Kua roa koe e raru ana i te mamae o te tuara me te kaki, inā koa te pakari o te ata? Tērā pea he maha ngā tau i mua i te kīnga atu a tō tākuta ki a koe, "He Ankylosing Spondylitis tōu, he AS rānei te poto," ā, i pōuri koe, i marino hoki. "Āe, koinei te mea kua roa nei e whakararuraru ana i ahau." He mea noa te pēnei te āhua. Nā te mea kua mōhio tātou ki te ingoa o te mate, me titiro tātou ki tāu e taea ai te noho pai ake, te noho harikoa ake me tēnei mate.
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Tuatahi, me whakarite he mahere pai.
Ko tō tākuta tō hoa pai rawa atu i tēnei haerenga. Mahi tahi me ia ki te whakawhanake i tētahi mahere maimoatanga e pai ana mōu. Akohia ngā mea katoa e taea ana e koe mō tēnei mate. Pānuihia ngā pukapuka me ngā paetukutuku pono. Pātai atu ki tō tākuta. Nā te mea, ko tō tinana tēnei, ko tō oranga .
He aha te āwhina a te whakakori tinana? He aha ngā rongoā me tango e au? He āwhina urutau kei reira hei āwhina i ahau ki aku mahi o ia rā? Kia mārama pai koe ki ēnei mea katoa, ka māmā ake te whakahaere i tēnei āhuatanga.
Kia maumahara, he mana te mātauranga. Mā te nui ake o tō mōhiotanga mō tēnei mate, ka nui ake tō kaha ki te whakahaere.
Kaua e mutu te whakakori tinana ahakoa kei te mamae koe.
He rā anō kāore koe e hiahia ki te ara ake i te moenga nā te mamae me te pakari o tō tinana. He uaua ki te whakaaro ki te whakakorikori tinana i a koe e pēnei ana te āhua. Engari ko te mea nui rawa atu ka taea e au te kī atu ki a koe, ko te whakakorikori tinana tētahi o ngā patu pai rawa atu ka taea e koe te whakamahi hei whawhai i tēnei mate.
Ki te kore he whakakori tinana, ka pakari haere te tinana, ka nui haere hoki te mamae. Koia te mea nui kia noho kaha tonu.
- Mā ngā mahi whakakori tinana pēnei i te hikoi, te kaukau, me te eke pahikara ka pai ake te hauora o tō ngākau me te kaha o ō uaua.
- Ka whakaitihia te pakari o ngā hononga e ngā mahi whakakori tinana whānui , ka whakapiki ake hoki i te ngāwari. Ka āwhina hoki ēnei ki te whakaiti i te pupuhi me te mamae.
Ki te mea he uaua ki te tīmata, tirohia he kaiwhakaora tinana, ka whakawhanake i tētahi kaupapa whakakori tinana e tika ana māu. Tīmata mā te iti, kātahi ka whakanui haere i te roa o te wā e whakakori tinana ana koe.
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Ka uaua pea te moe pai i te pō nā te mamae. He maha ngā tāngata whai AS e kī ana "kāore e taea e rātou te moe pai i te pō." Ko te raruraru, mā te kore moe ka kino ake ngā tohu . Ka taea e te mamae me te ngenge te whakaneke rua, te whakaneke toru rānei. Nō reira, ngana kia moe pai mō te 7-9 hāora i te pō.
Kia tupato ki ēnei mea:
Kei te kī mai tētahi o tō whānau kei te ngongoro koe, kei te mōmona rānei i te pō? He maha rānei ōu wā e hiamoe ana, e ngenge ana hoki i te awatea, ahakoa e whakaaro ana koe he pai tō moe i te pō?
He tohu pea ēnei o tētahi mate e kiia nei ko te sleep apnea , arā, ko te mutu o te manawa mō tētahi wā poto i te wā e moe ana. Ko te hunga hou kua tāpaetia he AS he nui ake te mōrearea ki te whakawhanake i tēnei mate. Mena kei a koe tētahi o ēnei tohu, tena koa whakamōhio atu ki tō tākuta.
Kia whai tātou i tētahi momo noho hauora.
E kī ana te kōrero "ko tātou te mea e kainga ana e tātou." He mea tino nui tēnei mō te tangata whai AS. Ka taea e ētahi kai te whakanui ake i te mumura i roto i te tinana. Waihoki, ka taea e ētahi kai te whakaiti i te mumura. Ko te momi hikareti tētahi o ngā take nui e kino ake ai tēnei mate. Kia mārama tātou ki ēnei mea i roto i tētahi ripanga.
| Ngā mea hei mahi (tāpirihia ēnei ki tāu kai) | Ngā mea hei whakamutu/hei whakaiti |
|---|---|
| Ngā kai hei whakaiti i te mumura: - Ngā huawhenua me ngā hua hou (ina koa ngā huawhenua matomato) - Ngā ika momona pērā i te hāmana, te makarera, me te sardine - Ngā mea kakara pērā i te turmeric me te kanekane - Hinu oriwa - Nati (Wōnati, Āmona) | Ngā mea e whakanui ana i te mumura: - Huka me ngā kai me ngā inu reka - Ngā kai i hangaia mai i te paraoa paraoa (ngā witi kua parakore) - Mīti whero (pī, poaka) - Ngā kai tukatuka pērā i te hōtiti me te mītiporo - Kai parai hohonu |
| Ngā tikanga pai: - Te whakakorikori tinana i ia rā - Te moe pai i te pō - Te whakaiti i te ahotea | Tetahi mea me mutu rawa atu: Te kai hikareti Ka whakanui ake te momi hikareti i te kino o ngā wheua o te tuaiwi. Ka kaha ake te mate. Ki te momi hikareti ngā tāne, he nui ake te tūponotanga ka puta he tupu wheua hou (syndesmophytes) i waenganui i ngā tuaiwi o te tuaiwi, ā, ka tino pakari te tuaiwi. Nō reira kati te momi hikareti i tēnei rā. |
Kaua rawa e wehi ki te tono āwhina.
I te noho tahi me tētahi mate pūmau pēnei i te AS, he mea noa te pāngia e te mamae tinana me te ahotea hinengaro. I ētahi rā, ka pōuri pea koe, ka riri rānei. Ka whakaaro pea koe, "He aha i pā ai tēnei ki ahau?"
Kaua e pupuri i ēnei kare ā-roto. Ka kino noa iho te āhua mōu.
Kōrerohia ō kare ā-roto ki tō whānau, ki tētahi hoa pono, ki tētahi rānei e whakawhirinakihia ana e koe. He mea whakamā hoki te mōhio kāore koe i te mokemoke. Ki te hiahia āwhina koe, whakaarohia te rapu āwhina mai i tētahi tohunga hauora hinengaro. Ehara i te mea hei whakama. He mea ka taea e koe te mahi māu ake.
Mā te whakauru i ēnei rautaki ki roto i tō koiora, ka tino taea e koe te noho angitu me te harikoa i roto i te wero o te AS.
Karere Tangohia ki te Kāinga
- Mahi tahi me tō tākuta ki te whakawhanake i tētahi mahere maimoatanga e tika ana māu. Akohia te mate.
- Ahakoa te mamae, he mea nui te whakakori tinana hei whakahaere i tēnei mate. Kaua rawa e mahue.
- Moe pai i te pō. Mena kei a koe ngā tohu pēnei i te ngongoro, te poto rānei o te manawa, kōrero ki tō tākuta.
- Whakaitihia te huka, te taro, me te mīti whero, ā, tāpirihia ngā huawhenua, ngā hua rākau, me ngā ika hinuhinu ki tāu kai. Kati rawa te kai hikareti.
- Ina pāngia koe e te taumahatanga o te hinengaro, kōrerohia, ka tono āwhina. Kāore koe i te mokemoke.
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