Mena kei roto i tō whānau tētahi o ō whanaunga he mate Down Syndrome tōna, he mea noa te pātai, me te mataku anō hoki, mō tōna hauora i a ia e pakeke haere ana. Ina koa, kua maha pea ō rongonga i te ingoa "Alzheimer's Disease". Kua maha pea ō whakaaro mō te hononga i waenganui i ēnei mate e rua. Ae, kei reira. Engari i mua i tō mataku, me kōrero mārama, ngāwari, me te māmā hoki.
He aha te take i kiia ai ko te hunga whai Down syndrome he nui ake te mōrearea ki te mate a Alzheimer?
Hei mārama ki tēnei, me hoki tātou ki te wāhanga tino taketake o ō tātou tinana. Koinā ō tātou ira-kōromōne . He māmā noa iho, he rite ēnei ira-kōromōne ki ngā 'tohutohu' i roto i ia pūtau o tō tātou tinana. Mai i te tae o ō tātou makawe ki tō tātou teitei, ka whakatauhia e ngā ira kei roto i ēnei ira-kōromōne. I te nuinga o te wā, e rua ngā tārua o ia momo ira-kōromōne o te tangata.
Heoi, he tārua anō tā te tangata whai Down syndrome o te chromosome 21, arā, e toru ngā tārua . Koinei te hononga ki te mate a Alzheimer: Ko te ira e whakahau ana i te hanga o te pūmua kino (beta-amyloid) ka whakatakotoria ki roto i te roro i te wā e whanake ana te mate a Alzheimer kei runga i tēnei chromosome 21 anō.
Nō reira, nā te mea he tārua tāpiri o te ira 21, ka nui ake te whakaputa a te tangata whai Down syndrome i tēnei pūmua kino i roto i tōna roro. I roto i te wā, ka kohikohi ēnei pūmua ka putu ki ngā pūtau roro, ka kino aua pūtau, ka tīmata hoki te whakangaro i a rātou. Koinei te mea ka tupu i roto i te mate a Alzheimer.
Hei tāpiritanga, ka tere ake te koroheketanga o ngā tinana me ngā roro o te hunga whai Down syndrome i te tangata noa (te koroheketanga wawe) . Arā, ko te tinana o te tangata 45-tau te pakeke whai Down syndrome ka rite pea ki te tinana o te tangata 65-, 70 rānei te pakeke o te taupori whānui. Ko tēnei koroheketanga tere hoki tētahi o ngā tino take o te tīmatanga wawe o te mate a Alzheimer.
He aha te āhua o ngā tohu? He rerekē ēnei i ngā tohu noa o te mate a Alzheimer?
Ae, he mea tino nui tēnei. Tērā pea he rerekē ngā tohu o te mate a Alzheimer i roto i te tangata whai Down syndrome i ngā tohu o te tangata noa. Koia te take he uaua ki te kite i tēnei mate i ētahi wā.
Ina whakaaro tātou ki te mate a Alzheimer, ko te ngaronga o te mahara te mea nui e whakaarohia ana e tātou. Engari mō te tangata whai Down syndrome, kāore pea te ngaronga o te mahara te tohu tuatahi . Tērā pea ka kitea tuatahitia ētahi atu huringa.
Kia tirohia tātou he aha aua huringa i roto i te ripanga i raro nei.
| Tohu | He aha te āhua o te tangata whai Down syndrome |
|---|---|
| Ngā mahi o ia rā | Ko ngā mea i taea e koe te mahi ko koe anake i mua, pērā i te whakakakahu, te kai, te kaukau, me te hanga tī, me āwhina. Ka memeha haere te hiahia me te kaha ki te mahi i aua mea. |
| Ngā huringa whanonga | Kātahi ka pākiki rātou, ka whanoke, ka whanonga kāore e tika, ka riri, ka tīmata rānei te tū puku ki tahaki, kāore he aro ki tērā taha, kāore he kōrero. |
| Ngā Mate Huka Hou | He tohu tino nui tēnei. Mēnā ka tīmata te tangata kāore anō kia pāngia e ngā mate haurangi i roto i tōna ao ki te pāngia e ngā mate haurangi hou i muri i te 40 tau te pakeke, he tohu pea tēnei nō te mate a Alzheimer. |
| Te mahara me te kaha whakaaro | Ahakoa kāore pea te ngaronga o te mahara e kitea i te tīmatanga, ka puta pea i roto i te wā. Ka uaua ki te maumahara ki ngā mea hou. Ka heke te kaha ki te whiriwhiri i te tika me te hē, me te whakatau kaupapa. |
| Te uaua ki te kōrero | Tērā pea ka tīmata koe ki te iti haere o tāu kōrero, ka uaua ki te kimi kupu, ka kore rānei e mārama te kōrero. |
Ko te mea nui ko te kite i tētahi panoni mai i ngā whanonga noa o tāu tamaiti, o tō whānau rānei (tūāpapa) . Nā te mea he maha ā rātou ngoikoretanga ako mai i te whānautanga, he uaua ki te kite i ngā panoni o te mahara. Engari ki te mea kei te whakaaro koe, "Kāore tēnei tangata i pēnei i mua, ā, kua rerekē rātou ināianei," koinā te mea nui.
I tehea tau ka piki ake te mōrearea?
Ko te mate a Alzheimer ka puta i roto i te taupori whānui i muri i te 65 tau te pakeke. Heoi, mō te tangata whai Down syndrome, ka puta wawe mai tēnei mōrearea.
- 35 tau te pakekeNō nā tata nei, kua kitea e ngā rangahau tata ki te 25% (kotahi i roto i te whā) o te hunga whai Down syndrome ka whakaatu pea i ngā tohu o te mate a Alzheimer.
- Mō te tini o te tangata, ka tīmata te kitea o ngā tohu i waenganui o ō rātou tau 40, i te tīmatanga rānei o te tau 50.
- I te nuinga, e toru ki te rima ngā wā teitei ake o te tūponotanga o te tangata whai Down syndrome ki te whakawhanake i te mate a Alzheimer i tērā o te taupori whānui.
Me aha ahau hei kaitiaki?
Tērā pea ka mataku koe i ēnei kōrero. Kaua e mataku. Ko te mōhio te patu pai rawa atu. He mea tino nui ētahi ka taea e koe te mahi.
1. Ngā tirotiro hauora auau: He mea nui kia haria tāu tamaiti, tāu mema whānau rānei ki te tākuta i ia wā, i ia wā. Ina koa i muri i te 30 tau te pakeke, kōrero mārire ki tāu tākuta mō te mōrearea o te mate a Alzheimer.
2. Aromatawai Tūāpapa: I ō tau 30, mahi tahi me tō tākuta ki te aromatawai i te mahara o tāu tamaiti, āna mahi o ia rā, me āna whanonga. Mā tēnei koe e āwhina ki te tautuhi i ngā huringa ā muri ake nei.
3. Kia mataara ki ngā panoni: Ko koe te tangata e mōhio ana ki a ia. Nō reira, ahakoa ngā panoni iti rawa ka kitea e koe, tuhia ki roto i tētahi pukapuka me te rā me te wā. Tuhia ngā kōrero pēnei i te, "Kāore i taea e ia te mau i ōna hu ko ia anake i tēnei rā," "Kua tino pouri ia mai i te wiki kua taha ake nei." He tino āwhina tēnei ki te tākuta.
4. Rapua he awhina hauora tonu: Mena ka pāngia koe e tētahi, e ētahi rānei o ngā tohu kua whakarārangihia i runga ake nei, kaua e tatari kia tae ki muri ka kite i tō tākuta . Ahakoa kāore e taea te whakaora katoa i te mate a Alzheimer, he maha ngā maimoatanga me ngā rautaki hei āwhina i te whakahaere i ngā tohu, te whakapai ake i te kounga o te oranga, me te whakarato i te whakamarie mōu me te tūroro.
Karere Tangohia ki te Kāinga
- He nui ake te mōrearea ira o te hunga whai Down syndrome ki te pāngia e te mate a Alzheimer i te taupori whānui.
- Ko te tikanga ka tīmata ngā tohu i te 40 tau, i te tīmatanga rānei o te 50 tau, he wā wawe atu i te taupori whānui.
- Ko ngā tohu tuatahi ehara i te ngaronga mahara, engari ko ngā huringa whanonga, te korenga e taea te mahi i ngā mahi o ia rā, ngā mate hopuhopu hou rānei.
- Ki te kite koe i ētahi huringa mārama o te whanonga, o ngā pūkenga, o ngā mahi rānei o ia rā a tō hoa aroha, me kōrero koe ki tō tākuta mō tēnā.
- Mā te kitenga wawe me te whakahaere tika i te hauora ka pai ake te kounga o te oranga o te tūroro, ā, ka whakamarietia koe hei kaitiaki.
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