Yu dɔn ɛva si yu smɔl pikin de jɔk wantɛm wantɛm, lɛk se laytin dɔn bit am? In an ɛn leg dɛn kin fol wantɛm wantɛm, ɔ i kin trowe insɛf bak. Ivin if dis kin las fɔ sɔm sɛkɔn nɔmɔ, if i apin bɔku tɛm insay wan row, i kin rili mek ɛni mama ɔ papa we si am fred. Wi go tɔk bɔt wan sik we de mek wi fred so, bɔt i rili impɔtant fɔ no am kwik kwik wan. Dat na Wɛst Sindrom.
Fɔ tɔk am simpul wan, wetin na Wɛst Sindrom?
West Syndrome na wan kayn sik wae nɔr kin bɔrku wae kin apun to yɔŋ pikin dɛm, mɔr di wan dɛm wae nɔr rich wan ia yet . Dɛn gi am in nem to di dɔktɔ we bin fɔs kam fɔ no am.
Dis gɛt bɔku nem dɛn bitwin dɔktɔ dɛn. Yu kin yɛri di nem `Infantile Spasms (IS)`. Dat min ``bebi spasm.'' Dɛn kin kɔl am bak ``Epileptic Spasms.'' Pan ɔl we bɔku nem dɛn de, dɛn ɔl de tɔk bɔt di sem mɛrɛsin.
Wetin na di sayn dɛm fɔ dis sik?
Di men tin we dis na di jɔk we wi bin dɔn tɔk bɔt bifo tɛm. Dɛn kɔl dɛn tin ya `spasms`. Dɛn jɔk ya gɛt sɔm spɛshal kwaliti dɛn:
- aw di kכntrikshכn dεm kin kam: di pikin kin le fכwכd wan wan (lεk we i bεlε de at) כ i kin trowe bak. Di an ɛn leg dɛn kin stif ɛn twitch wantɛm wantɛm.
- Tɛm: Wan strok kin las fɔ sɔm sɛkɔn nɔmɔ.
- Klɔsta: Dɛn kɔntrakshɔn ya nɔ kin kam wan tɛm ɛn stɔp. Dɛn kin kam insay wan we we de kɔntinyu ɛn we dɛn kin gɛda togɛda . Wan kɔntrakshɔn de fala ɔda wan, ɛn afta dat ɔda wan, ɛn afta dat ɔda wan, te to 150 kɔntrakshɔn dɛn insay wan klasta. Bebi dɛn de we kin gɛt te to 60 dɛn kayn klasta dɛn de ɛvride.
- Tεm: Yu kin si dεn muvmεnt dεm ya jisno we di pikin wek frכm slip.
Apat frɔm dɛn tret ya, dɛn kin si ɔda sayn dɛn.
| Di sayn we de sho se di sik de | Tɔk bɔt |
|---|---|
| Kray/vɛks ɔltɛm (Crankiness) . | Di pikin de kray ɔltɛm fɔ natin ɛn i nɔ izi fɔ kɔrej am. |
| I nɔ kin want fɔ it igen | Ridyus ɔ nɔ gri fɔ drink milk. |
| Slip kin chenj | Slip smɔl na nɛt, slip mɔ na de. |
| Grɔwth arɛst ɔ rigrɛshɔn | Dis na abit we rili impɔtant. Di pikin we bin de du tin dɛn lɛk fɔ smayl, ple, ɛn fɔ no in mama, kin stɔp fɔ du dɛn tin dɛn de smɔl smɔl. I kin fɔgɛt di tin dɛn we i bin dɔn lan trade. |
Wetin mek dis kin apin to bebi dɛn?
Wɛst Sindrom na wan sik wae nɔr kin bɔrku. I kin afɛkt lɛk 6 pan 10,000 pikin dɛn. Bɔku tɛm i kin afɛkt pikin dɛn we ol bitwin 4 ɛn 8 mɔnt. Pan ɔl we nɔto ɔltɛm dɛn kin no di rayt tin we kin mek i apin, dɛn dɔn no bɔku men tin dɛn we kin mek i sik.
- Strukchɔral bren prɔblɛm: Ɛni abnɔmal tin we kin apin we di bren de divɛlɔp ɔ fɔm.
- di jεnεtik chenj dεm: Dis kכndyushכn kin kכz fכ sכm chenj dεm na di pikin in jin dεm.
- Bren damej: Na bikɔs ɔksijɛn nɔ de na di bren we dɛn de bɔn pikin ɔ ɔda tɛm, lɛk aksidɛnt.
- di mεtabolik dizכrd dεm: Na fכ sכm prכblεm dεm wit di bכdi in kεmikכl prכsεs dεm.
- Bren infεkshכn: Na infεkshכn kכndyushכn dεm we de afekt di bren.
- Tuberous Sclerosis Complex: Na jεnεtik kכndyushכn we tכmכro dεm we nכ de kεnsar de divεlכp na di bכdi εn bren.
Aw dɛn kin du di diagnosis?
If yu notis se yu pikin gɛt dis kayn sik, yu fɔ go to dɔktɔ we de mɛn pikin dɛn kwik kwik wan .
I rili impɔtant: Bifo yu go to yu dɔktɔ, i go rili ɛp if yu ebul fɔ tek vidio we yu pikin de kɔntrakt. Bɔku tɛm dɛn kin mistek kɔl dis fɔ kɔlik, so i kin fayn fɔ mek di dɔktɔ si di fim fɔ ɛp fɔ no di sik.
Di dɔktɔ kin tɔk mɔ bɔt dɛn tɛst ya:
- EEG (Electroencephalogram): Dis na di tɛst we impɔtant pas ɔl. Fɔ tɔk am simpul wan, i de rayt di ilɛktrik wok we de na di bren as patɛn. di pikin we gεt Wεst Sεndrכm go sho wan patεn we nכ de rεgεl we dεn kכl `Hypsarrhythmia` na di EEG. Dis na de men tin wae de sho aw pɔrsin de no bɔt dis sik.
- MRI ɔ CT skan:Dɛn skan ya kin ɛp fɔ si if ɛni prɔblɛm, damej, ɔ abnɔmal tin de na di strɔkchɔ na di bren.
- Blɔd, urine, ɛn sɛribrospaynal fluid (CSF) tɛst: Dɛn tɛst ya kin ɛp fɔ no if di tin we mek di pɔsin de shek na bikɔs i gɛt prɔblɛm wit in jɛnɛtik ɔ in mɛtabolik.
Wetin na di tritmɛnt dɛm fɔ dis?
I rili impɔtant fɔ bigin tritmɛnt kwik kwik wan afta dɛn dɔn no se di pikin gɛt Wɛst Sindrom, bikɔs fɔ kɔntrol di sik we de mek pɔsin sik, i kin ɛp fɔ mek di pikin in bren nɔ pwɛl bɛtɛ.
Mɛrɛsin we dɛn kin gi
De tritmɛnt wae dɛn kin yuse fɔ dis na mɛrɛsin.
- ACTH: Dis na ɔmon. Dɛn kin gi am as injɛkshɔn. I kin rili ɛp fɔ kɔntrol di at bit.
- Vigabatrin (Sabril): Dis na mɛrɛsin bak fɔ ɛpilepshi. I kin wok fayn mɔ fɔ pikin dɛn we gɛt Wɛst Sindrom, we na wan sik we Tuberous Sclerosis kin kam wit.
- Steroid: Dɛn kin yuz stɛroyd lɛk `Prednisone` bak.
Dɛn mɛrɛsin ya kin gɛt sayd ɛfɛkt lɛk wae yu nɔr de ebul fɔ fɛt di sik, yu blɔd prɛshɔn go ɔp, ɛn yu nɔr de si fayn fayn wan. So, di dɔktɔ kin ɔltɛm chɛk di pikin ɛn trit am bay di bɛnifit ɛn risk dɛn we i gɛt.
Ketogenic Diet we dɛn kɔl
Fɔ sɔm bebi dɛn, if mɛrɛsin nɔ go du fɔ kɔntrol dɛn dayarɛa, di dɔktɔ kin tɛl dɛn fɔ it dis spɛshal it. Dis na it we gɛt bɔku fat ɛn we nɔ gɛt bɔku bɔku kabɔhaydrɛt .
Wonin: Nɔ ɛva tray fɔ du dis na os yu wan. Dɛn kin bigin dis na ɔspitul, wit di ɛp we dɔktɔ ɛn pɔsin we sabi bɔt it/daytishan kin ɛp am.
Ɔpreshɔn
If di MRI skan sho klia wan se na wan patikyula lɛsin na di bren mek di strok, di dɔktɔ kin tɛl yu fɔ du ɔpreshɔn fɔ pul da say de. Dis nɔto sɔntin we ɔlman go ebul fɔ du. Na wan tim we de mɛn pipul dɛn kin disayd fɔ du am.
Wetin yu go se bɔt tumara bambay? (Autluk) .
Pan ɔl we dis na kwɛstyɔn we at fɔ aks, i impɔtant fɔ no di tru. Di fiuja fɔ Wɛst Sindrom go bi bay sɔm impɔtant tin dɛm.
- Kɔz: Wetin na di kɔz fɔ de sik? If na bad bad injuri na in bren, di rizulyt nɔ kin fayn. If i kɔz we nɔ gɛt klia kɔz (idiopathic), di rizɔlt kin rili fayn.
- Tεm fכ stat tritmεnt: If dεn kin stat tritmεnt insay wan mכnt afta dεn no se i gεt am, i go bכku di pikin in divεlכpmεnt go bak to nכmal.
- Rispɔns to tritmɛnt: Aw dɛn kin kɔntrol di sik kwik kwik wan.
Dis babbling kin stɔp arawnd di ej 4. Bɔt, .Leta bɔku pikin dɛn kin gɛt ɔda kayn sik we dɛn kɔl epilepsy.
Bɔrku pikin dɛn kin gɛt sɔm kayn lɛvul fɔ disabiliti fɔ lan ɔr gɛt prɔblɛm wit dɛn maynd. כltu, wit di bεst tritmεnt we de fכs, lεk 20%-25% pan di pikin dεm kin liv nכmal layf wit nכmal intεlijεns. So, fɔ tek akshɔn kwik kwik wan impɔtant.
Mɛsej we dɛn kin kɛr go na os
- If yu notis se yu smɔl pikin de twitch wantɛm wantɛm (especially bitwin 3-12 mɔnt), nɔ ignore am.
- If i pɔsibul, tek vidio di kɔntrakshɔn dɛn. I go rili ɛp di dɔktɔ.
- Go to dɔktɔ we de mɛn pikin dɛn wantɛm wantɛm. We yu west tɛm, dat kin mek di pikin in bren pwɛl mɔ ɛn mɔ.
- West Syndrome na wan sik wae dɛn kin trit. If yu trit di pikin kwik kwik wan, i kin kɔntrol di sik ɛn gi di pikin di bɛst chans fɔ divɛlɔp tumara bambay.
- Dis waka at, bɔt nɔto yu wangren de. Tɔk to yu dɔktɔ ɔltɛm ɛn gɛt di sɔpɔt we yu nid.
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