Whakaarohia, kua rua, kua toru rānei ngā rā e pāngia ana tāu tamaiti e te makariri ngawari, ā, kua pai ake te āhua inaianei. Engari i te taha o te kirika, ka rerekē te whanonga o te tamaiti, ka uaua ki te hikoi , ā, ka pōturi ana kupu ina kōrero. He mea noa iho mō te whaea, te pāpā rānei te mataku ina kite i tētahi mea pēnei. Ko te ADEM, he mate onge engari he kino ka puta ai ngā tohu pēnei, koinei tā tātou e kōrero nei i tēnei rā.
He aha rawa te ADEM?
Ki te whakarapopoto, he mate mumura onge te ADEM (Acute Disseminated Encephalomyelitis) e pā ana ki te roro me te taurakira. I te reo Sinhala, ka taea te kī ko te acute disseminated encephalomyelitis, engari nā te mea he uaua aua kupu, ka whakamahia e mātou te ingoa ADEM. Ko tēnei mate te mea e kitea nuitia ana i waenga i ngā tamariki.
He rite ō tātou io ki ngā waea hiko. He hipoki tiaki kei ēnei muka io. Ka huaina tēnei ko te myelin . He rite ki te takotoranga kirihou i runga i te waea hiko . Ko tēnei takotoranga myelin te mea e taea ai e ngā karere io te tere me te tika te haere. I roto i te ADEM, ka whakaekea e te pūnaha ārai mate o tō tātou tinana tēnei takotoranga myelin i roto i te roro me te taurakira. Ka whakararuraru tēnei i te tuku karere io ki roto i te roro me te taurakira.
Ahakoa te kaha o ngā tohu , ko te mea pai ko te rongoā mōna, ā, ka ora katoa te nuinga o te tangata .
He aha ngā tohu o te ADEM?
Ka puta ohorere mai ngā tohu o te ADEM, ā, ka tere te kino haere. Tērā pea ka pāngia te tamaiti e tētahi, e ētahi rānei o ēnei tohu.
He mea nui: Ki te puta ohorere mai i tāu tamaiti tētahi, ētahi rānei o ngā tohu e whai ake nei, inā koa ka pāngia rātou e te haurangi, e te koma rānei, haria tonutia atu ki te Tari Whawhati Tata o te hōhipera (ETU).
| Kāwai tohu | Ngā mea hei tiro |
|---|---|
| Ngā āhuatanga noa | Te kirika, te ānini, te hiamoe nui. |
| Ngā huringa whanonga | Te riri kore take, te pōuri, te pōhēhē. |
| Te mamae tinana | Whakapairuaki me te ruaki, ngoikore o ngā uaua, ngaro te taurite i te wā e hikoi ana. |
| Ngā āhuatanga e pā ana ki te pūnaha io | Ngā raruraru tirohanga (tirohanga takirua, tirohanga pōuri), kōrero pōturi, ngoikore, pararutiki rānei i te taha kotahi o te tinana. |
| Ngā take kino | Ngā mate hopuhopu, te koma. |
Ngā take me ngā āhuatanga mōrearea mō te whakawhanaketanga o te ADEM
E whakapono ana ngā tākuta he mate pūnaha ārai mate te ADEM. Ko te tikanga o tēnei ka whakaekea hētia e te pūnaha ārai mate o tō tātou tinana ō tātou pūtau me ngā kiko hauora. He rite ki tā tātou ake ope taua e whakaeke ana i tō tātou ake whenua.
Kāore anō kia mōhiotia te tino pūtake o tēnei mate pūnaha ārai mate, engari he maha ngā wā ka puta i muri i te ora ake o te tamaiti i tētahi mate huaketo noa, pērā i te makariri, te rewharewha, te mamae puku rānei .
He tino onge te pūrongo mō te ADEM i muri i te whiwhinga o ētahi kano kano. Heoi, kāore anō kia whakamātauhia e ngā rangahau te hononga tika i waenga i ngā kano kano me te ADEM. I ētahi wā, ka puta ēnei tohu me te kore he take e kitea ana.
He aha ngā āhuatanga mōrearea?
- Tau: Neke atu i te 80% o ngā tūroro ADEM he tamariki kei raro iho i te 10 tau te pakeke. Ko te toenga he tamariki pakeke ake.
- Ira Tangata: He nui ake te tūponotanga ka pāngia ngā tamariki tāne e tēnei mate i ngā tamariki wāhine.
- Te āhuarangi: I ētahi whenua, ka nui ake te kitea o ngā mate i te takurua me te kōanga.
He aha te rerekētanga i waenga i te ADEM me te MS (Multiple Sclerosis)?
Ko tētahi atu mate he rite ngā tohu ki te ADEMTe Mate Pukupuku Maha (MS). Ka pakaru te pūkahukahu myelin i ngā mate e rua. Nō reira, ka kitea ngā tohu pēnei i te ngoikore o te uaua, te ngoikore o te ngākau, me ngā raruraru tirohanga i roto i ngā mate e rua. Engari he mārama ngā rerekētanga i waenganui i ngā mate e rua.
| Tauwehenga | Tūnga ADEM | Mate MS (Multiple Sclerosis) |
|---|---|---|
| Te pakeke tino noa | He mea noa i waenga i ngā tamariki. | He tino onge te kitea i roto i ngā tamariki. He mea noa i roto i ngā pakeke. |
| Ngā āhuatanga tuatahi | He mea noa ngā tohu pēnei i te kirika, te ānini, te haurangi, me te ngaronga o te mahara. | Kāore i te tino kitea ēnei āhuatanga. |
| Te āhua i mua i te pangia | He maha ngā wā ka puta i muri i tētahi mate huaketo noa. | Kāore he hononga mārama pērā. |
| Te hokinga mai o te mate | I te nuinga o te wā (tata ki te 80%) ka puta kotahi noa iho . | Ka puta mai ngā tohu i ia wā, i ia wā. |
Me pēhea te tautuhi i te ADEM?
Kāore he whakamātautau kotahi hei tautuhi i te ADEM. Ka āta tirohia e tō tākuta ō tohumate, ā, ka ngana ki te whakakore i ētahi atu mate he rite ngā tohumate. E rua ngā whakamātautau matua e whakamahia ana hei mahi i tēnei.
1. Matawai MRI:He whakamātautau e whakamahi ana i ngā papa aukume me ngā ngaru reo irirangi hei whakaputa whakaahua taipitopito o te roro me te taurakira. He rerekē te kino o te roro e kitea ana i roto i te ADEM i te kino e kitea ana i roto i te MS. I roto i te ADEM, tera pea ka horapa haere te kino.
2. Te Werohanga o te Lumbar: Ko te whakamahi i tētahi ngira iti rawa hei tango i tētahi wai cerebrospinal iti mai i te tuaiwi, ka whakamātautau ai. I roto i te ADEM, tera pea ka nui ake te maha o ngā toto toto ma i roto i te wai. Ko ētahi o ngā pūmua e kitea ana i roto i te MS kāore e kitea i roto i te ADEM.
Ka taea hoki e ēnei whakamātautau te whakakore i ngā mate pukupuku roro pērā i te meningitis.
He aha ngā maimoatanga mō te ADEM?
Ko te whāinga matua o te maimoatanga he whakahaere wawe i te mumura o te roro me te taurakira, me te aukati i te whakaekenga hē a te pūnaha ārai mate. Mēnā ka hiahiatia te tamaiti kia noho ki te hōhipera mō te wiki, e rua rānei.
- Corticosteroids: Ko te nuinga o te tangata ka tīmata te maimoatanga me ngā steroids nui e hoatu ana mā te uaua (IV). Ka taea e tēnei te āwhina i tāu tamaiti kia pai ake te ahua i roto i ētahi haora. I muri i ētahi rā, ka āta whakaitihia te rongoā ki te pire, ki te tirikara rānei i roto i ētahi wiki.
- Ētahi atu maimoatanga: Mena kāore ngā rongoā steroid e pai mō te tamaiti, kāore rānei e whai hua, tera atu ētahi atu maimoatanga hei whakamarie i te pūnaha ārai mate.
- Plasmapheresis: I roto i tēnei mahi, ka tangohia te toto o te tamaiti e te mīhini, ka tātarihia ngā paturopi kino, ka whakahokia te toto kua parakore ki te tinana.
- Immunoglobulin Ā-roto-uaua (IVIG): Ka tukuna ngā paturopi mai i te hunga hauora ki te tamaiti mā roto i tētahi uaua, e whakahaere ana i te mahi a te pūnaha ārai mate o te tamaiti.
I muri i te putanga mai i te hōhipera, ka hiahia pea te tamaiti ki te whakaora tinana, ki te whakaora mahi, ki te whakaora kōrero rānei.
Kei te pēhea te tirohanga?
Koinei te mea tino nui. Ka ora katoa te nuinga o ngā tamariki e pāngia ana e te ADEM. Heoi, ka puhoi pea tēnei tukanga whakaora. E 4-6 wiki, e tae atu rānei ki te tau ka ora katoa.
I ētahi wā, kāore pea ngā tamariki e ora i ngā tohu katoa. Tērā pea ka mau tonu ētahi āhuatanga pēnei i ngā raruraru tirohanga, i te ngoikore rānei o ngā uaua. Tērā pea ka pāngia hoki te kura.
I te nuinga o te wā (8 i roto i te 10 ngā wā) ka puta kotahi noa te ADEM. Engari he onge, ka puta anō i roto i ētahi marama. I ētahi wā tino onge, ka pāngia te tamaiti e te ADEM e te MS i muri mai. I roto i te iti iho i te 2% o ngā wā, ka mate pea te ADEM. Koia te mea nui kia rapu tohutohu hauora i te wā tonu ka puta mai ngā tohu.
Karere Tangohia ki te Kāinga
- He mate kino te ADEM engari ka taea te rongoā e pā ana ki te roro me te taurakira o ngā tamariki.
- Ki te pāngia koe e ngā tohu pēnei i te kirika, ngā huringa whanonga, me te uaua ki te hikoi, ā, i muri mai ka puta he kirika huaketo noa, me toro atu ki tō tākuta i taua wā tonu.
- He rerekē tēnei i te MS (Multiple Sclerosis), ina kotahi noa te wā ka puta ai te ADEM.
- Mā te maimoatanga tika, ka taea e te nuinga o ngā tamariki te ora katoa, engari ka roa pea te wā e ora ai.
- Ki te kite koe i ngā tohu kino pēnei i te haurangi, te ngaronga rānei o te māramatanga, haria tonutia te tamaiti ki te Wāhanga Maimoatanga Ohotata (ETU) o te hōhipera.
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