Nang emaw i fa emaw hian mit lama harsatna i nei em? Stargardt Natna chungchang hi zir rawh!

Nangmah emaw i fa emaw hian thil i hmuh dik lohna hmunah harsatna i nei em, a nih loh leh i mit a fiah lo deuh em ni? I chhehvela thil awmte chu i hmu thei maithei a, mahse i en chu a chiang lo. Hetiang symptoms i neih chuan a chhan awm thei pakhat chu Stargardt Disease tih hi a ni. Hemi chungchang hi i hriatthiam theih tur awlsam takin sawi ila.

Stargardt Disease hi eng nge ni?

A awlsam zawngin sawi ila, Stargardt natna hi kan mit hmun pawimawh ber , macula -a natna a ni . Hetiang hian han ngaihtuah teh: i mit chu camera ang a nih chuan retina chu camera hnung lama membrane awm, film ang maia thlalak recordna hmun a ni. macula hi retina lai takah hmun te tak te sensitive tak a ni. Kan hmalam kan thlir dik hian, lehkhabu kan chhiar hian, mi hmel kan en hian, he macula hian thil chiang taka kan hmuh theih nan min pui thin. Hei hi central vision kan ti a ni.

Stargardt Disease i neih hian hun kal zelah i central vision chu a tlahniam zauh zauh thin. A châng chuan, hei hian i peripheral vision a nghawng thei bawk a, chu chu i mit chhehvel thil hmuh theihna a ni.

Macular degeneration tih hi i hre tawh ngei ang . Kum upa lam, a bik takin kum 60 chunglam natna a ni tlangpui a, age-related macular degeneration an ti a ni. Mahse, Stargardt natna hi a danglam hle. Naupang leh thalai kum 20 hnuai lam a nghawng tlangpui a, chuvang chuan doctor-te chuan juvenile macular degeneration an ti fo thin. Retina kil hrang hrang a nghawng chuan fundus flavimaculatus an ti a ni.

Tunah chuan hetiang thil hi engvanga lo awm nge tih i lo en ang u. Kan taksa hian thil dum, hriak nei lipofuscin an ti a. A tlangpuiin hei hi taksa atanga chhuak a ni. Mahse, Stargardt Disease veiah chuan he lipofuscin hi a tam lutuk emaw, a chhuak tha lo emaw a ni. Tichuan he extra lipofuscin hi retina ah a pung khawm ta a ni. Hei hian retina chhunga light-sensitive cell chi khat photoreceptors te chu a tichhia a ni. Hun a kal zel a, he chhiatna hian mit a tichhe vek a ni.

Stargardt Disease natna lan chhuah dan chu engte nge ni?

Stargardt Disease hian i mit leh mit hmuh danah hetiang hian a tidanglam thei a ni:

• Mit hmuhna hmun dum emaw, hmun hring emaw hmuh:Hmalam lam i han en dik chuan hmun thenkhat chu a dum emaw, a vur emaw angin a lang thei.
• Blurred vision : Thil chiang taka hmuh, blurred vision.
• Light sensitivity: Ni eng emaw, eng eng emaw a hmuh harsa tih hriatna.
• New color blindness : Tun hma chuan rawng chiang takin hmu thin mah la, tunah chuan rawng thenkhat chu i thliar hrang thei tawh lo.
• Low/high light-a insiamrem harsa: Hmun eng atanga hmun thim lama kan kal thut hian emaw, hmun thim atanga hmun eng emawa kan lo kal hian mit insiamrem nan hun rei tak a ngai thin.
• Zan lama mit hmuhna tha lo : Zan lama mit hmuhna chu a hma aiin a tlem ta hle.

A pawimawh ber chu Stargardt Disease symptoms hi a lo lang zauh zauh fo thin. Hun a kal zel a, i central vision zawng zawng deuhthaw i hloh mai thei. Mahse, i mit sir (peripheral vision) atanga hla engemaw zat chu i la hmu thei tho mai thei. Mahse, hmalam hun dik tak chu a chiang lo zawk ang.

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Stargardt Disease hi engte nge ni?

Stargardt Disease hi genetic condition a ni a . Chu chu kan genes inthlak danglamna avanga lo awm a ni tihna a ni. A bik takin, a chhan ber chu ABCA4 gene'' an tih gene a inthlak vang a ni. He ABCA4 gene hian kan retina chu a hnathawh that theih nan a pui thin.

Hei hi hereditary a ni. Chumi awmzia chu nu leh pa atanga fate hnena pek chhuah a ni tihna a ni. Stargardt Disease hi autosomal recessive pattern atanga rochun a ni. A awlsam zawngin, naupangin he natna hi a vei theih nan chuan nu leh pa pahnih hian he ABCA4 gene tihdanglam hi an nei vek tur a ni. Mi pakhat chauhin a neih chu a tawk lo.

Engtin nge doctor-te hian hei hi an hriat chian? (Diagnosis) tih a ni.

Mit doctor chuan he natna hi i vei em tih a hre thei a ni. I mit a enfiah ang , i mit a enfiah ang a, i mit hriselna a enfiah ang. I natna lan chhuah tirh leh eng harsatna nge i neih tih doctor hnenah i hrilh a ngai dawn a ni.

Heng ang test thenkhat pawh i tih a ngai mai thei bawk:

• Electroretinography (ERG): Hei hian i mit atanga êng lut chu i mit (retina)-in a chhân lêt dân a en a ni.
• Fluorescein angiography: Hei hi mit chhunga thisen kalna kawng awmte enfiahna a ni.En teh, i kut zungtang pakhatah dye bik an inject a, i mit chhung lam thlalak an la bawk.
• Fundus photography leh fundus autofluorescent photography: Hei hian i retina leh macula te chiang takin a la thei a ni. Hei hian lipofuscin chu engtin nge a deposit tih i hmu thei a ni.
• Genetic testing : Hei hian ABCA4 gene-ah hian mutation a awm leh awm loh a finfiah thei a ni.
• Optical coherence tomography (OCT): Hei hi mit (retina) scan ang mai a ni. Retina layer thickness te, lipofuscin a awm leh awm loh te, a chhiat leh chhiat loh te ang chi thil a en thei a ni.

Stargardt Disease hi eng stage nge ni?

I mit doctor chuan natna hi a kal zel dan azirin stage hrang hrangah a then thei a ni. Hetiang hi a ni:

• Stage 1: Hetiang dinhmunah hian lipofuscin an tih chu macula-ah hian fleck te tak te angin a lo awm tan thin. Symptoms na lo tak tak i nei thei a, symptoms i nei lo thei bawk.
• Stage 2: Tunah chuan chu lipofuscin spot te chu macula chhehvela retina hmun dangah a darh ta a ni.Tun thleng hian a hma aia chiang zawkin a natna lan chhuah dan chu i hre tan tawh mai thei.
• Stage 3: Hetiang dinhmunah hian lipofuscin particle awmkhawmte chu macula-ah an pungkhawm leh tan a, macula chu a tichhia tan ta a ni. Hei hi atrophy ( cell thihna) an ti a. Hei hian symptoms a ti na zual hle.
• Stage 4: Tunah chuan macula chhiatna (atrophy) chu a na hle tawh. Hei hian i central vision a hloh vek emaw, a then emaw a thlen thei a ni.

Stargardt Disease enkawlna tur engte nge ni?

Vanduaithlak takin tunah hian Stargardt Disease damdawi emaw, a chhiatna tihdanglam thei tur damdawi emaw a la awm lo. Mahse, lungngai suh. I mit doctor hian i symptoms te a enkawl thei che a, mitdelna rate pawh a ti hniam thei bawk. Hetiang thil hi i ti thei ang:

• Vitamin A awmna supplement ei loh tur a ni a, zirchianna thenkhatah chuan Stargardt Disease vei te hian vitamin A an ei tam lutuk chuan mit a hloh chak hle thei tih an hmuchhuak a, chuvangin doctor nen inbiakna nei lovin vitamin A supplement engmah ei loh tur a ni.
• Glasses, contact lens leh/ emaw low vision aids hman hian nitin hnathawhnaah nasa takin a pui thei che a ni.
• Meizial zu (leh nicotine awmna thil dang vaping ang chi) chu bansan vek rawh. Meizial zuk hi i mit tan a tha lo tak zet a ni.
• Pawn lama i chhuah dawnin i mit ven nan lukhum emaw, sunglass tha tak emaw ha la.

Chûngte chu damdawi a ni lo tih hre reng ang che. Amaherawhchu, a rei thei ang bera nung tha turin an pui thei che a ni.

Stargardt Disease hi tihdam theih a ni em?

Tunah hian Stargardt Disease hi damdawi a la awm lo. Mahse, i mit doctor chuan he natna nen hian nung turin a pui thei che a ni.

Chanchin tha a awm. Researcher-te chuan macular degeneration (Stargardt Disease pawh tel) ang chi natna enkawlna thar zawng turin clinical trial an nei chhunzawm zel a ni. Heng clinical trial zinga pakhatah hian i tel thei em tih i mit doctor zawt rawh. Chutiang a nih chuan, enkawlna thar ber ber, experimental treatment dawng theihna hun remchang i nei mai thei.

Engtikah nge damdawi lam thurawn ka lak ang?

I mit emaw, i mit emaw a danglamna i hmuh veleh doctor emaw mit lam doctor emaw pan rawh. Stargardt Disease natna lan chhuah dan hi mit natna dang, a tam zawk pawh a ni mai thei. Chuvangin mit lama harsatna awm apiang chu a rang thei ang bera hriatchhuah leh enkawl a pawimawh hle .

Stargardt Disease i neih chuan eng nge i beisei theih ang?

I central vision chu zawi zawiin i hloh beisei tur a ni. Mi tam zawk tan chuan he hlohna hi zawi zawiin, kum tam tak chhung, a chang chuan kum sawm tam tak chhung a thleng thin. Mahse, mi thenkhat tan chuan a thleng thuai thei. I ABCA4 gene-a mutation chi khat hian engtiang chiahin nge i mit a hloh tih leh engzat nge i mit a hloh tih a hril thei. I mit doctor chuan hemi chungchang hi a hrilh belh ang che.

Mit enfiah fo a ngai dawn a ni . I doctor hnenah eng chen nge i mit i enfiah tur tih leh eng test dang nge i tih belh tur tih zawt rawh.

Stargardt Disease vei hian engtin nge ka in enkawl ang?

Mahni inenkawlna tur thil tam tak a awm a.

• Ei leh in tha tak ei rawh. Thlai leh thei ei tam zawk rawh.
• Insawizawi. I taksa active taka vawn reng hi engkim atan a tha.
• Meizial zu suh.
• Stress control rawh.
• Doctor appointment-ah a hun takah kal rawh.

Stargardt Disease ka neih chuan engtikah nge ka doctor ka hmuh ang?

I mit doctor chuan anmahni en reng turin a hrilh ang che. Chumi ni-ah chuan kal ngei ngei ang che. Tin, i mit hmuh danah danglamna rang tak i neih chuan, emaw, i mitah natna emaw, hrehawmna emaw i neih chuan doctor pan nghal rawh.

Stargardt Disease chungchangah hian ka doctor hnenah eng zawhna nge ka zawh tur?

Stargardt Disease i neih chuan i doctor hnenah hetiang zawhna hi i zawt mai thei:

• Hetiang dinhmuna ding midangte nen hian support group min rawn rawt thei ang em?
• Clinical trial'-ah hian ka tel thei em ?
• Genetic counselor ka biak tur em ni ? (Hei hian i chhungkuaa midangte chu hlauhawma an awm leh awm loh hriat nan a pui thei che a ni.)
• Nitin hna awlsam zawka ka thawh theihna tur hmanrua emaw hmanraw emaw i rawn rawt thei ang em ?