E hia ngā momo huaketo e noho ana i roto i ō tātou tinana, kāore tātou e mōhio? Ko te huaketo JC tētahi o aua momo. Inaa, e noho ana tēnei huaketo i roto i ngā tinana o te neke atu i te haurua o ngā pakeke o te ao. Engari ko te mea whakamiharo, kāore e pā kino, e raruraru rānei ki te nuinga o te tangata. Nō reira, i tēnei rā ka kōrerohia e tātou he aha te mea tūturu, āhea ka raru ai, me te mea rānei me wehi tātou.
He aha rawa te huaketo JC?
He kupu ngāwari noa iho, he huaketo tino noa te huaketo JC. I kitea tuatahitia i te tau 1971. I kitea tēnei huaketo e te tākuta i roto i te roro o tētahi tangata e pāngia ana e te mate pukupuku e kiia nei ko te lymphoma a Hodgkin. I tapaina te huaketo i muri i te ingoa tuatahi o te tūroro (John Cunningham).
Engari kāore anō kia tino mārama ngā tohunga ki te horapa mai i te tangata ki te tangata. Heoi, he tokomaha te hunga e whakapono ana ka uru te huaketo ki roto i ō tātou tinana i a tātou e tamariki ana mā te wai, mā te kai rānei kua poke. Kia uru ki roto, ka noho puku te huaketo i roto i te ara mimi, te hinu wheua, ngā tonsil, te roro rānei mō ngā tau, ā, kāore he raruraru. Nō reira, he tokomaha te hunga kāore e mōhio kei a rātou te huaketo.
Nā, ko wai kei te mōrearea mai i tēnei?
Anei te mea nui. Mēnā he pai, he kaha hoki tō pūnaha ārai mate , e kore koe e raru i te huaketo JC. He rite tonu ki te moe.
Heoi, ki te ngoikore rawa te pūnaha ārai mate o te tangata, ka oho ake taua huaketo moe, ka tīmata te hohe.
Ina kaha te huaketo i tēnei ara, ka pā mai he mate roro tino kino e kiia nei ko te Progressive Multifocal Leukoencephalopathy , ko te PML rānei.
He aha te PML?
Ka pakaru te hipoki tiaki e karapoti ana i ō tātou pūtau io . He rite ki te hipoki kirihou o te waea hiko e rewa ana. Ka tino whakararuraru tēnei i te tukanga tuku karere mā roto i ngā io. Ka taea e tēnei te arahi ki te hauātanga tuturu, ā, i ētahi wā ka mate .
Ko te tūponotanga nui rawa atu ki te whakawhanake i te PML ko:
- Mō ngā tūroro HIV/AIDS .
- Te mate a Hodgkin), ngā tāngata whai mate pukupuku pērā i te leukemia me te lymphoma.
- Mō te hunga whai mate pēnei i te Multiple Sclerosis (MS) , te Rheumatoid Arthritis , te hunga rānei e tango ana i ētahi momo rongoā ārai mate i muri i te whakawhitinga okana .
He aha ngā tohu o te PML?
Ka tīmata wawe ēnei tohu, ā, ka kino haere i te roanga o te wā. Ka rerekē pea ngā tohu i runga i te wāhi o te roro kua pakaru. Heoi, koinei ngā tohu tino kitea.
| Tohu | Whakaahuatanga |
|---|---|
| Te koretake | Ngā āhuatanga pēnei i te uaua ki te whakaoti i ngā mea, te tūtuki i te waewae ina hikoi, me te hinga atu i ngā ringaringa. |
| Te ngoikore e kino haere ana | Ka piki haere te ngoikore o te ringa, te waewae, tetahi taha rānei o te tinana. |
| Ngā huringa o te tuakiri | Ngā huringa pērā i te riri ohorere, te manukanuka, me te ngaronga o te mahara. |
| He raruraru ki te kōrero | Ka rarau ngā kupu, ā, kāore e taea e au te kī i taku e hiahia ana ki te kōrero. |
| Ngā raruraru tirohanga | Ka pōuri te tirohanga, ā, ka raru pea te kite i ngā mea e rua i te wā kotahi. |
Me pēhea te tautuhi tika i tēnei?
Tuatahi, ka taea e koe te whakamātauria mēnā kei a koe te huaketo JC. Ko te tikanga o tēnei he whakamātautau toto , he tauira kiko rānei. He mea nui rawa tēnei mēnā kei te tango koe i ngā rongoā e pehi ana i tō pūnaha ārai mate .
Heoi, ki te whakapae tō tākuta kei a koe te PML, he rerekē te tukanga whakamātautau.
1. Matawai MRI: Ko te whakamātautau tuatahi ka mahia e koe he matawai MRI (Magnetic Resonance Imaging) . Ka whakamahia e tēnei he aukume kaha me ngā ngaru reo irirangi hei tango pikitia taipitopito o tō roro, hei rapu hoki i ngā tauira i roto i te kiko roro e rite ana ki te PML.
2. Tātari Tuaiwi: Muri iho, ka whakatau pea tō tākuta ki te mahi i te tātari tuaiwi (pūwero lumbar) . Kaua e manukanuka, ko te tikanga he tango i tētahi ngira iti ka tango i tētahi wai tuaiwi iti mai i tō tuara o raro. Ka whakamatautauria tēnei wai mō te aroaro o te huaketo JC. Mena ka kitea te huaketo JC i roto i tēnei wai, ka whakaū i te aroaro o te PML.
3. Kohikohi i te roro: Mena kāore anō kia whakatauhia ngā whakamātautau o runga ake nei, me tango pea he wahi iti o te kiko o te roro hei whakamātautau (kohikohi).
Te whanaungatanga i waenga i ngā rongoā e whakamahia ana hei rongoā i ētahi mate me te huaketo JC
Te Mate Pukupuku Maha (MS) me te Mate a Crohn
Kua kitea he hononga kei waenganui i ētahi rongoā e whakamahia ana hei rongoā i ngā mate pēnei i te Multiple Sclerosis (MS) me te Mate a Crohn (hei tauira, Natalizumab, Dimethyl fumarate, Fingolimod, Ocrelizumab ) me te PML.
Nō reira, i mua i te tīmatanga o tēnei momo rongoā, ka tino whakamātautauhia koe e tō tākuta kia kitea ai mēnā kei a koe te huaketo JC. Tērā pea ka taea e koe te tango i tēnei rongoā ahakoa kei a koe te huaketo, engari me kōrero koe ki tō tākuta mō ngā mōrearea me ngā painga i mua i te whakatau.
HIV/AIDS
Ko ētahi rongoā hou e hoatu ana ki te hunga whai HIV/AIDS ka āwhina i te whakapakari i te pūnaha ārai mate. He āwhina nui tēnei ki te aukati i te whanaketanga o te PML mai i te huaketo JC. Nā reira, kua tino heke te maha o ngā tūroro HIV/AIDS i ngā tau tata nei.
He aha ngā maimoatanga mō te PML?
I tēnei wā, kāore anō kia whakaaetia he rongoā motuhake hei whakaora katoa i te PML, ā, kei te rangahau tonu ngā kaipūtaiao i tēnei.
Ko te rongoā pai rawa atu e wātea ana i tēnei wā ko te āwhina i te pūnaha ārai mate o te tinana ki te whawhai i te huaketo mā te hanga anō i a ia anō. Hei tauira, ki te mea kei te tango te tangata i tētahi rongoā e pehi ana i tōna pūnaha ārai mate, ka whakatau pea tā rātou tākuta ki te whakamutu, ki te whakarerekē rānei i taua rongoā.
Karere Tangohia ki te Kāinga
- He huaketo tino noa te huaketo JC, kāore he kino ki te nuinga o te tangata. Nō reira kaua e mataku rawa ki a ia.
- Ko te mōrearea tūturu anake o tēnei ko te hunga he ngoikore rawa ō rātou pūnaha ārai mate, ā, ka pāngia rātou e te mate roro kino e kiia nei ko te PML.
- Ki te pāngia koe e ngā tohu pēnei i te ngoikore rerekē, te uaua ki te hikoi, te kōrero rānei, te rerekētanga ohorere rānei o te āhua, inā koa kei te tango koe i ngā rongoā e pehi ana i tō pūnaha ārai mate, me toro atu ki tō tākuta tonu.
- I mua i te tīmatanga o ētahi rongoā mō ngā mate pēnei i te MS me te Crohn's, kia mōhio koe ki te kōrero ki tō tākuta mō te mōrearea o te huaketo JC me te PML.
- Mena he pātai, he ruarua rānei āu mō tēnei mea, ko te mea pai ko te kōrero mārama ki tō tākuta, kia mōhio ai hoki koe ki ngā mea katoa.
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