Kei a koe ēnei tohu? Me kōrero tātou mō te Multiple Sclerosis (MS)!

Kei te ahua ngoikore koe i ētahi wā, kei te pōuri rānei tō tirohanga? Kei te ahua ngoikore rānei koe i a koe e hikoi ana? Tērā ētahi wā ka whakaaro koe mēnā he mea noa iho ēnei mea, he tīmatanga rānei nō tētahi mea nui ake? I tēnei rā ka kōrero tātou mō tētahi āhuatanga uaua, engari he mea tino nui kia mōhio koe. Koia te Multiple Sclerosis , te MS rānei hei whakarapopototanga.

He aha te mate maha-sclerosis?

Ki te kī ngāwari, ko te sclerosis maha (MS) he āhuatanga e whakaekehia ai tō roro me tō taurakira e tō ake pūnaha ārai mate, arā, tō pūnaha io matua . Ka kiia tēnei he āhuatanga ārai mate .

Whakaarohia ngā io o tō tinana he waea hiko. He hipoki tiaki kei roto i ēnei waea, tika? Waihoki, he hipoki tiaki kei roto i ō tātou pūtau io e kiia nei ko te myelin . Mā ēnei hipoki myelin ka āwhina i ngā tohu kia tere, kia tika hoki te haere mā roto i ngā io. He mea nui tēnei whakawhitiwhiti kōrero mō ngā mea katoa e kitea ana, e pā ana, e nekehia ana hoki e ō tātou tinana.

Nā, ko te mea ka pā ki te tangata whai MS, ko tā rātou ake pūnaha ārai mate e whakaeke hē ana i ēnei pūtau myelin . He rite ki tā tātou ake ope taua e whakaeke ana i tō tātou ake whenua. Ka kino tēnei i ngā pūkahu myelin. Kātahi ka kore aua karere io e haere tika, ka mau ki waenganui, ka hē rānei te huarahi. Ka pā pea tēnei kino ki te roro, ki te taurakira, ā, i ētahi wā tae noa ki ngā io e hono ana ki ngā kanohi.

Kāore anō kia kitea he rongoā mō te MS i tēnei wā. Heoi, he maha ngā maimoatanga whai hua hei whakaiti i te kino me te whakahaere i ngā tohu. Nō reira kaua e manukanuka.

He aha ngā momo matua o te MS?

He rerekē te pānga o te MS ki te katoa, nō reira ka wehea e ngā tākuta kia maha ngā momo i runga i ō tohumate. Ehara ēnei i te mate rerekē, engari ko te āhua o te putanga mai o te mate.

E whā ngā momo matua:

1. Te Mate Motuhake Hauora (CIS): Koinei te wā tuatahi ka puta mai ai ngā tohu MS. Engari kāore i te nui ngā taunakitanga hei whakaū pono he MS. Nā te kino o te myelin ēnei tohu. Ehara i te katoa e pāngia ana e te CIS ka pāngia e te MS, engari ka pāngia pea ētahi e te MS ā muri ake nei.

2. Te Mate Pūkahukahu Maha e Hoki Mai Ana (RRMS): Koinei te momo MS tino noa . Tata ki te 85% o te hunga whai MS ka taka ki tēnei kāwai. Ko te mea ka tupu ko te puta ohorere mai o ngā tohu hou, ko te kino haere rānei o ngā tohu tawhito. Ka kiia tēnei he "hokinga mai anō" he "whakaeke" rānei . Kātahi, i roto i te wā, ka heke, ka ngaro katoa rānei ēnei tohu. Ka kiia tēnei he "whakamarietanga".Kua tae te wā.

3. Te Mate Pukupuku Maha Tuarua (SPMS): He maha ngā tāngata whai RRMS ka pāngia e te SPMS. I tēnei wā, ka piki haere te kino o te io, ā, ka kino haere ngā tohu. Tērā pea ka hoki anō ngā tohu, engari he poto ake ngā wā e memeha haere ana, e whakaora ana rānei i ngā tohu.

4. Te Mate Pukupuku Maha Tuatahi (PPMS): I tēnei momo, ka kino haere ngā tohu mai i te tīmatanga. Kāore he hokinga mai me te murunga mārama pērā i te RRMS.

Haunga ēnei momo matua e whā, he maha ngā momo tino onge o te MS:

• Te Tumefactive Multiple Sclerosis: He momo sclerosis maha tēnei e puta ai te demyelination i ngā wāhi nui o te roro. Tērā pea he rite ēnei ki ngā pukupuku. Tērā pea me whai koiora hei whakatau mēnā he pukupuku roro tēnei.
• Te Sclerosis Porowhita a Balo: I tēnei āhua, ka rite te kino o te myelin ki ngā mowhiti porowhita i runga i te matawai MRI, nō reira te ingoa.
• Marburg Variant Multiple Sclerosis: He momo MS tino onge, he kino hoki tēnei. Ka tere te whanake o ngā tohu, ā, ka mate pea mēnā kāore e rongoatia.

He pēhea te noa o te MS?

E whakaatu ana ngā rangahau i mahia i ngā whenua pēnei i te Hononga o Amerika e tata ana ki te miriona ngā pakeke e noho ana me te MS. He tāngata anō hoki kei Sri Lanka e pāngia ana e tēnei mate.

He aha ngā tohu tōmua o te MS?

Ko ngā tohu tuatahi o te MS ka uru atu ki:

• Ngā huringa tirohanga: Te pōuri o te tirohanga i te kanohi kotahi, te mamae (e kiia ana tēnei ko te optic neuritis ), te tirohanga takirua, me te ngaro pea o te tirohanga.
• Ngoikoretanga uaua: I te nuinga o te wā ka pā ki tetahi taha o te mata, o te tinana rānei, i raro iho rānei i te hope.
• Te ngenge, te āhua rerekē rānei o te ngākau: Ka pā pea tēnei ki te taha kotahi o te mata, o te tinana rānei, ki raro rānei i te hope. Ka rite ki te ngenge, ka rite rānei ki te kore noa iho.

He aha atu ngā tohu o te MS?

Anei ētahi atu tohu noa ka puta mai i te MS:

• Ngenge: Ehara i te ngenge noa iho, engari he ngenge nui rawa atu, he tino taumaha rawa.
• Te koretake
• Pōuriuri
• Te uaua ki te whakahaere i te mahi a te pūhā: te mimi pinepine, te kore e taea te whakahaere i te mimi.
• Te ngaronga o te taurite me te taunga
• Ngā uauatanga o te mahi hinengaro:Ko te tikanga o tēnā he hekenga o te whakaaro, te mahara, te aro, te ako, me te whakatau.
• Ngā huringa o te wairua: te riri, te pouri, te manukanuka.
• Te pakari o te uaua me te māuiui/te wiri o te uaua

Ko te mea nui, he rerekē ēnei tohu i ia tangata, i ia tangata. Tērā pea he rerekē te mea ka pā ki a koe i tētahi rā i tō te rā e whai ake nei. Tērā pea he maha ō ēnei tohu, engari kāore e puta katoa i te wā kotahi.

Ka taea te noho noa me te MS?

He uaua tēnei ki te kī, nā te mea he rerekē te mea "noa" i ia tangata, i ia tangata. Mēnā he MS, ka taea e koe te whai wā e marino ai . Arā, he wā e ngaro atu ai ō tohumate, ā, ka taea e koe te noho rite tonu ki tō mua. Tērā pea ka wareware koe kei a koe te MS, kia hoki mai rā anō ō tohumate. Ka rerekē te āhua o tēnei "noa", me te nui o tōna āhua, i runga i te momo MS me te wāhanga o te mate.

He aha ngā take o te MS?

Ko te tino take o te MS ko te whakangaromanga o te myelin (demyelination) . E ai ki tā tātou i kōrero ai i mua, ko te myelin te hipoki tiaki e karapoti ana i ngā pūtau io (neurons) i roto i tō roro me tō taurakira. Koinei te mea e tuku karere ana i waenga i tō roro me te toenga o tō tinana, e whakahaere ana i ngā mea pēnei i te tirohanga, te rongo, me te nekehanga.

Ko te mahi a tō pūnaha ārai mate he tiaki i a koe mai i ngā mea kino ki tō tinana, pērā i te huakita me ngā huaketo. Engari i roto i te MS, ka kaha rawa te mahi a tō pūnaha ārai mate, ā, ka whakaaro hē koe he mōrearea te myelin hauora (me ngā pūtau io i raro iho i ētahi wā). Ina whakaekea e te pūnaha ārai mate tēnei myelin hauora, ka pakaru. Ka kiia tēnei ko te demyelination .

Ka taea e te tākuta te whakamahi i tētahi whakamātautau whakaahua, pērā i te MRI, hei kimi i ngā tohu o tēnei pakaru o te myelin. Tērā pea ka kiia he koha, he whara, he papa rānei . Ina pakaru te myelin, kāore e tika te haere o ngā karere i waenga i ngā pūtau io. Koinei te take o ngā tohu o te MS.

Kāore anō kia tino mōhiotia e ngā tohunga he aha i pāngia ai ētahi tāngata e te MS, engari e kī ana ngā rangahau ka piki ake pea te tūponotanga o te pāngia e te MS i ēnei mea:

• Te momi hikareti
• Te pānga ki ngā paitini: Hei tauira, te pānga ki te auahi tuarua, ngā patupatu pepeke.
• Ngā taumata iti o te huaora D
• Te pānga ki tētahi huaketo: Hei tauira, te huaketo Epstein-Barr , te mononucleosis rānei.
• Te momonatanga i te wā tamarikitanga
• Te āheinga ira:Ko te tikanga tēnei, mēnā kei roto i tō whānau tēnei mate, kei a koe rānei ngā ira e whakararu ana i a koe ki te whakawhanake i te mate, ka nui ake te tūponotanga ka pāngia koe e tēnei mate.

Ko wai kei te nui ake te mōrearea ki te whakawhanake i te MS?

Tērā pea ka nui ake tō tūponotanga ki te whakawhanake i te MS mēnā:

• Mena kei waenganui i te 20 me te 40 tau tō pakeke.
• Mena he uri tōu nō te Tai Tokerau o Ūropi .
• Mena he wahine koe (he nui ake te tūponotanga ka pāngia ngā wāhine e te MS).

Engari kia maumahara, ka pāngia te tangata e te MS. I ētahi wā onge, ka pāngia hoki ngā tamariki .

He aha ngā raruraru ka puta mai i te MS?

Mena ka kino haere ngā tohu o te MS, ka kino haere rānei, ka puta ngā raruraru pēnei i:

• Te uaua ki te hikoi me te kore he āwhina.
• Te ngaronga o te mana whakahaere i te puku, i te pūhā rānei .
• Te ngaronga o te mahara .
• Te ngoikore o te moepuku .
• Te pouri me te manukanuka .

Me pēhea te tautuhi i te MS?

Kāore he whakamātautau kotahi hei tautuhi i te MS. Engari, ka whakatau te tākuta kei a koe te MS i muri i te whakahaere i tētahi whakamātautau tinana, i tētahi whakamātautau io, me ētahi atu whakamātautau .

I te wā o te whakamātautau, ka ako tō tākuta i ētahi atu kōrero mō ō tohu me tō hītori hauora. Tērā pea kei roto i ngā whakamātautau he whakamātautau toto, he matawai MRI (Magnetic Resonance Imaging) o tō roro me tō taurakira, me te tirotiro i te wai o tō taurakira .

Tērā pea ka roa te wā ki te whakatau i te mate MS. Me toro atu pea koe ki tō tākuta i ētahi wā i mua i tō mōhio pono. Nā te mea he rite tonu ngā tohu o te MS ki ērā o ētahi atu mate noa. Ahakoa he mea whakarihariha te whakaroa i te tātaritanga, mā te whiwhi tātaritanga tika ka āwhina i tō tākuta ki te rongoā tika i ō tohu.

He aha ngā whakamātautau e whakamahia ana hei tautuhi i te MS?

Mā ngā whakamātautau tātaritanga ka āwhina tō tākuta ki te whakakore i ētahi atu mate e rite ana ngā tohu ki te MS. Kei roto pea i ngā whakamātautau:

• Ngā whakamātautau toto me ngā whakamātautau mimi
• Whakamātautau Whakaahua Āhua Aukume (MRI)
• Whakamātautau Tomography Taurite Whatu (OCT): Ka tirohia tēnei mō ngā pakaru o ngā io whatu.
• Werohanga Lumbar: I roto i tēnei mahi, ka tangohia he tauira o te wai tuaiwi mai i te tuaiwi, ā, ka tirotirohia.
• Whakamātautau Pūmanawa Whakaoho (EP): E ine ana tēnei i te tere o te haere o ngā akiaki io.

Ko wai ka tātaritanga i te MS?

Ki te whakapae tō kaiwhakarato tiaki tuatahi kei a koe te MS, ka tukuna koe e rātou ki tētahi tākuta roro . Ko te tākuta roro he tākuta e tohunga ana ki te rongoā i ngā mate o te pūnaha io, tae atu ki te roro me te taurakira.

Ka taea te whakaora katoa i te MS?

Engari, kāore anō kia kitea he huarahi hei rongoā katoa i te MS i tēnei wā.

He aha ngā maimoatanga mō te MS?

Ko ngā whāinga matua o te maimoatanga o te mate maha-sclerosis he whakaiti i ngā kino atu, te whakahaere i ngā tohu, me te ārai i ngā raruraru . Tērā pea kei roto i tō mahere maimoatanga:

• Ngā rongoā
• Te whakaora tinana, te whakaora mahi, te whakaora kōrero rānei
• Te tohutohu hauora hinengaro

He rerekē ētahi atu huarahi hei whakahaere i ngā tohumate i runga i te pānga o te mate ki a koe. Tērā pea ko ēnei:

• Te mau mōhiti, te tango rongoā rānei mō ngā raruraru tirohanga.
• Te whakaohooho hohonu i te roro mō ngā wiri o ngā uaua.
• Te whakamahi i ngā taputapu āwhina pēnei i te tokotoko, te kaiārahi hikoi, te tūru wīra rānei mō ngā uauatanga hikoi.
• Ngā rongoā ārai-hōhā , ngā rongoā ārai-pāpaku rānei hei whakaora i te mamae (hei tauira , gabapentin , nortriptyline rānei).
• Ngā rongoā pēnei i te donepezil mō ngā tohumate hinengaro.
• Ngā maimoatanga rerekē pērā i te wero ngira me te yoga .

Ki te kore tō tinana e aro pai ki ētahi rongoā i te wā o te whakaekenga MS, ka tūtohu pea tō tākuta i te whakawhiti plasma (plasmapheresis) . He pai ake tēnei ki te whakaiti i te kino o tētahi whakaeke o nāianei i te aukati i ngā whakaeke anō i te wā roa.

Ka taea hoki e koe te kōrero ki tō tākuta mō ngā whakamātautau haumanu ka taea e koe te whai wāhi atu. Ko ngā whakamātautau haumanu he whakamātautau i ngā tāngata hei kimi maimoatanga hou mō te MS me ētahi atu mate, he rongoā hou, he huarahi hou rānei hei whakamahi i ngā rongoā o nāianei.

Ngā rongoā mō te sclerosis maha

Ka taea e ngā rongoā mō te mate maha-sclerosis te whakaiti i te auau o te hokinga mai o te mate, te whakaiti i te whanaketanga o ngā whara/kohatu hou i roto i te roro me te taurakira, me te whakaroa i te haere whakamua o te mate. Ko ngā momo rongoā tino noa mō te MS ko:

1. Ngā Maimoatanga Whakarerekē Mate (DMT):Ka whakaitihia e ngā DMT te maha o ngā hokinga mai o te MS, ka whakaroa i te haere whakamua o te MS, ā, ka ārai i te hanganga o ngā whara hou i roto i tō roro me tō taurakira. He maha ngā rongoā kua whakaaetia e te U.S. Food and Drug Administration (FDA) mō te maimoatanga roa o te MS.

2. Ngā rongoā whakahaere hokinga whakamuri: Mō ngā whakaekenga kino, ka pehia e ngā rongoā pēnei i te corticosteroids (pēnei i te methylprednisolone ) tō pūnaha ārai mate, ā, ka tere te whakaiti i te pupuhi. Ka taea e ēnei rongoā te tere ake i tō wā whakaora i muri i te whakaekenga. Ka whakaitihia hoki e rātou te kino o te pukupuku myelin e karapoti ana i ō pūtau io. Ka hoatu pea e tō tākuta ēnei rongoā ki a koe mā te IV (i roto i te uaua) . Ko ētahi atu maimoatanga poto mō ngā whakaekenga kino ko te rongoā immunoglobulin IV , te whakawhiti plasma rānei.

Ngā DMT mō te MS

Anei ngā DMT e whakamahia whānuitia ana mō te MS me ā rātou tikanga whakahaere:

• Ngā werohanga ki roto i tō kiri: Beta interferon, glatiramer acetate, ofatumumab rānei.
• Ngā werohanga ki roto i te uaua (IV): Alemtuzumab, natalizumab, rituximab, ocrelizumab, ublituximab rānei.
• Ngā rongoā ā-waha: Cladribine, dimethyl fumarate, diroximel fumarate, monomethyl fumarate, fingolimod, siponimod, ponesimod, ozanimod, te teriflunomide rānei.
• Te whakawhitinga pūtau take

Ka taea te ārai i te mate maha-sclerosis?

Kāore anō kia mōhiotia he huarahi hei ārai i te MS i tēnei wā.

Me pēhea te whakaiti i te pikinga ake o ngā tohu o te MS?

Ko te huarahi tino whai hua ki te whakaiti i te maha o ngā putanga mai o te mate, te hokinga mai o te mate, me ngā whakaekenga, ko te tango i ngā rongoā whakarerekē-mate (DMT) .

He mea nui anō hoki kia ora i te oranga hauora . Mā ngā whakatau ka mahia e koe ka āwhina i te whakaroa i te whanaketanga o te mate. Hei pupuri i te hauora, ka tūtohu pea tō tākuta i ēnei e whai ake nei:

• Te kai i ngā kai whai kiko.
• Te moe nui.
• Te whai wāhi ki ngā mahi ā-tinana auau.
• Te kore e whakamahi i ngā hua tupeka.

He uaua pea te hinengaro ki te aro atu ki tētahi mate pūmau. I ētahi wā, ka pāngia tō wairua me tō mahara e te MS. He tohunga hinengaro roro , he kaiwhakatakoto whakaaro hauora hinengaro rāneiHe mea nui te mahi tahi hei whakahaere i te mate mō te wā roa.

He aha te tirohanga mō te MS?

He mate mō te wā roa te mate maha-sclerosis, kāore he rongoā . Heoi, he tino whai hua ngā kōwhiringa maimoatanga o nāianei ki te whakahaere i ngā tohu me te whakaiti i te auau o ngā putanga mai o te mate. Ahakoa he maimoatanga, ahakoa kāore he maimoatanga, ka taea e te MS te ngoikore i roto i te wā, ka uaua ki te mahi i ngā mahi o ia rā me te kore āwhina. Kei reira tō tīma tiaki hei tautoko i a koe puta noa i tō haerenga MS, me te mahi i ngā mahi hei ārai i ngā raruraru me te whakapai ake i te kounga o tō oranga.

Ka pāngia tō roanga o te oranga e te mate maha-sclerosis?

Ka taea e koe te tumanako ka ora noa koe me te MS. Ahakoa i whakaatuhia e ngā rangahau tawhito ka taea e te MS te whakapoto i tō roanga oranga mā te 10 tau pea, kua tino pai ake tēnei me te whanaketanga o ngā kōwhiringa maimoatanga. I roto i ngā wā tino onge ka mate te MS.

Ka taea e te tangata whai MS te noho i te oranga noa?

Ae. He uaua te tātaritanga me te whakahaere i te MS, engari mā tō rōpū tiaki koe e āwhina i ia taahiraa o te ara. Ahakoa kāore he rongoā, ka taea e koe te noho ora whai hua me te hihiko me te MS. Mai i ngā rongoā ki te whakaora, he huarahi hei āwhina i a koe ki te whakanui ake i tō mahi tinana me tō hinengaro. He rōpū tautoko anō hoki hei āwhina i a koe ki te hono atu ki ētahi atu kua pāngia e ngā wheako rite.

Āhea koe me toro atu ki te tākuta?

Me toro atu koe ki te tākuta mēnā ka pāngia koe e ēnei tohu:

• Te tino pāngia e te wera.
• Ki te mea kei te pōrearea koe, kei te taurite rānei.
• Te uaua ki te maumahara ki ngā mea.
• Ina koa mēnā he māuiui, he wiri rānei ō ringaringa, ō waewae rānei.
• Ngā panonitanga ohorere o te tirohanga.
• Mena ka rongo koe i te ngoikore o ō ringaringa, o ō waewae rānei.

Mena kei a koe te MS, ā, ka puta ake ngā tohu hou, ka kino haere rānei ngā tohu o nāianei, me kōrero ki tō tākuta.

He aha ngā pātai me pātai atu koe ki tō tākuta?

Ka hiahia pea koe ki te pātai atu ki tō tākuta i ēnei pātai:

• He aha te momo maimoatanga e taunaki ana koe?
• Kia pēhea te auau o taku haere ki te whakaora tinana?
• He pānga taha kei ngā rongoā i tohua e koe?
• Āhea, ā, kia hia te auau me tango e au te rongoā?
• He aha ngā tohu me tirotiro e au?
• Ka taea e koe te tuku tohutohu mō te pupuri i te hauora pai?
• He rōpū tautoko kei reira ka taea e koe te taunaki?

Karere Tangohia ki te Kāinga

He mate whakarihariha, he mate morearea hoki te mate maha-sclerosis (MS). Ka puta ohorere mai ngā tohu, ā, ka kino haere. Ka taea hoki e te MS te whakanui ake i te tūponotanga ka pāngia koe e ngā aituā mena ka ngaro tō taurite.

Engari, ehara i te mea ko koe anake. Ka taea e te tākuta te āwhina i a koe ki te whakahaere i te āhua me te haere tonu i ō mahi o ia rā me te haumaru. I te whanaketanga o te mate, me hanga pea e koe he huringa iti ki tō momo noho, pēnei i te whakamahi i te āwhina hikoi, te mau rānei i ngā mōhiti. Engari he maha ngā tāngata whai MS e ora ana i ngā oranga tino ora me te kaha me te āwhina a tā rātou tīma tiaki. Mena he pātai āu mō ō whiringa maimoatanga, tohumate, raruraru rānei hei tirotiro māu, kaua e mangere ki te pātai ki ō tākuta. Ko te mōhio me te whiwhi tautoko tika te huarahi pai ki te ora angitu me te MS.

` Mate Maha, MS, Mate Pūnaha Hinengaro, Myelin, Roro, Taura Tuaiwi, Ngā Tohu, Te Maimoatanga, Mate Pūnaha Ārai Mate, Mate Maha