Ndabizi ko kubaho na ankylosing spondylitis, cyangwa AS mu magambo make, rimwe na rimwe bishobora kugorana. Umuntu wese wayirwaye azi ukuntu bigoye kwihanganira umunsi uhora ubabara umugongo n'ingingo ndetse no kubabara mu gitondo. Ariko ntabwo uri wenyine. Hari uburyo bwinshi n'ibikoresho bishobora kugufasha, bikaguha imbaraga, kandi bikaguha amakuru mashya muri uru rugendo. Ibyo ni byo tuvuga uyu munsi.
Kuki ubwo bwoko bw'inkunga ari ingenzi kuri wowe?
Mu magambo make, AS ni indwara idakunze kugaragara ishobora kugira ingaruka ku bice byinshi by'ubuzima bwawe. Kubera ko ari indwara idakira, ni ngombwa gufata imiti ku gihe no kwiga kuyibana nayo. Aha niho amatsinda y'abaterankunga n'amasoko yizewe y'amakuru bifasha.
Tekereza ukuntu byaguhumuriza kuganira n'umuntu usobanukiwe ububabare urimo kumva n'ibibazo uhura nabyo. Kandi ukuntu byakoroha ubuzima bwawe uramutse wize uburyo bushya bwo kuvura n'uburyo bworoshye bwo guhangana n'ibimenyetso byawe. Niyo mpamvu ari ngombwa kumenya ibikoresho nk'ibi.
Ni hehe nabona ubufasha n'amakuru?
Hari ahantu henshi hashobora kugufasha no kukwereka inzira ikwiye. Amwe muri ayo matsinda ashobora guhura imbonankubone. Andi ashobora gukorera kuri interineti gusa. Ugomba guhitamo uburyo bukunogeye cyane.
| Aho wabona ubufasha | Inkunga uhabwa |
|---|---|
| Muganga wawe. | Umuntu mwiza wo kubaza ku byerekeye amatsinda y'abaterankunga yizewe cyangwa amikoro ajyanye n'uburwayi bwawe. |
| Ibitaro cyangwa ivuriro aho urimo kuvurirwa | Ibitaro byinshi bifite gahunda zihariye zo gufasha abarwayi cyangwa gahunda zo kubukangurira abarwayi. Reba neza. |
| Ibigo nderabuzima by'abaturage | Ushobora kandi kubona amakuru yerekeye gahunda zitandukanye z'ubuzima binyuze mu bigo nk'ibi biri mu gace utuyemo. |
| Amashami y'ubuvuzi ya kaminuza | Hari igihe twiga ibijyanye na gahunda zibanda ku barwayi binyuze muri za kaminuza zikora ubushakashatsi. |
Mbere yo guhitamo itsinda, kora ubushakashatsi ku byo itsinda ryibandaho, uko bahura (kuri interineti cyangwa imbonankubone), n'uyobora itsinda.
Witondere ibi bintu mugihe ugiye kuri interineti!
Muri iki gihe, ushobora kubona amakuru menshi ku mbuga nkoranyambaga nka Facebook na YouTube. Ushobora gusoma no kureba ibyabayeho ku bantu babana na AS, ibintu bakora. Ibi bishobora kuguhumuriza. Ariko, aha ni ahantu ugomba kwitonda cyane .
Wibuke ko ntugafate ikintu icyo ari cyo cyose ubonye kuri interineti, cyane cyane ibyakubayeho ku giti cyawe, nk'inama z'ubuvuzi. Ni ngombwa kuvugana na muganga wawe mbere yo kugerageza ikintu icyo ari cyo cyose.
Mu gihe ureba amakuru kuri interineti, ibaze ibi bibazo:
- Ni nde uyobora uru rubuga cyangwa Facebook? Ese ruyoborwa n'ishyirahamwe ry'abaganga ryemewe, cyangwa n'umuntu utazwi?
- Ese hari icyo bashaka kugurisha? Hari igihe bagerageza kugurisha ibicuruzwa byabo bavuga amagambo nka "Uyu muti uzagutera kumva umeze neza." Ntugashukwe n'ibyo.
- Ese bisa nkaho ari ukuri? Niba ubona ikintu nka "Ibanga ryo kuvura AS mu minsi 7," birashoboka ko ari ikinyoma.
- Ese aya makuru ni mashya? Ese hari ishingiro rya siyansi? Reba niba amakuru yasohotse ashingiye ku bushakashatsi kandi agezweho.
Imiryango mpuzamahanga yizewe n'imbuga za interineti
Haracyari imiryango mike ya AS yihariye muri Sri Lanka. Ariko, hari imiryango minini mpuzamahanga ikora ubushakashatsi kuri iyi ndwara kandi igafasha abarwayi ku isi yose. Nubwo izi mbuga za interineti ziri mu Cyongereza, zitangaza amakuru y'agaciro kandi nyayo ku ndwara, uburyo bushya bwo kuvura, imyitozo ngororamubiri, n'uburyo bwo kubana n'iyi ndwara. Niba uzi Icyongereza gato, izi mbuga zizaba ingirakamaro cyane.
- Ishyirahamwe ry’indwara ya Spondylitis muri Amerika (SAA):Uyu ni umwe mu miryango minini muri Leta Zunze Ubumwe za Amerika wibanda ku ndwara ya spondylitis, harimo na AS. Urubuga rwabo (spondylitis.org) rufite inama nyinshi z’abarwayi, amatsinda y’ubufasha, n’amakuru agezweho.
- Umuryango w’indwara za rubagimpande: Uyu ni umuryango munini utanga amakuru ku bwoko bwose bw’indwara za rubagimpande. Urubuga rwabo (arthritis.org) rufite igice cyihariye kuri AS.
- Ikigo cy’Igihugu cy’Ubushakashatsi ku ndwara ya Arthritis: Batera inkunga ubushakashatsi kugira ngo babone umuti wa arthritis. Ushobora kumenya ubushakashatsi buheruka ku rubuga rwabo (curearthritis.org).
- Ikigo cy'Igihugu gishinzwe indwara za rubagimpande n'imitsi n'indwara z'uruhu (NIAMS): Iki ni ikigo cya leta ya Amerika. Amakuru yasohotse ku rubuga rwabo (niams.nih.gov) ni yizewe cyane kandi yemejwe na siyansi.
Imiryango yo kuri interineti aho ushobora gusoma ubunararibonye bw'abandi
Imbuga nkoranyambaga zigufasha kuvugana n'abantu bo hirya no hino ku isi babana na AS nkawe. Inkunga uhabwa ishobora kuba isoko ikomeye y'inkunga. Ariko, nk'uko nabivuze mbere, ntukagerageze ikintu icyo ari cyo cyose utaganiriye na muganga wawe.
| Urubuga | Ibisobanuro |
|---|---|
| Nushaka Ankylosing Spondylitis, uzasangamo amatsinda menshi. Amwe ni amatsinda yigenga, kandi ugomba gusaba kuyajyamo. Muri ayo matsinda, abandi babaza ibibazo kandi bagasangira ubunararibonye. | |
| Aha ni ahandi hantu hazwi cyane ho gusangira amakuru n'ibitekerezo. Ba umunyamuryango w'umuryango witwa `r/ankylosingspondylitis` aho ushobora kubaza ibibazo no gusoma iby'abandi bantu. | |
| Instagram / Twitter | Ushobora kubona inyandiko zijyanye n'ibyo ukoresheje hashtag nka `#ankylosingspondylitis`, `#arthritis`, `#chronicpain`. Ariko, ugomba kwitondera cyane ukuri kw'amakuru ari muri ibi. |
Ni gute wagenzura niba konti yo kuri interineti yizewe?
- Tega amatwi: Niba hari ikintu kimeze nk'ikitagenda neza cyangwa cy'impimbano iyo urebye kuri konti, birashoboka ko ari cyo.
- Shaka Konti Zemewe: Konti zo mu bigo binini kandi byemewe zifite akamenyetso k'ubururu iruhande rwazo, bivuze ko konti ari iy'ukuri atari impimbano.
- Ibaze ireme ry'amakuru: Nkuko byavuzwe mbere, tekereza buri gihe ku bakora ibi, niba ari ukugurishwa, kandi niba ari siyansi.
Urugendo rwo kurwanya iyi ndwara rushobora kuba rwigunga kandi rukagorana rimwe na rimwe. Ariko iyo ufite amakuru akwiye n'ubufasha bukwiye, ushobora kwihanganira iyi ndwara neza no kubaho ubuzima bwiza.
Ubutumwa bwo kujyana mu rugo
- Ntabwo uri wenyine mu rugendo rwawe rwo kubana na Ankylosing Spondylitis (AS). Abandi ibihumbi n'ibihumbi, kimwe nawe, babayeho muri iyi ndwara.
- Muganga wawe ukuvura ni we soko ryawe ryiza ryo kumenya amakuru. Banza umuganirize ku kintu icyo ari cyo cyose.
- Nubwo interineti, cyane cyane imbuga nkoranyambaga, ari ahantu heza ho kubona amakuru, ntukemere ibyo usoma byose. Ntugatekereze ko ibyakubayeho ku giti cyawe bizakureba.
- Mbere yo kugerageza imyitozo ngororamubiri mishya, indyo, cyangwa ikindi kintu icyo ari cyo cyose, banza ubaze muganga wawe niba bikubereye.
- Nubwo imbuga za interineti z'imiryango mpuzamahanga ziri mu Cyongereza, amakuru nyayo kandi ya siyansi batanga azagufasha cyane mu kongera ubumenyi bwawe.
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