He whēwhe kei roto i tō tuaiwi? (Syringomyelia) Me ako tātou mōna.

Ka pāngia koe e te mamae o te tuara i ētahi wā, te ngoikore o ō ringaringa, te uaua rānei ki te hikoi? Ki tā ētahi he mea noa ēnei, engari kei muri i ēnei tohumate tera pea he mate kino kei roto. I tēnei rā ka kōrero tātou mō tētahi mate onge e pā ana ki tō tātou taurakira. Ko te syringomyelia tēnā.

He aha te Syringomyelia?

Ki te kī ngāwari, ko te Syringomyelia he āhua e puta ai he pēke wai-kī (e kiia nei ko te syrinx) i roto i tō tuaiwi . Whakaarohia, ka rere te tuaiwi mā roto i tō tuaiwi. He rite tēnei tuaiwi ki tētahi 'karere' e kawe ana i ngā karere mai i tō roro ki te toenga o tō tinana, ā, mai i tō tinana hoki ki tō roro. Nō reira, ka taea e tēnei 'syrinx' te nui haere, te roa haere hoki i roto i te wā. He aha te mea ka tupu ina tupu tēnā? Ka tīmata te pakaru o te tuaiwi. Ka kōpeke, ka pakaru hoki ngā muka io e kawe ana i aua karere.

He aha tēnei wai?

Ko te wai i roto i tēnei whēkau e kiia ana ko te Wai Cerebrospinal (CSF) . Ko tēnei wai, e kiia nei ko te CSF, e karapoti ana i tō tātou roro me te taurakira hei tiaki i a rātou. He rite ki ngā mea ārai ru i roto i te motuka. Ehara i te mea koinā anake, engari ko ngā kōhao i roto i tō tātou roro (e kiia nei ko ngā Ventricles) kua whakakīia hoki ki tēnei CSF. Ka honoa ēnei kōhao ki tētahi awa iti (Central Canal) e rere ana i te taurakira.

Nō reira, ki te mea kei a koe te `(Syringomyelia)`, ko te mea ka tupu ko te kohikohinga o tēnei wai `(CSF)` ki roto i te kiko o te taurakira, ka whānui ake te awaawa matua `(Central Canal)` ka hanga he `(Syrinx)`. I te nuinga o te wā, ka puta he `(Syrinx)` ina kore te rere o te `(CSF)` huri noa i te taurakira, i te taha rānei o raro o te roro (`(Brain Stem)`) e rere noa ana, ko te tikanga he mea kei te aukati i taua rere. Ki te pā tēnei `(Syrinx)` ki te `(Brain Stem)`, ka kiia taua mate ko `(Syringobulbia)`.

Ko te nuinga o te wā ka pāngia te wāhanga o runga o te taurakira e te syringomyelia, arā, te kaki me te uma.

Ko wai te mea tino tūpono ka pāngia e tēnei mate? He pēhea te noa o tōna pānga?

Ko te Syringomyelia te mate e kitea nuitia ana i waenga i te 20 me te 50 tau te pakeke. Heoi, ka taea hoki te pā ki ngā tamariki me ngā kaumātua. Heoi, he mate tino onge . E 8 i roto i te 100,000 tāngata e pāngia ana. Koia hoki te take o te 5% o ngā take o te paraplegia, he āhuatanga e pararutiki ai ngā waewae me te tinana o raro.

He aha ngā tohu o te Syringomyelia?

I te nuinga o te wā ka āta puta ngā tohu, ā, ka kino haere pea i roto i ngā tau.. Ka taea e ētahi tāngata te whai `(Syrinx)` iti, ā, ka roa te wā kāore he tohu. Ka rerekē anō hoki ngā tohu, i runga i te wāhi kei reira te `(Syrinx)` i roto i te tuaiwi, tōna rahi, me tōna roa. Ka puta pea ngā tohu i te taha kotahi o te tinana, i ngā taha e rua rānei. Ahakoa he iti noa iho ā ētahi tāngata, ka pāngia nuitia ētahi.

Ko ngā tohu noa ka kitea ko:

• Te mamae o te upoko .
• Te mamae e heke ana ki ngā ringa, ki te kaki, ki waenganui o te tuara, ki ngā waewae rānei (Radiculopathy).
• Te ngoikore haere me te ngokingoki haere o ngā uaua o ngā ringa me/ranei ngā waewae (Muscle Atrophy).
• Te māuiui, te kikī rānei o ngā uaua o te tuara, pakihiwi, kaki, ringa, waewae rānei.
• Te ngaronga o te aro ki te mamae, ki te pāmahana rānei , inā koa ki ngā ringaringa.
• Te ngenge, te mākūkū rānei o ngā ringa me/ngā waewae rānei.
• Ngā raruraru ki te taurite me te uaua ki te hikoi.
• Te ngaronga o te mana whakahaere i te puku me te mimi.
• Ngā raruraru e pā ana ki te mahi ā-ira tangata.

Haunga ēnei tohu, kei reira anō ētahi atu tohu e pā nui ana ki ngā tamariki nohinohi:

• Te korokoro.
• Te hikoi mā te matimati.

Ko te mea nui, mēnā kei a koe, kei tāu tamaiti rānei tētahi o ēnei tohu, me toro atu koe ki te tākuta i te wā e taea ai.

He aha te take e puta ai te Syringomyelia? He aha ngā take?

Ina hoki, kāore anō kia tino mārama ngā kaipūtaiao he aha te tino take o te syrinx. Engari ko te nuinga o ngā ariā e kī ana ko te tino take he aukati, he raruraru rānei ki te rere o te wai cerebrospinal (CSF) i kōrerohia e tātou i mua ake nei.

Ka taea te wehewehe i ngā pūtake o te syringomyelia kia rua ngā wāhanga matua: te whānautanga (arā, kei reira i te whānautanga) me te whiwhi (arā, ka whanake i muri mai i te ao) .

Ngā Take Whakatupu

He maha ngā wā e hono ana a Syringomyelia ki tētahi āhuatanga e kiia nei ko te Chiari Malformation Type 1. Koinei te wā e puta ai te wāhanga o raro o tō tātou cerebellum ki roto i te foramen magnum, he kōhao kei te pūtake o te angaanga. Ko te tikanga ka haere te taurakira mā roto i tēnei kōhao. Ka ārai tēnei raruraru hanganga i te rere noa o te wai cerebrospinal (CSF).

He maha ngā wā, ko tēnei "Chiari Malformation" he mea e kitea ana i te whānautanga mai. Heoi, ko ētahi tāngata whai "Chiari Malformation Type I" kāore pea he tohu e pā ana ki a rātou, kāore rānei e puta he tohu tae noa ki te wā taitamariki, ki te wā kaumātua rānei.

Ko ētahi atu take whānautanga ko:

• Myelomeningocele: E kiia ana hoki ko te Open Spina Bifida, he hapa whānau tēnei. Koinei te wāhi kāore e kati tika ai te taurakira me te awa tuaiwi i mua i te whānautanga. He momo hapa ngongo io tēnei (NTD).
• Te Mate Taura Here:He mate io tino onge tēnei. Ko te mea e tupu ana i konei ko te piri o te taurakira ki ngā kiko e karapoti ana i te tuaiwi (koinei te mea e kiia nei ko te here). He maha ngā wā ka honoa tēnei ki te "Spina Bifida" me te "Scoliosis".

Ngā Take i Whiwhihia

Ko ngā āhuatanga e whai wāhi ana ki te whanaketanga o te "Syringomyelia" i ngā tau e whai ake nei:

• Ngā Whara o te Taura Tuaiwi: Ka kiia tēnei momo syringomyelia i ētahi wā ko te syringomyelia muri-traumatic. Ka puta pea i ngā marama, i ngā tau rānei i muri i te whara tuatahi. He maha ngā wā ka puta mai i te kiko whara e aukati ana i te rere o te CSF.
• Ngā Puku o te Taura Tuaiwi: Ka taea e ngā puku, inā koa ko ngā hemangioblastoma me ngā ependymoma, te aukati i te rere o te wai cerebrospinal (CSF), ka puta ai te syringomyelia.
• Te mate arachnoid: Ko te kiriuhi arachnoid tētahi o ngā kiriuhi e karapoti ana, e tiaki ana hoki i te taurakira. Mēnā ka mumura (pupuhi) tēnei kiriuhi, ka puta te syringomyelia. Ka puta pea tēnei i ngā mate pēnei i te sarcoidosis, te transverse myelitis, me te multiple sclerosis (MS).
• Meningitis: Ko te meningitis he mate o ngā kiriuhi tiaki (meninges) e karapoti ana i te roro me te taurakira. Ka taea hoki e tēnei te puta te syringomyelia.

I ētahi wā, ka puta te syringomyelia me te kore he take mārama. Ka kiia tēnei ko te syringomyelia idiopathic .

Me pēhea te tautuhi tika i tēnei mate?

Hei kimi mārire mēnā kei a koe te `(Syringomyelia)`, ka tangohia e tō tākuta tō hītori hauora, kātahi ka tirotirohia e ia tō tinana. Ka aro nui ia ki te mahi a ngā io. Tērā pea ka tukuna koe e ia ki tētahi `(Neurologist)` - he tākuta e tohunga ana ki ngā mate o te roro me te pūnaha io.

Muri iho, ka tonoa koe kia mahi i ngā whakamātautau whakaahua hei tango pikitia o tō tuaiwi, o tō roro rānei. I ētahi wā, ka kitea pea te syringomyelia mā te tūpono i a koe e mahi ana i ēnei whakamātautau whakaahua mō tētahi atu mate.

He aha ngā whakamātautau e mahia ana hei tautuhi i tēnei mate?

Mena kei te whakapae tō tākuta he syringomyelia koe, ka taea e ia te tono i tētahi, i ētahi rānei o ēnei whakamātautau:

• Matawai MRI (Whakaahua Āhua Aukume): Ko te huarahi pono rawa atu ki te tautuhi i te `(Syringomyelia)` ko te matawai MRI.Ka whakamahia he aukume nui me te rorohiko hei tango pikitia taipitopito o ngā mea kei roto i tō tinana. Mā tēnei whakamātautau, ka taea e tō tākuta te kimi mēnā he `(Syrinx)` kei roto i tō taurakira, mēnā rānei he rerekētanga kē atu, pērā i te pukupuku. Ka taea e te `(MRI)` te whakaatu mārama kei hea te `(Syrinx)`, tōna rahi, me te tawhiti kua horapa.
• MRI Hihiri: E whakaatu ana tēnei momo MRI i te rere o te wai cerebrospinal (CSF) huri noa i te taurakira ki roto i te syrinx. Tērā pea me werohia he āpiha rerekē (he wai motuhake hei whakamārama ake i ngā whakaahua) ki roto i tō uaua.
• Myelogram me te matawai CT: Ki te kore e taea te whai i te MRI, ko te kōwhiringa e whai ake nei ko te matawai CT. Ko te myelogram he whakamātautau e whakamahi ana i tētahi tae motuhake e kiia nei ko te tae rerekē me te matawai CT (Tomography Rorohiko) hei rapu i ngā raruraru i roto i te taurakira.

He aha ngā maimoatanga mō te Syringomyelia?

Ko te maimoatanga mō te syringomyelia e whakawhirinaki ana ki te kaha o ō tohu me te tere o te whanaketanga.

Ki te kore he tohu , kāore ngā tākuta e rongoā i te `(Syringomyelia)`. Heoi, e taunaki ana rātou kia aro turukihia te `(Syrinx)` e te `(Neurologist)`, e te `(Neurosurgeon)` rānei. Nā te mea ka puta pea ngā tohu, ka kino rānei i te roanga o te wā. Ko te tikanga, kei roto i tēnei aro turuki ko ngā matawai `(MRI)` me ngā whakamātautau neurological.

Mō te hunga whai tohu, ko ngā whāinga whānui o te maimoatanga mō te Syringomyelia ko:

• Ki te taea, rongoāhia te pūtake o te syrinx.
• Te whakahaere i ngā tohu .
• Te whakaora i te rere tika o te wai cerebrospinal (CSF) me te ārai i ngā kino atu ki te taurakira.

Ko ētahi momo pokanga ka mahia hei rongoā i te pūtake o te mate, hei aukati hoki i ngā kino atu ki te taurakira. Ko ngā maimoatanga noa hei whakahaere i ngā tohumate ko:

• Ngā rongoā mamae me ētahi atu rongoā.
• Te Whakaora Tinana me te Whakaoraora.
• Te whakawhāiti i ētahi mahi, inā koa ko ngā mea e whakararu ana i te tuara (pēnei i te hiki taumaha, te pekepeke).

He aha ngā momo pokanga e mahia ana mō te Syringomyelia?

Mena kei a koe tētahi mate e kīia nei ko te "Syringomyelia" e puta ai ngā tohu, kei te nui haere rānei te "Syrinx", tera pea ka tūtohu tō tākuta roro, tō taote pokanga roro rānei i te pokanga. E rua ngā momo pokanga matua: hei whakatikatika i te rere o te "CSF" huri noa i te taurakira me te tango tika i te wai mai i te "Syrinx". Ko te momo pokanga ka mahia e koe ka whakawhirinaki ki te take o ō tohu.

Kei roto i ngā pokanga:

• Te Maimoatanga mō te Kore-Tuhinga o Chiari: Ko te whāinga o tēnei pokanga he hanga i tētahi wāhi nui ake i te pūtake o te angaanga me te tihi o te kaki. Mā tēnei ka whakaiti i te pēhanga ki te roro me te taurakira, ka taea ai te rere o te wai cerebrospinal (CSF) kia hoki ki te āhua noa. Ko te pokanga tino noa mō tēnei ko te Posterior Fossa Decompression . I roto i tēnei tikanga, ka tangohia e te taote pokanga roro ngā wahi iti o te wheua mai i muri o te angaanga hei hanga wāhi. I muri i tēnei pokanga, ka taea e te wai i roto i te Syrinx te mimiti, i ētahi wā ka mimiti, ka ngaro katoa rānei. Ahakoa ka noho tonu te rahi o te Syrinx, ka iti ake rānei, ka taea tonu e ngā tohu te whakapai ake.
• Te rongoā, te ārai rānei i te syringomyelia i muri i te whara: Mō te syringomyelia i puta mai i tētahi aituā, ko te whāinga matua ko te aukati i te hanganga o tētahi syrinx, te aukati rānei i te rahi haere o tētahi o mua. Ka kiia tēnei pokanga he expansive duraplasty . Kei roto i tēnei ko te tango i te kiko whara huri noa i te taurakira, ā, i ētahi wā ka whakaurua he papaki hei whakawhanui i te dura mater. Mā tēnei ka hangaia he wāhi huri noa i te taurakira, ka horoia, ka taea ai te rere o te wai cerebrospinal (CSF) i te tikanga noa.
• Te tango i te aukati: Mā te pokanga tango i ngā aukati pēnei i te kiko whara, ngā kongakonga wheua i roto i te awa tuaiwi, ngā pukupuku rānei ka āwhina i te whakahoki mai i te rere o te CSF. Mena he pukupuku te take o te syringomyelia, mā te tango i te pukupuku ka whakakorea te syrinx. I ētahi wā, ka tūtohu pea tō tākuta i te rongoā irahiko hei whakaiti i te pukupuku.
• Te mimiti i te syrinx: Mena kāore he tino take mō te syrinx, ina koa ka nui haere, ka tūtohu pea tō tākuta kia mimiti te wai. Ko te tikanga o tēnei ko te tākuta roro e whakatakoto ana i tētahi stent, i tētahi shunt rānei ki roto i te syrinx. He ngongo iti te stent e taea ai te mimiti i te wai mai i te taurakira ki waho. He ngongo ngāwari te shunt me tētahi takirere e taea ai te mimiti i te wai mai i te syrinx ki tētahi atu wāhanga o te tinana, ko te puku, ko te uma rānei te nuinga. Ka taea e ēnei tikanga e rua te āwhina i te mimiti i te wai mai i te syrinx, ka taea ai te aukati i te kino haere o ngā tohu.

I muri i te pokanga, ka whakahaerehia e te tākuta he matawai MRI hei tirotiro mēnā kua pumau te syrinx, kua iti rānei te rahi.

Ka taea e te pokanga mō te `(Syringomyelia)` te whakapai ake i ngā tohu me te whakaū i te āhua o te tini tāngata. Heoi, ka taea e te `(Syringomyelia)` te hoki mai anō ahakoa kua angitu te maimoatanga . Mēnā koinei te āhua, me nui ake pea te pokanga.

He aha ngā raruraru ka pā mai i te pokanga?

Ko ngā raruraru e whai ake nei ka puta i muri i te pokanga mō te Syringomyelia:

• Te turuturu o te wai cerebrospinal (CSF).
• Ngā mate urutā.
• Te toto.
• He kino atu anō ki te taurakira.
• Te hanga anō i te `(Syrinx)`.

He mea tino nui kia kōrero koe ki tō taote pokanga roro mō ēnei mōrearea e pā ana ki tō pokanga me te tūponotanga o aua mōrearea.

He aha te tirohanga mō te Syringomyelia? (Te matapae)

He mea nui kia maumahara he rerekē ngā tohu, te kaha, me ngā take o te Syringomyelia. Waihoki, ka rerekē te tere o te whanaketanga o te mate i ia tangata, i ia tangata, kāore rānei ētahi e pai ake. Nā ēnei āhuatanga, he uaua ki ngā tākuta te tuku i te matapae tika mō te Syringomyelia.

Mā te pokanga wawe ka taea te whakaiti i ngā tohu, ā, ka puta he hua pai . Ahakoa he pumau te haere whakamua o ngā ngoikoretanga io i muri i te maimoatanga pokanga, ā, ka pai ake ngā tohu i ētahi wā, he maha tonu ngā tāngata e mau tonu ana ngā tohu.

I te nuinga o te wā, ki te neke atu i te rima mirimita te whānui o te `(Syrinx)` (5mm)`), ā, kei te pupuhi te `(Edema)`, he tohu tēnei kāore i te tino pai te āhua o te tinana.

Ko te myelopathy (te pakaru o te taurakira nā te pēhanga nui) he raruraru nui o te Syringomyelia, ā, he mea hei āwangawanga māu. Ka taea e tēnei te arahi ki te pararutiki/quadriplegia, te niumōnia hoki, me ngā raruraru ki te mahi a te whekau me te pūkahukahu.

Ka taea te ārai i te Syringomyelia?

Kāore e taea te ārai i te syringomyelia. Heoi anō, mā te kitenga wawe me te maimoatanga ka āwhina i te ārai i te kino haere o ngā tohu .

Mena kei a au te Syringomyelia, me pēhea taku tiaki i a au anō?

Mena kei a koe te Syringomyelia, whakaarohia ēnei mea hei āwhina i te whakahaere i ō tohumate:

• Āta karohia ngā mahi ka kino ake ai ō tohu , pērā i te hiki i ngā mea, te whakauaua i ngā uauatanga, te mahi rānei i tētahi mea e pēhi ana i tō tuara (pērā i te pekepeke).
• Whakaarohia te whakaora tinana hei whakaiti i ngā uauatanga ki te hikoi, te ngoikore, te pakari rānei o ngā uaua, me te mamae.
• Mena kei te mamae tonu koe nā te syringomyelia, kōrero ki tō tākuta mō ngā kōwhiringa maimoatanga.
• Ka taea e te noho me te Syringomyelia te tino taumaha, te tino ahotea hoki. He mea nui kia rapu tautoko hauora hinengaro mai i ngā hoa, i te whānau, me/ranei i tētahi kaiwhakatakoto whakaaro. Mā te whakauru atu ki tētahi rōpū tautoko me ētahi atu tāngata e pāngia ana e te Syringomyelia ka taea hoki e koe te āwhina i a koe kia whakaaro kāore koe i te mokemoke.

Āhea ahau me toro atu ki taku tākuta mō te Syringomyelia?

Mena kua tāpaetia koe kei te pāngia koe e te Syringomyelia, aroturukitia ō tohumate me te Syrinx, ahakoa kua pokangahia koe, kāore rānei.Me hui tahi koe me tō tīma hauora i ia wā, i ia wā.

He mea taumaha te kitenga kua whara tō tuaiwi. Engari kia maumahara, ehara i te mea ko koe anake, ā, he maha ngā rauemi hei āwhina i a koe. He mea nui kia kōrero koe ki tētahi tākuta e mōhio ana ki te Syringomyelia, kia nui ake ai te mōhio ki te pānga ki a koe. Kaua e wehi ki te pātai ki tō tīma hauora - kei reira rātou hei āwhina i a koe .

Tā Mātou Karere hei Tango ki te Kāinga

Āe, ko tāku tumanako kua mārama koe ki tētahi mea i roto i tā tātou kōrero mō te `(Syringomyelia)`. Ahakoa he mate onge tēnei, he mea nui kia rapu tohutohu hauora tonu mēnā ka pāngia koe e ngā tohu . Ina koa mēnā he mamae tonu tō tuara, he ngoikore ō ringaringa, he ngoikore rānei, me toro atu koe ki te tākuta. Ki te kite wawe koe i te mate, ka taea e koe te rapu maimoatanga tika me te pupuri i te kounga pai o te oranga. Kaua e manukanuka, he otinga kei reira mō ngā mea katoa, ā, ki te whai pātai koe, pātai atu ki ō tākuta.

` Syringomyelia, taurakira, mamae tuara, syrinx, CSF, mate io, mate Chiari