A chang chuan natna rapthlak tak tak, a hming pawh kan la hriat ngai loh thu kan hre fo thin. Gaucher’s disease, or `(Gaucher’s Disease)` hi chutiang natna tlemte zinga pakhat, genetic cause avanga lo awm a ni. Chutiang dinhmun nena nun chu thil harsa tak ni mah se, tunlai damdawi lama hmasawnna a lo awm chhoh zel avangin an tan hahdamna thlentu enkawlna tha tak tak a awm a ni. Vawiin hian chutiang enkawlna pakhat, `Velaglucerase alfa` vaccine chungchang kan sawi dawn a ni.
A awlsam zawngin, Gaucher-a Natna hi eng nge ni?
Hei hi hrethiam tur chuan kan taksa hi factory lian tak anga ngaih ila. He factory-ah hian ‘hnathawk’ bik, hna hrang hrang thawk, engkim dik taka a thawh theih nan an awm a. Heng hnathawkte hi ‘enzyme’ kan tih te hi an ni. Enzyme tin hian hna bik an nei vek a.
Gaucher natna vei tan chuan heng enzyme zinga pakhat emaw, hnathawk zinga pakhat emaw hi a pianphungah a tlachham a ni. Chuvang chuan taksaa thau thenkhat chu uluk takin a chhe thei lo va, bawlhhlawh angin a paih chhuak thei lo. Chumi hnuah chuan heng thilte hi zawi zawiin taksa peng hrang hrang, liver, spleen, leh bone marrow-ah te an lo awm tan ta a ni. Hei hi a natna lan chhuah chhan ber a ni.
Chuti a nih chuan he Velaglucerase alfa vaccine hian eng hna nge a thawh?
`Velaglucerase alfa` (brand name `VPRIV`) hi factory-a hnathawk bo thlak nan scientist-te’n laboratory-a an siam `replacement worker` ang a ni. A dik tak chuan hei hi Gaucher damlote taksaa an neih loh `enzyme` thlaktu tur atana artificial-a siam enzyme a ni.
He damdawi hi taksa hnena pek a nih chuan hna ding tawh chu a la a, thau awmte chu a tichhia a, a natna lan chhuah dan tur a thunun thei bawk.
A pawimawh ber: Hei hi Gaucher natna damdawi a ni lo. Mahse, symptoms control nan a pui thei a, organ damage a ti tlem thei a, nun tha zawk i neih theih nan a pui thei bawk.
Engtin nge he damdawi hi pek a nih?
Hei hi in lama i hman theih damdawi a ni lo. Velaglucerase alfa hi injection a ni a, saline solution angin vein chhungah (vein chhungah infusion) pek a ni . He enkawlna hi damdawi in emaw, specialized clinic emaw-ah pek a ni a, medical staff-te enkawlna hnuaiah pek a ni. Chuvangin i himna tur ngaihtuah chhan tur a awm lo.
Enkawlna i tan hmaa i doctor hnena hrilh tur thil
He enkawlna hi i tan a tha em tih leh a him em tih hriat nan i doctor tan i health history kimchang hriat a pawimawh hle. Heng thilte hi a bik takin hrilh ngei ang che.
- Allergy i neih te chu:Damdawi dang, a bik takin imiglucerase (damdawi inang), ei tur, dye emaw, preservative emaw allergy i neih tawh chuan i doctor hnenah hrilh ngei ang che.
- Naupai: Naupai i nih chuan, a nih loh leh nakin lawka naute i neih chuan doctor hnenah i hrilh tur a ni.
- Nau hnute pek: Nu i nih chuan nau hnute pe mek i nih chuan he thil hi i doctor hnenah pawh hrilh bawk ang che.
- Natna leh damdawi dang: I doctor hnenah damdawi dang (prescribed emaw over-the-counter emaw), herbal products leh vitamin i ei tur list kimchang pe rawh. Tin, zu i in emaw, zu i in emaw a nih chuan doctor hrilh a pawimawh bawk.
Naupang tan hman tur
He damdawi hi naupang kum 4 mi lek tan pawh pek thin a ni a, mahse damdawi lam thurawn leh enkawlna bik hnuaiah chauh pek thin a ni. He enkawlna hi i fate hnena pek i ngaihtuah a nih chuan i naupang enkawltu doctor nen sawiho rawh.
He damdawi hian eng side effect nge a neih theih?
Damdawi dang ang bawkin `Velaglucerase alfa` vaccine hian mi thenkhatah side effect a thlen thei a ni. Mahse, mi zawng zawngin an hmu vek lo. Chungte chu chi hnihah then theih a ni. Ṭhenkhat chu a pawi hle a, report nghal tur a ni. Ṭhenkhat chu mi pangngai an ni a, ni rei lote hnuah an bo vek ang.
| Side effect a awm thei | I tih tur chu |
|---|---|
| Side effect na tak tak, i doctor emaw nurse emaw hnenah i report nghal tur a ni | |
| Allergy natna a awm thei (Van natna, vun na, hmai, hmui, lei hring) | Chungte chu damdawi pek lai emaw, pek hnuah emaw a thleng thei. Medical staff te hriattir nghal rawh . |
| Thâwk lama harsatna a awm | Hei hi symptom pawi tak a ni thei. Report nghal rawh . |
| Luak chhuak, thisen sang emaw hniam emaw, thinlung thawk chak | Damdawi pek laiin hetiang hi a lo awm a nih chuan nurse emaw doctor emaw hnenah hrilh nghal tur a ni. |
| Thisen chhuah emaw, hliam emaw danglam tak | Sawifiah loha hliam i neih emaw, thisen chhuah tihtawp harsatna i neih chuan doctor hnenah hrilh rawh. |
| Side effect tlangpui, a awm reng emaw, a buaithlak emaw a nih chuan doctor hnenah hriattir tur a ni | |
| Lu na, taksa na, hnungzang na, ruh emaw ruh na emaw | Hengte hi a awm fo thin. An awm reng chuan i doctor nen inbia ang che. |
| Khawsik, khawsik, ril na | Damdawi pek ni emaw, a hnuah emaw a thleng thei. I doctor hnenah a tibuai che a nih chuan hrilh rawh. |
| Nausea, pum na | A bo tlangpui. A awm reng chuan doctor hnenah hrilh rawh. |
| Injection na hmunah a sen, a hring emaw, a na emaw a awm | Hei hian ni khat emaw ni hnih emaw chhungin a dam tlangpui. |
He list-ah hian side effect awm thei zawng zawng a tel lo. Thil danglam bik i tawng a nih chuan, chu chu i doctor hnenah sawipui hlau suh.
Enkawl laia thil dang ngaihtuah tur
- A hun taka enkawl: He inenkawlna atanga hlawkna tam ber hmu tur chuan a hun takah leh a hun taka enkawl a pawimawh hle. Damdawi ina i kal theih loh chuan doctor emaw damdawi in emaw hnenah hriattir lawk la, a tuk atan appointment siam rawh.
- Damdawi lam test: 1.1.Doctor chuan a enkawlnain a thawh that dan leh i taksa a nghawng dan te a enfiah fo ang che. Chuvangin, clinic tlawhna engmah lo tlawh loh tur a ni.
- Overdose: Hei hi damdawi ina pek a nih avangin hetiang hi a thlen theihna chance a tlem hle. Mahse, he damdawi hi i ei tam lutuk nia i hriat chuan Colombo National Hospital-a National Poisons Information Center -ah call nghal la, a nih loh leh damdawi in hnai ber Emergency Treatment Unit (ETU)-ah kal nghal rawh.
- Hei hi nangmah tan chauh a ni: He damdawi hi i dinhmun leh i taksa chi hrang hranga min pek a ni. Chuvang chuan he damdawi hi eng vangin pawh midang hnenah insem lo tur a ni.
Take-Home Thuchah a ni
- Velaglucerase alfa hi synthetic enzyme hmanga enkawl a ni a, Gaucher natna lanchhuahna control nan hman a ni.
- Hei hian natna hi tidam kim lo mah se, damlote nunphung nasa takin a tisang a ni.
- He enkawlna hi damdawi inah vein hmanga pek a nih avangin i himna tur ngaihtuah a ngai lo.
- Enkawl i tan hmain i doctor hnenah i allergy zawng zawng, damdawi dang i ei tur leh hriselna dinhmun te hrilh hmasa phawt ang che.
- Side effect na tak (thâwk harsa, allergy) a awm chuan medical staff te hriattir nghal tur a ni.
- Doctor nena inbiak reng leh scheduled clinic-a kal hi a pawimawh hle.
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