Kupweteka kwa mafupa komwe kunamupangitsa kukhala wosasangalala atapambana mpikisano wovina padziko lonse lapansi: Zomwe muyenera kudziwa zokhudza Ankylosing Spondylitis (AS)

Kodi nthawi zambiri mumakhala ndi ululu wa msana ndi mafupa? Kodi mumamva kuuma komanso kusasangalala mukadzuka pabedi m'mawa? Mungaganize kuti izi ndi zachilendo zomwe zimabwera chifukwa cha kutopa ndi ukalamba. Koma si ululu wonse womwe ndi wabwinobwino. Lero tikulankhula za nkhani yotere. Iyi ndi nkhani ya Alicia Graff Mack, wovina wotchuka padziko lonse lapansi. Iyi ndi nkhani ya matenda omwe adakhudza kwambiri ntchito yake yovina kotero kuti adamuletsa, koma pamapeto pake adamulimbitsa.

'Ndinachita masewera olimbitsa thupi ngati Olimpiki, koma ululu sunathe'

Alicia anali ndi zaka pafupifupi 10 pamene madokotala anafunika kutulutsa madzi m'bondo lake. Kuyambira pamenepo, wakhala akuvutika ndi ululu kwa zaka zoposa khumi, anachitidwa opaleshoni zambiri, ndipo nthawi yake yamtengo wapatali monga wovina waluso inabedwa. Zinatenga nthawi kuti adziwe chomwe chinayambitsa zonsezi. Matendawa ndi Ankylosing Spondylitis (AS) . Mwachidule, ndi matenda a nyamakazi omwe amapezeka pamene chitetezo cha mthupi lathu chikuukira mafupa athu.

Masiku ena mawondo ake ankatupa ngati mandimu. Sankatha kuyenda bwino. Sankathanso kuganiza zovina atavala nsapato zapadera zomwe ankagwiritsa ntchito povina.

Panali nthawi zambiri zomwe ankaganiza kuti, "Sindidzakhalanso wovina."

Ali mwana, akuphunzira ngati wovina waluso, sankasamala kwambiri za zizindikiro zimenezi. Monga momwe akunenera, "Ndinaphunzira ngati Olimpiki. Choncho ndi zachilendo kukhala ndi ululu ndi kupweteka. Ndicho chimene chimachitikira ovina ambiri nthawi zonse."

Koma zizindikiro zake zinayamba kuipiraipira pang'onopang'ono. Ngakhale atachitidwa opaleshoni ya kung'ambika pang'ono kwa chipolopolo cha bondo lake komanso chithandizo chamankhwala, ululuwo sunathe. Sanathe ngakhale kuyenda kupita ku siteshoni ya sitima yapansi panthaka kuti akalandire chithandizo.

"Kwa miyezi pafupifupi isanu ndi umodzi pambuyo pa opaleshoni, palibe amene anandipatsa yankho. Maloto anga onse a moyo wanga anali okhudzana ndi thanzi la thupi langa. Ndinali pamtima pa moyo wanga," akutero iye.

Kodi Ankylosing Spondylitis (AS) kwenikweni ndi chiyani?

Chabwino, tiyeni tiwone chomwe vutoli limatchedwa AS. Ndi matenda odziteteza okha . Ndiko kuti, dongosolo lomwe limateteza thupi lathu ku matenda molakwika limayamba kuukira maselo athu athanzi, makamaka mafupa.

AS imakhudza kwambiri mafupa a msana. Ichi ndichifukwa chake pali kuuma ndi kupweteka kumbuyo m'mawa. Pakapita nthawi, mafupa awa amatha kupanikizika ndipo msana ukhoza kutaya kusinthasintha kwake. Koma sikuti msana wokha ndi wokha. Ikhozanso kukhudza mafupa ena m'thupi, monga mawondo, chiuno, ndi akakolo. Izi ndi zomwe zinachitikira Alicia.

Chifukwa chimodzi chomwe matendawa amavutikira kuzindikira ndichakuti zizindikiro zoyambirira zimafanana kwambiri ndi kupweteka kwa thupi.

Moyo unasintha, koma sindinasiye maloto anga.

Pamene maloto ake ovina ankatha, Alicia anayamba kuganizira za moyo wina. Analembetsa ku yunivesite ndi cholinga chofuna ntchito yoyang'anira zaluso. Pakadali pano, anapitiriza kulandira chithandizo chamankhwala ndi mankhwala. Pang'onopang'ono, thupi lake linakhala lamphamvu. Pofika chaka chake chomaliza ku yunivesite, anabwerera ku makalasi ovina, chifukwa chongofuna kusangalala yekha.

Pamene ankafunafuna ntchito ku kampani yabwino atamaliza maphunziro ake, anali ndi nthawi yopuma chilimwe chimodzi. Anapita ku kampani yotchuka yovina ku New York, akuyembekeza kupeza ntchito mu dipatimenti yoyang'anira kapena yotsatsa.

Koma oyambitsa gulu limenelo anali ndi malingaliro ena. "Tamva kuti mukuvinanso. Tili ndi ulendo ku Italy, ndipo m'modzi mwa ovina athu wachita ngozi. Kodi mungabwerenso nafe?"

Poyamba Alicia ankachita mantha. Panali patadutsa nthawi yayitali kuchokera pamene anavina nthawi zonse komanso kuchita nawo ma konsati. Koma uwu mwina unali mwayi wake womaliza. "Ndinaganiza kuti, 'Ndidzakhala pa desiki moyo wanga wonse. Ndikufuna kuchita izi isanafike nthawi imeneyo.'"

Iye anagwiritsa ntchito mwayi umenewo n’kubwerera ku bwalo lovinira.

Kuzindikira vuto la maso molondola

Patapita nthawi, Alicia anayamba kuona zinthu molakwika, maso ake anayamba kufiira komanso kupweteka. Ichi chinali chizindikiro choyamba chakuti anali ndi AS.

Maso ake anali atayamba matenda otchedwa uveitis , kutupa kwa diso. Dokotala wake wa nyamakazi anafotokoza kuti uveitis ndi matenda ofala kwambiri mwa anthu omwe ali ndi AS. Iyi inali njira yokhayo yotsimikizira kuti matenda ake anali AS, osati matenda a nyamakazi.

Atapeza matenda oyenera, anayamba kulandira chithandizo choyenera kwa iye. Anayamba kumwa mankhwala ochepetsa matenda a nyamakazi (DMARD) monga Adalimumab (Humira) . Koma mavuto atsopano anabwera nawo. "Ndinayenera kuyenda kuchokera kumayiko ena ndi majekeseni ojambulira. Kuwasunga ozizira paulendo wa maola 18, kuyang'ana ngati mahotela omwe ndinkakhala anali ndi firiji, komanso kutumiza mankhwala ku hoteloyo pa nthawi yake ... chinali kuvina kokha!" adatero akuseka.

Ndi chithandizo choyenera, adatha kuvina mwaukadaulo kwa zaka zina 5-6. "Unali dalitso lomwe sindinali kuyembekezera," akutero. Masiku ano, ndiye mtsogoleri komanso director wa dipatimenti yovina ku Juilliard School yotchuka padziko lonse lapansi.

"Ndimamwabe Humira, ndipo matendawa akayamba kukula, ndimamwa mankhwala monga prednisone," akutero iye. "Masiku ambiri msana wanga ndi chiuno zimauma kwambiri. Koma ndimakhala wochita masewera olimbitsa thupi momwe ndingathere."