Ndinoziva kuti kurarama nechirwere che ankylosing spondylitis, kana kuti AS muchidimbu, kunogona kunetsa dzimwe nguva. Munhu wese akambotambura nacho anoziva kuti zvakaoma sei kurarama nezuva rose nekurwadziwa kwemusana nemajoini nguva dzose uye kuomarara kwemangwanani. Asi hausi wega. Kune nzira dzakawanda nezvinhu zvinogona kukubatsira, kukupa simba, uye kukupa ruzivo rutsva parwendo urwu. Ndizvo zvatiri kutaura nezvazvo nhasi.
Sei rudzi urwu rwerutsigiro rwuchikosha kwauri?
Zvichitaurwa zviri nyore, AS chirwere chisingawanzoitiki chinogona kukanganisa zvinhu zvakawanda muhupenyu hwako. Nekuti chirwere chisingaperi, zvakakosha kutora mishonga nenguva uye kudzidza kurarama nacho. Apa ndipo panobatsira mapoka ekutsigirana uye masosi eruzivo akavimbika.
Fungidzira kuti zvaizonyaradza sei kukwanisa kutaura nemunhu anonzwisisa kurwadziwa kwauri kunzwa nematambudziko auri kutarisana nawo. Uye kuti zvaizova nyore sei muhupenyu hwako kana ukadzidza nezvemishonga mitsva uye nzira dziri nyore dzekugadzirisa zviratidzo zvako. Ndosaka zvichikosha kuziva zvinhu zvakaita seizvi.
Ndingawana kupi rutsigiro neruzivo?
Kune nzvimbo dzinoverengeka dzinogona kukubatsira uye kukuratidza nzira chaiyo. Mamwe mapoka aya anogona kusangana chiso nechiso. Mamwe anogona kungoshanda online chete. Unongofanira kusarudza nzira yakakunakira.
| Kwekuwana rubatsiro | Rutsigiro rwaunowana |
|---|---|
| Chiremba wako. | Munhu akakodzera kubvunza nezvemapoka ekutsigira akavimbika kana zvinhu zvakakodzera chirwere chako. |
| Chipatara kana kiriniki kwauri kurapwa | Zvipatara zvakawanda zvine mapurogiramu ekutsigira kana mapurogiramu ekuzivisa varwere. Tarisa uone. |
| Nzvimbo dzehutano dzemunharaunda | Unogonawo kuwana ruzivo nezvezvirongwa zvakasiyana-siyana zvehutano kuburikidza nenzvimbo dzakadai dziri munharaunda yako. |
| Masangano ekurapa emayunivhesiti | Dzimwe nguva tinodzidza nezvezvirongwa zvinotarisa varwere kuburikidza nemayunivhesiti ekutsvagisa. |
Usati wasarudza boka, tsvaga kuti boka racho rinotarisa papi, kuti vanosangana sei (paindaneti kana kuti varipo), uye kuti ndiani anotungamira boka racho.
Chenjerera nezvezvinhu izvi paunenge uchipinda online!
Mazuva ano, unogona kuwana ruzivo rwakawanda pasocial media senge Facebook neYouTube. Unogona kuverenga nekuona zviitiko zvevanhu vanorarama neAS, zvinhu zvavanoita. Izvi zvinogona kunyaradza. Zvisinei, pano inzvimbo yaunofanira kungwarira zvikuru .
Yeuka, usatore chero chaunowana paindaneti, kunyanya ruzivo rwemumwe munhu, semazano ekurapa. Zvakakosha kutaura nachiremba wako usati waedza chero chinhu.
Paunenge uchiverenga ruzivo online, zvibvunze mibvunzo iyi:
- Ndiani anotungamira webhusaiti iyi kana peji reFacebook? Rinotungamirirwa nesangano rezvekurapa rinozivikanwa here, kana kuti nemumwe munhu asingazivikanwe?
- Vari kuedza kutengesa chimwe chinhu here? Dzimwe nguva vanoedza kutengesa zvigadzirwa zvavo nekutaura zvinhu zvakaita sekuti "Mushonga uyu uchaita kuti unzwe zviri nani." Usanyengerwa nazvo.
- Zvinonzwika zvakanaka kwazvo kuti zvive zvechokwadi here? Kana ukaona chimwe chinhu chakadai sekuti "Chakavanzika chekurapa AS mumazuva manomwe," pamwe inhema.
- Ruzivo urwu rutsva here? Pane hwaro hwesainzi here? Tarisa uone kana ruzivo rwakabudiswa rwakavakirwa pakutsvagisa uye rwuchienderana nenguva.
Masangano epasi rose anovimbwa uye mawebhusaiti
Kuchine masangano mashoma eAS anoshanda zvakanangana neSri Lanka. Zvisinei, kune masangano makuru epasi rose anotsvaga chirwere ichi uye anobatsira varwere pasi rese. Kunyangwe mawebhusaiti aya ari muChirungu, anoburitsa ruzivo rwakakosha uye rwakarurama nezvechirwere ichi, marapirwo matsva, kurovedza muviri, uye maitiro ekurarama nechirwere ichi. Kana uchinyatsoziva Chirungu, izvi zvichabatsira zvikuru.
- Sangano reSpondylitis reAmerica (SAA):Iri ndiro rimwe remasangano makuru muUnited States akazvipira pakurapa spondylitis, kusanganisira AS. Webhusaiti yavo (spondylitis.org) ine misangano yakawanda yevarwere, mapoka ekutsigira, uye ruzivo rwechizvino-zvino.
- Sangano reArthritis: Iri isangano guru rinopa ruzivo nezvemarudzi ese eArthritis. Webhusaiti yavo (arthritis.org) ine chikamu chakatsaurirwa paAS.
- Arthritis National Research Foundation: Vanopa mari yekutsvaga mushonga weArthritis. Unogona kuwana ruzivo nezvetsvagurudzo yazvino pawebhusaiti yavo (curearthritis.org).
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS): Iri isangano rehurumende yeUS. Ruzivo rwakaburitswa pawebhusaiti yavo (niams.nih.gov) rwakavimbika uye rwakasimbiswa nesainzi.
Nzvimbo dzepamhepo kwaunogona kuverenga zvakaitika kune vamwe vanhu
Mapuratifomu enhau dzemagariro evanhu anokubvumidza kuti ubatane nevanhu pasi rese vari kurarama neAIDS yakafanana newe. Rutsigiro rwaunowana runogona kukubatsira zvikuru. Asi, sezvandambotaura, usaedza chero chinhu usina kutaura nachiremba wako.
| Puratifomu | Tsananguro |
|---|---|
| Kana uchitsvaga Ankylosing Spondylitis, uchawana mapoka akawanda. Mamwe mapoka ari ega, uye unofanira kukumbira kuti upinde. Mune aya, vamwe vanhu vanobvunza mibvunzo uye vanogovana zvakaitika. | |
| Iyi inzvimbo inozivikanwa yekugovana ruzivo nemazano. Iva nhengo yenharaunda inonzi `r/ankylosingspondylitis` kwaunogona kubvunza mibvunzo uye kuverenga nezvezviitiko zvevamwe vanhu. | |
| Instagram / Twitter | Unogona kuwana zvinyorwa zvine chekuita nazvo uchishandisa ma hashtag akadai se `#ankylosingspondylitis`, `#arthritis`, `#chronicpain`. Zvisinei, unofanira kungwarira zvikuru nezvekururama kwemashoko ari mumashoko aya. |
Unoona sei kana account yako yepamhepo yakavimbika?
- Teerera zvaunofunga: Kana chimwe chinhu chichinzwa chisina kunaka kana kuti chenhema paunotarisa account, pamwe ndicho chisina kunaka.
- Tsvaga Maakaundi Akasimbiswa: Maakaundi anobva kumasangano makuru ane mukurumbira ane chiratidzo chebhuruu parutivi pawo, zvinoreva kuti akaundi yacho ndeyechokwadi kwete yenhema.
- Bvunza nezvemhando yeruzivo: Sezvambotaurwa, gara uchifunga kuti ndiani ari kuita izvi, zviri kutengeswa here, uye kuti ndezvesainzi here.
Rwendo rwechirwere ichi runogona kuva rwega uye rwakaoma dzimwe nguva. Asi neruzivo rwakakodzera uye rutsigiro rwakakodzera, unogona kurarama zvakanaka nechirwere ichi uye kurarama hupenyu hunofadza.
Mharidzo Yekuenda Nayo Kumba
- Hausi wega uri murwendo rwako rwekurarama neAnkylosing Spondylitis (AS). Zviuru zvevamwe, sezvauri, vari kurarama nechirwere ichi.
- Chiremba wako ari kukurapa ndiye anonyanya kukupa ruzivo. Tanga wataura naye nezve chero chinhu.
- Kunyangwe internet, kunyanya social media, iri nzvimbo yakanaka yekuwana ruzivo, usatenda zvese zvaunoverenga. Usafunge kuti ruzivo rwemumwe munhu ruchashanda kwauri.
- Usati waedza chero kurovedza muviri kutsva, kudya, kana chimwe chinhu chipi zvacho, iva nechokwadi chekubvunza chiremba wako kana zvakakunakira.
- Kunyangwe mawebhusaiti emasangano epasi rose ari muChirungu, ruzivo rwakarurama rwesainzi rwavanopa ruchakubatsira zvikuru mukuwedzera ruzivo rwako.
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