Ese ufite ikibyimba cyuzuye amazi mu mugongo wawe? Reka twige kuri Syringomyelia hamwe na Nirogi Lanka

Ese rimwe na rimwe ujya ugira ububabare bw'umugongo, ibinure mu maboko, cyangwa ingorane zidashira mu gihe ugenda? Nubwo abantu benshi babifata nk'ibintu bito bito, bishobora kuba ibimenyetso by'uburibwe bw'indwara isanzwe isaba ubuvuzi. Uyu munsi, muri Nirogi Lanka , turimo kumenyekanisha indwara idasanzwe ariko ikomeye y'umugongo wagakwiye kumenya: Syringomyelia .

Syringomyelia ni iki?

Mu magambo make, syringomyelia ni iterambere ry’urushinge rwuzuye amazi—ruzwi nka syrinx—mu mugongo wawe. Tekereza ko umugongo wawe ari wo muhanda w’ibanze w’ubutumwa ujyana ibimenyetso by’ingenzi hagati y’ubwonko bwawe n’umubiri wawe wose. Uko igihe kigenda gihita, iyi syrinx ishobora kwaguka no kuramba, igashyira igitutu ku mugongo kandi ikaba ishobora kwangiza imitsi yoroshye itanga ubwo butumwa bw’ingenzi.

Aya mazi ni iki?

Amazi ari muri iki kibyimba ni amazi yo mu bwonko (CSF) . Mu bihe bisanzwe, CSF irinda ubwonko bwawe n'umugongo wawe, ikora nk'ikintu gifata impanuka. Inyura mu byobo biri mu bwonko bwawe byitwa ventricles kandi ikanyura mu muyoboro muto unyura hagati mu muyoboro wawe w'ubwonko, uzwi nka canal yo hagati.

Iyo ufite syringomyelia, CSF yirundanya mu ruti rw'umugongo, bigatuma umuyoboro wo hagati waguka ugahinduka syrinx. Ibi bikunze kubaho iyo urujya n'uruza rusanzwe rwa CSF rukikije uruti rw'umugongo cyangwa urwego rw'ubwonko rwazibye. Iyo iyi syrinx ishyize igitutu ku ruti rw'ubwonko bwawe, iyi ndwara yitwa syringobulbia. Syringomyelia ikunze kwibasira ibice byo hejuru by'umugongo, cyane cyane ibice byo mu mugongo (ijosi) n'ibituza (igituza).

Ni nde ufatwa n'iyi ndwara, kandi ikunze kugaragara ku ki?

Syringomyelia ikunze kugaragara cyane mu bantu bakuru bari hagati y'imyaka 20 na 50. Nubwo ishobora kugaragara mu bana no mu bantu bakuze, ikomeje kuba indwara idakunze kugaragara cyane , ikaba yibasira abantu bagera kuri 8 kuri buri 100.000. Bivugwa ko ari yo mpamvu nyamukuru itera indwara zo mu bwonko zifata abantu bagera kuri 5%.

Ni ibihe bimenyetso bya Syringomyelia?

Ibimenyetso bikunze kwiyongera buhoro buhoro mu myaka myinshi kandi bishobora kwiyongera buhoro buhoro . Hari abantu bashobora kugira agahu gato k'amaraso kandi bagakomeza kutagaragaza ibimenyetso igihe kirekire. Ibimenyetso biratandukanye bitewe n'aho agace karimo, ingano, n'uburebure bwa syrinx. Ushobora kugira ibimenyetso ku mpande imwe cyangwa zombi z'umubiri wawe, kuva ku nto cyane kugeza ku zikomeye.

Ibimenyetso bisanzwe birimo:

• Kuribwa umutwe.
• Ububabare bunyura mu maboko yawe, mu ijosi, mu mugongo wo hagati, cyangwa mu maguru (radiculopathy).
• Intege nke zikomeza kwiyongera no gucika intege kw'imitsi (atrophy) mu maboko cyangwa amaguru.
• Imitsi irakomera cyangwa ifungana mu mugongo, mu bitugu, mu ijosi, mu maboko cyangwa mu maguru.
• Kubura ubushobozi bwo kumva ububabare cyangwa ubushyuhe, cyane cyane mu biganza.
• Kubura ibinya cyangwa kumva urimo gushyuha mu ngingo zawe.
• Ibibazo byo kuringaniza no kugorwa no kugenda.
• Kubura uburyo bwo kugenzura amara cyangwa uruhago.
• Imibonano mpuzabitsina idakora neza.

Ku bana, ibimenyetso by'inyongera bishobora kuba birimo:

• Scoliosis (uburyo umugongo ugonganye).
• Kugenda n'amaguru.

Icy'ingenzi kurushaho, niba wowe cyangwa umwana wawe mufite ibi bimenyetso, nyamuneka gisha inama umuganga vuba.

Kuki Syringomyelia ibaho? Ni izihe mpamvu?

Nubwo uburyo nyabwo bwo gukora buri syrinx butarasobanuka neza, ubwumvikane bwa siyansi bugaragaza ko impamvu nyamukuru ari ukubangamira cyangwa guhungabanya urujya n'uruza rw'amazi yo mu bwonko (CSF). Syringomyelia muri rusange igabanywa mu moko abiri: kuvuka (ubu mu gihe cyo kuvuka) n'ukuvuka (gukura mu myaka y'ubukure).

Impamvu ziterwa n'ivuka ry'umwana

Ingero nyinshi za syringomyelia zifitanye isano na Chiari Malformation Type 1. Ibi bibaho iyo igice cyo hasi cya cerebellum (inyuma y'ubwonko) kigeze muri foramen magnum—umwobo uri mu nsi y'agahanga kawe. Kubera ko iyi ari yo nzira uruti rw'umugongo rusanzwe runyuramo, iyi miterere mibi y'imiterere ibangamira urujya n'uruza rwa CSF. Nubwo Chiari malformation ivukanwa, abantu benshi bakomeza kugira ibimenyetso kugeza bageze mu zabukuru cyangwa nyuma yaho.

Izindi mpamvu zivukana zirimo:

• Myelomeningocele: Izwi kandi nka open spina bifida, iyi ni indwara ivuka aho umugongo n'umuyoboro w'uruti rw'umugongo binanirwa gufunga neza mu gihe cyo gukura, bigashyirwa mu cyiciro cy'indwara y'imitsi y'ubwonko (NTD).
• Indwara yo kugongana kw'imitsi: Iyi ni indwara idakunze kugaragara aho umugongo ufatana (ugongana) n'ingingo ziwukikije, akenshi zijyana no kurwara spina bifida na scoliosis.

Impamvu zabonetse

Impamvu za syringomyelia zigaragara mu myaka yashize zirimo:

• Ibikomere byo mu mugongo: Iyi ndwara rimwe na rimwe yitwa syringomyelia nyuma yo gukomereka. Ishobora kugaragara nyuma y'amezi cyangwa imyaka nyuma y'imvune ya mbere. Ikunze guterwa n'inkovu zibangamira urujya n'uruza rw'amazi yo mu bwonko (CSF).
• Utubyimba tw’umugongo: Ibibyimba nka hemangioblastomas na ependymomas bishobora kubangamira inzira za CSF, bigatera iterambere rya syrinx.
• Arachnoidite: Arachnoid ni imwe mu ngirabuzimafatizo zirinda uruti rw'umugongo wawe. Kubyimba kw'iyi ngirabuzimafatizo bishobora gutera syringomyelia. Impamvu nyamukuru zishobora kuba zirimo indwara nka sarcoidosis, transverse myelitis, na multiple sclerosis (MS).
• Meningite: Iyi ni indwara ifata uturemangingo (meninges) tukikije ubwonko bwawe n'umugongo wawe, ishobora no gutera syringomyelia.

Hari ubwo impamvu itaramenyekana; ibi byitwa idiopathic syringomyelia .

Iyi ndwara ipimwa ite? (Isuzuma)

Kugira ngo amenye niba ufite syringomyelia, muganga wawe azatangira asuzuma amateka y'ubuzima bwawe no gukora isuzuma ry'umubiri, yibanda cyane ku mikorere y'imitsi yawe. Ushobora koherezwa kwa muganga w'indwara z'ubwonko—inzobere mu ndwara z'ubwonko n'iz'imitsi.

Hanyuma, muganga wawe ashobora kugutegeka gupima uruti rw'umugongo cyangwa ubwonko bwawe. Rimwe na rimwe, syringomyelia iboneka ku buryo bw'impanuka mu gihe cyo gupima izindi ndwara.

Ni ibihe bipimo bikoreshwa mu gusuzuma ibi?

Niba muganga wawe akeka ko ufite syringomyelia, ashobora kukugira inama yo gupima kimwe cyangwa byinshi muri ibi bikurikira:

• MRI (Magnetic Resonance Imaging) Scan: MRI ni yo ngamba nziza yo gusuzuma syringomyelia . Ikoresha magneti zikomeye n'ikoranabuhanga rya mudasobwa kugira ngo ikore amashusho arambuye y'imiterere y'imbere mu mubiri wawe. Iki kizamini cyemerera muganga wawe kumenya syrinx, ikibyimba, cyangwa ibindi bintu bidasanzwe, bigaragaza neza aho syrinx iherereye, ingano, n'ingano yayo.
• MRI Ihindagurika: Iyi MRI yihariye ifata ingendo za CSF zikikije uruti rw'umugongo wawe no mu gice cy'umugongo. Ushobora gukenera guhabwa umuti ugabanya ubukana binyuze muri IV kugira ngo urebe neza ko amashusho asobanutse neza uko bishoboka kose.
• Myelogram hamwe na CT Scan: Niba udashobora gukorerwa MRI, CT scan hamwe na myelogram akenshi ni yo mahitamo akurikira. Myelogram ikubiyemo gutera irangi ryihariye ritandukanye, hanyuma hagakurikiraho computer tomography (CT scan) kugira ngo hamenyekane ibibazo biri mu muyoboro w'umugongo.

Ni ubuhe buryo bwo kuvura Syringomyelia?

Uburyo bwo kuvura syringomyelia buterwa n'uburemere bw'ibimenyetso byawe n'uburyo byihuta bikura.

Iyo udafite ibimenyetso, abaganga ntibavura syringomyelia mu buryo butaziguye. Ariko, bazagusaba ko ukurikiranwa buri gihe n'inzobere mu by'imitsi cyangwa umuganga w'imitsi kugira ngo bakurikirane syrinx, kuko ibimenyetso bishobora kugaragara cyangwa bikarushaho kwiyongera uko igihe kigenda gihita. Ubusanzwe iri genzura rikubiyemo gupima MRI buri gihe no gusuzuma ubwonko.

Ku barwayi bafite ibimenyetso, intego zo kuvurwa muri Nirogi Lanka ni uku:

• Vura impamvu nyamukuru ya syrinx, igihe cyose bishoboka.
• Gucunga ibimenyetso byawe neza.
• Garura urujya n'uruza rw'amazi yo mu bwonko (CSF) mu buryo busanzwe kugira ngo wirinde ko uruti rw'umugongo rwangirika.

Ubusanzwe kubagwa birakenewe kugira ngo hakemurwe impamvu nyamukuru no gukumira ko byangirika kurushaho. Uburyo busanzwe bwo kuvura ibimenyetso burimo:

• Imiti yo kuvura ububabare.
• Ubuvuzi bw'umubiri n'ubuvuzi bwo kuvura indwara.
• Guhindura imibereho, cyane cyane kwirinda ibikorwa biremereye bigutera imihangayiko (nk'iterura ibintu biremereye cyangwa gusimbuka).

Ni ubuhe bwoko bw'ubuvuzi bukorerwa Syringomyelia?

Niba indwara yawe itera ibimenyetso cyangwa syringe irimo kwiyongera, itsinda ry'abaganga bashobora kukugira inama yo kubagwa. Hari uburyo bubiri bw'ingenzi: gusubizaho CSF ​​isanzwe izenguruka uruti rw'umugongo cyangwa kuvoma syringe mu buryo butaziguye. Uburyo bwo kubaga bwihariye buzaterwa n'impamvu nyamukuru y'uburwayi bwawe.

Uburyo bwo kubaga burimo:

• Kuvura Chiari Malformation: Intego nyamukuru y'ubu buvuzi ni ukugira umwanya munini mu nsi y'agahanga kawe no mu ijosi ryo hejuru. Ibi tubigeraho, bigabanya umuvuduko ku bwonko bwawe no mu ruti rw'umugongo, bigatuma amazi yo mu bwonko (CSF) yongera gutemba mu buryo busanzwe. Uburyo bukunze gukoreshwa cyane niGukuraho Fossa y'inyuma. Muri iki gikorwa cyo kubaga, umuganga wawe w'imitsi akura ibice bito by'amagufwa inyuma y'agahanga kawe kugira ngo abone umwanya ukenewe. Nyuma y'ibi, amazi ari muri syrinx ashobora gusohoka, akenshi agatuma agabanuka cyangwa agashira burundu. Nubwo syrinx yagumaho cyangwa igagabanukaho igice, ushobora kubona impinduka zikomeye mu bimenyetso byawe.
• Kuvura cyangwa Gukumira Syringomyelia Nyuma y'ihungabana: Iyo syringomyelia itewe n'igikomere, intego nyamukuru ni ukubuza syrinx gukora cyangwa guhagarika iyisanzwe gukura. Ubu buryo, buzwi nka Expansive Duraplasty , burimo gukuraho inkovu zikikije uruti rw'umugongo wawe ndetse rimwe na rimwe ugakoresha agace kugira ngo wongere membrane irinda (Dura Mater). Mu gushyiraho umwanya no gukuraho inzitizi, tugarura urujya n'uruza rw'amaraso mu mubiri wawe.
• Gukuraho Ibiziba: Kubagwa bishobora kugarura neza inzira ya CSF binyuze mu gukuraho ibiziba nko mu nkoko, ibice by'amagufwa mu muyoboro w'uruti rw'umugongo, cyangwa ibibyimba. Niba ikibyimba ari cyo gitera syringomyelia yawe, kuyikuraho akenshi bikemura syrinx. Hari ubwo muganga wawe ashobora no kukugira inama yo gukoresha imirasire kugira ngo bifashe kugabanya ikibyimba.
• Gukuraho amazi mu gice cy'amaraso: Niba nta mpamvu igaragara itera syrinx yawe, cyangwa niba irimo kwaguka, muganga wawe ashobora kukugira inama yo kuyikuraho. Umuganga wawe w'imitsi ashobora gushyiramo stent cyangwa shunt . Stent ni umuyoboro muto wemerera amazi gutembera mu gice cy'imbere cy'umugongo werekeza mu gice gikikije. Shunt igizwe n'umuyoboro uhindura imiterere n'agace kayobora amazi mu gice cy'umubiri wawe, akenshi mu nda cyangwa mu gituza. Ubwo buryo bwombi bufasha gukumira ibimenyetso byawe kwiyongera binyuze mu kugabanya umuvuduko w'amazi.

Nyuma yo kubagwa, muganga wawe azakoresha MRI scans kugira ngo arebe niba syrinx yahagaze neza cyangwa yagabanutse.

Kuri benshi, kubagwa bitanga ubutabazi buhagije kandi bigatuza iyo ndwara. Ariko, menya ko syringomyelia ishobora kugaruka nubwo yavurwa neza , ibyo bikaba byasaba ubundi buryo bwo kubaga.

Ni izihe ngorane zishobora guterwa no kubagwa?

Nyuma yo kubagwa syringomyelia, ingorane zishobora kubaho zirimo:

• Kuva kw'amazi yo mu bwonko (CSF).
• Kwandura indwara.
• Kuva amaraso (kuva amaraso).
• Ikindi gikomere cy'umugongo.
• Kugaruka kwa syrinx.

Ni ngombwa kugirana ikiganiro kirambuye na muganga wawe w’imitsi ku bijyanye n’izi ngaruka n’ubushobozi bwazo mu bijyanye n’uburyo wavurwa.

Ni iki giteganyijwe ku ndwara ya Syringomyelia?

Ni ngombwa kwibuka ko ibimenyetso, ubukana, n'impamvu za syringomyelia bitandukanye cyane. Umuvuduko w'ikwirakwira ry'indwara na wo uratandukanye, kandi hari abantu bashobora kuguma mu buryo buhamye batakomeje kwiyongera. Kubera iyo mpamvu, biragoye ku baganga gutanga igisubizo gihamye.

Kubagwa hakiri kare muri rusange bitanga umusaruro mwiza kandi bifasha kugabanya ibimenyetso. Nubwo kubagwa akenshi bigabanya ibibazo by'imitsi, kandi ibimenyetso bimwe na bimwe bishobora koroha, abantu benshi bakomeza kwihanganira ibimenyetso by'igihe kirekire.

Muri rusange, niba umurambararo wa sirinx yawe urenze mm 5 kandi ukaba ujyana no kubyimba (kubyimba), ubwiyongere bw'indwara bushobora kuba budashimishije.

Indwara ya myelopathy (kwangirika k'umugongo bitewe no gukandamizwa gukomeye) ni ikibazo gikomeye cyo kwitondera. Ishobora gutera ubumuga (paraplegia/quadriplegia), umusonga usubira inyuma, ndetse no kudakora neza k'uruhago cyangwa amara.

Ese Syringomyelia ishobora kwirindwa?

Ubusanzwe, syringomyelia ntishobora kwirindwa. Ariko, gusuzuma hakiri kare no kuvurwa vuba ni ingenzi mu gukumira ko ibimenyetso bikomeza kwiyongera.

Nakwitaho nte na Syringomyelia?

Niba ubana na syringomyelia, tekereza kuri izi ntambwe zo kwifata mu guhangana n'ibimenyetso byawe:

• Irinde ibikorwa bishobora gutuma ibimenyetso byawe birushaho kwiyongera. Ibi birimo guterura ibintu biremereye, gukora imyitozo ngororamubiri ikomeye, cyangwa gukora ingendo zidasanzwe zishyira umugongo wawe ku mubyimba.
• Tekereza ku buvuzi bw'umubiri kugira ngo bugufashe guhangana n'ingorane zo kugenda, intege nke z'imitsi, kunanuka, n'ububabare.
• Niba uhura n'ububabare budakira buterwa n'uburwayi bwawe, ganira n'itsinda ry'abaganga bo muri Nirogi Lanka uburyo bwo kugabanya ububabare.
• Kubana na syringomyelia bishobora kugorana mu byiyumvo. Ni ngombwa gushaka ubufasha mu by'ubuzima bwo mu mutwe ku nshuti, umuryango, cyangwa abajyanama b'inzobere. Kwinjira mu itsinda ry'abaterankunga nabyo bishobora kugufasha kwihuza n'abandi, bikakwibutsa ko utari wenyine muri uru rugendo.

Ni ryari wagombye kubonana na muganga wawe ku bijyanye na Syringomyelia?

Niba warasanzwe urwaye Syringomyelia, ni ngombwa kugisha inama itsinda ry’abaganga buri gihe kugira ngo bakurikirane ibimenyetso byawe n’uko syrinx yawe ihagaze, nubwo waba warabazwe cyangwa utarabazwe.

Kumenya ko ufite ikibazo cy'umugongo bishobora kugutera ubwoba, ariko ibuka ko utari wenyine; hari ubufasha buhari. Ni ngombwa kuganira n'inzobere mu by'ubuvuzi isobanukiwe na Syringomyelia kugira ngo irusheho kugira ingaruka ku buzima bwawe bwa buri munsi. Ntutinye kubaza ibibazo by'itsinda ry'abaganga—bariho kugira ngo bagufashe mu rugendo rwawe na Nirogi Lanka.

Ubutumwa bwo kujyana mu rugo

Twizeye ko iyi ncamake yagufashije gusobanukirwa neza indwara ya Syringomyelia. Nubwo iyi ari indwara idakunze kugaragara, ni ngombwa gushaka inama kwa muganga vuba niba ubonye ibimenyetso bidashira. Niba ubonye ububabare bw'umugongo, ibinure mu ngingo zawe, cyangwa intege nke z'imitsi, nyamuneka teganya gahunda yo kubonana na muganga wawe. Gusuzuma indwara hakiri kare bigufasha kuyisuzuma hakiri kare kandi bigufasha kubungabunga ubuzima bwawe. Komeza ugire icyizere; ibisubizo birahari, kandi abahanga bacu mu by'ubuvuzi bari hano kugufasha muri buri ntambwe.

Amagambo ahinnye: Syringomyelia, Uruti rw'umugongo, Ububabare bw'umugongo, Syrinx, CSF, Indwara z'imitsi, Chiari malformation