Kei te wiriwiri tō mata me tō kauae i te koretake? Tērā pea he Meige Syndrome!

I ētahi wā ka rongo koe i te āhua o te wiriwiri, te nekeneke rānei o ngā uaua o tō mata, o ō kanohi, o tō kauae, o tō arero rānei, kāore koe i te mōhio? He mamae pea tēnei. Kāore e taea te whakahaere. Mena kua pā tēnei ki a koe, he mea nui kia mōhio koe ki te mate pūnaha io onge ka kōrerohia e tātou i tēnei rā, ko te Meige Syndrome te ingoa.

He aha rawa te Meige Syndrome?

He whakarāpopototanga noa iho, ko te Meige Syndrome he mate e pā ana ki tō roro me tō pūnaha io, ka puta ai ngā uaua e kore e taea te whakahaere (ngā uaua e pupuhi ana). Ka taea e tēnei te whakapūmau i ngā mea pēnei i tō kauae me te kati pūmau o ō kanohi. I ētahi wā ka haere tahi ēnei uaua me te mamae.

Ka pāngia tēnei āhuatanga e te nuinga o te wā:

• Ki ngā uaua o te pito o raro o tō mata
• Ki te kauae
• Ki te arero
• Ā, mō ngā kanohi .

Ko te Meige Syndrome he mate nō te rōpū mate e kiia nei ko te dystonia. Ko te Dystonia he ingoa i hoatu ki tētahi rōpū mate e puta ai ngā nekehanga uaua kāore e taea te whakahaere. Ka kiia hoki e ētahi tākuta ko te segmental cranial dystonia, ko te idiopathic blepharospasm-oromandibular dystonia syndrome rānei. Ahakoa he ahua uaua tēnei ingoa, ko te mea me mārama koe he mate nekehanga kāore e taea te whakahaere e pā ana ki ngā uaua o te mata me te kauae.

Ehara tēnei i te mea e kitea pinepinetia ana. Inaa, he mate onge te Meige Syndrome i roto i te wāhanga `(Dystonia)`.

He aha ēnei tohu? He aha te āhua o aua tohu?

Ka pāngia te nekehanga o tō mata me tō kauae e te Meige Syndrome. Tērā pea ka puta he āhua kanohi kāore e taea te whakahaere, kāore e taea te pupuri. Me titiro tātou ki ngā tohu tino kitea:

• Te whakapōuri o te kanohi
• E pōuri ana, e riri tonu ana te āhua
• Te pana whakamua o te kauae (tērā pea ka tupu tēnei ina koa i te wā e kōrero ana, e kai ana rānei)
• Te wiri o te kauae
• Mamae te kauae (mamae ohorere, koi, ka rite ki te werohanga a te maripi)
• He uaua ki te whakatuwhera, ki te kati rānei i te waha
• He mangai kua kōpiripiri
• Te ngau o ngā niho (bruxism) (Ka ngau ētahi tāngata i ō rātou niho i a rātou e moe ana, he rite tonu pea ki tēnā.)

Hei tāpiritanga, ka pāngia pea koe e ēnei momo kōpiripiri kore whakahaere (ngā kōpiripiri) i roto i tō arero, korokoro, me te ara manawa . Ina pāngia koe e ēnei momo kōpiripiri i roto i tō arero, ka uaua pea te kai, inā koa te horomi i ngā kai totoka. Waihoki, ki te pāngia koe e ēnei momo kōpiripiri i roto i tō ara manawa, ka uaua pea te manawa.Ki te uaua te manawa, me haere tonu koe ki te hōhipera tata, waea atu rānei ki te 1990.

Tērā atu anō ngā tohu e pā ana ki ngā kanohi:

• Te kimo o ngā kanohi i ngā wā maha, i ngā wā kāore e taea te whakahaere
• Mamae kanohi
• He uaua ki te pupuri i ngā kanohi kia tuwhera
• Ngā kanohi maroke, me te mea he kirikiri kei roto i ngā kanohi

I te tīmatanga, kotahi anake te kanohi ka pāngia e ēnei tohu, engari i roto i te wā, ka pāngia pea ngā kanohi e rua. I a koe e pakeke haere ana, ka nui haere, ka kino haere pea ēnei tohu. Ka uaua pea te kite nā te mea kāore e taea e koe te pupuri i ō kanohi kia tuwhera. Heoi, kāore tēnei e kino tika ki te mahi tirohanga o ngā kanohi. Ko te raruraru, kāore e taea e koe te pupuri i ō kanohi kia tuwhera.

He aha tēnei e tupu nei? He aha te take?

Kāore anō kia mōhiotia te tino pūtake o te Meige Syndrome . E whakapono ana ngā tohunga, tera pea nā te huinga o ngā āhuatanga ira (ngā huringa ohorere o te DNA i te wā o te kōpū) me ngā āhuatanga taiao (ngā mea e whakanui ake ana i ngā tohu).

E whakapono ana ētahi kairangahau ka pā tēnei āhuatanga ki tētahi wāhanga o te roro e kiia nei ko te basal ganglia. Mā tēnei wāhanga o te roro e whakahaere ngā nekehanga o tō tātou tinana. Nō reira, e whakapono ana rātou ina he tetahi mea i reira, ka puta pea ēnei nekehanga kore whakahaere.

He aha ngā mea ka pā kino atu ai ngā tohu?

Tērā ētahi āhuatanga i roto i tō taiao ka kino ake ai ngā tohu o te Meige Syndrome. Ka karangatia ēnei e mātou ko ngā 'mea whakaoho'. Koia ēnei:

• Mārama kanapa (Whakaarohia mēnā ka piki ake te kanapa o tēnei kare ā-whatu ina haere koe i waho i te rā paki, ina pā mai rānei ngā rama o te motuka ki ō kanohi i te pō...)
• Te ngenge
• ahotea
• Hau kaha
• Parahanga hau

Kāore ēnei mea e pā ana ki te katoa, engari he mea nui kia mōhio ki ēnei mea.

Tērā pea he hononga tēnei ki ētahi atu mate?

Ae, i ētahi wā ka puta te Meige Syndrome me ētahi atu mate. Ko ētahi o ēnei mate ko:

• Te mate a Parkinson: He mate nekehanga anō hoki tēnei e pā ana ki te pūnaha io. Ko ngā tohu matua ko te wiri, te puhoi o te nekehanga, te pakari o ngā uaua, te kore e pumau i te hikoi, me ngā raruraru ki te taurite me te taunga.
• Tardive dyskinesia: He āhuatanga anō hoki tēnei o te pūnaha io. Ka puta pea i te whakamahinga roa o ētahi rongoā mō te mate hinengaro, me ētahi rongoā mō ngā mate puku me ngā mate pūnaha io.
• Te mate Wilson: He āhuatanga ira tēnei e hua ai te hanga parahi i roto i te tinana. Ka taea e tēnei te mate ate me ngā nekehanga rerekē, kāore e taea te whakahaere.

Ko wai te mea tino mōrearea mō tēnei?

Ka pāngia te tangata katoa e te Meige Syndrome, engari e whakaatu ana ngā rangahau he nui ake te tūponotanga ka pāngia ngā wāhine e te mate i ngā tāne .

Ko te nuinga o te tangata ka kitea tēnei mate i waenga i te 40 me te 70 tau te pakeke. Heoi, he mea nui kia maumahara ka taea tēnei te pā ki ngā tau katoa.

He aha atu ngā raruraru ka pā mai i tēnei?

Ka taea e te Meige Syndrome te whakararu i ngā raruraru e whai ake nei:

• Ānini
• Te uaua ki te titiro (nā te kore e taea te whakatuwhera i ngā kanohi)
• Te kore kai pai (nā te uaua ki te horomi kai)
• Te pouri (ka arahi pea ki te pouri nā te mamae me ngā panoni o te āhua i puta mai i te mate)

Me pēhea te tautuhi a ngā tākuta i tēnei?

Mā te tākuta e tātaritanga te Meige Syndrome mā te tirotiro i a koe (whakamātautau tinana), te whakahaere i tētahi whakamātautau io, me te whakahaere i ngā whakamātautau (pēnei i ngā whakamātautau toto me ngā whakamātautau whakaahua) hei whakakore i ētahi atu mate he rite ngā tohu. Kāore he whakamātautau motuhake i tēnei wā hei tātaritanga i tēnei mate. Mā tō tākuta e whakatau te mate i runga i ō tohu.

He aha ngā maimoatanga?

Tērā pea ka tūtohu tō tākuta i ngā maimoatanga hei whakaora i ngā tohu o te Meige Syndrome, hei whakaroa rānei i te haere whakamua o te mate. Ko ētahi o ngā maimoatanga e whakamahia whānuitia ana ko:

• Ngā Rongoā: Ko ngā rongoā noa ko te clonazepam (Klonopin®), te trihexyphenidyl (Artane®), te diazepam (Valium®), me te baclofen (Lioresal®). Ka āwhina ēnei rongoā ki te whakaiti i te mamae o te uaua.
• Werohanga paitini botulinum (Botox®): Ka werohia e te tākuta tēnei werohanga ki roto i ngā uaua huri noa i ō kanohi me tō kauae. Ka ngoikore ngā uaua mō te wā poto, ā, ka whakaitihia te wiriwiri kore e taea te whakahaere. Me werohanga pea koe i ia toru marama, i runga rānei i ngā tohutohu a tō tākuta.
• Te whakaohooho roro hōhonu (DBS): He maimoatanga uaua ake tēnei. Ka mahi te DBS mā te whakakore i ngā tauira mahi rerekē i roto i te roro. I roto i tēnei tikanga, ka whakaurua e te tākuta he hiko whakarewa angiangi ki roto i tō roro, ka hono atu ki tētahi kaihanga pāorooro rorohiko kua whakatōkia ki raro i te kiri. Whakaarohia tēnei kaihanga pāorooro hei taputapu whakatere i roto i tō roro. I a koe e tirotirohia ana e tō tākuta, ka whakatikatikaina te taputapu hei āwhina i te whakahaere i ō tohumate.
• Te whakaora kōrero me te horomi: Ka taea e te whakaora kōrero te whakapakari i ngā uaua o tō kauae me te whakaiti i te kaha o tō reo pākiki. He āwhina anō hoki tēnei mēnā he uaua ki a koe te horomi.

He aha ngā mea ka taea e koe te mahi i te kāinga hei whakaiti i ngā tohumate?

Ko ētahi o te hunga e pāngia ana e te Meige Syndrome ka whakamahi i ngā mahi ngāwari ka taea e rātou te mahi i te kāinga hei āwhina i te whakaiti i ō rātou tohu. Ko ēnei mahi he aro anō ki te wāhanga o te roro e puta ai ngā tohu. Kei roto i ēnei:

• Kapia ngaungau
• Te ngaungau i te niho rākau
• Te pā ki ngā ngutu, ki te kauae rānei
• Te titiro ki raro

Hei tāpiritanga, ka taea hoki e koe te karo i ngā mea e whakaoho ana i te taiao pērā i te mārama kanapa me te hau kaha. Ka taea e koe te mahi i ngā mea pērā i te mau i ngā mōhiti kanohi me te whakawhāiti i tō pānga ki ngā rā hau nui.

He pānga taha kei te rongoā?

Pērā i ngā maimoatanga katoa, ka pā mai ētahi pānga taha ki ēnei maimoatanga, nō reira he mea nui kia kōrero koe ki tō tākuta i mua i te tīmatanga o te maimoatanga.

Hei tauira, ka taea e ētahi rongoā te whakararu i te hiamoe, te uaua ki te manawa, me te waha maroke.

Ka pā te mamae, te pupuhi, te marō i te wāhi i werohia ai, te ngoikore rānei o te uaua i ētahi wā nā ngā werohanga paitini botulinum (Botox®).

He ara hei ārai i tēnei?

Engari, kāore anō kia mōhiotia he huarahi hei ārai i te Meige Syndrome i tēnei wā. Heoi, mā te karo i ngā mea whakaoho – pērā i te mārama kanapa me te hau – ka āwhina i te whakaiti i te auau o ō tohumate.

He aha ngā mea ka taea e koe te tumanako i a koe e noho tahi ana me tēnei mate?

Ka pāngia tō āhua noho e te Meige Syndrome. He uaua pea te mahi i ngā mea ngāwari pēnei i te noho i raro i te rā, te taraiwa rānei me ngā matapihi tuwhera. Tērā pea ka whakama ētahi tāngata ki te noho tahi, ki te haere rānei ki ngā huihuinga nā te mea ka pāngia tō rātou āhua e ēnei uaua e te mamae.

I ngā wā pēnei, he tino āwhina te kōrero ki tētahi kaitohutohu hauora hinengaro . He mea nui kia kaha tonu te hinengaro, nā te mea ka uaua haere te whakahaere i ngā tohu i roto i te wā.

Ahakoa kāore he rongoā mō te Meige Syndrome, ka taea e te maimoatanga te āwhina i a koe ki te whakahaere i ō tohu me te haere tonu ki te mahi i ngā mea e pai ana ki a koe me te mahi i ō mahi o ia rā i ngā wā katoa e taea ana.

Kāore tēnei mate e pā tika ana ki tō roanga o te ora. Arā, ehara i te mate whakamate. Heoi anō, ka pā pea ki te kounga o tō oranga. Nō reira, kōrero ki tō tākuta mō ngā huarahi maimoatanga pai rawa atu hei whakahaere i ō tohumate.

Āhea koe me toro atu ki te tākuta?

Ki te pāngia koe e ngā pānga taha i muri i te maimoatanga, ki te kino haere rānei ō tohu i muri i te maimoatanga, kōrero ki tō tākuta. Ka taea e ia te āwhina i a koe ki te kimi i tētahi atu kōwhiringa maimoatanga e tika ana mōu me ō tohu.

Waihoki, ki te mea he uaua ki a koe te kai nā ngā tohu, me whakamōhio atu ki tō tākuta i te wā e taea ai i mua i te tīmatanga o te kore kai pai.

Mēnā he āhuatanga ohorere, arā, ki te uaua koe ki te manawa, waea atu ki te 1990 tonu atu, haere rānei ki te hōhipera tata.

He aha ngā pātai me pātai atu koe ki tō tākuta?

Ina kite koe i tō tākuta, he pai pea te pātai i ēnei pātai:

• Kei a au te Meige Syndrome, tētahi atu momo dystonia rānei?
• He aha te momo maimoatanga e taunaki ana koe?
• He aha ngā pānga taha o aua maimoatanga?
• He maimoatanga hou, he whakamātautau haumanu rānei mō tēnei?
• Kei te pāngia tōku whakaaro nui ki a au anō e aku tohu. Me kōrero ahau ki tētahi kaitohutohu hauora hinengaro ?

He aha te rerekētanga i waenganui i tēnei me ētahi atu mate nekehanga?

Ko te Meige Syndrome he momo dystonia e pā ana ki ō nekehanga. Tērā atu anō ngā āhuatanga e pā ana ki te nekehanga. Ētahi tauira:

• Te dystonia whakatuwheratanga kauae: He momo dystonia tēnei e pā ana ki te kauae. Kāore e puta ai te blepharospasm.
• Ngā mamae o te kanohi: Koinei te wā e wiriwiri ai ngā uaua katoa o te taha kotahi o te mata. Kāore ēnei i te mamae i te nuinga o te wā. Mō ētahi tāngata, mā te matawai MRI o te roro ka kitea pea kua pēhia te io o te mata.

He rite tonu te Mate Meige ki te Mate Meige?

Kāo. He rerekē ēnei āhuatanga e rua. I tapaina ēnei i muri i te tohunga roro Wīwī a Henri Meige, nō reira he ngāwari te pōhēhē. Ko te mate Meige he mate tuku iho o te pūnaha lymphatic. Ka puta te wai lymph i roto i ō peka.

Hei whakamutunga, he aha te mea hei mōhio

Ka taumaha rawa te tātaritanga mēnā kei a koe tētahi mate onge pērā i te Meige Syndrome, he mate e mamae ai, e kore e taea te whakahaere i ngā nekehanga o ngā kamo, te kauae, me te mata o raro. Tērā pea he maha āu pātai mō te pānga o ngā tohu ki a koe i te whanaketanga haere o te mate.

Engari kia maumahara, ahakoa kāore he rongoā mō te Meige Syndrome, kei reira ngā maimoatanga e wātea ana. Ka taea e tō tākuta te āwhina i a koe ki te whakahaere i ō tohu me te haere tonu ki ō mahi o ia rā i ngā wā katoa e taea ana. Nō reira, kia kaha, kia whai hoki i ngā tohutohu a tō tākuta.

Te mate Meige, te mate pūnaha io, te whakahekenga o ngā uaua, te wiri o te mata, te mamae o te kauae, ngā tohu o te kanohi