Kodi ululu wamsana uwu womwe umabwera nthawi yabwino kwambiri ya moyo wanu ikuyamba ndi chiyani? Tiyeni tikambirane za Ankylosing Spondylitis (AS)

Pa nthawi yabwino kwambiri pa moyo wanu, mukakhala kusukulu, kusukulu, pantchito yabwino, ndikulota kukhala ndi banja, kodi nthawi zonse mumakumana ndi ululu wopweteka kwambiri wamsana womwe sumveka? Mwina ululu uwu umayamba m'chiuno mwanu ndipo pang'onopang'ono umakwera msana wanu, uku ukukankhira khosi lanu? Izi nthawi zambiri zimakhala chiyambi cha matenda otchedwa Ankylosing Spondylitis (AS). Amakhudza achinyamata ambiri omwe angoyamba kumene moyo. Koma pali ena omwe, m'malo motaya moyo chifukwa cha ululuwu, amalimbana nawo ndikukwaniritsa maloto awo. Lero tikambirana za anthu ochepa otere.

'Ndimayamikira ngakhale zinthu zazing'ono tsopano' - nkhani ya Jake

Jake anali katswiri wothamanga bwino kusukulu komanso kusukulu. Choncho poyamba ankanena kuti ululu wake waukulu komanso wosatha unachokera ku kuvulala kwa masewera. Koma tsiku lina, anali kumvetsera pulogalamu yokhudza matenda odziteteza ku matenda a chitetezo chamthupi.

"Zizindikiro zomwe zatchulidwazi ndi zomwezo zomwe ndakhala nazo nthawi zonse," akutero Jake.

Mwachidule , matenda a autoimmune ndi pamene chitetezo cha mthupi, chomwe chimayenera kuteteza thupi lathu, chimayamba molakwika kuukira maselo a thupi lathu. Ankylosing Spondylitis ndi matenda ena otere.

Patatha milungu iwiri, Jake anapezeka ndi matenda a AS pamene anapita kwa dokotala wa nyamakazi. Zinali zosangalatsa kudziwa chomwe chinamupangitsa kuvutika kwa zaka zambiri, koma ululuwo unalipobe. Masiku ena, ululuwo unali woopsa kwambiri moti ankayenera kugonekedwa m'chipatala kasanu kapena kasanu ndi kamodzi pa semesita yake yoyamba ya sukulu ya zamalamulo.

Koma Jake sanasiye. Wina pa podcast anati anamva bwino kwambiri atasintha n’kuyamba kudya zakudya zongodya nyama yokha. Jake anaganiza zoyesa.

"Ndinatsatira bwino zakudya. Ndinadya nyama ndi madzi okha. Chodabwitsa n'chakuti, patatha sabata imodzi, ululu umene ndinamva unachepa kwambiri. Khungu langa linali lofiira chifukwa cha kutupa, ndipo zimenezo zinathanso," akutero Jake.

Jake anali ndi vuto lina. Ululu wake unakula kwambiri akakhala pampando mkalasi tsiku lonse. Choncho anapezanso njira yothetsera vutoli. Unali chizolowezi chake cha tsiku ndi tsiku chomwe adadzipangira yekha.

• M'mawa uliwonse, ndimakhala mphindi 15 mu dziwe lozizira lomwe madzi ozizira amafika m'khosi mwanga.
• Kenako, amatambasula minofu yake ya psoas, minofu yayitali yomwe imayambira kumbuyo kwake mpaka ku ntchafu yake.
• Ndimachitanso maseŵero a yoga ndi kupuma mozama.

"Sindinathe kupuma bwino kwa kanthawi. Ndinazindikira kuti nditangotha ​​kutambasula minofu yanga pang'ono," akutero Jake. "Zimandipweteka kwambiri ndikachita kutambasula uku. Koma mpumulo umene ndimamva pambuyo pake ndi wofunika kwambiri."

Jake akunena kuti kukhala ndi ululu sikophweka. Koma atagonjetsa vutoli, tsopano akuganiza mosiyana za moyo. "Tsopano ndikuyamikira ngakhale nthawi yochepa yomwe ndingakhale ndi banja langa popanda ululu. Sindikuganiziranso chilichonse ngati chopepuka."

'Ndiyenera kupitilizabe kupita patsogolo' - nkhani ya Jess

Jess ndi mtsikana wochokera ku Canada. Anali ndi zaka 18 pamene anayamba kumva kupweteka m'chiuno chake chakumanja ndi matako ake ali paulendo ndi anzake. Poyamba, ankaganiza kuti ndi chifukwa chakuti anakhala nthawi yayitali mu galimoto. Koma patatha masiku angapo, ululuwo unakula kwambiri moti sakanatha ngakhale kudzuka pabedi.

Zinatenga zaka zinayi madokotala kuti adziwe chomwe chinali matenda a Jess. Popeza matendawa sapezeka kawirikawiri mwa akazi, nthawi zina amatha kupezeka mochedwa. Jess anali ndi nkhawa kwambiri pamene anali kuyesera kupeza chomwe chinali. Koma atapeza chomwe chinali, Jess anamva bwino kwambiri.

Masiku ano, Jess akumwa mankhwala omwe dokotala wamupatsa kuti achepetse kutupa kwake, omwe amaletsa puloteni yotchedwa interleukin-17 (IL-17), yomwe imayambitsa kutupa m'thupi.

"Mankhwala amenewo ndi odabwitsa kwambiri. Ndimamva kupweteka kokha sabata imodzi ndisanalandire jakisoni wotsatira," akutero iye.

Jess wazindikira kuti njira yabwino kwambiri yothanirana ndi ululu umenewu ndi kuchita masewera olimbitsa thupi.

"Ndataya zaka zinayi za moyo wanga wachinyamata chifukwa cha ululu ndi kulephera kuyenda. Choncho ndinadzilonjeza kuti ngakhale ndikanatha kusuntha, ndidzagwiritsa ntchito bwino nthawi yanga," akutero Jess.

Analowa nawo pulogalamu yochita masewera olimbitsa thupi ndi akatswiri azachipatala kuchipatala ndipo tsopano akutha kuchita masewera olimbitsa thupi yekha.

• Amachita masewera olimbitsa thupi tsiku lililonse kuti alimbitse msana wake ndi minofu ya m'mimba.
• Kuchita masewera olimbitsa thupi a yoga monga 'positi ya mwana', yomwe imatambasula msana.
• Kuyesetsa kukhala ndi kaimidwe koyenera.

Iye wasankhanso kudya zakudya zomwe zimachepetsa kutupa (masamba, zipatso, nsomba, mtedza), kupewa kukhala pafupi ndi anthu osuta fodya, komanso kusiya kumwa mowa kotheratu.

"Ndikudziwa kuti tsiku lina msana wanga ungagwirizane kwathunthu, ndipo mankhwala anga angasiye kugwira ntchito. Koma nthawi zonse ndimadzifunsa kuti, 'Ndingataninso china?' Ndimadziuza kuti ndiyenera kupitilizabe kupita patsogolo, kwenikweni, nthawi zonse kupita patsogolo."

Kodi anthu awa adagwiritsa ntchito njira ziti kuti achepetse ululu?

Jake ndi Jess anagwiritsa ntchito njira zosiyanasiyana kuti achepetse ululu wawo. Tiyeni tiwone zina mwa izo patebulo.

Zinthu zomwe mungachite

Ngati muli ndi zizindikiro izi, choyamba muyenera kuopa ndikuonana ndi dokotala wodziwa bwino ntchito yake.Zingakhale bwino ngati mungakumane ndi dokotala yemwe ndi katswiri wa matenda a mafupa ndi mafupa (rheumatologist).

• Kuzindikira matenda molondola: Chofunika kwambiri ndikupeza kaye vuto lenileni.
• Chithandizo chamankhwala: Dokotala wanu adzakupatsani mankhwala ochepetsa ululu, oletsa kutupa, kapena mankhwala achilengedwe omwe ali oyenera kwa inu.
• Physiotherapy: Dziwani masewera olimbitsa thupi ndi kutambasula komwe kuli koyenera kwa inu ndi upangiri wa katswiri wa physiotherapy.
• Nthawi zonse lankhulani ndi dokotala wanu: Musanayambe kuchita masewera olimbitsa thupi, zakudya zina, kapena chilichonse, lankhulani ndi dokotala wanu kuti muwonetsetse kuti ndi yoyenera kwa inu. Si zonse zomwe mukuwona pa intaneti zomwe zingakhale zoyenera kwa inu.

Matenda a Ankylosing Spondylitis ndi vuto lalikulu. Koma si mapeto a moyo. Ndi chithandizo choyenera, masewera olimbitsa thupi, komanso malingaliro abwino, inunso mutha kuletsa ululuwu ndikukwaniritsa maloto anu.