Kei te tino ngenge koe, kei te tino ngenge, kāore e taea e koe te mahi i ō mahi o ia rā, te ara ake rānei i te moenga? He mahi nui te kaukau me te taka kai? Ina kōrero koe ki tētahi mō tēnei, kāore rātou e aro ki a koe, me te kī, "Nōu mangere noa iho," "Moe mai," "He raruraru hinengaro noa iho?" Me pānui e koe tēnei tuhinga. Nā te mea kei te kōrero tātou i tēnei rā mō tētahi āhuatanga e puta ai ngā tohu pēnei, engari he tokomaha te hunga, i roto i te hapori me te ao hauora, kāore i te tino mōhio ki tēnei.
He aha rawa te Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)?
Ki te kī māmā noa, he mate roa, he uaua, he kino hoki te ME/CFS, ā, ka taea e ia te whakararuraru i ō mahi o ia rā. Ko te tohu matua ko te ngenge nui e kore e taea te whakamanawanui, ā, kāore e taea te whakamārama i tētahi take. Kāore tēnei i rite ki te ngenge noa. Kāore tēnei ngenge e ngaro ahakoa kua moe i muri i ngā haora.
Whakaarohia kei te hoki mai koe i tētahi haerenga poto, kei te mahi rānei i ētahi mahi o te whare. Kātahi, mō ngā rā, ka tino ngenge koe, kāore e taea e koe te ara ake i te moenga. Ka kiia tēnei ko te "Post-Exertional Malaise". Ko te tikanga ka kino haere ngā tohu i muri i te whakapau kaha tinana, hinengaro rānei.
He maha atu anō ngā raruraru e pāngia ana e te tini o te hunga e noho ana me tēnei mate.
- Te moe kore whakahauora
- Mamae tinana
- Te kore e taea te arotahi, te wareware i ngā mea katoa, he āhua pērā i te kohu roro
- Te whanoke i te tūnga, i te noho rānei
Nā ēnei tohu ka waiho hei moemoeā mā rātou te mahi, te whai wāhi atu ki ngā mahi pāpori, tae noa ki te mahi i ngā mahi o ia rā.
He mate tūturu tēnei? Kāore rānei koe e aro mai ana ki a mātou?
Koinei te wero nui rawa atu e pā ana ki te hunga whai ME/CFS. Ehara i te mea ko ō rātou whānau, ko ō rātou hoa, me ō rātou rangatira anake, engari i ētahi wā, ahakoa ngā tākuta, kāore rātou e aro nui ki ēnei tohu. I whakaatuhia e tētahi rangahau tata nei i whakahaerehia e te CDC me te WebMD i te United States he tino iti te mōhiotanga ki tēnei mate.
E 90% o te hunga i uiuitia i kī nā ēnei tohu i akiaki i a rātou ki te whakarērea ngā mahi pāpori, ngā mahi whakangahau, me ngā mahi. Heoi, kotahi hautoru noa iho o rātou i kōrero ki tētahi tākuta mō tēnei mea. Ko te take matua mō tēnei ko te mataku kei "kore te tākuta e whakapono mai ki a mātou."
Whakaarohia te pouri. Kei te pāngia koe e te mate, engari kāore he tangata hei kōrero, ā, ahakoa ka whakapono koe, kāore he tangata e whakapono ana ki a koe. E ai ki tētahi rangahau, e 6 i roto i te 10 o ngā tāngata kua kite i te tākuta e whakaaro ana kāore rātou i arohia ki te mate.
- E 64% kua kīia e tā rātou tākuta kia "okioki."
- 62% i kī "He raruraru hinengaro tēnei."
Ka whakaroa tēnei i te tautuhi mate mō ngā tau. E neke atu i te 5 tau te roa o ētahi tāngata ka whiwhi i te tautuhi mate tika.
He aha i tino uaua ai te tautuhi i te mate?
He maha ngā take matua e uaua ai te tautuhi i te ME/CFS.
1. Kāore he whakamātautau motuhake: Pērā i te tirotiro i te huka toto hei kite i te mate huka, kāore anō kia kitea he whakamātautau toto, he matawai rānei hei whakaū i te ME/CFS.
2. He rerekē ngā tohu: Ka rerekē te puta o ngā tohu i ia tangata, i ia tangata. Hei tāpiri, ka kitea ēnei tohu i roto i te maha atu o ngā mate.
3. Te kore mōhio o ngā tākuta: He maha ngā kura hauora o te ao kāore e whakauru i te ME/CFS ki roto i ā rātou marautanga, ā, ka whakaaro ētahi tākuta he take hinengaro tēnei.
Nō reira, hei tātaritanga i tēnei mate, me whai tākuta mātau e whakarongo ana ki te tūroro me te manawanui, e tātari ana hoki i ngā tohu . Ka tae te tākuta ki tēnei whakatau i muri i te whakarongo hōhonu ki ō tohu, me te whakakore i ētahi atu mate hauora.
| Ngā paearu taketake mō te tautuhi i te ME/CFS | |
|---|---|
| Ngā tohu matua (me whakaatu katoa ngā tohu e toru) | |
| 1. Te ngenge nui | Te ngenge nui e ono marama, neke atu rānei, te roa, ā, kāore e taea te mahi i ngā mahi o ia rā. |
| 2. Te Mate Urutā i Muri i te Whakamahinga Tinana | Ka tino kaha haere ngā tohu ahakoa i muri i ngā mahi iti o te tinana, te hinengaro, te kare ā-roto rānei. |
| 3. Te moe kore whakahauora | Ahakoa kua moe koe mō ngā hāora, ka ngenge tonu koe ina oho ake koe. |
| Ngā tohu tāpiri (me whakaatu tētahi o ēnei) | |
| 1. Te ngoikore o te hinengaro | E mōhiotia ana ko te "Brain Fog," he uaua ki te maumahara, kāore e taea te arotahi, me te roa o te tukatuka i ngā mōhiohio. |
| 2. Te Manawanui Orthostatic | Ka puta ngā tohu pēnei i te whanoke, te ngoikore, te tirohanga pōuri rānei ina noho, ina tū rānei, ā, ka mama ake ina takoto. |
He aha te Kohu Roro?
He tohu tino whakarihariha tēnei. E ai ki ngā tūroro, i ētahi wā ka patopato rātou, ka tuku īmēra i te mahi, engari i te wā e whai ake nei, kāore rātou e mahara mēnā i tukuna te īmēra, i ngā mea rānei kei roto. He roa te wā e whakaaro ana ki ngā mea ngāwari me te whakatau. He pānga nui tēnei ki tā rātou mahi me ō rātou oranga whaiaro.
Ngā wero o te noho tahi me tēnei āhuatanga
E pāngia ana ēnei tāngata e te ahotea hinengaro he kino atu i te mamae tinana i puta mai i te ME/CFS. He tino uaua ki te whakamanawanui te pouri me te mokemoke e pā ana ki a rātou ina whakaaro ō rātou ake whānau, "Kei te mahi tinihanga koe," ā, ina whakapae ō rātou hoa i a rātou, "Kei te karo koe i a mātou inaianei."
He mea kei te hiahia koe ki te mahi, he mea kei te hiahia koe ki te mahi. Engari kāore tō tinana e whakaae. Kātahi ka kī mai tetahi ki a koe, "Me okioki koe." Nā ēnei āhuatanga, ka nui ake te tūponotanga o te hunga whai ME/CFS ki te whakawhanake i ngā raruraru hauora hinengaro pērā i te pouri me te manukanuka .**
Nō reira, he mea tino nui kia mōhio tātou katoa ki tēnei mate. Mena kei a koe ēnei tohu, kei te pāngia rānei tētahi e mōhiotia ana e koe e tēnei mate, ko te āwhina nui rawa atu ka taea e koe ko te tautoko i a rātou me te mārama ki a rātou.
Karere Tangohia ki te Kāinga
- He mate hauora tūturu, kino te Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Ehara i te mangere, ehara hoki i te mea hanga noa iho.
- Ko ngā tohu matua ko te ngenge tonu, te kino haere o ngā tohu ahakoa he iti noa te mahi, me te moe kore whakahauora.
- He uaua pea te tautuhi i ō tohumate, nō reira he mea nui kia kite koe i tētahi tākuta e whakarongo mārire ana ki a koe .
- I mua i tō haerenga ki te tākuta, mā te tuhi i tētahi rātaka o ō tohumate (hei tauira, te wā e kino haere ana, ngā tauira moe, ngā raruraru mahara) ka āwhina i a koe ki te whakatau tika i te mate.
- He uaua te haere ko koe anake i tēnei haerenga. Engari kaua e mutu te tumanako. Mā te māramatanga me te tautoko tika, ka taea te whakahaere i tēnei āhuatanga.
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