Patinotaura nachiremba panguva yekuzvitakura, dzimwe nguva tinosangana nemashoko atisati tambonzwa nezvawo, kana zvirwere zvisingawanzoitiki. Zvakajairika kunzwa kutya uye kuzvidya mwoyo panguva dzakadaro. Nhasi tichataura nezvechimwe chirwere chisingawanzoitiki uye chakakomba chekuzvarwa nacho. Tinochidaidza kuti Ectopia Cordis. Usatye kana ukanzwa izvi. Ngatinzwisise zvese nezveizvi zviri nyore, chimwe nechimwe.
Chii chinonzi Ectopia Cordis?
Zvichitaurwa zviri nyore, Ectopia Cordis inyaya apo mwana anozvarwa ane mwoyo wake wese kana chikamu chemoyo wake chiri kunze kwemuviri wake. Ichi chirwere chisingawanzoitiki. Ingofungai, chirwere ichi chinoitika muvana vasere chete pavana miriyoni vanozvarwa pasi rose.
Nekuti ichi chirwere chakakomba zvikuru, vana vazhinji vanozvarwa neEctopia Cordis vanofira mudumbu kana mukati memazuva matatu ekuzvarwa. Zvisinei, pane divi rine tariro panyaya iyi. Mapoka ekurapa ane hunyanzvi evanachiremba, vanamukoti, vanachiremba vemuviri nevamwe nyanzvi vakakwanisa kuchengetedza vamwe vana vanozvarwa vaine chirwere ichi vari vapenyu kwemavhiki, uye dzimwe nguva kunyange makore.
Chikonzero cheizvi chii?
Kutaura chokwadi, nyanzvi hadzisati dzawana chikonzero chimwe chete chaicho cheizvi, asi dzine mazano mashoma.
- Matambudziko ekukura: Imwe dzidziso ndeyekuti mwana paanokura mudumbu , shanduko dzemuviri dzinoitika dzinokanganisa kukura kwemwana. Semuenzaniso, tambo dzema fibrous dzinoumbwa mu sac yakazara nemvura (amniotic sac) yakakomberedza mwana, izvo zvinogona kudzikamisa kukura kwemwana.
- Dambudziko rekukura kwechipfuva: Imwe dzidziso ndeyekuti chipfuva chemwana hachisi kukura zvakanaka. Izvi zvinodzivirira moyo kuti usafambe uchienda panzvimbo yawo chaiyo mukati mechipfuva. Izvi zvinogona kutungamira kuEctopia Cordis nezvimwe zvikanganiso zvemoyo.
- Kubatana nezvimwe zvirwere: Ectopia cordis inowanzoonekwa pamwe chete nezvimwe zvirwere zvekuzvarwa nazvo zvinoitika pakati pemuviri. Semuenzaniso, inobatanidzwa nezvikanganiso mu sternum, pericardium, uye mudumbu. Inogonawo kubatanidzwa nematambudziko echromosome akadai seTrisomy 18 uye Turner syndrome.
- Zvikonzero zvemajini : Imwe dzidziso yazvino ndeyekuti vamwe vana vasina jini rakati ``(BMP2)''. Jini iri rinokosha pakukura zvakanaka kwemoyo nepamberi pechipfuva. Saka vanotenda kuti kushomeka kwaro kunogona kunge kuri iko kunokonzera.
Ndezvipi zviratidzo zvinogona kuonekwa?
Chiratidzo chikuru uye chinonyanya kuoneka cheEctopia Cordis ndechekuti moyo uri kunze kwemuviri. Zvisinei, vana ava vanogonawo kunge vaine zvimwe zvikanganiso zvepakati pemutsara wemuviri (mutsetse unobva kumusoro zvichidzika).
| Mamwe matambudziko akaonekwa | Tsananguro iri nyore |
|---|---|
| Kutsemuka kwemusoro | Kuva nechiso chakatsemuka kana chakapatsanurwa. |
| Muromo/mukanwa wakachena | Kuva nepakatsemuka pamuromo wepamusoro kana mukanwa. |
| Mapapu asati anyatsokura | Mapapu emwana haasati akura kusvika pahukuru hwakakodzera. |
| Scoliosis | Kuva ne curvature kana scoliosis yemusana. |
| Buri muGreat Wall | Buri risingawanzoitika mu diaphragm, tsandanyama dzinoparadzanisa chipfuva nedumbu. |
Vanachiremba vanoongorora sei izvi?
Kazhinji, kana mwana wako aine Ectopia Cordis, inogona kuonekwa panguva yekuongororwa kweultrasound panguva yekuzvitakura. Inogona kuonekwa pakutanga kwe trimester yekutanga yekuzvitakura. Ungangoda kuedzwazve kwe ultrasound kuti usimbise chirwere chacho. Mhedzisiro yebvunzo idzi inokosha zvikuru kuti usarudze zvekuita zvinotevera.
Kana ukasarudza kuramba uine pamuviri, chiremba wako achanyatsoongorora kukura kwemwana wako. Izvi zvinogona kusanganisira MRI ( magnetic resonance imaging).Miedzo ye )` uye `(Echocardiography)` ichashandiswa. Echocardiography iedzo yakakosha inoshandisa mafungu eruzha kutora mifananidzo yakadzama yemoyo.
Vanachiremba vanoisawo chirwere ichi muzvikamu zvichienderana nekuti mwoyo uri kupi.
| Nzvimbo iri pakati pemoyo | Zvinoreva | Kuwanda |
|---|---|---|
| Chifuva | Pedyo nembabvu nesternum muchipfuva, pamusoro pedumbu. | Vanenge 64% |
| Chifuva chedumbu | Muchikamu chezasi chechipfuva, chakananga kudumbu. | Vanenge 18% |
| Dumbu | Mudumbu. | Inenge 15% |
| Mutsinga wemuromo wechibereko | Kurema munzvimbo yemutsipa, kuenda kumusana. | Inenge 3% |
Kuongororwa neEctopia Cordis chiitiko chinoshungurudza mhuri chero ipi zvayo. Zvakakosha zvikuru kuti pfungwa dzirambe dzakasimba panguva yakaita seiyi.
Ndezvipi zvinorapwa izvi?
Kana tichitaura nezvenzira dzekurapa , chinhu chekutanga chekufunga nezvacho kuchengetedzeka kwemwana. Saka, nzira chete yekusununguka mwana ndeyekuvhiyiwa kwemwana (C-section). Ndiyo nzira yakanakisisa yekuburitsa mwana pasina kukuvadza moyo wake.
Mushure mekuzvarwa, mwana wako angangoda rubatsiro rwekuwedzera kufema. Kuti vaite izvi, vanachiremba vanoisa chubhu yepurasitiki inochinjika mupaipi yemhepo yemwana wako kuti ive nechokwadi chekuti mweya unoyerera. Vanogona zvakare kuisa mvura yakakosha kuburikidza nechubhu inofukidza mapapu kuti imubatsire kupinza okisijeni zviri nani.
Chinangwa chikuru chekurapa Ectopia Cordis ndechekuvhara buri riri muchipfuva, kuisa moyo muchipfuva zvakare, uye kugadzirisa chero chimwe chinetso chemwoyo. Kuvhiya uku hakuwanzoitwa panguva imwe chete. Kunoitwa muzvikamu zvakasiyana-siyana.
Dambudziko rekutanga uye guru nderekuisa moyo muchipfuva chidiki kupfuura chenguva dzose. Kana chiremba aita izvozvo, anoisa pfupa rechipfuva panzvimbo yaro. Muzviitiko zvakaita seizvi, kuisirwa moyo pamwe chete nechinhu chimwe chete hachisi sarudzo.
Chii chinonzi "Comfort Care"?
Mune zvimwe zviitiko, kuvhiyiwa kune njodzi huru uye mikana yekubudirira yakaderera. Muzviitiko zvakadaro, chiremba wako achataura newe nezvesarudzo inonzi "Comfort Care."
Chinangwa ndechekuderedza marwadzo nekutambudzika zvinosangana nemwana uye kumubvumira kurarama hupenyu hwake hwese murunyararo nerunyararo. Iyi inzira yakakosha yekutarisira mwana nemhuri munguva ino yakaoma, pane kuvarapa nekuvaporesa.
Mharidzo Yekuenda Nayo Kumba
- Ectopia Cordis chirwere chisingawanzoitiki uye chakakomba chekuzvarwa nacho umo moyo wemwana uri kunze kwemuviri.
- Kunyangwe chikonzero chaicho cheizvi chisati chawanikwa, zvinofungidzirwa kuti matambudziko anoitika panguva yekukura kwemwana mudumbu raamai uye majini anokonzera izvi.
- Kuongororwa kwechirwere kunowanzoitwa panguva yekuzvitakura kuburikidza ne ultrasound scans.
- Kunyangwe kuvhiyiwa kwakaoma zvikuru kunosanganisira matanho akati wandei kuchiitwa sekurapa, havasi vacheche vese vanogona kuvhiyiwa.
- Kuongororwa kwakadai idambudziko rakaoma zvikuru kuti mhuri itarisane naro. Saka, zvakakosha kukurukura zvese zvingasarudzwa, kusanganisira kuvhiyiwa uye "Comfort Care," nachiremba wako pachena uye kuita sarudzo yakanakira mwana wako nemhuri yako.
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