Kei te pēhia koe e te ngaro o te mana whakahaere i tō tinana? Akohia tēnei mate onge e kiia nei ko te Multiple System Atrophy (MSA).

Kei te ahua pōturi koe i ētahi wā, me te mea kei te ngaro haere tō mana whakahaere i tō tinana? Kāore koe i te taurite ina hikoi koe, he tino puhoi ngā mea katoa, te āhua nei kei te wiri tō reo... Ahakoa he mea noa ēnei ka puta i a koe e pakeke haere ana, i ētahi wā he tohu pea ēnei mō tētahi āhuatanga kāore e tino kōrerohia ana, engari he mea nui kia mōhio koe. I tēnei rā kei te kōrero tātou mō tētahi mate pūnaha io onge engari he kino: ko te Multiple System Atrophy, MSA rānei.

He aha te Multiple System Atrophy (MSA)?

Ko te Multiple System Atrophy (MSA) he mate e pā ana ki tō tātou pūnaha io. Ka pā ki ngā tukanga aunoa o tō tātou tinana, hei tauira, te whakahaere i ngā nekehanga me te pupuri i te taurite . He mate tino onge.

He aha ngā tohu o te MSA?

Ko ngā tohu o tēnei mate ka tīmata te puta i waenga i te 50 me te 60 tau te pakeke. E whakapoauau ana ētahi tāngata i ngā mate e rua nā te mea he rite tonu ngā tohu tōmua ki ērā o te mate a Parkinson .

Haunga tēnei, ka puta pea ētahi atu pānga.

Haunga ēnei tohu matua, ka pāngia pea ētahi atu tukanga taketake o te tinana.

• Kua heke te werawera , te roimata , me te huware.
• Te koretake o te puku, te kore rānei e taea te whakahaere i ngā nekehanga o te puku .
• Te ngoikore o te ure (ED).
• Te mutu o te manawa i te wā e moe ana (te kore e taea te manawa i te wā e moe ana) te mahi rānei i roto i te moe, pērā i te hamama, te whāwhā rānei i ō ringa me ō waewae.
• Te whewhe.
• Ngā ringaringa me ngā waewae makariri, kua memeha rānei te tae.
• Te uaua ki te whakahaere i ngā kare ā-roto, te manukanuka, te pouri rānei.

E rua ngā momo matua o te mate MSA.

I runga i ō tohu matua, ka whakatauhia e tō tākuta te momo MSA kei a koe.

Me pēhea te tautuhi i tēnei mate?

He uaua pea te tautuhi i te MSA i te tīmatanga. Ko te take o tēnei, e ai ki tā mātou i kōrero ai i mua ake nei, he tino rite ōna tohu ki te mate a Parkinson. Nō reira, me toro atu koe ki tētahi tākuta roro .

Ka tirotirohia koe e tō tākuta, ka kōrero mō ō tohumate, ka rapu hoki i ngā huringa i roto i tō roro me tō pūnaha io. Hei whakaū mēnā he MSA, he Parkinson's rānei tōu, ka mahia pea e rātou ēnei whakamātautau e whai ake nei:

• Whakamātautau ā-tinana: He whakamātautau motuhake e tirotiro ana i te mahi a te pūnaha io.
• Matawai MRI: Hei tirotiro mēnā he huringa kei roto i te roro.
• Te ine i te toto toto: Ka inehia te toto toto i a koe e noho ana, e tū ana rānei.
• Whakamātautau ECG: Hei tirotiro i ngā tohu hiko o te ngākau.
• Ngā whakamātautau werawera: Te whakamātautau i te werawera o te tinana.

He aha ngā take o te MSA?

He whakarāpopototanga noa iho, ka puta he putunga pūmua motuhake i roto i ngā pūtau e tautoko ana i ngā pūtau io i roto i te roro i te tangata whai MSA. Mā tēnei ka memeha haere, ka mate rānei ētahi wāhanga o te roro me te taurakira. E ai ki ngā tohunga, kāore anō kia mōhiotia te tino take o tēnei mate.

Ngā raruraru ka puta mai i te mate

Mō te tini, ka taea e ngā tohu te huri hei raruraru nui i roto i ngā tau torutoru, nō reira he mea nui kia mōhio ki ēnei mea anō hoki.

• Te uaua ki te mahi i ngā mahi o ia rā.
• Ngā uauatanga o te manawa, inā koa ngā āhuatanga pēnei i te 'Sleep apnea'.
• Ngā hinganga auau.
• Ka piki haere te uauatanga o te neke, ka hiahiatia he tūru wīra, ā, ka mutu, kāore e taea te ara ake i te moenga.
• Te pararutiki o ngā taura reo.
• Te kore e taea te horomi i te kai.
• Ngā mate pūkahukahu pērā i te niumōnia.
• Ngā mate urutā o te ara mimi.
• Ngā toto totoka.

He rerekē te roa o te wā e ora ai te tangata me te mate i ia tangata, i ia tangata. Ka taea e ētahi tāngata te ora mō te 15 tau, neke atu rānei. He maha ngā wā ka mate rātou nā ngā raruraru o te uaua ki te manawa.

Me pēhea te whakahaere me te rongoā

Nā te mea kāore he rongoā motuhake mō te MSA, ko te whāinga matua o te maimoatanga he whakahaere i ngā tohu me te mea kia noho pai te oranga.

Ngā rongoā me te maimoatanga hauora

• Ka taea e ngā rongoā pēnei i te levodopa, e whakamahia ana hei rongoā i te mate a Parkinson, te āwhina i ētahi wā ki te whakahaere i te wiri, te pakari, me ngā nekehanga puhoi.
• Ka tohua pea e te tākuta ngā rongoā pēnei i te `drooxidopa`, `fludrocortisone`, `midodrine` rānei hei whakahaere i te toto toto tiketike.
• I ētahi wā, ka hiahiatia he taputapu whakateretere hei whakahaere i te tere o te manawa.
• Ka āwhina pea ngā rongoā pēnei i te mirabegron, te oxybutynin rānei ki te whakahaere i te mimi. I ētahi wā, ka hiahiatia he catheter hei āwhina i a koe ki te mimi.
• Kei te wātea hoki ngā rongoā mō te koretake o te moepuku.

Ngā Whakaora

• Mā te whakaora tinana me te korikori tinana ka kaha, ka ngāwari hoki ngā uaua.
• Ka taea e te whakaora mahi te āwhina i a koe ki te ako me pēhea te mahi i ngā mahi o ia rā me te ngāwari ake.
• Ka āwhina te whakaora kōrero i ngā uauatanga ki te hikoi me te kōrero.

Ngā mea ka taea e koe te mahi i a koe anō i te kāinga

• Hei whakanui i te toto totoka, tāpirihia he tote ki tāu kai, ā, inumia he nui te wai.
• Te mau i ngā tōkena pēhanga motuhake hei āwhina i te rere o te toto.
• Kaua e ara ake i te nohoanga, i te takoto rānei. Whakatika mārire.
• Kia paku teitei ake te pane o te moenga i te wā e moe ana.
• Kai i ngā kai momona i te muka, i ngā huawhenua, me ngā hua hei ārai i te mate puku.
• Āraia te wera nui o te tinana.
• Nekeneke haere i ngā wāhi katoa e taea ana hei ārai i te toto e pupuhi ana.