Wave uchirwadziwa kakawanda kumusana, muhudyu, nedzimwe nzvimbo kubva pazera remakore ekuma20 kana ekuma30 here? Paunomuka mangwanani, muviri wako unonzwa wakaoma uye wakaoma, uye haugone kutombokotama kwenguva yakati? Ungafunga kuti uku kungova kurwadziwa kwemusana kwakajairika, chimwe chinhu chinoitika kana ukarara zvisina kunaka. Asi kana zviratidzo izvi zvikaramba zviripo, zvinogona kuva kutanga kwechirwere chinonzi Ankylosing Spondylitis (AS). Nhasi, tiri kutaura nezvechirwere ichi uye zvakaitika kuvanhu vaviri chaivo vakachinja hupenyu hwavo nekurarama nacho.
Zvichitaurwa zviri nyore, chii chinonzi Ankylosing Spondylitis (AS)?
Iyi imhando yearthritis. Asi muchiitiko ichi, inonyanya kukanganisa majoini emusana wedu . Zvichitaurwa zviri nyore, chirwere ichi chinoita kuti majoini ari pakati pemapfupa emusana azvimbe. Nekufamba kwenguva, kuzvimba uku kunoita kuti mapfupa matsva aumbwe, uye mapfupa emusana anogona kubatana. Izvi zvinogona kuderedza kuchinjika kwemusana uye kukonzera kumira kwakakotama. Kurwadziwa uku hakugumiri kumusana chete, asi kunogonawo kukanganisa nzvimbo dzakadai sehudyu, mapendekete, mbabvu, uye zvitsitsinho.
Izvi zvinokonzerwa nechirwere che autoimmune , zvinoreva kuti masoja emuviri, ayo anofanirwa kuchengetedza miviri yedu, anorwisa masero edu ane hutano, muchiitiko ichi majoini.
Zvakanaka, ngatitarisei nyaya dzaLovaine naDeverell, avo vakasangana nechirwere ichi muhupenyu hwavo.
Nyaya yaLoven: Kubva pakurwadziwa kuenda kubasa idzva
Loven akaonekwa aine chirwere ichi ava nemakore ekuma30. Asi zviratidzo zvakatanga kare, mushure mekunge asununguka mwana wake wekutanga. Akatanga nekurwadziwa kwemusana, uye zvishoma nezvishoma akatanga kusakwanisa kufamba. Pakupedzisira, aifanira kushandisa tsvimbo kuti afambe.
Akaonekwa aine AS aine makore makumi matatu nerimwe, mushure mekunge kurwadziwa kwapararira kumusana wake wekumusoro. Kuongororwa kweropa rake kwakaratidzawo kuti ane gene rakanaka (HLA-B27) . Jini iri rinowanikwa munenge munhu wese ane AS.
"Zvakandizorodza zvikuru pandakawana zita rekuti ndiri kurwara. Zvirinani ndaiziva zvaiitika mumuviri wangu," anodaro Loven.
Asi nyaya yacho haina kugumira ipapo. Paakanga ava kuda kusvitsa makore makumi matatu, kurwadziwa kwakanga kwava kushoma. Aifanira kutora mishonga inouraya marwadzo akawanda ndokusiya basa rake. Chiremba wake wemapfupa akamutumira kuX-ray. Ndipo paakaziva kuti mapfupa akawanda emuhudyu make ekurudyi akanga apera, uye mapfupa emuhudyu make kuruboshwe akanga anyangarika zvachose.
Kuvhiya kunochinja hupenyu
Ava nemakore makumi matatu nemapfumbamwe ekuberekwa, aifanira kuvhiyiwa chiuno chake chekuruboshwe. Chiremba wake akati ndiko kuzvimba kwakaipisisa kwaasati amboona.
"Pandakamuka mushure mekuvhiyiwa, chimwe chinhu chinoshamisa chakaitika. Marwadzo asingatsungiririki akanga apera . Zvakachinja hupenyu hwangu. Ndakaora mwoyo kwemakore 4-5. Asi mushure mekuvhiyiwa, zvese zvakachinja."
Nguva yekurapwa yakanga isiri nyore. Aifanira kudzidza kufamba zvakare uye kusimbisa tsandanyama dzake. Aifanira kuita physiotherapy mazuva matatu pasvondo kwemwedzi minomwe. Gore rakatevera, chiuno chake chekurudyi chaifanira kutsiviwa.
Nekufamba kwenguva, akazonzwisisa kuti aive mukadzi aigara nechiuno chekugadzira. Akatanga kuverenga nezvemaitiro ekugadzirisa marwadzo uye kurarama nechirwere ichi. Akanyanya kutarisa pazvinhu zvaaigona kudzora. Izvi zvaireva zvinhu zvakaita sekudya, kurovedza muviri, uye kufunga zvakanaka . Nhasi, iye mupi wezano wehutano anobatsira vanhu vane zvirwere zvakafanana.
Nyaya yaDeverell: Marwadzo Aisatendwa Kunyange navanachiremba
Deverell aive nemakore makumi maviri nemaviri pakutanga kwezviratidzo izvi. Akanga asingakwanise kuita zvinhu zviri nyore sekukwira masitepisi kana kusimudza katoni yemukaka. Paakaudza chiremba wake nezvekurwadziwa kwakanyanya uye kuzvimba kwaibva mumuviri wake, chiremba haana kuzviona semunhu akakomba.
"Kana izvozvo zvikaitika, unorasikirwa nechivimbo mauri. Ndinoziva kuti muviri wangu unonzwa zvakasiyana, asi ndaifanira kuteerera zvakataurwa nachiremba wangu."
Mushure memakore maviri, pasina zororo kubva kumishonga, chiremba akamuudza kuti, "Izvi zvese zviri mupfungwa dzako, hapana chandingaite."
Kuongororwa kwakawanikwa pasina kurega
Asi Deverell haana kurega. Akaona mumwe chiremba. Akaona vanachiremba vakati wandei vane hunyanzvi mukurapa kenza, arthritis, uye zvirwere zvemudumbu. Mimwe miedzo yakaratidza chirwere chakadai se muscular dystrophy, asi hapana chakawanikwa chaicho.
Munguva iyi, hupenyu hwake hwemagariro evanhu hwakamira zvachose. Akabatana neboka rekutsigirana paindaneti ndokugovana zvakaitika kwaari. Ndipo paya pakakurudzirwa mumwe munhu kuti aongororwe (HLA-B27) .
Pakaongororwa Deverell achiratidza kuti ane chirwere muna 2010, akafara zvikuru. Pakupedzisira akawana mhinduro yemubvunzo waakanga achinetseka nawo kwemakore mana. Asi mufaro wake wakagara kwenguva pfupi. Chiremba wake akamuudza kuti pakanga pasina mushonga uye kuti chirwere chacho chaive chakakomba.
Kuchinja maonero aunoita kurwadziwa
Mushure menyaya iyoyo, Deverell akaita sarudzo inoshamisa. Akatengesa zvese zvaaiva nazvo ndokutamira kuCape Town, South Africa. Ikoko akapedza nguva yake achifara, achitarisa gungwa, makomo, uye achiona vanhu vachinyemwerera. Pane kunzwa sekunge ari kufa, akatanga kunzwa sekunge pfungwa dzake nemuviri wake zvaibatana .
Ikoko akatangazve kuita Hot Yoga . Maekisesaizi eyoga muimba ine moto akadzikisa marwadzo ake uye akasimbisa musana wake. Akarega kushandisa izwi rekuti 'kurwadziwa'. Asi, akati 'kusagadzikana'.
"Uri kurwadziwa kwakasiyana-siyana. Unogona kubva pakusagadzikana kuenda pakunyaradzwa."
Nhasi uno, Deveral imudzidzisi weHot Yoga. Haatore mushonga. Kurapa kwake chete iyoga uye kudya kunovaka muviri.
| Chinhu | Zvakaitika pasi rose | Zvakaitika kuna Deverell |
|---|---|---|
| Zviratidzo zvepakutanga | Kurwadziwa kwemusana nechiuno, kuoma kufamba. | Kushaya simba kwemuviri, kuoma kukwira masitepisi, kurwadziwa kwakanyanya uye kuzvimba. |
| Kuongorora chirwere | Ndakaonekwa kuti ndine chirwere ichi nguva pfupi mushure mekunge zviratidzo zvatanga, pazera remakore makumi matatu nerimwe. | Mushure mekurwa kwenguva refu kwemakore mana, pakati pekusatenda kwevanachiremba, ndakaonekwa kuti ndine chirwere ichi. |
| Dambudziko guru | Kurwadziwa kwemuviri kusingatsungiririki uye kuparadzwa kwemajoini. | Vanachiremba vasingazvivimbi uye vanowira mukuora mwoyo. |
| Chii chakachinja hupenyu hwangu | Kuvhiyiwa kwekutsiva chiuno uye kufunga zvakanaka. | Kuchinja nharaunda, Hot Yoga, uye kuchinja maonero aunoita kurwadziwa. |
| Chii chiri kutevera parizvino | Mishonga (TNF-inhibitor), kudya, kurovedza muviri zvishoma, uye kupa mazano. | Maekisesaizi eYoga akasimba, kudzora kudya (hapana mishonga). |
Chii chatingadzidza kubva munyaya mbiri idzi?
Taura wega nezvemuviri wako.
Sezvinoratidzwa nenyaya yaDeverell, kunyange vanachiremba vanogona kukanganisa dzimwe nguva. Kana uine chivimbo nezviri kunzwiwa nemuviri wako, usatya kutaura nezvazvo. Usarega kusvika wawana mhinduro. Uri shamwari yako yepamoyo .
Pfungwa dzine simba.
Loven naDeverell vakachinja maonero avaiita kurwadziwa. Vakaona kuti kurwadziwa hakusi kuguma kwehupenyu, asi kuti kunogona kuraramwa nako uye kugadziriswa. Kufunga zvakanaka kwakafanana nekukunda hafu yehondo.
Hapana mhinduro imwe chete inokwana vese.
Kuvhiyiwa nemishonga zvakabatsira Loven. Kuchinja maitiro eyoga nemararamiro kwakabatsira Deverell. Saka kana uine chirwere ichi, zvakakosha kutaura nachiremba wako kuti uwane kurapwa nemararamiro akakunakira.
Kudya uye kurovedza muviri
Vese vari vaviri vaitarisira kudya kwavo. Lowen anoti kuderedza shuga, hupfu, nedzimwe mhando dzenyama kunogona kubatsira kuderedza marwadzo nekuzvimba. Uyewo, kuita maekisesaizi asinganyanyi kukanganisa, akadai sekufamba netsoka neyoga, zuva nezuva kunogona kubatsira kuchengetedza musana wakasimba uye unochinjika.
"Hondo huru yaunosangana nayo paunenge uchirwadziwa kwenguva refu ndeyekuisa pfungwa dzako panzvimbo yaunogona kutsungirira kurwadziwa nekushushikana." - Loven
Kana uine chimwe chezviratidzo izvi, ndapota usazviregeredza. Enda kuna chiremba ane hunyanzvi nekukasika kuti uwane chirwere uye kurapwa kwakakodzera. Kana ukakurumidza kutanga kurapwa, ndipo paunokwanisa kudzora kukuvara kwemajoini ako.
Mharidzo Yekuenda Nayo Kumba
- Ankylosing Spondylitis (AS) chirwere chearthritis chinokanganisa musana, chinogona kutanga uri mudiki. Usaregeredza kurwadziwa kwemusana nguva nenguva uye kuomarara kwemangwanani.
- Teerera muviri wako. Kana usina chokwadi nezvechiratidzo, tsvaga rubatsiro rwechiremba kusvika wawana mhinduro chaiyo.
- Kunyangwe pasina mushonga chaiwo wechirwere ichi, marwadzo anogona kudzorwa uye hupenyu hwakanaka hunogona kuraramwa kuburikidza nemishonga, kurovedza muviri, kurovedza muviri, uye shanduko dzemararamiro.
- Maonero ako epfungwa nezvekurwadziwa akakosha zvikuru. Kufunga zvakanaka uye kudzora kushushikana zvinogona kuwedzera kugona kwako kutsungirira kurwadziwa.
- Tsvaga zvinokunakira. Kunyange zvazvo mishonga ichibatsira vamwe vanhu, yoga kana dzimwe nzira dzekurovedza muviri dzinogona kushanda zvakanaka kune vamwe. Taura nachiremba wako uye gadzira hurongwa hunokubatsira.
💬 Comments (0)
Hapana zvakataurwa parizvino. Isa mhinduro yako pano kekutanga.
Wedzera zvaunofunga