He maha ngā wā ka pāngia koe e ngā mate pāwera me ngā ira whero me te mākūkū puta noa i tō tinana? Tērā pea he Mastocytosis tēnei!

He maha ngā wā ka pāngia koe e te whero, te mākūkū, ā, i ētahi wā ka pāngia koe e te ponana kino i tō tinana? He maha rānei ngā rā ka pāngia koe e te mate pāwera kino ahakoa ki tētahi mea iti rawa? Tērā pea ka whakaaro koe, "Kei te pāngia anō ahau e te mate pāwera." Heoi, i ētahi wā kei muri i ēnei tohu, tera pea he mate onge kāore anō kia rangona. Ko tētahi o aua mate ko te `(Mastocytosis)`. Ahakoa he ahua rerekē te ingoa, me kōrero noa iho.

He aha te Mastocytosis? He māmā noa iho...

Whakaarohia, kei roto i ō tātou tinana he pūtau e rite ana ki ngā kaitiaki haumaru iti. Ka karangatia rātou ko ngā "pūtau mast." Ko ēnei "pūtau mast" he wāhanga o tō tātou "pūnaha ārai mate ." He rite rātou ki ngā ope haumaru o tō tātou whenua. Ina uru mai ngā hoariri pēnei i ngā iroriki, ngā huakita, me ngā mate pāwera ki te tinana, ka puta mai ēnei "pūtau mast" ki mua ka whawhai.

Ina whakautu ēnei `(pūtau mast)` ki ngā hoariri, ka tukuna e rātou he matū e kiia nei ko `(histamine). Ko tēnei `(histamine)` te mea e puta ai ngā tohu mate pāwera i roto i tō tātou tinana (hei tauira, te mākūkū, te whero o te kiri, te pupuhi). Ka āwhina hoki ēnei `(pūtau mast)` ki te whakaputa waikawa i roto i te puku.

I te nuinga o te wā, ka mahi ēnei `(pūtau mast)` i tā rātou mahi, ka whakahaere i ngā hoariri, kātahi ka noho puku anō. Heoi, ko te mea e tupu ana i roto i te tinana o te tangata e pāngia ana e te `(Mastocytosis)` ko te piki haere o ēnei `(pūtau mast)` me te kore e taea te whakahaere. Ina piki pēnei rātou, ka tukuna e ēnei pūtau he nui rawa te `(histamine). Koinā te wā ka pāngia koe e te mate pāwera nui ahakoa ki te mea iti rawa, ina pāngia koe e te mate pāwera, he kino atu i te tangata noa, ā, ka roa ake te mau.

Ko te mea nui, ko te hunga katoa e pāngia ana e te Mastocytosis kei te nui ake te mōrearea o te anaphylaxis , he mate pāwera ohorere, kino, ā, ka morearea pea ki te ora . Nō reira, he mea nui kia mōhio ki tēnei.

Ahakoa kāore e taea e ngā tākuta te rongoā katoa i te Mastocytosis, ka taea e rātou te whakahaere i ngā tohu me te rongoā i ngā raruraru ka puta mai.

He aha ngā momo matua o te Mastocytosis?

E rua ngā momo matua o tēnei mate:

1. Te Mate Pukupuku Kiri: Ka pā tēnei ki ngā pēpi me ngā tamariki nohinohi . Heoi, ka pā anō hoki ki ngā pakeke. Ko te mea e tupu ana i konei ko te kohikohi o ngā "pūtau mast" rerekē ki roto i te kiri, ka puta he whero mākūkū, he whero pouri, he parauri, he pupuhi me he ira tae rerekē rānei. He rite ki te tamaiti nohinohi kua pāngia e ngā ira whero maha i tōna tinana, ā, ka rakuraku tonu ia i aua ira.

2. Mastocytosis Pūnaha: Ko tēnei momo ka kitea nuitia i roto i ngā pakeke.I konei, ka kohia ngā "pūtau mast" rerekē ki roto i ngā whekau o roto pērā i te hinu wheua, ngā wheua, tō tātou pūnaha nakunaku, me ngā pukahukahu. Whakaarohia, ki te nui rawa te kohi o ēnei pūtau ki roto i te hinu wheua, ka pā ki te hanganga o ō tātou pūtau toto. Waihoki, ki te nui haere ēnei pūtau i roto i te puku, ka taea e rātou te whakaputa i te nui rawa o te waikawa puku, ā, ka puta he mate puku.

He mate noa tēnei?

Kāo, he tino onge tēnei mate. E ai ki ngā rangahau, kotahi anake i roto i te tekau mano (10,000) i roto rānei i te rua tekau mano (20,000) tāngata e pāngia ana e tēnei mate. Nō reira, he mea noa iho te kore e mōhiotia e te katoa.

He aha ngā tohu pea o te Mastocytosis?

I te pikinga rerekē o ēnei "pūtau mast", ka puta he maha ngā tohu. Ahakoa he tino ngawari ēnei tohu mō ētahi tāngata, ka kino pea mō ētahi atu.

• Mamae wheua: Te āhua nei kei te mamae ō wheua.
• Korere (mamae puku): Me haere tonu ki te wharepaku.
• Te hemo (pērā i te ngaronga o te mārama): Kātahi ka kikorangi ngā kanohi, ā, te āhua nei kua ngaro tō mārama.
• He āhua manukanuka me te wehi tonu: Te manukanuka, te kore take.
• Te whero: Te whero ohorere o te kiri puta noa i te tinana.
• Ngā pupuhi mākūkū, ngā ira rānei i runga i te kiri: E ai ki tā tātou i kōrero ai i mua.
• Ānini upoko: Ngā ānini upoko maha.
• Te whanoke i puta mai i te toto toto iti: He ahua whanoke ina tū ake koe i te tūnga tū.
• Mamae hononga: Mamae hononga.
• Ngā ira whero, parauri rānei i runga i te kiri: Tērā pea he mākūkū, kāore rānei.

I tehea tau ka tīmata te mastocytosis?

Ka rerekē i runga i te momo mate. I te nuinga o te wā:

• Te Mastocytosis Kiri: Ka pāngia pea ngā pēpi whānau hou e tēnei.
• Te Mastocytosis Pūnaha: Ko te nuinga ka pā ki ngā pakeke neke atu i te 50 tau te pakeke.

He aha te take mō tēnei?

Ehara te `(Mastocytosis)` i te mea i whānau mai ai tātou. Nā ngā whakarerekētanga ira i roto i ngā ira e kiia nei ko `(ngā ira KIT)`. Ko ēnei `(ngā ira KIT)` he ira e āwhina ana i ētahi momo pūtau, pērā i ō tātou pūtau toto, `(ngā pūtau mast)`, kia tipu. I roto i te `(Mastocytosis), ka tukuna e ēnei `(ngā ira KIT)` kua whakarerekētia te tohu hē ki `(ngā pūtau mast)` kia "tipu nui rawa, kia tipu kore e taea te whakahaere."

He aha ngā mea e whakaoho ana i te mastocytosis?

Ka rerekē pea tēnei i ia tangata, i ia tangata. Kāore i te rite ngā mea e pā mai ana ki ia tangata. Heoi anō, tera ētahi mea ka whakanui ake i ngā tohu:

• Te mirimiri, te rakuraku rānei i te kiri: Ka pā anō hoki tēnei ki ētahi tāngata mā te mau noa i ngā kākahu piri.
• Te whakakori tinana me te nui rawa o te korikori tinana.
• Ngā wero, ngā ngau rānei a te pepeke:Tērā rawa ngā kararehe pērā i ngā pōpokorua, ngā wāpi, me ngā pī.
• Te inu waipiro.
• Ētahi kai: Tērā pea ko ngā kai raukikī, ngā kai tino kakara.
• Ētahi rongoā: Hei tauira, ngā rongoā whakamamae mamae e kiia nei ko ngā "NSAID" (ngā rongoā anti-inflammatory kore-steroidal), ngā rongoā whakangāwari uaua, me ngā rongoā whakangāwari "(anesthesia)".
• Ngā huringa ohorere o te pāmahana: He rite ki te peke ki roto i te wai tino makariri.
• Te ahotea tinana, te ahotea hinengaro rānei: He nui te pānga o tēnei ki te nuinga o te wā.

He aha ngā raruraru pea o te Mastocytosis?

Ka taea e tēnei mate te whakararu i ētahi atu raruraru hauora, tae atu ki:

• Osteoporosis: Ka ngoikore ngā wheua, ka ngawari hoki te whati.
• Ngā raruraru ate: He āhuatanga ka pupuhi te ate, ā, kāore e mahi tika.
• Cytopenia: Te korenga o te tinana ki te whakaputa i ngā pūtau toto e tika ana.
• Ngā mate pāwera auau.

Me pēhea te tautuhi i te Mastocytosis?

Ka pātai tō tākuta mō ō tohumate, ā, ka tirotirohia hoki tō kiri. Hei tāpiri, ka whakahaerehia pea e rātou ngā whakamātautau pēnei i:

• Ngā whakamātautau toto: Tirohia te taumata o tētahi whākōkī e kiia nei ko te "tryptase" i roto i tō toto. Ko tēnei "tryptase" he mea ka tukuna e ngā "pūtau mast" ina aro atu rātou ki ngā hoariri.
• Matawai wheua: Hei tirotiro mēnā kua pakaru te wheua.
• Kohikohi i te hinu wheua: Ka tangohia he tauira o te hinu wheua, ka tirohia mēnā he pūtau mast rerekē.
• Ngā whakamātautau ira: Mena kei a koe te Systemic Mastocytosis, ka taea te whakamātautau mō ngā whakarerekētanga ira i roto i ngā ira KIT.

He aha ngā maimoatanga mō te Mastocytosis?

He rerekē ngā kōwhiringa maimoatanga i runga i te momo mate me ō tohumate. He maha ngā wā ka whakamahia e ngā tākuta ngā rongoā me ētahi atu maimoatanga hei whakaora i ngā tohumate.

Ngā momo rongoā e whakamahia ana mō te Mastocytosis:

• Ngā antacids (ngā aukati H2) mō ngā raruraru puku: Mō ngā mea pēnei i te mumura o te puku me te gastritis.
• Ngā rongoā ārai mate pāwera: Whakaitihia ngā tohumate kiri mate pāwera pērā i te mākati me te whero.
• Ngā bisphosphonates mō te osteoporosis: Ka whakapakari i ngā wheua.
• Corticosteroids: Whakaiti i te pupuhi.
• Ngā paturopi monoclonal: inā koa ngā rongoā pēnei i te omalizumab (Xolair®).
• Rongoā mamae .

Ētahi atu maimoatanga:

• Te rongoā hihi ultraviolet (UV): Te whakaiti i ngā ira pouri o te kiri.
• Te rongoā kua arotahihia .
• Epinephrine mō te anaphylaxis:He maimoatanga ohorere mō te mate pāwera nui.
• Te rongoā matū: He tino onge tēnei, ā, ka hoatu anake mēnā ka huri te Mastocytosis hei matepukupuku.
• Te whakawhitinga pūtau take allogeneic (hinu wheua): Ka whakaarohia hoki tēnei i roto i ngā take tino kino, uaua o te mastocytosis. Kāore te nuinga o te tangata e hiahia ki tēnei.

He raruraru, he pānga taha rānei kei te rongoā?

Āe, pērā i ngā maimoatanga katoa, tera pea ētahi pānga taha ka puta mai i ngā maimoatanga mō te Mastocytosis. Ko ētahi he iti noa iho, ko ētahi he kino ake. Mena he Mastocytosis tōu, ka whakamāramahia e tō tākuta ngā maimoatanga e whiwhi ana koe me ngā pānga taha ka puta.

Ka taea te whakaora katoa i te Mastocytosis?

Ko te tikanga whānui, e kiia ana te Mastocytosis he mate e kore e taea te whakaora katoa, engari ka taea te whakahaere mā te whakahaere i ngā tohu me te rongoā i ngā raruraru .

Ko te maimoatanga anake pea hei whakaora i tēnei ko te "whakatō pūtau take allogeneic (hinu wheua)" kua whakahuatia ake nei. Heoi, ko tēnei anake e taunakitia ana mō ngā tūroro e pāngia ana e ngā mate tino kino me te uaua.

Ka kino haere te Mastocytosis i roto i te wā?

Ki te kore e rongoatia, ka kino haere ngā tohu i roto i te wā, inā koa i roto i te tangata e pāngia ana e te mastocytosis pūnaha , i te mea ka pā tonu ngā pūtau mast rerekē ki te hinu wheua me ngā whekau o roto.

Ka taea te ārai i te Mastocytosis?

Kāore, kāore. Nā te mea i puta mai i ngā whakarerekētanga ira o ngā ira KIT, kāore he huarahi hei ārai. Heoi, ki te mea he Mastocytosis tōu, ka taea e koe te whakahaere i ō tohu mā te mōhio ki ngā mea e whakaoho ana i ō uruparenga mate pāwera, me te karo i aua tohu i ngā wā katoa e taea ana.

Hei tauira, ki te mea he take tōu mō ētahi rongoā, he mea pai kia mau i tētahi poroporo whakatūpato hauora e whakarārangi ana i aua rongoā. Mā tēnei ka mōhio ētahi atu ko ēhea ngā rongoā kāore e tika kia tangohia e koe mēnā he āhuatanga ohorere.

Mena kei a koe te Systemic Mastocytosis, he mea nui kia mau tonu koe i tētahi ngira werohanga-ake kei roto ko te epinephrine. Ka taea tēnei te whakamahi hei rongoā i ngā mate pāwera kino, e morearea ana ki te ora pērā i te anaphylactic shock.

Me pēhea taku tiaki i ahau anō? (Mastocytosis) I a au e noho tahi ana me...

I te mea he mate kore e taea te rongoā katoa te Mastocytosis, me noho pea koe me tēnei mate mō tētahi wā. He uaua pea. Heoi, anei ētahi mea hei āwhina i a koe:

• Kia mōhio koe ki te mea e puta ai ō tohumate.He rerekē ngā mea e pāngia ai te katoa. Me tuhi pea he rātaka, ā, tuhia te wā i kino ake ai ō tohu, ngā mea i kainga e koe, i inuhia e koe, me ngā mea i mahia e koe i taua wā.
• Ka taea e te ahotea te whakararu i ēnei tohu. Mena kei te hiahia āwhina koe ki te whakahaere i te ahotea, pātai atu ki tō tākuta mō ngā kaupapa whakahaere ahotea. Tērā pea ka āwhina ngā mahi pēnei i te whakaaroaro me te yoga.
• Mauria he poroporo whakatūpato hauora. Me whakarārangihia tō āhua hauora me ngā rongoā kāore e tika ana kia tangohia e koe.
• Me mau tonu he ngira werohanga aunoa epinephrine. He mea whakaora pea tēnei mēnā ka pāngia koe e te mate pāwera nui.

Āhea ahau me toro atu ki taku tākuta?

Ka tirotirohia koe e tō tākuta i ia wā, i ia wā . Ka aroturukihia e rātou ō tohumate, ā, ka whakarerekētia tō maimoatanga mēnā e tika ana. Mēnā ka puta he tohumate hou, ka kino haere rānei ō tohumate, me kōrero tonu atu ki tō tākuta.

Āhea ahau me haere ki te Rūma Ohotata?

Mena he tino kino te mate pāwera e kore e taea te whakahaere mā te rongoā, haere tonu ki te rūma whawhati tata. Arā, ki te pāngia koe e ngā tohu pēnei i te uaua ki te manawa, te korokoro kikī, te whanoke nui, te ngaro rānei o te māramatanga.

He aha ngā pātai me pātai atu e au ki taku tākuta?

Mena kei a koe te Mastocytosis, he mea pai kia pātai atu koe ki tō tākuta i ēnei pātai:

• He aha te momo Mastocytosis kei a au?
• He aha ngā maimoatanga e wātea ana mō te momo kei a au?
• Ka whakakorea rawatia rānei aku tohu e te maimoatanga?
• He aha atu ngā tohu e tohu ana kei te kino haere tōku āhua?
• Me tango maimoatanga tonu ahau?
• Mena he kino rawa atu te āhua o taku mate, he aha te āhua o taku matapae?
• He whakamātautau haumanu kei reira ka taea e au te whakauru atu?

Hei whakamutunga, ngā mea hei maumahara (Karere hei tango ki te kāinga)

He mate onge te mastocytosis e puta ai te tipu rerekē, kāore e taea te whakahaere o ngā pūtau mast i roto i te tinana. Ka pā ki te kiri me ngā whekau o roto. Ka taea e te nuinga o te tangata te whakahaere i ō rātou tohu mā te tautuhi me te karo i ngā mea whakaoho me te tango rongoā. He mea nui hoki kia mau tonu he werohanga epinephrine hei rongoā i ngā mate pāwera kino.

Ahakoa he mate tēnei e kore e taea te whakaora katoa, mā te tohutohu me te maimoatanga hauora tika, ka taea e koe te whakahaere i ngā tohu me te noho i te oranga noa. Mena he pātai anō āu mō tēnei, kaua e mangere ki te kōrero ki tō tākuta. Mā rātou koe e āwhina.

` Mastocytosis, pūtau mast, histamine, mate pāwera, mate kiri, pūnaha ārai mate, anaphylaxis