Kodi mukumva kupweteka? Kodi miyendo yanu yayamba dzanzi? Izi zitha kukhala Inclusion Body Myositis (IBM)!

Kodi nthawi zina mumamva ngati mukuvutika kugwira zinthu, kukanikiza batani, kapena kuyenda? Mwina mukuganiza kuti, "Izi ndi zinthu zomwe zimachitika mukakula." Koma nthawi zina, zinthuzi sizimakhala zosavuta. Lero, tikambirana za vuto losowa koma lofunika kwambiri lomwe muyenera kudziwa. Limenelo limatchedwa `Inclusion Body Myositis`, lomwe limadziwikanso kuti `(IBM)` mwachidule.

Kodi `Inclusion Body Myositis (IBM)` ndi chiyani? Tiyeni timvetse mosavuta!

Mwachidule, `Kutupa kwa Thupi la Kuphatikizika` ndi vuto lomwe limafooketsa minofu yanu pang'onopang'ono, koma silimayambitsa kupweteka kwambiri. Nthawi zambiri limayamba munthu akakwanitsa zaka 50. Taganizirani izi, mwina mungavutike 'kuphwanya' chinthu chaching'ono, kukhala ndi vuto 'logwira' chinthu, kapena kupunthwa ndi kugwa mukangoyenda. Izi ndi zizindikiro zoyambirira zomwe mungazindikire.

Matendawa, otchedwa `IBM`, amakula pang'onopang'ono kwa zaka zambiri. Si matenda oopsa. Izi zikutanthauza kuti sadzakuphani. Komabe, pakapita nthawi, amatha kukupangitsani kukhala kovuta kuchita zinthu za tsiku ndi tsiku, zomwe zingayambitse kulumala pang'ono. Nthawi zina, mbali imodzi yokha ya thupi lanu imakhudzidwa kwambiri. Pafupifupi theka la anthu omwe ali ndi vutoli akhozanso kukhala ndi 'mavuto omeza'.

Mwatsoka, palibe mankhwala a IBM pakadali pano. Koma musadandaule! Kuchiza thupi kungakuthandizeni kukhalabe ndi mphamvu ya minofu yanu kwa nthawi yayitali momwe mungathere.

Kodi vuto la 'IBM' limeneli ndi lofala bwanji?

Kuphatikizika kwa Thupi Matenda a Myositis ndi matenda omwe amapezeka m'gulu la matenda ofooketsa minofu otchedwa myopathies. Matenda a Myopathies ndi matenda omwe amaukira ndikufooketsa minofu yanu. Kafukufuku akusonyeza kuti IBM imakhudza anthu akuluakulu pakati pa 5 ndi 9 pa miliyoni iliyonse. Amafalanso katatu mwa amuna kuposa akazi (3:1).

Kodi zizindikiro za `Inclusion Body Myositis (IBM)` ndi ziti? Tiyeni tipeze yankho lenileni!

Kufooka kwa minofu komwe kumachitika chifukwa cha IBM kumabwera pang'onopang'ono kwambiri. Nthawi zambiri kumayamba m'miyendo. Choyamba mungazindikire kufooka m'miyendo, ntchafu, kapena m'manja, m'manja, kapena zala. Taganizirani izi motere: anthu ena amavutika kutseka shati, kapena mapensulo awo salemba bwino. Ena amavutika kukwera masitepe, kapena amapunthwa ndi kugwa akangoyenda.

Pamene zizindikiro zikuipiraipira pang'onopang'ono, mungaone zinthu monga:

• Minofu ya m'manja, miyendo, mapewa, m'chiuno, m'manja, ndi zala imafooka pang'onopang'ono. Tangoganizirani, simungathe kunyamula zinthu zomwe kale munkatha kunyamula mosavuta, ndipo mukuvutika kudzuka pampando.
• Kufooka kwa minofu ya pakhosi kapena m'mero. Izi zingapangitse kuti zikhale zovuta kugwira mutu uli chilili, kupangitsa kuti zikhale zovuta kumeza chakudya, komanso kungayambitse kuti chakudya chitsekere.
• Kufooka kwa minofu kumaonekera bwino. Izi zikutanthauza kuti minofu yachepa ndipo yachepa kwambiri.
• Kupweteka pang'ono komanso pafupipafupi kwa minofu (`myalgia`). Komabe, ululu uwu sumachitika kwa aliyense, ndipo ngakhale utakhalapo, si woopsa kwambiri.

Mwachitsanzo, taganizirani kuti muli ndi mnzanu dzina lake Sunil. Wakhala akulephera kugwira chikho chake cha tiyi bwino kwa nthawi ndithu tsopano, chikutuluka m'manja mwake. Akamapita kukawerenga nyuzipepala, dzanja lake likumva ngati likugwedezeka. Poyamba, ankaganiza kuti ndi kutopa chabe. Koma pambuyo pake, anazindikira kuti ichi chingakhale chizindikiro choyambirira cha `IBM`.

N’chifukwa chiyani `Inclusion Body Myositis (IBM)` imeneyi imachitika? Kodi chifukwa chake n’chiyani?

Ndipotu, vuto limeneli lotchedwa `Inclusion Body Myositis` ndi `idiopathic`. Izi zikutanthauza kuti, limawoneka kuti limachitika popanda chifukwa chenicheni. Monga mitundu ina ya `myositis`, pankhaniyi, kutupa kwa nthawi yayitali m'minofu (`chronic inflammation`) ndiye chifukwa chachikulu cha kufooka kwa minofu. Komabe, ofufuza sakudziwabe chifukwa chake kutupa kumeneku kumachitika. Akukayikira kuti mwina chifukwa cha vuto la chitetezo chamthupi (`autoimmune disease`) . Ndiko kuti, maselo omwe amateteza thupi lathu amaukira maselo athu aminofu molakwika.

`Matupi ophatikizana` nawonso amagwirizana ndi `IBM`. Awa ndi ma protein clumps osazolowereka omwe amaikidwa mkati mwa maselo a minofu. Angayambitsidwe ndi matenda a kachilombo, kuwonongeka kwa maselo, kapena kusintha kwa majini . `Matupi ophatikizana' amenewa amapezekanso m'matenda a neurodegenerative monga `ALS`. Amatha kusokoneza magwiridwe antchito a maselo.

Kusiyana pakati pa `Inclusion Body Myopathy` ndi `Inclusion Body Myositis`

Nthawi zina `Inclusion Body Myositis` imatchedwanso `sporadic inclusion body myositis (sIBM)`. `Sporadic` imatanthauza kuti imachitika mwachisawawa, kapena popanda chifukwa chenicheni. Izi zikutanthauza kusiyanitsa ndi matenda ofanana omwe ndi obadwa nawo. Amene ndi obadwa nawo amatchedwa `heriditary inclusion body myopathies (hIMB)`. Tikanena kuti `inclusion body myopathies`, mitundu yonseyi ndi yake. Tsopano tikulankhula za `sIBM` yomwe imachitika mwachisawawa.

Kodi `Inclusion Body Myositis` imapezedwa bwanji? Ndi mayeso ati omwe amachitidwa?

Kuti adziwe ngati muli ndi IBM, dokotala adzakufunsani kaye za zizindikiro zanu ndikuwunika minofu yanu. Zizindikiro za inclusion body myositis zitha kukhala zofanana ndi za matenda ena, monga polymyositis ndi myasthenia gravis. Dokotala wanu adzafufuza zinthu zina monga:

• Ndi minofu iti yomwe imakhudzidwa? (monga zala kapena ntchafu?)
• Kodi mbali imodzi yokha ya thupi ndiyo yakhudzidwa kwambiri?
• Kodi kufooka kwa minofu kumaonekera bwino?
• Munali ndi zaka zingati pamene zizindikiro zinayamba? (Nthawi zambiri mutatha zaka 50)

Kenako, mayeso angapo angachitike kuti "athetse" matenda ena, monga:

• Mayeso a Creatine Kinase (CK): Izi zimayesa kuchuluka kwa enzyme yapadera m'magazi. Mlingo wa `CK` uwu ukhoza kuwonjezeka pakawonongeka minofu.
• Kuyezetsa magazi kwa mavairasi ndi matenda osiyanasiyana odziteteza ku matenda a autoimmune.
• Electromyogram (EMG): Izi zimayesa ntchito yamagetsi m'minofu yanu. Izi zimachitika poika singano zazing'ono m'minofu.
• Kuphunzira za Kuyendetsa Mitsempha (NCS): Izi zimayesa liwiro limene mphamvu yamagetsi imadutsa m'mitsempha (mitsempha yamagetsi) yomwe imalamulira minofu yanu.

Kuyesa kwa biopsy ya minofu

Njira yabwino yotsimikizira ngati muli ndi myositis ya thupi lophatikizidwa ndi kutenga chidutswa cha minofu (biopsy) kuchokera ku minofu yomwe yakhudzidwa. Katswiri wa matenda adzayang'ana chitsanzo cha minofu iyi pogwiritsa ntchito maikulosikopu. Ngati muli ndi IBM, adzatha kuwona matupi ophatikizidwa (mapuloteni osazolowereka, thovu, kapena vacuoles) mu chitsanzocho.

Kodi pali mankhwala othandiza a `Inclusion Body Myositis`?

Mwatsoka, palibe mankhwala othandiza a myositis ya thupi lophatikizidwa. Mosiyana ndi matenda ena otupa ndi matenda odziteteza okha, siliyankha mankhwala a corticosteroids kapena mankhwala oletsa chitetezo chamthupi.

Koma musataye mtima! Kuchita masewera olimbitsa thupi komanso kuchita masewera olimbitsa thupi nthawi zonse n'kofunika kwambiri kuti minofu yanu ikhale yolimba kwa nthawi yayitali. Kuchita masewera olimbitsa thupi kungathandize kupewa kufooka kwa minofu.

Pamene matendawa akupita patsogolo ndipo zimakhala zovuta kuchita zinthu za tsiku ndi tsiku, mungafunike kuphunzira njira zatsopano zochitira zinthu. Apa ndi pomwe chithandizo chamankhwala cha ntchito chingathandize. Mwachitsanzo, angakuphunzitseni momwe mungagwiritsire ntchito zipangizo zosiyanasiyana kuti akuthandizeni kuvala, kudya, ndi kulemba. Anthu ena angafunikenso kuphunzira momwe mungagwiritsire ntchito njinga ya olumala. Ngati muli ndi vuto la kumeza, katswiri wa matenda a kulankhula (SLP) angakuthandizeni. Angakuphunzitseni momwe mungamezere bwino komanso kuchita masewera olimbitsa thupi pomeza.

Ngati ndili ndi `Inclusion Body Myositis`, ndiyenera kuyembekezera chiyani?

Ngati muli ndi `IBM`, idzawonjezeka pang'onopang'ono. Monga ndanenera kale,Izi sizingakhudze moyo wanu. Komabe, zitha kukhudza moyo wanu. Mungafunike kudalira ena kapena kuphunzira njira zatsopano zochitira zinthu. Anthu ambiri sataya mphamvu zawo zoyenda kwathunthu, koma ena angafunike njinga ya olumala patatha zaka 10-15.

Kodi ndimadzisamalira bwanji ndikakhala ndi matenda a inclusive-body myositis?

Mudzakhala ndi vuto la `Inclusion body myositis` kwa nthawi yayitali, ndipo zitha kukhala zovuta pang'ono pakapita nthawi. Njira yabwino yothanirana ndi vutoli ndikupanga dongosolo la nthawi yayitali losamalira thanzi lanu lakuthupi ndi lamaganizo. Izi zikutanthauza kupitiriza kuchita zinthu zazing'ono zomwe zimakuthandizani kukhala bwino. Mwachitsanzo:

• Pitirizani ndi pulogalamu yanu yochita masewera olimbitsa thupi. Mwina mukuchita masewera olimbitsa thupi, kapena mwasintha pulogalamu yanu yochitira masewera olimbitsa thupi kunyumba. Kupitiriza kuchita izi kudzakuthandizani kuti minofu yanu ikhale yolimba momwe mungathere.
• Tsatirani "moyo wabwino." Ngati mudya bwino, kugona bwino, kuthana ndi nkhawa, komanso kusunga ubale wanu wofunika, mudzamva bwino.
• Lowani m'magulu othandizira. Mutha kupeza mphamvu zambiri zamaganizo ndi upangiri wothandiza kuchokera kwa anthu ena omwe adakumanapo kapena omwe akukumana ndi zomwezo zomwe inu muli nazo. Ndibwinonso kumva ngati "Sindine ndekha amene ndikukumana ndi izi."
• Yang'anani momwe mungasinthire zinthu kunyumba ndi kuntchito. Pali zinthu zambiri zothandizira kuyenda ndi zida zothandizira zomwe zingathandize anthu olumala kuti ntchito za tsiku ndi tsiku zikhale zosavuta.
• Pitani kwa dokotala wanu nthawi zonse. Lumikizanani ndi dokotala wanu. Uzani dokotala wanu nthawi yomweyo ngati muwona zizindikiro zatsopano, monga kuvutika kumeza, kapena ngati chizindikiro chomwe chilipo chikukulirakulira.
• Yang'anani mayeso azachipatala. Ofufuza nthawi zonse amafunafuna njira zatsopano zothandizira matenda a myositis m'thupi. Muthanso kutenga nawo mbali mu mayesowa.

Matendawa, otchedwa `Inclusion body myositis`, nthawi zambiri amapezeka pakati pa moyo, pamene palibe chiyembekezo. Palibe amene akuyembekezera mwadzidzidzi kukhala ndi matenda osachiritsika komanso opitirira muyeso. Zingakhale zovuta pang'ono kupirira ndikufotokozera anthu omwe amakukondani, makamaka ngati sanamvepo za matendawa kale.

Koma kumbukirani, iyi ndi matenda omwe akukula pang'onopang'ono. Chifukwa chake, pali nthawi yokwanira yoganizira za kusintha komwe kukubwera ndikusintha moyenera. Palibe amene anganene motsimikiza momwe izi zingakukhudzireni. Koma,Ndi njira yabwino, pali zinthu zambiri zomwe mungachite kuti mukhale ndi thanzi labwino komanso moyo wabwino m'zaka zikubwerazi.

Zinthu zofunika kwambiri zomwe tiyenera kukumbukira (Uthenga Wopita Nawo Kunyumba)

Chabwino, takambirana zambiri za `Inclusion Body Myositis (IBM)`. Pomaliza, nazi zinthu zofunika kwambiri zomwe muyenera kukumbukira:

• IBM ndi matenda ofooka minofu omwe amapezeka kwambiri munthu akakwanitsa zaka 50. Ululuwo ndi wochepa, koma pakapita nthawi umatha kukhudza zochita za tsiku ndi tsiku.
• Palibe mankhwala a izi , koma chithandizo cha thupi ndi masewera olimbitsa thupi zingathandize kusunga mphamvu za minofu kwa nthawi yayitali momwe zingathere.
• Zizindikiro zake zingaphatikizepo kuvutika kugwira zinthu, kupunthwa poyenda, komanso kuvutika kumeza chakudya .
• Chifukwa chenicheni sichikudziwika ('idiopathic'), koma chikhoza kukhala vuto ndi chitetezo cha mthupi.
• Matendawa amatsimikiziridwa motsimikizika ndi biopsy ya minofu.
• Izi sizikuika moyo pachiswe , koma zingakhudze ubwino wa moyo.
• Ndikofunikira kwambiri kukhala ndi thanzi labwino, kutsatira malangizo a dokotala, ndikupeza chithandizo chofunikira.

Ngati inu kapena munthu amene mumamudziwa akukumana ndi zizindikirozi, ndi bwino kufunafuna upangiri kwa dokotala. Kumbukirani, simuli nokha, pali anthu ambiri omwe angakuthandizeni!

Kufooka kwa minofu, matenda a IBM, chithandizo cha thupi, matenda a minofu, thanzi la okalamba, mavuto omeza, matenda a mitsempha