He maha ngā wā ka pāngia koe e ngā mate pāwera me ngā ira whero me te mākūkū puta noa i tō tinana? Tērā pea he Mastocytosis tēnei!

He maha ngā wā ka pāngia koe e te whero, te mākūkū, ā, i ētahi wā ka pāngia koe e te ponana kino i tō tinana? He maha rānei ngā rā ka pāngia koe e te mate pāwera kino ahakoa ki tētahi mea iti rawa? Tērā pea ka whakaaro koe, "Kei te pāngia anō ahau e te mate pāwera." Heoi, i ētahi wā kei muri i ēnei tohu, tera pea he mate onge kāore anō kia rangona. Ko tētahi o aua mate ko te (Mastocytosis). Ahakoa he ahua rerekē te ingoa, me kōrero noa iho.

He aha te Mastocytosis? He māmā noa iho...

Whakaarohia, kei roto i ō tātou tinana he pūtau e rite ana ki ngā kaitiaki haumaru iti. Ka karangatia rātou ko ngā "pūtau mast." Ko ēnei "pūtau mast" he wāhanga o tō tātou "pūnaha ārai mate ." He rite rātou ki ngā ope haumaru o tō tātou whenua. Ina uru mai ngā hoariri pēnei i ngā iroriki, ngā huakita, me ngā mate pāwera ki te tinana, ka puta mai ēnei "pūtau mast" ki mua ka whawhai.

Ina whakautu ēnei (pūtau mast) ki ngā hoariri, ka tukuna e rātou he matū e kiia nei ko (histamine). Ko tēnei (histamine) te mea e puta ai ngā tohu mate pāwera i roto i tō tātou tinana (hei tauira, te mākūkū, te whero o te kiri, te pupuhi). Ka āwhina hoki ēnei (pūtau mast) ki te whakaputa waikawa i roto i te puku.

I te nuinga o te wā, ka mahi ēnei (pūtau mast) i tā rātou mahi, ka whakahaere i ngā hoariri, kātahi ka noho puku anō. Heoi, ko te mea e tupu ana i roto i te tinana o te tangata e pāngia ana e te (Mastocytosis) ko te piki haere o ēnei (pūtau mast) me te kore e taea te whakahaere. Ina piki pēnei rātou, ka tukuna e ēnei pūtau he nui rawa te (histamine). Koinā te wā ka pāngia koe e te mate pāwera nui ahakoa ki te mea iti rawa, ina pāngia koe e te mate pāwera, he kino atu i te tangata noa, ā, ka roa ake te mau.

Ko te mea nui, ko te hunga katoa e pāngia ana e te Mastocytosis kei te nui ake te mōrearea o te anaphylaxis , he mate pāwera ohorere, kino, ā, ka morearea pea ki te ora . Nō reira, he mea nui kia mōhio ki tēnei.

Ahakoa kāore e taea e ngā tākuta te rongoā katoa i te Mastocytosis, ka taea e rātou te whakahaere i ngā tohu me te rongoā i ngā raruraru ka puta mai.

He aha ngā momo matua o te Mastocytosis?

E rua ngā momo matua o tēnei mate:

1. Te Mate Pukupuku Kiri: Ka pā tēnei ki ngā pēpi me ngā tamariki nohinohi . Heoi, ka pā anō hoki ki ngā pakeke. Ko te mea e tupu ana i konei ko te kohikohi o ngā "pūtau mast" rerekē ki roto i te kiri, ka puta he whero mākūkū, he whero pouri, he parauri, he pupuhi me he ira tae rerekē rānei. He rite ki te tamaiti nohinohi kua pāngia e ngā ira whero maha i tōna tinana, ā, ka rakuraku tonu ia i aua ira.

2. Mastocytosis Pūnaha: Ko tēnei momo ka kitea nuitia i roto i ngā pakeke.I konei, ka kohia ngā "pūtau mast" rerekē ki roto i ngā whekau o roto pērā i te hinu wheua, ngā wheua, tō tātou pūnaha nakunaku, me ngā pukahukahu. Whakaarohia, ki te nui rawa te kohi o ēnei pūtau ki roto i te hinu wheua, ka pā ki te hanganga o ō tātou pūtau toto. Waihoki, ki te nui haere ēnei pūtau i roto i te puku, ka taea e rātou te whakaputa i te nui rawa o te waikawa puku, ā, ka puta he mate puku.

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He mate noa tēnei?

Kāo, he tino onge tēnei mate. E ai ki ngā rangahau, kotahi anake i roto i te tekau mano (10,000) i roto rānei i te rua tekau mano (20,000) tāngata e pāngia ana e tēnei mate. Nō reira, he mea noa iho te kore e mōhiotia e te katoa.

He aha ngā tohu pea o te Mastocytosis?

I te pikinga rerekē o ēnei "pūtau mast", ka puta he maha ngā tohu. Ahakoa he tino ngawari ēnei tohu mō ētahi tāngata, ka kino pea mō ētahi atu.

• Mamae wheua: Te āhua nei kei te mamae ō wheua.
• Korere (mamae puku): Me haere tonu ki te wharepaku.
• Te hemo (pērā i te ngaronga o te mārama): Kātahi ka kikorangi ngā kanohi, ā, te āhua nei kua ngaro tō mārama.
• He āhua manukanuka me te wehi tonu: Te manukanuka, te kore take.
• Te whero: Te whero ohorere o te kiri puta noa i te tinana.
• Ngā pupuhi mākūkū, ngā ira rānei i runga i te kiri: E ai ki tā tātou i kōrero ai i mua.
• Ānini upoko: Ngā ānini upoko maha.
• Te whanoke i puta mai i te toto toto iti: He ahua whanoke ina tū ake koe i te tūnga tū.
• Mamae hononga: Mamae hononga.
• Ngā ira whero, parauri rānei i runga i te kiri: Tērā pea he mākūkū, kāore rānei.

I tehea tau ka tīmata te mastocytosis?

Ka rerekē i runga i te momo mate. I te nuinga o te wā:

• Te Mastocytosis Kiri: Ka pāngia pea ngā pēpi whānau hou e tēnei.
• Te Mastocytosis Pūnaha: Ko te nuinga ka pā ki ngā pakeke neke atu i te 50 tau te pakeke.

He aha te take mō tēnei?

Ehara te (Mastocytosis) i te mea i whānau mai ai tātou. Nā ngā whakarerekētanga ira i roto i ngā ira e kiia nei ko (ngā ira KIT). Ko ēnei (ngā ira KIT) he ira e āwhina ana i ētahi momo pūtau, pērā i ō tātou pūtau toto, (ngā pūtau mast), kia tipu. I roto i te (Mastocytosis), ka tukuna e ēnei (ngā ira KIT) kua whakarerekētia te tohu hē ki (ngā pūtau mast) kia "tipu nui rawa, kia tipu kore e taea te whakahaere."

He aha ngā mea e whakaoho ana i te mastocytosis?

Ka rerekē pea tēnei i ia tangata, i ia tangata. Kāore i te rite ngā mea e pā mai ana ki ia tangata. Heoi anō, tera ētahi mea ka whakanui ake i ngā tohu:

• Te mirimiri, te rakuraku rānei i te kiri: Ka pā anō hoki tēnei ki ētahi tāngata mā te mau noa i ngā kākahu piri.
• Te whakakori tinana me te nui rawa o te korikori tinana.
• Ngā wero, ngā ngau rānei a te pepeke:Tērā rawa ngā kararehe pērā i ngā pōpokorua, ngā wāpi, me ngā pī.
• Te inu waipiro.
• Ētahi kai: Tērā pea ko ngā kai raukikī, ngā kai tino kakara.
• Ētahi rongoā: Hei tauira, ngā rongoā whakamamae mamae e kiia nei ko ngā "NSAID" (ngā rongoā anti-inflammatory kore-steroidal), ngā rongoā whakangāwari uaua, me ngā rongoā whakangāwari "(anesthesia)".
• Ngā huringa ohorere o te pāmahana: He rite ki te peke ki roto i te wai tino makariri.
• Te ahotea tinana, te ahotea hinengaro rānei: He nui te pānga o tēnei ki te nuinga o te wā.

He aha ngā raruraru pea o te Mastocytosis?

Ka taea e tēnei mate te whakararu i ētahi atu raruraru hauora, tae atu ki:

• Osteoporosis: Ka ngoikore ngā wheua, ka ngawari hoki te whati.
• Ngā raruraru ate: He āhuatanga ka pupuhi te ate, ā, kāore e mahi tika.
• Cytopenia: Te korenga o te tinana ki te whakaputa i ngā pūtau toto e tika ana.
• Ngā mate pāwera auau.

Me pēhea te tautuhi i te Mastocytosis?

Ka pātai tō tākuta mō ō tohumate, ā, ka tirotirohia hoki tō kiri. Hei tāpiri, ka whakahaerehia pea e rātou ngā whakamātautau pēnei i:

• Ngā whakamātautau toto: Tirohia te taumata o tētahi whākōkī e kiia nei ko te "tryptase" i roto i tō toto. Ko tēnei "tryptase" he mea ka tukuna e ngā "pūtau mast" ina aro atu rātou ki ngā hoariri.
• Matawai wheua: Hei tirotiro mēnā kua pakaru te wheua.
• Kohikohi i te hinu wheua: Ka tangohia he tauira o te hinu wheua, ka tirohia mēnā he pūtau mast rerekē.
• Ngā whakamātautau ira: Mena kei a koe te Systemic Mastocytosis, ka taea te whakamātautau mō ngā whakarerekētanga ira i roto i ngā ira KIT.

He aha ngā maimoatanga mō te Mastocytosis?

He rerekē ngā kōwhiringa maimoatanga i runga i te momo mate me ō tohumate. He maha ngā wā ka whakamahia e ngā tākuta ngā rongoā me ētahi atu maimoatanga hei whakaora i ngā tohumate.

Ngā momo rongoā e whakamahia ana mō te Mastocytosis:

• Ngā antacids (ngā aukati H2) mō ngā raruraru puku: Mō ngā mea pēnei i te mumura o te puku me te gastritis.
• Ngā rongoā ārai mate pāwera: Whakaitihia ngā tohumate kiri mate pāwera pērā i te mākati me te whero.
• Ngā bisphosphonates mō te osteoporosis: Ka whakapakari i ngā wheua.
• Corticosteroids: Whakaiti i te pupuhi.
• Ngā paturopi monoclonal: inā koa ngā rongoā pēnei i te omalizumab (Xolair®).
• Rongoā mamae .

Ētahi atu maimoatanga:

• Te rongoā hihi ultraviolet (UV): Te whakaiti i ngā ira pouri o te kiri.
• Te rongoā kua arotahihia .
• Epinephrine mō te anaphylaxis:He maimoatanga ohorere mō te mate pāwera nui.
• Te rongoā matū: He tino onge tēnei, ā, ka hoatu anake mēnā ka huri te Mastocytosis hei matepukupuku.
• Te whakawhitinga pūtau take allogeneic (hinu wheua): Ka whakaarohia hoki tēnei i roto i ngā take tino kino, uaua o te mastocytosis. Kāore te nuinga o te tangata e hiahia ki tēnei.

He raruraru, he pānga taha rānei kei te rongoā?

Āe, pērā i ngā maimoatanga katoa, tera pea ētahi pānga taha ka puta mai i ngā maimoatanga mō te Mastocytosis. Ko ētahi he iti noa iho, ko ētahi he kino ake. Mena he Mastocytosis tōu, ka whakamāramahia e tō tākuta ngā maimoatanga e whiwhi ana koe me ngā pānga taha ka puta.

Ka taea te whakaora katoa i te Mastocytosis?

Ko te tikanga whānui, e kiia ana te Mastocytosis he mate e kore e taea te whakaora katoa, engari ka taea te whakahaere mā te whakahaere i ngā tohu me te rongoā i ngā raruraru .

Ko te maimoatanga anake pea hei whakaora i tēnei ko te "whakatō pūtau take allogeneic (hinu wheua)" kua whakahuatia ake nei. Heoi, ko tēnei anake e taunakitia ana mō ngā tūroro e pāngia ana e ngā mate tino kino me te uaua.

Ka kino haere te Mastocytosis i roto i te wā?

Ki te kore e rongoatia, ka kino haere ngā tohu i roto i te wā, inā koa i roto i te tangata e pāngia ana e te mastocytosis pūnaha , i te mea ka pā tonu ngā pūtau mast rerekē ki te hinu wheua me ngā whekau o roto.

Ka taea te ārai i te Mastocytosis?

Kāore, kāore. Nā te mea i puta mai i ngā whakarerekētanga ira o ngā ira KIT, kāore he huarahi hei ārai. Heoi, ki te mea he Mastocytosis tōu, ka taea e koe te whakahaere i ō tohu mā te mōhio ki ngā mea e whakaoho ana i ō uruparenga mate pāwera, me te karo i aua tohu i ngā wā katoa e taea ana.

Hei tauira, ki te mea he take tōu mō ētahi rongoā, he mea pai kia mau i tētahi poroporo whakatūpato hauora e whakarārangi ana i aua rongoā. Mā tēnei ka mōhio ētahi atu ko ēhea ngā rongoā kāore e tika kia tangohia e koe mēnā he āhuatanga ohorere.

Mena kei a koe te Systemic Mastocytosis, he mea nui kia mau tonu koe i tētahi ngira werohanga-ake kei roto ko te epinephrine. Ka taea tēnei te whakamahi hei rongoā i ngā mate pāwera kino, e morearea ana ki te ora pērā i te anaphylactic shock.

Me pēhea taku tiaki i ahau anō? (Mastocytosis) I a au e noho tahi ana me...

I te mea he mate kore e taea te rongoā katoa te Mastocytosis, me noho pea koe me tēnei mate mō tētahi wā. He uaua pea. Heoi, anei ētahi mea hei āwhina i a koe:

• Kia mōhio koe ki te mea e puta ai ō tohumate.He rerekē ngā mea e pāngia ai te katoa. Me tuhi pea he rātaka, ā, tuhia te wā i kino ake ai ō tohu, ngā mea i kainga e koe, i inuhia e koe, me ngā mea i mahia e koe i taua wā.
• Ka taea e te ahotea te whakararu i ēnei tohu. Mena kei te hiahia āwhina koe ki te whakahaere i te ahotea, pātai atu ki tō tākuta mō ngā kaupapa whakahaere ahotea. Tērā pea ka āwhina ngā mahi pēnei i te whakaaroaro me te yoga.
• Mauria he poroporo whakatūpato hauora. Me whakarārangihia tō āhua hauora me ngā rongoā kāore e tika ana kia tangohia e koe.
• Me mau tonu he ngira werohanga aunoa epinephrine. He mea whakaora pea tēnei mēnā ka pāngia koe e te mate pāwera nui.

Āhea ahau me toro atu ki taku tākuta?

Ka tirotirohia koe e tō tākuta i ia wā, i ia wā . Ka aroturukihia e rātou ō tohumate, ā, ka whakarerekētia tō maimoatanga mēnā e tika ana. Mēnā ka puta he tohumate hou, ka kino haere rānei ō tohumate, me kōrero tonu atu ki tō tākuta.

Āhea ahau me haere ki te Rūma Ohotata?

Mena he tino kino te mate pāwera e kore e taea te whakahaere mā te rongoā, haere tonu ki te rūma whawhati tata. Arā, ki te pāngia koe e ngā tohu pēnei i te uaua ki te manawa, te korokoro kikī, te whanoke nui, te ngaro rānei o te māramatanga.

He aha ngā pātai me pātai atu e au ki taku tākuta?

Mena kei a koe te Mastocytosis, he mea pai kia pātai atu koe ki tō tākuta i ēnei pātai:

• He aha te momo Mastocytosis kei a au?
• He aha ngā maimoatanga e wātea ana mō te momo kei a au?
• Ka whakakorea rawatia rānei aku tohu e te maimoatanga?
• He aha atu ngā tohu e tohu ana kei te kino haere tōku āhua?
• Me tango maimoatanga tonu ahau?
• Mena he kino rawa atu te āhua o taku mate, he aha te āhua o taku matapae?
• He whakamātautau haumanu kei reira ka taea e au te whakauru atu?

Hei whakamutunga, ngā mea hei maumahara (Karere hei tango ki te kāinga)

He mate onge te mastocytosis e puta ai te tipu rerekē, kāore e taea te whakahaere o ngā pūtau mast i roto i te tinana. Ka pā ki te kiri me ngā whekau o roto. Ka taea e te nuinga o te tangata te whakahaere i ō rātou tohu mā te tautuhi me te karo i ngā mea whakaoho me te tango rongoā. He mea nui hoki kia mau tonu he werohanga epinephrine hei rongoā i ngā mate pāwera kino.

Ahakoa he mate tēnei e kore e taea te whakaora katoa, mā te tohutohu me te maimoatanga hauora tika, ka taea e koe te whakahaere i ngā tohu me te noho i te oranga noa. Mena he pātai anō āu mō tēnei, kaua e mangere ki te kōrero ki tō tākuta. Mā rātou koe e āwhina.