Whakaarohia kua pāngia koe e te makariri, e te mamae puku rānei i ētahi rā kua pahure ake nei, ā, kua pai ake te āhua inaianei. Engari kātahi ka pōuriuri tō tirohanga, ka kite koe i ngā mea i ngā wāhanga e rua. Ka pōturi koe i a koe e hikoi ana, ka rarau ō waewae. Mēnā ka puta he mea pēnei, ka tino mataku te katoa, tika? I tēnei rā kei te kōrero tātou mō tētahi āhuatanga e puta ai ngā tohu pēnei, he mea kāore anō kia rongohia e te tini tāngata, engari he mea tino nui kia mōhiotia. Koia te Miller Fisher Syndrome.
He aha te Miller Fisher Syndrome?
He mate tino onge te mate pūnaha io o Miller Fisher. Kua rongo pea koe i te mate Guillain-Barré (GBS). He mate anō hoki e whakaekehia ai e tō tātou pūnaha ārai mate ō tātou ake io. He momo kē atu o te GBS te mate Miller Fisher. He tino onge, ā, e pāngia ana i waenga i te 1% me te 5% o ngā tūroro GBS i ngā whenua o te Hauāuru. Heoi, i ētahi whenua Āhia pērā i a Taiwan me Hapani, he paku teitei ake te tau. Nō reira, ka mārama koe ehara tēnei i te mate o ia rā. Engari he mea tino nui kia mōhio koe ki tēnei.
He aha tēnei e tupu ai? He aha ngā take?
Koinei te mea tino nui. Ka puta te mate Miller Fisher me te GBS hei urupare ki tētahi mate e uru ana ki roto i ō tātou tinana.
Ki te kī ngāwari, ka paku 'pōhēhē' tō tātou ake pūnaha parepare, te pūnaha ārai mate, ā, hei utu mō te whawhai ki te mate, ka tīmata te whakaeke i ō tātou ake io mā te hē. Kāore anō kia tino mōhio ngā tākuta he aha te take o tēnei. Ka puta ēnei tohu i roto i ētahi rā ki te 4 wiki i muri i te mate, inā koa he mamae puku pērā i te korere, he mate manawa rānei (makariri, rewharewha). Ko te huakita matua ka puta ai tēnei mate ko te 'Campylobacter jejuni'. Koinei te mea e puta ai ngā mamae puku me te korere. Hei tāpiri, kei reira anō hoki ngā huaketo ka puta ai tēnei mate:
- huaketo Zika
- Huaketo Ārai Mate Tangata ( HIV )
- Ko te huaketo Epstein-Barr, e hua ai te mate mononucleosis rite ki te kirika.
He aha ngā tohu? Me pēhea e mōhio ai koe ki tēnei?
He tokomaha te hunga e haere ana ki te tākuta
nā te mea ka tere te heke o ō rātou tirohanga i roto i ngā rā torutoru, ā,
ka uaua ki te hikoi . E toru ngā tohu matua o te mate Miller Fisher. Me mārama tātou ki ēnei i roto i tētahi ripanga.
| Tohu matua | Hei whakarāpopototanga, he aha te mea ka tupu? |
|---|
| Te ngoikore o ngā uaua o te kanohi (Ophthalmoplegia) | Ka puta te tirohanga takirua, ā, ka uaua ki te whakahaere me te tohutohu i ngā kanohi ki te huarahi e hiahiatia ana. |
| Te Ngaronga o te Taurite (Ataxia) | Ka tūtuki ahau i taku hikoi, me te mea kei te hē taku taurite. He uaua ki ahau te whakataurite i ōku waewae me ōku waewae. |
| Areflexia | Pērā i te wā e pāngia ai tō turi e te tākuta ki te hama iti, kāore tō waewae e nekeneke. Ka ngaro ngā urupare o te tinana. |
Haunga ēnei tohu matua e toru, tera pea ētahi atu tohu ka puta:
- Ngā ākonga kua whānui .
- ngoikore o te uaua o te kanohi
- Ngā uaua korokoro ngoikore (te whakahekenga o te ātete waha)
He mea nui: Mena kei te haere tahi ēnei tohu me te ngoikore o ō waewae me ō uaua manawa, tera pea he āhuatanga e kiia nei ko te GBS-MFS overlap syndrome. Ko te tohu matua o te GBS ko te ngoikore e tīmata ana i ngā waewae ka horapa puta noa i te tinana.
Me pēhea te tātaritanga a te tākuta i tēnei?
He uaua te tautuhi tika i tēnei mate. Nā te mea he maha atu ngā mate pūnaha io he rite tonu ngā tohu. Hei tauira, ko ngā mate pēnei i te 'Basal meningitis', te 'Botulism', te 'Brainstem stroke', me te 'Myasthenia Gravis'. Nō reira, ka tirotirohia koe e te tākuta, ka pātai atu mō ō tohu me ō mate tata nei. Kātahi ka mahia e ia ētahi whakamātautau hei whakaū i te mate.
| Whakamātautau | Hei whakarāpopototanga, he aha tāu e mahi/kite ai ki tēnei mea? |
|---|
| Wero i te hope | Ka tangohia he wai iti e karapoti ana i tō taurakira (wai cerebrospinal) ka tirohia mēnā he nui ngā taumata pūmua. He maha ngā wā ka piki ake tēnei i roto i ngā tūroro Miller Fisher. |
| Whakamātautau Toto | Ka whakamātauria te toto mō te aroaro o tētahi paturopi e kiia nei ko te `anti-GQ1b`, he mea motuhake ki tēnei mate. Ka kitea tēnei paturopi i roto i te 95% o ngā tūroro. |
| Rangahau Whakahaere Io / EMG | Ka whakamahia he iahiko iti rawa, kāore he mamae, hei ine i te pai o te mahi a ō io me ō uaua. E whakaatu ana tēnei mate i ētahi āhuatanga rerekē o ngā io. |
| Matawai MRI | Ka mahia tēnei whakamātautau hei whakakore i ētahi atu mate, pērā i te whiu. I roto i a Miller Fisher, he noa ngā hua o te MRI. |
He aha ngā maimoatanga mō tēnei? Kia pēhea te roa o te wā e ora ai?
Tuatahi, kāore he 'rongoā' motuhake e taea ai te whakaora katoa i tēnei mate.
Heoi, he maha ngā maimoatanga tino whai hua hei āwhina i te whakahaere i ngā tohu me te āwhina i a koe kia ora wawe. Ko te tangata whai tohu pēnei ka tukuna ki te hōhipera. Ko tēnei hei aroturuki marie i ngā mate kino o te GBS. Nā te mea ka taea e te GBS te whakararu i te ora i ētahi wā. E rua ngā tikanga matua e whakamahia ana hei maimoatanga: 1.
Immunoglobulin intravenous (IVIg): He rongoā wai rite ki te tote tēnei e hoatu ana ki roto i te uaua. Kei roto ngā paturopi parakore kua wehea mai i te toto toto o ngā mano tini o ngā tāngata hauora. Ka hoatu tonutia tēnei mō te 5 rā pea. 2.
Whakawhiti Plasma (Plasmapheresis): He tukanga uaua tēnei. Ki te kī noa, ka tangohia he toto iti mai i tō tinana, ka tangohia e te mīhini motuhake te toto raruraru (te wāhanga kei roto ngā paturopi e whakaeke ana i ngā io) ka whakakapia ki ō ake toto toto me te toto whakakapinga. Ka mahia tēnei mō te 5 wā i roto i te wā e rua wiki. Mena he ngoikore rawa ō uaua i muri i ēnei maimoatanga,
me whakaora tinana pea koe hei whakapakari anō i a rātou.He mea tika. Mō te whakaoranga, e 8 ki te 12 wiki te roa mō te whakaoranga pai.
Ko te nuinga o te tangata ka ora katoa i roto i ngā marama e 6. Ko te auau hokinga mai he iti iho i te 3%. Nō reira, ko te tautuhi wawe me te maimoatanga ngā mea tino nui.
Karere Tangohia ki te Kāinga
- He mate onge te mate Miller Fisher e puta ana ina whakaekehia e tō tātou ake pūnaha ārai mate ō tātou io nā tētahi mate hou.
- Ko ngā tohu matua ko te ngoikore o ngā uaua o te kanohi ( tirohanga takirua), te ngaronga o te taurite (te uaua ki te hikoi), me te ngaronga o ngā urupare kanohi.
- Ki te pāngia koe, tētahi atu rānei e mōhio ana koe e ēnei tohu, me toro atu ki te tākuta tonu. Kaua e mataku, engari kaua hoki e whakaroa.
- He mate tēnei ka taea te rongoā mā te noho ki te hōhipera me te whakaora tinana , ā, ka ora katoa te nuinga o te tangata.
Te Mate Miller Fisher, te mate Guillain-Barré, ngā mate roro, te ngaronga o te tirohanga, te uaua ki te hikoi, te GBS, ngā mate pūnaha ārai mate
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