Kei te hiahia anō koe ki te mōhio mō te Multiple Sclerosis? Haere mai, kia kōrero tāua!

Kia ora! Kua rongo pea koe i te ingoa o te Multiple Sclerosis, kei te pāngia rānei tētahi e tōu mōhio e tēnei mate. Kei te hiahia rānei koe ki te mōhio atu mō tēnei mate. He maha ngā pātai kei roto i tō hinengaro, pērā i te ingoa, he aha i puta ai, he aha ngā tohu, ā, he rongoā anō hoki? Nō reira, i tēnei rā ka kōrerohia e tātou ēnei mea katoa i roto i tētahi huarahi māmā e mārama ai koe.

He aha rawa te mate maha-sclerosis?

I te whakarapopototanga, ko te Multiple Sclerosis he mate e pā ana ki te pūnaha io matua , arā, te roro me te taurakira. Whakaarohia he rite ki ngā io e rere ana pērā i ngā waea hiko puta noa i ō tātou tinana. Ka haria e ēnei io ngā karere mai i te roro ki ō tātou waewae, ki ō tātou kanohi, puta noa i ō tātou tinana, ā, ka haria hoki e rātou ngā kare ā-roto (pēnei i te wera, te makariri, te mamae) ki te roro.

Kei te taha o ēnei muka io, pērā i te kirihou ārai i te waea hiko, he taupoki tiaki. Ka kiia tēnei ko te pūkahu myelin . Nā tēnei pūkahu myelin ka taea te tuku karere io kia tere, kia whai hua hoki.

Engari, mō te tangata e pāngia ana e te mate maha-sclerosis (MS), ka puta he āhua rerekē. Ka tīmata te pūnaha ārai mate o tōna tinana, arā, te pūnaha ārai mate , ki te whakaeke hē i taua pūkahu myelin. He rite ki tā rātou ake hōia e whakangaro ana i tētahi mea nui ki a rātou. Ka kiia tēnei he mate pūnaha ārai mate .

Ina pakaru te pūeru myelin, ka tino pōturi te tuku karere a ngā io. I ētahi wā ka tino pai te haere o ngā karere, i ētahi wā kāore i te tino pai te haere, ā, i ētahi wā ka tino āraia. Whakaarohia he rite ki te ārai o te waea hiko e rakurakuhia ana ki ētahi wāhi, ā, ka mutu te rere o te ia.

Ko te tikanga o te kupu "sclerosis" he "mōrearea." Nā te mea ka puta he mokomoko iti ki te wāhi kua pakaru te pūkahu myelin. Ko te tikanga o te kupu "maha" he "maha." Ko te tikanga ka puta tēnei kino i ngā wāhi maha atu i te kotahi o te pūnaha io.

He aha te take e puta ai te mate maha-sclerosis (MS)? He aha ngā take?

Ina hoki, kāore anō kia mōhiotia te tino pūtake o te MS , engari e whakapono ana ngā tākuta me ngā kaipūtaiao he huinga pea o ngā āhuatanga.

• Te āhua o te ira: Ko te tikanga he āhua ira anō kei roto. Heoi, ehara tēnei i te mate e tukuna tika mai i te mātua ki te tamaiti. Heoi, ki te pāngia tētahi o te whānau e te MS, he paku teitei ake te tūponotanga ka pāngia ētahi atu. Engari he tino iti te ōrau.
• Ngā āhuatanga taiao: Ka pāngia tātou e ētahi mea o te taiao e noho nei tātou.
• Ngā mate huaketo: Ētahi momo huaketo, hei tauira te huaketo Epstein-Barr (EBV)Kua kitea ka piki ake te mōrearea o te MS i ēnei.
• Te korenga o te huaora D: E whakaatu ana ētahi rangahau he nui ake te tūponotanga ka pāngia te hunga kāore i te nui te huaora D, e whiwhihia ana e tātou mai i te rā, e te MS.
• Te Kaipaipa: He nui ake te mōrearea o te hunga kaipaipa ki te whakawhanake i te MS, ā, ka taea hoki e te kaipaipa te whakararu i te mate.
• Tauwāhi matawhenua: He nui ake te auau o te MS i ētahi whenua, inā koa ko ngā whenua kei tawhiti atu i te ekueta.
• Te ngoikore o te pūnaha ārai mate: E ai ki te kōrero i mua ake nei, koinei te wā e whakaeke ai te pūnaha ārai mate i ōna ake pūtau. Kāore anō kia mōhiotia te take tuturu mō tēnei.

Ko te mea nui, ehara te MS i te mate hopuhopu. Ko te tikanga, kāore e taea te horapa mai i tētahi tangata ki tētahi atu mā te tihe noa, mā te rūrū ringa rānei.

He aha ngā tohu tino kitea o tēnei mate?

He rerekē ngā tohu o te MS i ia tangata, i ia tangata . Tērā pea ka pāngia ētahi e ngā tohu kāore i ētahi atu. Waihoki, ka rerekē pea ngā tohu i roto i te wā. I ētahi wā ka iti ake te kaha o ngā tohu, ā, i ētahi wā ka nui ake te kaha. Ka kiia ēnei he wā whakanui (hokinga mai anō) me ngā wā murunga (ngā murunga) .

Anei ētahi o ngā tohu tino kitea:

• Ngā raruraru tirohanga:
• Te tirohanga pōuri.
• Ka tīmata te titiro i ngā taha e rua (diplopia).
• Te mamae ina tahuri ngā kanohi ki tetahi taha, i ētahi wā ka ngaro te tirohanga mō te wā poto i te kanohi kotahi (e kiia ana ko te optic neuritis ).
• Te ngoikore o te uaua me te koretake o te manawa:
• Te āhua nei kua ngoikore ō waewae, kua uaua ki te haere.
• Te ngaro o te taurite me te hinga.
• Te pakari o ngā uaua o ngā peka, te uaua ki te piko me te totoro ( te koretake o te nekehanga ).
• Te ngenge, te mākūkū rānei:
• Te ngenge, te mākūkū, te āhua rānei o te ru hiko i ngā ringaringa, i ngā waewae, i te mata, i ētahi atu wāhanga rānei o te tinana.
• Ngenge rawa/raruraru:
• He mea tēnei ka pā kino ki te hunga whai MS. Ehara i te mea he ngenge noa iho, engari he ahua ngenge rawa e kore e memeha ahakoa te nui o te moe, te okiokinga rānei. Whakaarohia, ka ara ake ētahi tāngata i te ata me te mea kua mahi rātou i te rā katoa.
• Ngā raruraru o te pūkahukahu me te puku:
• Te mimi pinepine, te hiahia ki te mimi, me te uaua ki te whakahaere i te mimi.
• Te mate kōroke.
• Te whanoke me te pororaru:
• He pōuri noa iho, he uaua hoki ki te tū.
• Mamae:
• Ka puta pea te mamae neuropathic me te mamae uaua.
• Ngā huringa hinengaro:
• Te uaua ki te maumahara ki ngā mea.
• Te uaua ki te arotahi.
• He wā te roa ki te whakatau me te whakamahere.
• Ngā huringa kare ā-roto:
• He pouri te ngākau, kāore he take.
• Te wehi tonu, te manukanuka , me te manukanuka .
• Huringa tere o te hinengaro.
• Ngā raruraru kōrero:
• Tērā pea ka puta he kōrero pōturi ( dysarthria) , i te mea ka pōturi ngā kupu.
• Ngā uauatanga o te horomi:
• Tērā pea ka pāngia ētahi tāngata e te kōkō ina horomia te kai me te inu ( dysphagia ).

Kaua e whakaaro kei a koe te MS nā te mea kotahi, e rua rānei o ēnei tohu. Tērā pea ka puta mai ēnei i ētahi atu mate hauora. Nō reira, he mea tino nui kia rapu tohutohu hauora koe.

Ko wai te mea ka nui ake te tūponotanga ki te whakawhanake i te MS?

Ahakoa ka taea e te MS te whanake i ngā tau katoa, ka kitea nuitia i roto i:

• I roto i te hunga i waenga i te 20 me te 50 tau te pakeke .
• E rua, e toru rānei ngā wā ka nui ake te tūponotanga o ngā wāhine ki te pāngia e te MS i ngā tāne.
• Mena kei te pāngia tētahi o te whānau e te MS (e ai ki te kōrero i mua ake nei, ehara tēnei i te tuku iho, engari he iti noa te mōrearea).
• He nui ake te kitea o te MS i roto i ētahi iwi, hei tauira, ko te hunga nō te raki o Ūropi. Heoi anō, kei reira anō ngā tūroro MS i Sri Lanka.

Me pēhea te tautuhi i te MS? (Tautuhinga)

Kāore he whakamātautau kotahi hei tautuhi i te MS. Ka whakamahia e ngā tākuta he huinga o ngā tohu, te hītori hauora, me ngā hua o ētahi whakamātautau hei whakatau i te mate.

• Hītori hauora me te whakamātautau io: Ka pātai te tākuta mō ō tohu me tō hītori hauora whānau, ā, ka tirohia hoki tō tirohanga, tō kaha, tō taurite, me ō uruparenga.
• Matawai MRI (Atahanga Āhua Matū): He whakamātautau tino nui tēnei hei tātaritanga i te MS. Ka taea te kite mārama mēnā kua pakaru te pūeru myelin i roto i te roro me te taurakira, ā, kua puta he whara.
• Ngā rangahau pea i whakaohokia: Ka ine tēnei whakamātautau i te tere o te urupare a te pūnaha io ki tētahi whakaoho e pā ana ki ngā kanohi, taringa, kiri rānei. Tērā pea ka whakaroahia tēnei urupare nā te kino o te myelin.
• Werohanga o te hope / Tātaritanga o te tuaiwi: I tēnei whakamātautau, ka werohia he ngira iti rawa ki roto i te taurakira, ā, ka tangohia he wai cerebrospinal (CSF). Ka kitea ētahi huringa o tēnei wai i roto i te hunga whai MS.
• Te whakakorenga i ētahi atu mate: Ka whakahaerehia hoki ngā whakamātautau hei whakarite kia kore he āhuatanga kē atu e puta ai ngā tohu rite ki te MS (hei tauira, ētahi mate pāwera, te korenga o ngā huaora, ētahi atu mate pūnaha io).

He aha ngā maimoatanga e wātea ana?

Tuatahi, kāore anō kia kitea he rongoā mō te MS . Kaua e manukanuka! He maha ngā maimoatanga whai hua hei āwhina i te whakahaere i te mate, hei whakaiti i ngā tohu, hei whakapai ake hoki i te kounga o tō oranga.

Ka taea te wehewehe i te maimoatanga ki ētahi wāhanga matua:

1. Ngā Maimoatanga Whakarerekē Mate (DMT):

• Ko te mahi a ēnei rongoā mā te whakaiti i te whakaekenga a te pūnaha ārai mate ki te pūkahu myelin.
• Ka taea e tēnei te whakaiti i te maha o ngā hokinga mai o te mate, te whakaiti i tōna kaha, me te whakaroa i te hauātanga roa e hua mai ana i te mate.
• He rerekē ngā momo DMT (hei tauira, ngā werohanga, ngā pire, ngā werohanga uaua). Mā te tākuta roro e whakatau ko tēhea DMT te mea pai mōu.

2. Te rongoā mō ngā hokinga mai o te mate:

• Ki te kino haere ngā tohu (ka hoki anō), ka taea te hoatu rongoā pēnei i te corticosteroids mō te wā poto. Ka taea e ēnei te whakaiti tere i te pupuhi me te mumura i roto i te pūnaha io, ā, ka āwhina hoki ki te whakaora i ngā tohu.

3. Te rongoā hei whakahaere i ngā tohumate (Te whakahaere i ngā tohumate):

• He rerekē ngā maimoatanga mō ngā tohu rerekē e puta mai ana i te MS.
• Whakaora tinana: He āwhina i ngā āhuatanga pēnei i te uaua ki te hikoi, te pakari o te uaua, me te taurite.
• Whakaora mahi: He āwhina ki ngā mahi o ia rā, ki ngā mahi o te whare, me ngā taputapu me ngā taputapu e hiahiatia ana mō te mahi.
• Ngā rongoā mō ngā tohumate motuhake: He rongoā motuhake anō mō ​​ngā mea pēnei i te ngenge nui, te mamae, ngā raruraru tōngāmimi, me te pakari o te uaua (spasticity).
• Tautoko hauora hinengaro: He mea nui te tohutohu, me te rongoā mēnā e tika ana, hei whakahaere i te ahotea, te pouri, me te manukanuka ka puta i te wā e noho tahi ana me te MS.
• Te rongoā mō te kōrero me te horomi: Mena he uaua ki a koe te kōrero, te horomi rānei, ka taea e koe te rapu awhina tohunga.

4. Ngā whakarerekētanga o te āhua noho:

• Kai hauora: He mea nui kia kai i te kai taurite.
• Te whakakori tinana auau: Mā te mahi i ngā whakakori tinana e tika ana māu ka whakapai ake i te kaha, te ngāwari, me te oranga whānui.
• Kaua e kai paipa: Ki te kai paipa koe, me mutu rawa.
• Te okiokinga me te moe e tika ana: Ka āwhina tēnei ki te whakahaere i te ngenge nui.
• Te whakahaere i te ahotea: Ka āwhina pea ngā mahi pēnei i te yoga me te whakaaroaro.

Mō te noho tahi me te MS

He mate uaua te MS, engari kāore tēnā e kī ana kua mutu te ao.Mā te maimoatanga me te tautoko tika, he tokomaha te hunga whai MS e ora harikoa ana, e angitu ana hoki.

Kia maumahara, kāore koe i te mokemoke. Hangaia he whatunga tautoko kaha o ētahi atu tāngata whai MS, whānau, hoa, me ngā tākuta.

Ko te āhua o te MS he pai ētahi rā, he uaua ētahi rā. Nō reira, he mea nui kia whakarongo ki tō tinana, kia mārama ki ō rohe, me te tono āwhina ina hiahiatia. Mā te mōhio ki tō āhua, te whai i ngā tohutohu a tō tākuta, me te whai whakaaro pai ka nui te rerekētanga.

Hei whakamutunga, ngā mea hei maumahara

Āe, i kōrero nui tātou mō te Multiple Sclerosis i tēnei rā. Ko tāku tumanako kei te mārama pai koe ki tēnei.

• He mate pūnaha ārai mate matatini te MS e pā ana ki te roro me te taurakira.
• He rerekē ngā tohu i ia tangata, i ia tangata, ā, ka rerekē pea i roto i te wā.
• Ahakoa kāore he rongoā katoa, he tino whai hua ngā maimoatanga hei whakahaere i te mate me te whakamamae i ngā tohu.
• He mea tino nui te tautuhi i te mate me te tīmata wawe i te maimoatanga.
• Ki te whakapae koe kei a koe, kei tētahi atu rānei e mōhio ana koe, ngā tohu o te MS, rapua tonutia he tohutohu hauora.
• He mea tino nui te tautoko me te mārama ki te hunga e ora ana me te MS.

Kei te haere tonu ngā rangahau mō te MS. Tērā pea he pai ake ngā maimoatanga ā muri ake nei. Nō reira, ko te mea nui ko te noho tumanako me te maia. Mena he pātai anō āu, kaua e mangere ki te kōrero ki te tākuta.

` Mate Maha, Mate Maha, MS, Mate Pūnaha Io, Myelin, Mate Pūnaha Ārai Mate, Ngā Tohu MS, Maimoatanga MS