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Kutanga, ngationei, sei kubuda ropa kusingagumiri muropa muropa?
Zvichitaurwa zviri nyore, kune mapuroteni akakosha anobatsira kuumbwa kweropa redu. Tinodaidza kuti " zvinhu zvinogwamba ." Sezvinongoita dhaka rinodiwa kuti ubatanidze zvidhinha pakuvaka madziro, zvinhu izvi zvinogwamba zvakakosha kuti ropa rimire kubuda. Munhu ane hemophilia haana kukwana mune chimwe chezvinhu izvi zvinogwamba.- Vanhu vane hemophilia A havana chinhu chinonzi Factor VIII.
- Vanhu vane hemophilia B havana chinhu chinonzi Factor IX.
Saka mushonga mutsva uyu unonzi Qfitlia (fitusiran) chii?
Uyu mushonga unoshanda nenzira inoshamisa zvikuru. Tambotaura kare nezvekuti ropa rinoda chimwe chinhu chinonzi thrombin kuti rigwambe. Mumiviri yedu, kune rimwe puroteni rinodzora kugadzirwa kwe thrombin iyi, kureva kuti, inomisa kugadzirwa kwe thrombin yakawanda. Inonzi antithrombin .Funga nezvazvo nenzira iyi. Une chinhu chinoumba ropa (thrombin) mumuviri wako chinobatsira kuumba ropa rako. Asi pane chimwe chinhu (antithrombin) chinoridzora nekuridzivisa kushanda. Muhemophilia, kugadzirwa kwechinhu chinobatsira (thrombin) kunotanga kwakaderera. Saka kana chinhu chinodzivirira (antithrombin) chikashanda zvakanaka, kuumba ropa kunodzikira zvakanyanya. Zvinoitwa neQfitlia kuderedza huwandu hweantithrombin hunoidzivirira. Zvadaro, huwandu hwethrombin hunogadzirwa nemuviri wako hunobvumirwa kushanda nemazvo pasina kukanganiswa. Izvi zvinoreva kuti inoshandisa system yemuviri kukurudzira kuumba ropa, pane kukupa chinhu chinoumba ropa chawakarasikirwa nacho. Uyu ndiwo mushonga wekutanga unoderedza ropa kushandiswa pakurapa hemophilia.Ngatitsanangurei musiyano uripo pakati penzira mbiri idzi dzekurapa.
Unogona kunzwisisa musiyano uyu zviri nyore kubva patafura iri pazasi.| Hunhu | Kurapa kwechivanhu (Kutsiva Zvinhu) | Kurapa kweQfitlia (fitusiran) |
|---|---|---|
| Mashandiro | Chinhu chinovhara ropa chisina kuumbwa mumuviri chinopihwa kunze. | Inoderedza antithrombin, iyo inodzivirira kuumbwa kweropa, uye inobvumira muviri kushandisa yakawanda ye thrombin yawo. |
| Maitiro ekupa | Kazhinji netsinga. | Pasi peganda (pasi peganda). |
| Kakawanda | Zvingave zvichidikanwa kakawanda pasvondo. | Kamwe chete pamwedzi kana mwedzi miviri yega yega (katanhatu kusvika gumi nembiri pagore). |
| Kune avo vane zvinodzivisa | Kurapa kwezvinhu zvakajairwa hakushande, uye mamwe marapirwo akakosha (anobvisa mishonga) anodiwa. | Kurapa uku kunogona kushandiswawo zvinobudirira kuvanhu vane mishonga inodzivirira chirwere (antibodies inodzivirira zvinhu). |
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Check Availability →Mushonga uyu wakakodzera kwandiri here uye ndingaushandisa sei?
Kana uine hemophilia A kana B uye une makore anopfuura 12 ekuberekwa, chiremba wako anogona kufunga kana mushonga uyu wakakunakira. Chinhu chakakosha ndechekuti unogona kushandiswawo kune vanhu vane mishonga inodzivirira (resistance) kubva ku previous factor therapy. Zvisinei, usati watanga kurapwa uku, chiremba wako achaita bvunzo dzeropa dzinoverengeka. 1. Antithrombin level: Izvi zvinoyera huwandu hwe antithrombin muropa rako. Dose yeQfitlia inoonekwa zvichienderana nehukuru uhwu. 2. Kushanda kwechiropa: Chiropa chako chinotariswa usati watanga uye panguva yekurapwa. Mushonga uyu unopihwa sejekiseni pasi peganda (subcutaneously). Izvi zvinoreva kuti haupihwe mutsinga. Iwe kana muchengeti unogona kukupa kumba mushure mekudzidziswa. Unopihwa muganda remudumbu, chidya, kana kumashure kweruoko rwepamusoro. Unofanira kudzivirira nzvimbo dzine mavanga kana mavanga. Kana uri kutotora mimwe mishonga ye hemophilia, ungangoda kumira kana kuchinja mishonga iyoyo mushure mekutanga Qfitlia. Chiremba wako achakutsanangurira izvi zvakajeka. Usamborega kutora mishonga yauri kushandisa kana kurega kutora Qfitlia usina kurairwa nachiremba wako. Kuita izvi kunogona kuwedzera njodzi yekubuda ropa.Tinofanirawo kuziva nezvemigumisiro yacho here? Tingaidzivirira sei?
Kufanana nemishonga yese, Qfitlia inogona kuva nemigumisiro. Zvakakosha kuziva nezvazvo uye kutora matanho ekudzivirira.- Kugwamba Kweropa : Nekuti mushonga uyu unokurudzira kugwamba kweropa, hazviwanzoitiki kuti magwamba eropa aite mutsinga. Chiremba wako ndiye achasarudza mwero wakakodzera wehuwandu hwe antithrombin yako kuti aderedze njodzi iyi.
- Maenzymes echiropa akakwira: Vamwe vanhu vanogona kunge vaine maenzymes echiropa akakwira. Ndosaka vanachiremba vachigara vachiongorora mamiriro echiropa nekuongororwa ropa .
- Matombo eGallbladder uye Kuzvimba kweGallbladder: Kana ukasangana nezviratidzo zvakaita sekurwadziwa mudumbu zvakanyanya, kuda kurutsa, uye kurutsa , zivisa chiremba wako nekukasika.
- Utachiona: Pane mukana mudiki wekutapukirwa panzvimbo yekubaiwa jekiseni. Saka, zvakakosha kugara uchibaya jekiseni zvakanaka uye sezvakarairwa nachiremba wako. Tsika dzakanaka dzehutsanana, dzakadai sekugeza maoko nguva nenguva, dzakakoshawo.
Mharidzo Yekuenda Nayo Kumba
- Qfitlia (fitusiran) mushonga mutsva wehemophilia A neB unoshanda nenzira yakasiyana.
- Izvi zvinoshanda nekuderedza huwandu hwe antithrombin, iyo inodzivirira kugwinha kweropa, pachinzvimbo chekupa muviri simba rekugwinha ropa shoma kunze.
- Mushonga uyu ijekiseni pasi peganda, kwete mutsinga, uye unowanzopihwa kashoma, senge kamwe chete pamwedzi kana mwedzi miviri yega yega.
- Chiremba wako ndiye achaona kana kurapwa uku kwakakunakira mushure mekuongororwa ropa kakawanda.
- Kuti udzivise migumisiro yakaipa, zvakakosha kuti uongororwe ropa (kunyanya antithrombin uye kushanda kwechiropa) nguva nenguva sezvakarairwa nachiremba wako.
- Dzivisai kurega kurapwa neQfitlia musina kupiwa mazano nachiremba chero chikonzero chipi zvacho.
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