrku pipul dɛm wae gɛt von Willebrand sik kin gɛt nɔrmal CBC. Bɔt pipul dɛn we de blɔd bɔku kin gɛt smɔl ɛmoglobin ɛn dɛn kin gɛt smɔl rɛd blɔd sɛl.
• Plɛtlɛt agregeshɔn tɛst: Dis de tɛst aw yu pletlɛt dɛn de stik togɛda fɔ ɛp fɔ mek blɔd klɔt.
• Activated partial thromboplastin time test (APTT): Dis de tεst fכ von Willebrand fכktכ εn כda klot fכktכ dεm we de εp fכ blכd kכlכt. If di lɛvɛl fɔ dɛn tin ya smɔl pas aw i fɔ bi, i kin tek lɔng tɛm fɔ mek di blɔd klɔt.
• Prothrombin time (PT) test: Dis kin mכsu כda tin dεm we de mek blɔd kכlכt bak.
• Fibrinogen tɛst: .Fibrinogen na ɔda prɔtin we de ɛp fɔ mek blɔd klɔt.
• Von Willebrand factor antigen test: Dis de mכsu di כmכnt fכ di von Willebrand factor protin we de insay yu bכdi.
• Ristocetin cofactor test: dis de ases di aktiviti fכ von Willebrand fכktכ.
• Von Willebrand factor multimers test: Dis de luk di strɔkchɔ fɔ di factor.

Yu dɔktɔ kin nid fɔ du bɔku blɔd tɛst fɔ kɔnfirm di diagnosis, bikɔs tin lɛk di ɔmon lɛvɛl kin chenj di lɛvɛl fɔ von Willebrand factor na yu blɔd.

Bɔku kayn sik de we dɛn kɔl von Willebrand. Dɔktɔ dɛn go du mɔ tɛst fɔ no ustɛm yu gɛt. Dɛn kayn dɛn ya na:

• Tayp 1: Dis na di kayn we we pipul dɛn kin yuz mɔ. Bitwin 60% ɛn 80% pan di sik pipul dɛn gɛt dis kayn. Dɛn pipul ya gɛt low level of von Willebrand factor na dɛn blɔd. Sɔntɛm dɛn nɔ kin gɛt sɔm sayn dɛn. If dɛn du dat, dɛn kin rili saful.
• Tayp 2: Insay dis kayn, von Willebrand factor nɔ de wok fayn. Dɛn pipul ya kin gɛt smɔl to smɔl blɔd. Bitwin 15% ɛn 30% pan di sik pipul dɛn gɛt dis kayn.
• Tayp 3: Dis na di kayn we we kin rili bad. I nɔ kin bɔku bak. I kin afɛkt bitwin 5% ɛn 10% pan di sik pipul dɛm. Dɛn pipul ya gɛt rili lɔw lɛvɛl fɔ von Willebrand factor na dɛn blɔd, ɔ nɔr gɛt ɛni wan atɔl. Dis kin mek yu gɛt siriɔs prɔblɛm wit blɔd.

Wetin na di tritmɛnt fɔ von Willebrand Disease?

Dɔktɔ dɛn kin trit dis sik wit difrɛn kayn mɛrɛsin dɛn:

• (Desmopressin): Dis na ɔmon. I de mek di lɛvɛl we di von Willebrand factor de na di blɔd go ɔp. Dis na de tritmɛnt wae kin pasmak fɔ dis sik.
• Von Willebrand factor infusions: Dɛn kin gi sɔm pipul dɛn dis factor tru wan vein fɔ stɔp fɔ blɔd. Dɛn kin gi dis tritmɛnt bifo dɛn du di ɔpreshɔn. Sɔm pipul dɛm wae gɛt siriɔs sik kin nid fɔ gɛt dis tritmɛnt ɔltɛm fɔ mek di factor lɛvɛl na dɛn blɔd nɔr de chenj.
• (Antifibrinolaytiks): .Dɛn mɛrɛsin ya kin wok bay we dɛn kin mek di blɔd nɔ klɔt. Yu dɔktɔ kin gi yu dɛn mɛrɛsin ya if yu de du ɔpreshɔn pan yu tit ɔ if yu de gɛt ebi ebi blɔd we yu de gɛt we yu de gɛt mɔnt.
• Pils fɔ kɔntrol bɔn pikin: Dɛn tin ya kin ɛp di wan dɛn we gɛt ebi ebi blɔd we dɛn kin gɛt we dɛn de gɛt mɔnt. di εstrojen כmon we de insay dεn pil dεm ya de mek di lεvεl fכ von Willebrand fכktכ na di bכdi go כp.

A kin ridyus di risk fɔ gɛt dis sik?

Bɔku tɛm dis na tin we pɔsin kin gɛt frɔm in mama ɛn papa . If yu mama ɛn papa gɛt dis sik, yu kin gɛt am frɔm wan pan dɛn ɔ ɔl tu. So natin nɔ de we wi go du fɔ mek i nɔ go bifo.

If a gɛt dis sik, wetin a fɔ ɛkspɛkt?

Dɔktɔ kin trit di sik we dɛn kɔl von Willebrand, bɔt dɛn nɔ kin ebul fɔ mɛn am ɔl . Bɔrku pipul kin gɛt tayp 1 ɔr tayp 2. Dɛn kin jɔs nid tritmɛnt if dɛn gɛt injury ɔr nid ɔpreshɔn. Pipul wae gɛt tayp 3 kin nid fɔ kɔntinyu fɔ gɛt mɛrɛsin fɔ kɔntrol blɔd.

A gɛt von Willebrand Sik. Aw a fɔ kia fɔ misɛf?

Bikɔs bɔrku pipul dɛn kin gɛt sɔm kayn sik wae nɔr kin pasmak, wae yu fɔ liv wit dis sik min fɔ tek sɔm tin dɛm wae yu fɔ tink bɔt:

• Nɔ du tin dɛn we go mek yu wund: I bɛtɛ fɔ mek yu nɔ de nia spɔt dɛn we gɛt bɔku prɔblɛm dɛn, fɔ ɛgzampul, futbɔl, rɔgbi, ɛn ɔki.
• Tɛl ɔl yu dɔktɔ dɛn, ivin yu dɛntist, se yu gɛt dis sik: dɛn kin plan aw fɔ kɔntrol blɔd afta dɛn dɔn ɔpreshɔn yu.
• Nɔ yuz aspirin ɔ mɛrɛsin we gɛt aspirin.
• Nɔ yuz nonsteroidal anti-inflammatory drugs (NSAID) , lɛk ibuprofen, pas nɔmɔ dɔktɔ we no se yu gɛt von Willebrand sik tɛl yu.
• Nɔ tek tin dɛn we gɛt vaytamɛn E, fish ɔyl, ɛn tumara.
• Tink bɔt wan mɛdikal alert aydentifikeshɔn: We yu wɛr breslɛt lɛk dis ɔ yu kɛr aydentifikeshɔn kad, dat kin ɛp yu fɔ gɛt di rayt mɛrɛsin we yu gɛt imejensi.

Ustɛm a fɔ go na ɔspitul kwik kwik wan?

Go na ɔspitul wantɛm wantɛm ɛni tɛm we yu de blɔd we yu nɔ ebul fɔ kɔntrol . Ivin if na smɔl injury, if di blɔd nɔ stɔp, mek shɔ se yu go to dɔktɔ.

Us kwɛstyɔn dɛn a fɔ aks di dɔktɔ?

If yu gɛt von Willebrand sik, yu kin gɛt kwɛstyɔn bɔt aw de sik go afɛkt yu layf. Na sɔm kwɛstyɔn dɛn we yu kin aks yu dɔktɔ:

• Wetin mek a gɛt dis sik?
• Mi pikin dɛn kin gɛt dis sik?
• Yu tink se dis go wɔs?
• Wetin na di tritmɛnt dɛm fɔ dis?
• Wetin na di sayd ɛfɛkt dɛm we di tritmɛnt kin gɛt?
• A nɔ go ebul fɔ du sɔm tin dɛn, lɛk fɔ travul ɔ fɔ ple spɔt, bikɔs ɔf dis sik?

Fɔ tɔk smɔl, di tin dɛn we wi nid fɔ mɛmba na

Von Willebrand sik na wan sik wae kin pasmak, wae de mek yu blɔd klɔt. Bɔrku pipul kin gɛt sɔm kayn sik wae nɔr kin pasmak. Dɛn kin gɛt blɔd na dɛn nos ɔltɛm, ɔ ivin we dɛn kɔt smɔl smɔl, i kin tek lɔng tɛm fɔ lɛ dɛn stɔp fɔ blɔd. Ɔda wan dɛn kin gɛt siriɔs sayn dɛn. Fɔ ɛgzampul, dɛn kin gɛt blɔd na dɛn jɔyn ɛn dɛn jɔyn dɛn kin pen.

Sɔm pipul dɛn nɔr kin no se dɛn gɛt dis sik fɔ lɔng lɔng tɛm. If yu gɛt am, i kin mek yu fil fayn fɔ no wetin mek yu gɛt prɔblɛm wit blɔd. Yu kin wɔri bak se yu pikin dɛnsɛf go gɛt dis sik. Pan ɔl we dɔktɔ dɛn nɔ kin ebul fɔ mɛn di sik, dɛn kin trit am . Dɛn kin ansa yu kwɛstyɔn dɛn bak bɔt if yu pikin dɛn go gɛt am. Dɛn kin gi yu bak di infɔmeshɔn wae yu nid fɔ liv wit von Willebrand sik so dat e nɔr go stɔp yu fɔ liv aktif, nɔrmal layf. So, nɔ wɔri, if yu ɔndastand am ɛn manej am fayn, yu go ebul fɔ liv fayn wit am.