Tekereza, ufite ubuzima bwiza hanyuma rimwe mu maboko cyangwa amaguru yawe rigacika intege ugahita ucika intege. Cyangwa umubiri wawe wose ugacika intege ku buryo udashobora kwimuka. Ni ibisanzwe kugira ubwoba bwinshi iyo ikintu nk'iki kibaye. Abantu benshi batekereza ko ibi biterwa n'umunaniro cyangwa ikindi kintu. Ariko, rimwe na rimwe hashobora kuba hari impamvu y'ubuvuzi inyuma y'ibi igomba kuganirwaho mu buryo bwimbitse. Uyu munsi turimo kuvuga ku ndwara idasanzwe ariko ikomeye cyane igomba kwitabwaho.
Mu magambo make, ni iki ubumuga bw'ibanze bw'igihe (Primary Periodic Paralysis - PPP)?
Ubumuga bw'ibanze bw'igihe runaka, cyangwa PPP mu magambo ahinnye, ni itsinda ry'indwara zidasanzwe zigira ingaruka ku mitsi yacu mu buryo butunguranye. Icyo bibaho ni uko, nta nteguza , imitsi yawe ihita icika intege, igakomera, cyangwa igacika burundu. Iyi ndwara ishobora kumara iminota mike kuri bamwe, mu gihe ku bandi ishobora kumara iminsi.
Impamvu nyamukuru ibi biba mu turemangingo tw’imitsi yacu. Tekereza ko uturemangingo tw’imitsi yacu dufite imiyoboro mito. Iyi miyoboro niho imyunyu ngugu y’ingenzi nka potasiyumu, sodiyumu, na kalisiyumu yinjirira ikava mu turemangingo. Kugira ngo imitsi ikore neza, ingano y’iyi myunyungugu iri imbere no hanze yayo igomba kuba iringaniye neza. Ikiba ku muntu urwaye PPP ni uko iyi myunyungugu ibura bitewe n’inenge iri muri iyi miyoboro. Hanyuma imitsi ntishobora gukora neza.
Akenshi, ibi bimenyetso bitangira mu bwana cyangwa mu bwangavu, ariko hari abantu bashobora kutagaragaza ibimenyetso kugeza bagejeje ku myaka 60 cyangwa 70.
Ni ubuhe bwoko bw'ingenzi bw'iyi ndwara?
PPP igabanyijemo ubwoko bwinshi bw'ingenzi. Ubu bwoko bushingiye ahanini ku busembwa bw'imiyoboro y'amabuye y'agaciro buri mu turemangingo tw'imitsi yawe.
| Ubwoko bw'indwara | Ni iki kirimo kuba (mu magambo yoroshye) |
|---|---|
| Gucika intege mu gihe cy'ihindagurika ry'izuba (hypoKPP) | Ikiba muri ibi ni uko urugero rwa potasiyumu mu maraso rugabanuka cyane. |
| Kurema umubiri igihe kirekire (hyperkalemic periodic paralysis) (hyperKPP) | Ikiba muri ibi ni uko urugero rwa potasiyumu mu maraso rwiyongera cyane mu buryo butunguranye. |
| Paramyotonia Congenita | Aha, uburinganire bwa sodium na potasiyumu mu turemangingo tw'imitsi burahungabana. |
| Indwara ya Andersen-Tawil (ATS) | Muri iki kibazo, inzira ya potasiyumu yinjira cyangwa isohoka mu turemangingo ntibaho neza. Urugero rwa potasiyumu mu maraso rushobora kuba ruri hejuru, hasi, cyangwa rusanzwe. |
Hari igihe intege nke z'imitsi zishobora guterwa n'izindi ndwara. Urugero ni indwara ya Thyrotoxic Periodic Paralysis (TPP) . Iyi ni indwara aho thyroid gland ikora imisemburo myinshi ya tiroyide. Ibi biherekezwa n'urugero rwa potasiyumu nke mu maraso, bishobora gutera ibimenyetso bisa na HypoKPP.
Ni izihe mpamvu n'ibintu "bitera" iki kibazo?
PPP iterwa n'ubusembwa bw'uturemangingo . Muri make, iterwa n'ubusembwa bw'uturemangingo tugenzura inzira z'uturemangingo tw'imitsi twavuze mbere. Akenshi, umwana akura iyi gene ifite ubusembwa ku babyeyi be. Ariko, ni gake cyane, umwana ashobora kurwara iyo ndwara nubwo ababyeyi badafite iyi gene.
Noneho reka turebe icyatera intege nke z'imitsi. Ibi bishobora gutandukana bitewe n'umuntu ku giti cye.
- Indyo: Kurya ibiryo bikungahaye kuri potasiyumu (muri hyperKPP) cyangwa potasiyumu nkeya (muri hypoKPP). Nanone, kurya ibiryo birimo karubohidrati nyinshi (ibinyamisogwe/isukari).
- Imyitozo ngororamubiri : Iyo uruhuka nyuma yo gukora imyitozo ngororamubiri ikomeye.
- Kuruhuka: Kwicara mu mwanya umwe igihe kirekire, iyo ukangutse mu gitondo, cyangwa nyuma yo gusinzira.
- Izindi mpamvu: Guhangayika, guhura n'ibicurane bikabije, kunywa inzoga, n'imiti imwe n'imwe (urugero: imiti igabanya imitsi, imiti imwe n'imwe ya asima, imiti igabanya ububabare).
Ni ibihe bimenyetso by'ingenzi?
Ikimenyetso nyamukuru ni intege nke z'imitsi cyangwa ubumuga butunguranye. Ibi bishobora kugira ingaruka ku kuboko kumwe cyangwa ukuguru kumwe icyarimwe, cyangwa ku mubiri wose mu bindi bihe.
Uretse iki kimenyetso cy'ingenzi, hari abantu bashobora no kugira ibindi bimenyetso iyo babonye ubwo ntege nke:
- Intege nke z'imitsi yo mu maso
- Ububabare bw'imitsi no gukomera kwayo
- Umutima utari umeze neza
- Kugorwa no guhumeka cyangwa kumira
HypoKPP (ubwoko bwa potasiyumu nke)
Ibimenyetso bishobora kugaragara inshuro imwe ku munsi, cyangwa rimwe mu mwaka. Bishobora kumara isaha imwe cyangwa ebyiri, cyangwa iminsi ibiri cyangwa itatu. Uko igihe kigenda gihita, imitsi ishobora gucika intege burundu.
HyperKPP (ubwoko bwa potasiyumu yiyongera)
Uburemere bushobora kumara igihe gito, ariko bushobora kubaho kenshi. Ibimenyetso bishobora kugaragara mu buryo butunguranye, ndetse rimwe na rimwe bigafata iminota mike. Nubwo nta buremere buhari, ushobora kumva imitsi icitse cyangwa igakomera.
Indwara ya Andersen-Tawil (ATS)
Uretse intege nke z'imitsi, hari n'ibindi bimenyetso by'umubiri bigaragara.
- Umutima utera vuba cyangwa utari umeze neza
- Indwara ya Scoliose
- Ibitoki bifite urubuga
- Bito ugereranije n'amaboko n'ibirenge bisanzwe
- Impinduka zimwe na zimwe mu maso (urugero: agahanga kanini, amatwi make)
Ni gute wasuzuma neza iyi ndwara?
Kubera ko PPP ari indwara idakunze kugaragara kandi ibimenyetso byayo bisa n'izindi ndwara zisanzwe, bishobora gufata igihe kugira ngo umenye neza indwara. Kubwibyo, niba ufite ibi bimenyetso, ni byiza kujya kwa muganga w’inzobere mu ndwara zijyanye n’imitsi (Neurologist) .
Muganga wawe ashobora kukubaza ibibazo nk'ibi kugira ngo amenye iyo ndwara:
- Ibi bimenyetso byatangiye ryari?
- Hari undi muntu mu muryango ufite ikibazo nk'icyo?
- Bigenda bite iyo intege nke zibaye?
- Ese wigeze wumva ko hari icyo kurya cyangwa igikorwa runaka byateye ibi?
Byongeye kandi, hashobora gukorwa ibizamini byinshi kugira ngo hemezwe indwara:
- Gupima amaraso: Kureba urugero rwa potasiyumu, imisemburo ya tiroyide, n'ibindi.
- Electromyography (EMG): Gupima imikorere y'imitsi n'imitsi.
- Electrocardiogram (EKG): Kugenzura uko umutima utera.
- Gupima imitsi: Gufata agace gato k'imitsi ukagasuzuma.
Uburyo bwo kuvura no gucunga indwara?
Uburyo bw'ingenzi bwo kuvura ibi ni ukumenya no kwirinda ibintu bitera ibiyobyabwenge . Ibi bivuze guhindura bimwe mu mirire yawe n'imyitozo ngororamubiri.
Byongeye kandi, hari imiti igenzura urugero rwa potasiyumu mu mubiri.
- Umuti wa Dichlorphenamide (Keveyis) wemewe kuvura hypoKPP na hyperKPP.
- Hari igihe abaganga batanga inama ku muti witwa Acetazolamide (Diamox) .
- Inyongeramusaruro za potasiyumu zihabwa abafite HypoKPP.
- Umuntu urwaye HyperKPP rimwe na rimwe ashobora kugenzura intege nke ze anywa ikinyobwa kirimo isukari (urugero, soda) akimara gutangira.
Igikuru ni uko, ntukareke gufata cyangwa guhagarika imiti wenyine. Kora byose ku nama za muganga wawe gusa. Niba ugize intege nke zitunguranye, ugorwa no guhumeka, cyangwa ubabara mu gatuza, jya mu ishami ryita ku bibazo byihutirwa (ETU) ry’ibitaro biri hafi yawe vuba.
Ushobora kugenzura iki kibazo ku rugero runini ukoresheje utuntu duto mu mibereho yawe.
- Ibiribwa: Niba ufite potasiyumu nyinshi (hyperKPP), uzakenera kugabanya ibiryo birimo potasiyumu nyinshi nk'imineke, amateke, broccoli, n'ubunyobwa. Niba ufite potasiyumu nke (hypoKPP), uzakenera kugabanya ibiryo birimo karubohidrati nyinshi nk'umugati, makaroni, umuceri n'ibindi biryoshye. Shaka inama nziza kwa muganga wawe kuri ibi.
- Imyitozo ngororamubiri: Kimwe no gukora imyitozo ngororamubiri ikabije, nta myitozo ngororamubiri na yo ni mbi. Vugana na muganga wawe ku rwego rw'imyitozo ngororamubiri ikubereye.
Ubutumwa bwo kujyana mu rugo
- Gucika intege kw'umubiri (Primary Periodic Paralysis - PPP) si ubumuga bw'umubiri gusa, ahubwo ni inenge y'uturemangingo igaragara mu miyoboro ya ion y'uturemangingo tw'imitsi.
- Hari ibintu bishobora gutera iyi ndwara. Itondere ibintu nk'imirire, imyitozo ngororamubiri, n'imihangayiko, kandi umenye kandi wirinde ibintu bikugiraho ingaruka.
- Iyo ibimenyetso bigaragaye, ni ngombwa cyane kubonana n'inzobere no gusuzuma neza indwara.
- Abantu benshi bashobora kurwanya iki kibazo neza no kubaho ubuzima busanzwe binyuze mu guhindura imibereho yabo no gukoresha imiti bahabwa na muganga wabo.
- Buri gihe kurikiza inama za muganga wawe. Ntugafate ibyemezo wenyine, nko gufata imiti cyangwa guhindura indyo yawe.
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