E hia ngā momo huaketo e noho ana i roto i ō tātou tinana, kāore tātou e mōhio? Ko te huaketo JC tētahi o aua momo. Inaa, e noho ana tēnei huaketo i roto i ngā tinana o te neke atu i te haurua o ngā pakeke o te ao. Engari ko te mea whakamiharo, kāore e pā kino, e raruraru rānei ki te nuinga o te tangata. Nō reira, i tēnei rā ka kōrerohia e tātou he aha te mea tūturu, āhea ka raru ai, me te mea rānei me wehi tātou.
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He aha rawa te huaketo JC?
He kupu ngāwari noa iho, he huaketo tino noa te huaketo JC. I kitea tuatahitia i te tau 1971. I kitea tēnei huaketo e te tākuta i roto i te roro o tētahi tangata e pāngia ana e te mate pukupuku e kiia nei ko te lymphoma a Hodgkin. I tapaina te huaketo i muri i te ingoa tuatahi o te tūroro (John Cunningham).
Engari kāore anō kia tino mārama ngā tohunga ki te horapa mai i te tangata ki te tangata. Heoi, he tokomaha te hunga e whakapono ana ka uru te huaketo ki roto i ō tātou tinana i a tātou e tamariki ana mā te wai, mā te kai rānei kua poke. Kia uru ki roto, ka noho puku te huaketo i roto i te ara mimi, te hinu wheua, ngā tonsil, te roro rānei mō ngā tau, ā, kāore he raruraru. Nō reira, he tokomaha te hunga kāore e mōhio kei a rātou te huaketo.
Nā, ko wai kei te mōrearea mai i tēnei?
Anei te mea nui. Mēnā he pai, he kaha hoki tō pūnaha ārai mate , e kore koe e raru i te huaketo JC. He rite tonu ki te moe.
Heoi, ki te ngoikore rawa te pūnaha ārai mate o te tangata, ka oho ake taua huaketo moe, ka tīmata te hohe.
Ina kaha te huaketo i tēnei ara, ka pā mai he mate roro tino kino e kiia nei ko te Progressive Multifocal Leukoencephalopathy , ko te PML rānei.
He aha te PML?
Ka pakaru te hipoki tiaki e karapoti ana i ō tātou pūtau io . He rite ki te hipoki kirihou o te waea hiko e rewa ana. Ka tino whakararuraru tēnei i te tukanga tuku karere mā roto i ngā io. Ka taea e tēnei te arahi ki te hauātanga tuturu, ā, i ētahi wā ka mate .
Ko te tūponotanga nui rawa atu ki te whakawhanake i te PML ko:
- Mō ngā tūroro HIV/AIDS .
- Te mate a Hodgkin), ngā tāngata whai mate pukupuku pērā i te leukemia me te lymphoma.
- Mō te hunga whai mate pēnei i te Multiple Sclerosis (MS) , te Rheumatoid Arthritis , te hunga rānei e tango ana i ētahi momo rongoā ārai mate i muri i te whakawhitinga okana .
He aha ngā tohu o te PML?
Ka tīmata wawe ēnei tohu, ā, ka kino haere i te roanga o te wā. Ka rerekē pea ngā tohu i runga i te wāhi o te roro kua pakaru. Heoi, koinei ngā tohu tino kitea.
| Tohu | Whakaahuatanga |
|---|---|
| Te koretake | Ngā āhuatanga pēnei i te uaua ki te whakaoti i ngā mea, te tūtuki i te waewae ina hikoi, me te hinga atu i ngā ringaringa. |
| Te ngoikore e kino haere ana | Ka piki haere te ngoikore o te ringa, te waewae, tetahi taha rānei o te tinana. |
| Ngā huringa o te tuakiri | Ngā huringa pērā i te riri ohorere, te manukanuka, me te ngaronga o te mahara. |
| He raruraru ki te kōrero | Ka rarau ngā kupu, ā, kāore e taea e au te kī i taku e hiahia ana ki te kōrero. |
| Ngā raruraru tirohanga | Ka pōuri te tirohanga, ā, ka raru pea te kite i ngā mea e rua i te wā kotahi. |
Me pēhea te tautuhi tika i tēnei?
Tuatahi, ka taea e koe te whakamātauria mēnā kei a koe te huaketo JC. Ko te tikanga o tēnei he whakamātautau toto , he tauira kiko rānei. He mea nui rawa tēnei mēnā kei te tango koe i ngā rongoā e pehi ana i tō pūnaha ārai mate .
Heoi, ki te whakapae tō tākuta kei a koe te PML, he rerekē te tukanga whakamātautau.
1. Matawai MRI: Ko te whakamātautau tuatahi ka mahia e koe he matawai MRI (Magnetic Resonance Imaging) . Ka whakamahia e tēnei he aukume kaha me ngā ngaru reo irirangi hei tango pikitia taipitopito o tō roro, hei rapu hoki i ngā tauira i roto i te kiko roro e rite ana ki te PML.
2. Tātari Tuaiwi: Muri iho, ka whakatau pea tō tākuta ki te mahi i te tātari tuaiwi (pūwero lumbar) . Kaua e manukanuka, ko te tikanga he tango i tētahi ngira iti ka tango i tētahi wai tuaiwi iti mai i tō tuara o raro. Ka whakamatautauria tēnei wai mō te aroaro o te huaketo JC. Mena ka kitea te huaketo JC i roto i tēnei wai, ka whakaū i te aroaro o te PML.
3. Kohikohi i te roro: Mena kāore anō kia whakatauhia ngā whakamātautau o runga ake nei, me tango pea he wahi iti o te kiko o te roro hei whakamātautau (kohikohi).
Te whanaungatanga i waenga i ngā rongoā e whakamahia ana hei rongoā i ētahi mate me te huaketo JC
Te Mate Pukupuku Maha (MS) me te Mate a Crohn
Kua kitea he hononga kei waenganui i ētahi rongoā e whakamahia ana hei rongoā i ngā mate pēnei i te Multiple Sclerosis (MS) me te Mate a Crohn (hei tauira, Natalizumab, Dimethyl fumarate, Fingolimod, Ocrelizumab ) me te PML.
Nō reira, i mua i te tīmatanga o tēnei momo rongoā, ka tino whakamātautauhia koe e tō tākuta kia kitea ai mēnā kei a koe te huaketo JC. Tērā pea ka taea e koe te tango i tēnei rongoā ahakoa kei a koe te huaketo, engari me kōrero koe ki tō tākuta mō ngā mōrearea me ngā painga i mua i te whakatau.
HIV/AIDS
Ko ētahi rongoā hou e hoatu ana ki te hunga whai HIV/AIDS ka āwhina i te whakapakari i te pūnaha ārai mate. He āwhina nui tēnei ki te aukati i te whanaketanga o te PML mai i te huaketo JC. Nā reira, kua tino heke te maha o ngā tūroro HIV/AIDS i ngā tau tata nei.
He aha ngā maimoatanga mō te PML?
I tēnei wā, kāore anō kia whakaaetia he rongoā motuhake hei whakaora katoa i te PML, ā, kei te rangahau tonu ngā kaipūtaiao i tēnei.
Ko te rongoā pai rawa atu e wātea ana i tēnei wā ko te āwhina i te pūnaha ārai mate o te tinana ki te whawhai i te huaketo mā te hanga anō i a ia anō. Hei tauira, ki te mea kei te tango te tangata i tētahi rongoā e pehi ana i tōna pūnaha ārai mate, ka whakatau pea tā rātou tākuta ki te whakamutu, ki te whakarerekē rānei i taua rongoā.
Karere Tangohia ki te Kāinga
- He huaketo tino noa te huaketo JC, kāore he kino ki te nuinga o te tangata. Nō reira kaua e mataku rawa ki a ia.
- Ko te mōrearea tūturu anake o tēnei ko te hunga he ngoikore rawa ō rātou pūnaha ārai mate, ā, ka pāngia rātou e te mate roro kino e kiia nei ko te PML.
- Ki te pāngia koe e ngā tohu pēnei i te ngoikore rerekē, te uaua ki te hikoi, te kōrero rānei, te rerekētanga ohorere rānei o te āhua, inā koa kei te tango koe i ngā rongoā e pehi ana i tō pūnaha ārai mate, me toro atu ki tō tākuta tonu.
- I mua i te tīmatanga o ētahi rongoā mō ngā mate pēnei i te MS me te Crohn's, kia mōhio koe ki te kōrero ki tō tākuta mō te mōrearea o te huaketo JC me te PML.
- Mena he pātai, he ruarua rānei āu mō tēnei mea, ko te mea pai ko te kōrero mārama ki tō tākuta, kia mōhio ai hoki koe ki ngā mea katoa.
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