Ina kī mai tō tākuta kei a koe tētahi mate e kiia nei ko te Primary Biliary Cholangitis ( PBC ), tera pea ka mataku koe. He mea noa tēnā. E mōhio ana tātou ehara i te mea ngāwari te noho me tētahi mate pēnei mō te wā roa. He māmā noa iho, he mate tēnei e kino ai ngā awaawa o tō ate. Kāore anō kia kitea he rongoā, engari kaua e manukanuka. He maha ngā maimoatanga me ngā rongoā pai e wātea ana i ēnei rā hei āwhina i a koe ki te whakahaere i tēnei mate, te whakaiti i ngā tohu, me te noho i tētahi oranga pai ake.
He aha te pānga o tēnei āhuatanga PBC ki tō oranga?
Ka pāngia tō oranga me ō mahi o ia rā e ngā tohu o te PBC. Whakaarohia te oho ake i te ata me te mamae o ō ringaringa, o ō waewae me ō hononga. Me te mea kāore e taea e koe te mahi i ngā mahi o te whare, i ngā mahi o te māra rānei. Mō ētahi tāngata, ka uaua pea te mahi tika i ā rātou mahi nā tēnei mate, ā, ka uaua hoki te kimi wā mō ngā mahi whakangahau .
Kua kitea e ngā rangahau, ahakoa i mua i te kaha haere o te PBC, ka pā nui pea ngā tohu pēnei i te mamae o ngā hononga me te ngenge ki te oranga o te tangata. Ko te tikanga o tēnei, ka pā nui pea tēnei mate ki tō oranga o ia rā, ki ō whanaungatanga ki te whānau, me tō mahi.
Engari ko te mea nui, kāore koe e hiahia ki te whawhai ko koe anake ki ēnei tohumate. He maha ngā huarahi hei whakahaere i aua tohumate.
He aha ngā maimoatanga mō te PBC?
He maha ngā whāinga matua o te rongoā i te PBC.
- Te aukati, te whakaroa rānei i te whanaketanga o te mate.
- Te whakahaere i ngā tohu (pēnei i te mākati , te ngenge, te mamae o ngā hononga).
- Te ārai i ētahi atu raruraru hauora ka puta mai i te mate.
Ko te nuinga o tēnei mahi he rongoā . Me huri anō hoki tō āhua noho . I ngā wā tino kino, ko te tikanga kua tino pakaru te ate ( cirrhosis ate).), me whai wāhi pea koe ki te whakawhitinga ate. Engari ko te nuinga o te tangata kāore e hiahia ana ki tēnei. Ka taea te whakahaere pai i te mate mā te maimoatanga tika.
Ko te mea nui ko te whakatau a tō tākuta i te mahere maimoatanga e pai ana mōu. Nō reira, he mea nui rawa kia kōrero noa atu koe ki a ia mō tēnei mea, me te kī atu ki a ia te mamae e pā ana ki a koe.
Ngā momo rongoā matua e whakamahia ana hei whakahaere i te PBC
He maha ngā momo rongoā ka taea te hoatu hei whakahaere i te PBC me te whakaiti i te kino o te ate. Mā tō tākuta e whiriwhiri te mea e tika ana māu. Me titiro poto tātou ki ēnei rongoā.
| Ingoa Rongoā | He aha te tikanga o tēnei? |
|---|---|
| Waikawa Ursodeoxycholic (UDCA) (Actigall, Urso) | Koinei te rongoā tuatahi e hoatu ana. Mā te mahi ka māmā ake te neke o te au i roto i te ate. Ka whakapai ake tēnei i te mahi a te ate, ā, ka whakaiti i te kino o te ate (te whara). |
| Waikawa Obeticholic (Ocaliva) | I ētahi wā ka hoatuhia tēnei rongoā me te UDCA, ki te hunga rānei kāore e aro ki te UDCA. Ka whakapai ake hoki tēnei i te mahi ate, ā, ka whakaiti i te kino o te ate. |
| Budesonide | Kua kitea he pai ngā hua mō ētahi tūroro ina honoa ki te UDCA, engari kei te rangahauhia tonutia tōna haumaru mō te wā roa. |
| He momo rongoā e kiia nei ko ngā PPAR Agonists | |
| Elafibranor (Iqirvo) | Ka whakaitihia e tēnei rongoā te nui o te au e whakaputaina ana i roto i te tinana, ā, ka āwhina anō hoki ki te whakaiti i te mumura i roto i te ate. |
| Fenofibrate (Tricor) | Ina tangohia me te UDCA, kua kitea he āwhina ki te whakaiti i te pupuhi o te ate me te mākūkū o te kiri. Ahakoa kua tohua tēnei rongoā mō ētahi atu mate, ka whakamahia anō hoki e ngā tākuta mō ngā tūroro PBC. |
| Seladelpar (Livdelzi) | Ka whakaitihia hoki te nui o te au e whakaputaina ana e te ate. Ka āwhina hoki ki te whakaiti i te taumata o te whākōkī e kiia nei ko te alkaline phosphatase (ALP) i roto i te toto. Ko te pikinga o te ALP he tohu kei te kino haere te mate ate. |
Ehara i te mea ko te rongoā anake, engari he mea nui anō hoki ngā huringa o te momo noho!
Ae, he wāhanga noa iho o te pakanga te rongoā. Mā te hanga i ngā huringa iti ki tō momo noho ka nui te āwhina ki te whakahaere i ngā tohu me te pupuri i tō hauora whānui.
- Kai taurite: Me karo i ngā kai he nui te tote, te huka, me te ngako i ngā wā katoa e taea ana. Tāpirihia he huawhenua, he hua rākau, me ngā witi katoa ki roto i tō kai.
- Kati rawa te inu waipiro: He paitini te waipiro ki te ate. Mena he PBC tōu, me kati rawa te inu waipiro . He mea nui tēnei.
- Whakakorikori Tinana: He mea pai kia pātai atu ki tō tākuta mō tētahi mahi whakakorikori tinana māmā (pēnei i te hikoi, i te yoga rānei) e tika ana māu i ia rā. Mā tēnei ka āwhina i te whakaiti i te ngenge me te whakapiki i te ngāwari o ngā hononga.
- Kia nui te okiokinga: Ko tētahi o ngā raruraru nui o te PBC ko te tino ngenge. Nō reira, whakarongo ki tō tinana. Ki te ngenge koe, me okioki. I a koe e whakamahere ana i tō rā, whakaritea he wā mo te okiokinga.
- Ngā rongoā mō te kiri mākūkū: Ki te mākūkū tō kiri, kaua e waiho kia maroke. Whakamahia he hinu whakamakuku. Kaua e kaukau i te wai wera. Kōrero ki tō tākuta mō tēnei mea.
Karere Tangohia ki te Kāinga
- Ahakoa he mate ate roa te Primary Biliary Cholangitis (PBC), mā te maimoatanga tika ka taea te whakahaere pai, ā, ka taea e koe te noho i te oranga noa.
- He mea tino nui kia tangohia te rongoā e tohua ana e tō tākuta kia tika, i te wā tika, me te horopeta tika. Kaua e mutu te tango i te rongoā i waenganui.
- Haunga te rongoā, mā te kai i tētahi kai taurite, te whakamutu rawa i te waipiro, me te mahi i ngā mahi whakakori tinana māmā ka tino āwhina i tō oranga.
- Kaua e wehi ki te kōrero ki tō tākuta mō ngā tohumate, ngā mamae rānei e pāngia ana e koe. Māna koe e āwhina.
- Kāore koe i te mokemoke i tēnei haerenga. Kei a koe te whānau, ngā hoa, me ngā tākuta hei tautoko i a koe.
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