Hei whaea e hapu ana, tera pea kei te tumanako koe ki te whānautanga mai o tāu pēpi i roto i te ora. Heoi, i ētahi wā ka puta mai ngā raruraru hauora ohorere. I tēnei rā, ka kōrero tātou mō tētahi hapa whānau tino kino kāore anō kia rangona e te tini o te tangata. Ko te ingoa o tēnei ko te Anencephaly. He mea nui kia mōhio koe ki tēnei.
He aha rawa te Anencephaly?
He whakarāpopototanga noa iho, ko te anencephaly he mate e whānau mai ai he pēpi kāore i te whanake tika ngā wāhanga o te roro me te angaanga. He mate tino onge tēnei, ā, he tino kino hoki.
Kia mārama ake tātou ki tēnei. I a koe e hapu ana, i ngā wiki tuatahi, ka tīmata te roro me te tuaiwi o tō pēpi ki te hanga hei kōpae papatahi o ngā pūtau. Whakaarohia he rite ki te huri i tētahi rau papatahi ki roto i tētahi ngongo, ā, ka pōturi haere tēnei kōpae pūtau ka hanga he hanganga rite ki te ngongo. Ka kiia tēnei ko te ngongo io . Me kati rawa tēnei ngongo io i roto i te 28-32 rā i muri i te haputanga.
Heoi, ki te kore e kati katoa tēnei ngongo io, nā tetahi take, ka toe tonu he pūaha iti. Koinei te mea e kiia nei e tātou ko ngā hapa ngongo io . Ko te Anencephaly tētahi o ngā hapa ngongo io. I tēnei wā, ka noho tuwhera tonu te ngongo io i te pūtake o te angaanga. Nō reira, kāore e whanake ngā wāhanga o mua me o runga o te roro me ngā wāhanga e pā ana ki te angaanga.
He aha te mea ka taea te whakararu i te anencephaly?
He uaua ki te tohu i tētahi take kotahi mō tēnei. Tērā pea he huinga o ngā āhuatanga ka whai wāhi ki tēnei. Ko ngā āhuatanga ira, ko te korenga o ngā kai, me ētahi mea e pāngia ana te whaea i te wā e hapu ana, ētahi o ngā mea matua.
Me whakamārama ake anō ēnei āhuatanga mōrearea i te ripanga i raro nei.
| Tauwehenga mōrearea | Whakaahuatanga |
|---|---|
| Te korenga o te waikawa folic | Ko te take matua ko te kore e whiwhi i te waikawa folic i mua atu me te wā e hapu ana. He mea nui tēnei huaora mō te whanaketanga o te ngongo io o te pēpi. |
| Ētahi rongoā | Ko ētahi rongoā e whakamahia ana hei rongoā i ngā haurangi, ngā mate hinengaro pērā i te mate hinengaro rua, me ngā migraines, pērā i te Phenytoin, te Carbamazepine, me te waikawa Valproic , ka whakapiki ake i te mōrearea. |
| Mate huka kāore i te whakahaeretia | Mena he mate huka te whaea, ā, kāore i te tika te whakahaere i ngā taumata huka toto i te wā e hapu ana, ka pā kino pea ki te whanaketanga o te pēpi. |
| Te pāmahana tinana teitei | I ngā wiki tōmua o te hapūtanga (i te wā e hangaia ana te ngongo io), he mea morearea pea te pāngia e te kirika nui, te noho rānei i roto i te wai tino wera, pērā i te kaukau wera, i te sauna rānei. |
| Momonatanga | Ko te nui rawa o te taumaha o te whaea tētahi āhuatanga ka pā ki te tipu o te pēpi i ngā wāhanga tōmua o te hapūtanga. |
| Ngā āhuatanga ira | Ka taea hoki te puta o te anencephaly i ētahi āhuatanga ira, pērā i te Trisomy 18. Heoi, ehara i te mea he tuku iho ēnei, engari he huringa ira tūpono noa iho. |
| Te whakamahinga o ngā rongoā opioid | Kua whakaatuhia e ētahi rangahau he nui ake te tūponotanga ka pāngia ngā tamariki a ngā whaea i whakamahi i ngā rongoā whakamamae opioid pērā i te Codeine, Tramadol, me te Morphine i ngā marama tuatahi e rua o te hapūtanga e ngā hapa ngongo io. |
Ka taea te tautuhi i tēnei mate i te wā e hapu ana?
Āe, tino tika. Hei wāhanga o tō tiaki i mua i te whānautanga, ka whakahaerehia e tō tākuta ētahi whakamātautau hei tirotiro i ēnei momo hapa ngongo io.
- Matawai Ultrasound:Koinei te tikanga matua. Mā te matawai ka taea e te tākuta te kite i te hanganga o te angaanga, te roro, me te taurakira o te pēpi. Ko te Anencephaly ka taea te tautuhi mārama i runga i te matawai.
- Whakamātautau Toto Mata Tohu-whā: He whakamātautau tēnei e mahia ana ki te toto o te whaea. Ka ine i te taumata o te matū e kiia nei ko te Alpha-fetoprotein (AFP) i roto i te toto o te whaea. Ka hangaia te AFP e te ate o te pēpi. Mena he tino teitei te taumata AFP i roto i te toto o te whaea, tera pea he tohu kei te pēpi he hapa ngongo io (pēnei i te anencephaly).
- Matawai MRI o te kōpū: Mena kāore i te mārama tetahi mea i te matawai ultrasound, ka taea te mahi i te matawai MRI kia mārama ake ai, kia taipitopito ake ai hoki ngā whakaahua o te roro me te tuaiwi o te pēpi.
- Amniocentesis: I tēnei whakamātautau, ka whakamahia e te tākuta he ngira tino angiangi hei tango i tētahi tauira iti o te wai amniotic e karapoti ana i te pēpi. Ka whakamātauria tēnei wai mō ngā taumata teitei o te whākōkī e kiia nei ko te AFP me te acetylcholinesterase. He tohu anō hoki ngā taumata teitei o ēnei mō te hapa ngongo io.
He rongoā kei reira mō tēnei?
Koinei te wāhanga tino pouri o tēnei kaupapa.
Engari, kāore he maimoatanga, he rongoā rānei mō te anencephaly.
He mea tino uaua tēnei ki te whakamanawanui. He maha ngā hāputanga me ngā hapa ngongo io ka mutu ki te materoto. Ko ētahi pēpi me te anencephaly ka whānau mai he pēpi mate. Ahakoa ka whānau ora te pēpi, he torutoru noa ngā haora, he torutoru noa rānei ngā rā e ora ai ia.
Ki te kitea tēnei āhuatanga, ka whakaratohia e tō tākuta me ngā kaimahi o te hōhipera te tautoko kare ā-roto e tika ana māu me tō whānau. Kia whānau te pēpi, ka whakaratohia e rātou ngā ratonga e tika ana kia noho tahi ai koe me te pēpi i te wā poto nei.
He aha tā tātou e taea ai te whakaiti i te mōrearea?
Ahakoa kāore e taea te ārai i te anencephaly i te 100% o te wā, he maha ngā mea ka taea e tātou te mahi hei whakaiti i te mōrearea. He mea nui rawa tēnei mō ngā wāhine e whakamahere ana ki te whānau.
- Waikawa Folic: Koinei te mea tino nui. Mena kei te whakaaro koe kia whānau he pēpi , tīmata ki te tango i te 400 maikirokaramu (400 mcg) o te waikawa folic i ia rā mō te iti rawa i te 3 marama i mua i te haputanga.Me haere tonu te tango i tēnei mō ngā marama tuatahi e toru i muri i te hapūtanga. Mā tō tākuta e tūtohu te horopeta tika e hiahiatia ana e koe.
- Kia tūpato ki ngā rongoā: Ki te mea kei te whakaaro koe ki te whānau tamariki, kōrero ki tō tākuta mō ngā rongoā katoa e tangohia ana e koe (ina koa mō ngā āhuatanga pēnei i te mate haurangi, te mate hinengaro rānei). Ka taea e ia te tūtohu i ētahi atu rongoā haumaru ake mēnā e tika ana.
- Āraia ngā rongoā mamae opioid: Ki te whakaaro koe kei te hapu koe, kei te hapu rānei, karohia te tango i ngā rongoā mamae opioid me te kore tohutohu a tō tākuta.
- Whakahaerehia te pāmahana o tō tinana: Kaua e haere ki ngā kaukau wera me ngā sauna i te wā e hapu ana. Ki te pāngia koe e te kirika, kōrero ki tō tākuta mō te huarahi haumaru hei whakaiti i te kirika.
- Kia mau tonu te taumaha hauora: Me ngana kia mau tonu te taumaha hauora o te tinana ahakoa i mua i te whānautanga o te pēpi.
- Whakahaerehia te mate huka: Mena he mate huka tōu, kōrero ki tō tākuta mō te huarahi pai ki te whakahaere i mua i tō hapūtanga me te roanga atu o tō hapūtanga.
Karere Tangohia ki te Kāinga
- He mate whānau kino rawa te Anencephaly, ā, kāore e tino whanake tika te roro me te angaanga o te pēpi.
- Kāore he rongoā mō tēnei āhuatanga.
- Ki te mea kei te whakaaro koe kia whānau he tamaiti, he mea tino nui kia tangohia te waikawa folic i ētahi marama i mua i te haputanga. Ka taea e tēnei te whakaiti i te tūponotanga o ngā hapa ngongo io.
- Kōrero ki tō tākuta mō ngā rongoā katoa e tangohia ana e koe me ngā āhuatanga hauora pēnei i te mate huka i mua i te haputanga o te tamaiti.
- Mā ngā matawai i te wā e hapu ana ka taea te kite wawe i ēnei mate. Nō reira kaua e mahue te haere ki te whare hauora.
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