Kei tō tamaiti te 'Whākihi Hōiho'? Me kōrero tātou mō tēnei mate onge

He mea whakamiharo te whanaketanga o ngā whekau o te pēpi i roto i te kōpū o te whaea, kāore? I roto i tēnei tukanga uaua, ka puta pea ngā huringa iti i ētahi wā. Ko te 'Whākihi Hōiho' tētahi o ngā mate onge e puta mai ana i te whānautanga. Tērā pea ka mataku koe ina rongo koe i tēnei ingoa. Engari kaua e manukanuka, ka kōrerohia e mātou ngā mea katoa i roto i te reo māmā, i te reo mārama hoki.

He aha te tikanga o tēnei whatukuhu hōiho?

He tino māmā noa iho tēnei. I te nuinga o te wā, e rua ngā whatukuhu o te tinana. Kei runga noa iho i te hope, i ia taha o te tuaiwi. Engari i roto i te āhua e kiia nei ko te 'Whākihi Hōiho', ka honoa ngā pito o raro o ēnei whatukuhu e rua i te whanaketanga o te pēpi i roto i te kōpū, ka hanga he āhua 'U', he hōiho rānei. E kiia ana tēnei e te rongoā ko te Renal Fusion . I te nuinga o te wā ka puta tēnei i waenga i te wiki 7 me te 9 o te hapūtanga.

Kāore tēnei mate i te tino noa. Tata ki te 1 i roto i te 500 pēpi e whānau ana ka pāngia. He paku noa ake hoki te kitea i roto i ngā tama i ngā kōtiro. Ko te mea pai rawa atu, ko te nuinga o ngā tamariki e pāngia ana e tēnei mate kāore e pāngia e ngā raruraru hauora nui.

Heoi, tata ki te hautoru o ngā tamariki e pāngia ana e tēnei momo whatukuhu ka pāngia pea e ētahi atu raruraru ki te ngākau, ki ngā oko toto, ki te pūnaha io, ki te pūnaha mimi, ki te pūnaha nakunaku, ki te pūnaha angaiwi rānei. Ahakoa kāore he rongoā mō te Horseshoe Kidney, ka taea e tō tākuta te rongoā i ētahi atu raruraru e pā ana, me te āwhina i tāu tamaiti kia ora hauora.

He aha ngā tohu o tēnei mate?

He mea whakamiharo, tata ki te hautoru o ngā tamariki kāore e pāngia e tetahi tohu. Heoi, tera pea ētahi tamariki ka pāngia e ētahi raruraru. Kei te ripanga i raro nei ētahi o ngā raruraru tino noa me ō rātou tohu.

Ētahi atu raruraru hauora ka pā mai pea me te Tākihi Horseshoe

Haunga ngā mea kua whakahuatia i runga ake nei, he maha atu anō ngā mōrearea hauora kei reira.

• Te pukupuku o Wilms: He pukupuku matepukupuku ka puta i roto i ngā whatukuhu o ngā tamariki nohinohi.
• Mate tākihi polycystic: Te hanganga o ngā whēkau maha kāore i te matepukupuku i roto i ngā tākihi.
• Matepukupuku whatukuhu: He mōrearea tēnei ka pā mai i te pakeketanga.
• Hydrocephalus: Te kohikohinga o te wai i roto i te roro.
• Spina bifida: He āhuatanga e kore ai tetahi wāhanga o te tuaiwi e whanake tika.

Kaua e mataku ki tēnei rārangi. Ehara i te mea ka pāngia te katoa e ēnei mea. Engari he tūponotanga pea ka pāngia rātou. Koia te mea nui kia noho i raro i te tirotiro a te tākuta.

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He aha tēnei e tupu nei? He aha te take?

Kāore anō kia mōhiotia te tino take o tēnei, engari e whakapono ana ngā tohunga hauora tera pea nā te raruraru i roto i ngā ira o te tamaiti.

Ko ngā tamariki kei a rātou ēnei āhuatanga ira e whai ake nei ka tino mōrearea ki te whakawhanake i te Tākihi Horseshoe.

• Te mate Turner: Ka pāngia ngā kōtiro anake e tēnei mate, ā, ka poto te tinana me ngā raruraru ki ngā ovaries.
• Te mate Edwards: E mōhiotia ana ko te "Trisomy 18", ka hua ake i tēnei āhuatanga te puhoi o te tipu, te taumaha iti i te whānautanga, me te maha o ngā raruraru hauora nui i roto i te kōpū.
• Te mate Down: E mōhiotia ana ko te "Trisomy 21", nā te ira-kōroma tāpiri tēnei e whakaroa ai te hinengaro me te whanaketanga, me ētahi atu raruraru hauora.
• Te mate Patau: Ka kiia tēnei ko te (Trisomy 13) ā, ka puta ngā raruraru pēnei i te ngutu ngatata me te waha whati, me te ngoikore o te uaua.

Me pēhea te tātaritanga a te tākuta i tēnei? He aha te rongoā?

Kāore i te tino kitea tēnei āhuatanga mā roto i ngā matawai i mua i te whānautanga. Nā te mea he rite ngā tohu o tēnei āhuatanga ki ērā o ētahi atu mate, he mea nui kia toro atu koe ki tō tākuta kia tika ai te tautuhi i te mate.

Ka pātai atu tō tākuta ki a koe mō ngā tohu me te hītori hauora o tāu tamaiti, ka tirotirohia tāu tamaiti, kātahi ka mahi i ētahi whakamātautau hei whakaū i te āhua tuturu, pēnei i:

• Ngā whakamātautau toto: Tirohia te mahi a ō whatukuhu.
• Ngā whakamātautau mimi: Tirohia mēnā he mate pāwera, he raruraru rānei.
• Te oro-oro o ngā whatukuhu: Ka whakamahia ngā ngaru oro hei tango whakaahua o ngā whatukuhu hei tirotiro mō ngā kōhatu, ngā pukupuku, te mate pukupuku rānei.
• Ngā whakamātautau hihi-X motuhake: Mā ngā whakamātautau pēnei i te (Intravenous pyelogram - IVP) me te (Voiding cystourethrogram - VCUG) ka tirohia te rere o te mimi i roto i te tinana.
• Matawai irahiko: Ka tukuna he horopeta iti rawa o te matū irahiko hei tautuhi i ngā wāhi raruraru.
• Matawai MRI, matawai CT rānei: Ka whakamahia ēnei hei tiki whakaahua mārama ake.

Mō te maimoatanga, kāore e taea te whakarerekē i te Whatukuhu Hōiho. Kia honoa ngā whatukuhu, ka noho tonu pērā. Heoi, ka taea te rongoā pai i ngā raruraru e puta mai ana i tēnei. Hei tauira, ka taea te hoatu paturopi mō te mate mimi, ā, ka taea te mahi pokanga mō ngā kōhatu whatukuhu.

Ko te mea nui, ki te kore he tohu o tāu tamaiti, kāore pea ia e hiahia ki tētahi maimoatanga.

Ētahi atu mea me mōhio koe hei mātua

Kei raro iho, kei mua hoki i te tinana ēnei whatukuhu i te mea noa. Nō reira, he nui ake te tūponotanga ka whara rātou i te aituā, i te hinganga rānei. Nō reira, me kōrero koe ki tō tākuta mō ngā hākinakina pā. He mea tino nui kia pātai atu koe ki tāu tamaiti he aha ngā mahi haumaru māna.

He mea pai anō hoki kia mau i tāu tamaiti he poroporo whakatūpato hauora.Mēnā he āhuatanga ohorere, ka āwhina i te hunga e rongoā ana i te tamaiti kia mōhio wawe ki tēnei āhuatanga, kia tika ai hoki te rongoā.